Congress Reauthorizes PCORI for 10 YearsPIPC and members of Friends of PCORI Reauthorization applauded Congress for extending funding for the Patient-Centered Outcomes Research Institute (PCORI) for an additional ten years. PIPC Chairman and Friends of PCORI Reauthorization co-chair Tony Coelho stated, "I am pleased that Congress responded to the strong support of 200 plus stakeholder organizations for a long-term reauthorization of PCORI’s patient-centered mission. The next 10 years of PCORI is an opportunity to drive an efficient and informed health system that is truly patient-centered and responsive to the individual characteristics, needs and priorities of patients and people with disabilities." Click here to view the full press release.
|
Driving Accountability for Value in Medicine: Leveraging PCORI through ReauthorizationPatients and persons with disabilities are increasingly concerned about whether they can afford the tests and treatments they need. As stated by the Partnership to Improve Patient Care (PIPC) in 2010, comparative effectiveness research can form the foundation for meeting “the critically important challenge of controlling health care costs while avoiding oversimplified rationing of patient care.” Now more than ever, we need solutions that are both evidence-based and patient-centered.
The Patient-Centered Outcomes Research Institute (PCORI) offers important infrastructure to meet this challenge. With key reforms included with its FY2019 reauthorization, PCORI’s work can be focused to ensure its research is timely and responsive to the needs of those making decisions about new drugs and other treatment options, and that its research findings are more readily available to decision-makers. |

pcori_solution_3__002_.pdf.pdf | |
File Size: | 99 kb |
File Type: |
Primer: PCORI Background, Funding Streams, and Reauthorization The Patient-Centered Outcomes Research Institute (PCORI) was created in 2010 to establish priorities and set an agenda for the conduct of comparative clinical effectiveness research (CER). The Government Accountability Office (GAO) concluded in a March 2015 report that PCORI is fulfilling its Congressional mandate to generate evidence that patients and those who care for them can use to make better-informed healthcare decisions. PCORI invested nearly $1.4 billion in more than 500 patient-centered CER studies and related projects that support CER to date.
Click here to read more about PCORI, including why the institute matters, how it's funded, and reauthorization in 2019. For more information and fact sheets about PCORI-funded research, click here. |
Principles of Patient-Centeredness in ResearchIn order to put patients and providers first, comparative clinical effectiveness research must:
|
PCORI Contracts by State |
To learn more about PCORI's work, the research they fund, and their programs and initiatives, click here.
PIPC and Families USA RoundtableOn June 19, 2014, PIPC and Families USA co-hosted a roundtable discussion on “Accountability for Patient Engagement in Research and Dissemination.” The purpose was to move beyond a discussion of the points of engagement, and focus on who is accountable for patient engagement, and what makes engagement meaningful. It was noted, and agreed by participants, that a goal of patient engagement is real patient empowerment and activation in their health care. A focus of the discussion was implementation of the Patient-Centered Outcomes Research Institute (PCORI), which is creating a precedent for patient engagement practices in research that could be modeled by other entities.
|