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PIPC has submitted another correspondence to the Minnesota PDAB urging the board to pause its work and work with patients and people with disabilities to make sure they are put first when it comes to decisions that impact treatment affordability.
PIPC submitted a letter to Michigan lawmakers in response to a provision within SB 857 to fund policies that would import discriminatory QALYs from other countries by way of "Most Favored Nation" agreements.
The Louisiana legislature was contacted by PIPC and others requesting the state avoid policies such as proposed in SB 401 that would devalue disabled lives by referencing measures such as the Quality-Adjusted Life Year (QALY) that have detrimental implications for access to needed care and treatment. As drafted, SB 401 would reference drug prices in other countries, thereby importing their use of QALYs and similar measures to value treatments, an algorithm that devalues the patients and people with disabilities that stand to most benefit from innovation. PIPC encourages the Louisiana legislature to pause its consideration of this legislation and to consider alternative strategies that are focused on improving affordable access to care for people with disabilities and serious chronic conditions. Read PIPC's and COGI's comments below.
PIPC submitted a letter to a pair of State Senators in Virginia voicing continued concern about SB 271 due to the bill’s discriminatory implications for people with disabilities and patients with chronic conditions.
PIPC and more than 100 organizations representing patients, people with disabilities, and older adults submitted a letter to the Center for Medicare and Medicaid Innovation (CMMI) regarding the use of the GLOBE and GUARD models proposed as payment models for CMMI that would import QALYs and similar measures as used in other countries.
PIPC shared the concerns of patients and people with disabilities related to efforts in Virginia to establish a Prescription Drug Affordability Board (PDAB) with the Virginia Subcommittee on Health and Human Resources in a letter to the sponsors of bills that would devalue patients, people with disabilities, and older adults.
PIPC recently submitted a letter to the sponsors of legislation (HB 483/SB 271) in Virginia that would allow the use of discriminatory "value" assessment metrics like the quality-adjusted-life-years (QALY) in health care coverage decisions.
As Florida’s legislative session gets underway, lawmakers there are considering tying prescription drug prices in the state to those in other countries that rely on quality-adjusted life years (QALYs) to value health services and treatments.
The Partnership to Improve Patient Care (PIPC) recently submitted a letter to the Minnesota Prescription Drug Affordability Board (PDAB) to share concerns of patients and people with disabilities related to the PDAB’s potential use of cost effectiveness analyses.
Since passage of the Inflation Reduction Act, PIPC has worked collaboratively with organizations representing patients and people with disabilities to amplify the perspectives of those with lived experience in the implementation of the Medicare Drug Price Negotiation Program.
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