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PIPC Joins Over 80 Organizations Urging HHS Civil Rights Office to Ban QALYs Across Federal Programs

10/3/2022

PIPC joined over 80 organizations in signing a letter to the HHS Office for Civil Rights commenting on the proposed rule implementing Section 1557 of the Affordable Care Act. The groups support a comprehensive proposed rule seeking to strengthen civil rights protections in federally funded health programs and HHS programs and agreed that the ability to access needed health care fully and free from discrimination is critical and requires action to support and strengthen existing nondiscrimination laws.

PIPC Submits Feedback to E&C GOP on Disability Policies for the 21st Century

9/27/2022

In a letter to House Energy and Commerce (E&C) Committee Ranking Member Cathy McMorris Rodgers (R-WA), the Partnership to Improve Patient Care (PIPC) provided feedback on the Republicans' request for information (RFI) entitled "Disability Policies for the 21st Century: Building Opportunities for Work and Inclusion."

PIPC Submits Comments on ICER's Assessment of Obesity Management Treatments

8/10/2022

In a letter to the Institute for Clinical and Economic Review (ICER), the Partnership to Improve Patient Care (PIPC) provided feedback on ICER's assessment of treatments for obesity management.

Over 40 Leading Patient & Disability Groups Call on Congress to Ensure Drug Price Negotiations Don't Discriminate

8/4/2022

More than 40 leading groups representing patients, people with disabilities, and older Americans joined the Partnership to Improve Patient Care (PIPC) in sending a letter to Congressional Democratic leadership to ensure HHS factors in the concerns of patients and other affected stakeholders in any drug price negotiation policy.

PIPC Submits Comments on ICER's Assessment of ALS Treatments

7/13/2022

In a letter to the Institute for Clinical and Economic Review (ICER), the Partnership to Improve Patient Care (PIPC) submitted feedback on ICER's assessment of treatments for amyotrophic lateral sclerosis (ALS).

PIPC Submits Comments on ICER Draft Evidence Report for Beta Thalessemia Treatments

5/11/2022

In a letter to the Institute for Clinical and Economic Review (ICER), the Partnership to Improve Patient Care (PIPC) submitted comments on ICER's draft evidence report on treatments for beta thalessemia.

PIPC to MedPAC: Avoid Use of QALY in Medicare Coverage Policy

5/6/2022

In a letter to the Medicare Payment Advisory Commission (MedPAC), the Partnership to Improve Patient Care (PIPC) urged the commission to avoid reliance on discriminatory value assessment metrics as the basis for Medicare coverage policy. PIPC’s concerns stem from comments by MedPAC commissioners during the April 2022 public meeting where metrics of clinical and cost effectiveness were discussed, particularly the quality-adjusted-life-years (QALY) metric.

PIPC Joins Over 60 Organizations Urging CMS to Reject QALY's in OR Waiver Renewal Application

4/14/2022

The Partnership to Improve Patient Care (PIPC), along with 62 leading advocacy groups representing patients and people with disabilities, submitted a comment letter to the Centers for Medicare and Medicaid Services (CMS) on Oregon's 1115(a) Demonstration Waiver renewable application.

PCORI Meeting: March 8, 2022 -- Board of Governors Meeting

4/8/2022

03-08-22_pcori.pdf
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PIPC Submits Comments on ICER Assessment of COVID-19 Treatments

3/7/2022

In a letter to the Institute for Clinical and Economic Review (ICER), the Partnership to Improve Patient Care (PIPC) offered feedback on ICER's assessment of treatments for COVID-19. PIPC expressed disappointment in ICER's model for failing to capture both the full societal benefits of COVID-19 treatments, as well as the impact these treatments have on health equity. The letter also criticizes ICER's decision to rely on the discriminatory quality-adjusted-life-years (QALY) metric.

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