Become a Patient Advocate
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Tell Senator Casey: Don't Let Medicare Get Between Patients and DoctorsPIPC strongly urges patients, people with disabilities, caregivers and providers to write letters to Congress to express concerns with CMS’ newly proposed payment model. We strongly support comparative effectiveness research as a tool for patients to better understand their treatment options and the impact on outcomes they care about so that they can make informed decisions with their providers. However, proposals that set national coverage policies based on bureaucratic determinations of average value pose a grave risk to patients, and especially people with disabilities who are most disadvantaged by average value assessments.
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Op-Ed: Holding Health Systems Accountable for Patient ValueIn a recent op-ed published in the Philadelphia Enquirer, John Doe, a cancer survivor and self-advocate, encouraged Senators Bob Casey and Pat Toomey to advocate for giving patients a seat at the table in the development of new payment systems that could impact patient care. "Nowhere in this 'value' discussion do we see an honest consideration of the real-world impact these proposals would have on the individual patient or the person with a disability for whom an innovation may have significant value," he said. "Never has it been more important for our elected officials to stand up and demand that the patient voice be included at the forefront of policy development."
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Patient Advocacy Resources in Pennsylvania
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Epilepsy Foundation |
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National Alliance on Mental IllnessNAMI is currently in the process of rebuilding a NAMI State Organization in Pennsylvania. If you would like to be involved with this process, please contact the national office at [email protected].
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Easter SealsEaster Seals Southeastern Pennsylvania
3975 Conshohocken Avenue Philadelphia, PA 19131 Main Number: 215-879-1000 |
