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  • Home
  • About
    • Mission and Priorities
    • Meet the Chairman
    • Steering Committee
    • PIPC Member List
    • Contact
  • The Issues
    • Value Our Health
    • International
    • Where We Stand
    • Value Assessment Frameworks
    • Engaging Patients in Value-Based Payment
    • Patient-Centeredness in Research
  • Resources
    • Advocacy
    • Letters and Comments
    • PCORI Meeting Transcripts
    • Polling
    • Roundtables
    • White Papers
  • Blog
    • PIPC Patients' Blog
    • Chairman's Corner
    • PIPC Weekly Update
    • The Data Mine
  • Newsroom
    • PIPC in the News
    • Press Releases
    • Open Letter: We Deserve a Voice
  • Events
    • PIPC Forum 2022
    • Discrimination & Health Care
    • C & GT Webinar
    • ICER COVID Webinar
    • Value Our Health Briefing
    • QALY Briefing
    • QALY Panel
    • Past Webinars >
      • ICER SCD Webinar
      • VOH Sickle Cell Webinar
      • Rare Disease Webinar
      • QALY Webinar
      • PCORI Advocacy Webinar
      • APM Webinar
      • Patient Empowerment Webinar
      • Value Assessments Briefing
    • Past PIPC Forums >
      • 2021
      • 2020
      • 2019
      • 2018
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      • 2011
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Value Our Health Sickle Cell Webinar

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The ICER Draft Evidence Report on Sickle Cell Disease: An Overview, Next Steps, and Expectations. 

On Jan. 30, 2020 leading sickle cell disease groups and the Partnership to Improve Patient Care (PIPC) held a webinar entitled "The ICER Draft Evidence Report on Sickle Cell Disease: An Overview, Next Steps and Expectations." Interested stakeholders, patients, advocates, caregivers and families received an update on the progress of the ICER assessment to-date.

​ICER’s draft evidence report on sickle cell disease was just released on January 23, and the webinar reviewed the contents of the report and provide guidance and information for advocates who may want to provide comments on the report. The presentation also provided information from patient stakeholders on next steps leading up to the ICER in-person meeting on March 26, 2020 and subsequent final report.
voh_sickle_cell_discussion__jan_30_.pdf
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