Partnership to Improve Patient Care

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  • Home
  • About
    • Mission and Priorities
    • Meet the Chairman
    • Steering Committee
    • PIPC Member List
    • Contact
  • The Issues
    • Action Center
    • Value Our Health
    • International
    • Where We Stand
    • Value Assessment Frameworks
    • Engaging Patients in Value-Based Payment
    • Patient-Centeredness in Research
  • Resources
    • Advocacy
    • Letters and Comments
    • PCORI Meeting Transcripts
    • Polling
    • Roundtables
    • White Papers
  • News
    • Press Releases
    • PIPC in the News
    • PIPC Weekly Update
    • PIPC Patients' Blog
    • Chairman's Corner
    • The Data Mine
  • Events
    • MFN/IPI Webinar 2025
    • QALY Panel
    • QALY Briefing
    • Past Webinars >
      • Discrimination & Health Care
      • C & GT Webinar
      • ICER COVID Webinar
      • Value Our Health Briefing
      • ICER SCD Webinar
      • VOH Sickle Cell Webinar
      • Rare Disease Webinar
      • QALY Webinar
      • PCORI Advocacy Webinar
      • APM Webinar
      • Patient Empowerment Webinar
      • Value Assessments Briefing
    • Past PIPC Forums >
      • 2023
      • 2022
      • 2021
      • 2020
      • 2019
      • 2018
      • 2017
      • 2016
      • 2015
      • 2014
      • 2013
      • 2012
      • 2011
      • 2010

Resource Center

Recommendations for Enhancing Patient Engagement Strategies

6/6/2024

 
​For over a decade, the Partnership to Improve Patient Care (PIPC) has championed centering health care on patients and people with disabilities. In this literature review, we offer the Centers for Medicare & Medicaid Services (CMS) recommendations to create a systematic engagement process that goes beyond written comment periods and ad hoc listening sessions. 

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White Paper: The Use of Patient-Centered Outcomes in ICER Assessments

7/25/2023

 
Image of the Avalere/PIPC white paper cover page for the Use of Patient Centered Outcomes in ICER Assessments
US healthcare stakeholders are increasingly expected to define the value of technology and services provided. This is especially applicable to health technology manufacturers who are responsible for demonstrating the value of their treatments to payers, providers, patients, policymakers, and other stakeholders.​

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Survey of Patient Perspectives Related to “Unmet Need”

6/21/2023

 
Defining Unmet Medical Need in the Inflation Reduction Act for the Maximum Fair Price: Reflecting Patient Input
​The Partnership to Fight Chronic Disease led a survey of patients related to “unmet need” and joined with other organizations including PIPC to provide insights and recommendations related to the implementation of the Inflation Reduction Act provisions and Medicare Drug Price Negotiation. 

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Medicare Drug Price Negotiation Program: PIPC Recommendations for a Process Centered on Patients and People with Disabilities

3/15/2023

 
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PIPC has provided the Medicare Drug Negotiation Program with recommendations for a process centered on patients and people with disabilities. These recommendations may be useful references for consideration in response to the agency’s initial guidance, particularly related to the factors outlined for consideration in statute. 

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The German Health Care System and its Impact on Patient Access – Lessons for the U.S.

12/12/2022

 
Since its inception over a decade ago, PIPC has focused on infusing patient-centricity in our health care system. We have been highly focused on patient-centered solutions for evidence-based decision-making, including advocating for the development of high-quality patient reported outcomes data and development of high quality patient-centered comparative clinical effective research, as well as opposing reliance on one-size fits all cost-effectiveness thresholds. Our goal is for high-quality patient-centered data to equip and empower patients and people with disabilities to make decisions, with their providers, about the care and treatment best to address their individual needs.

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Aligning Health Technology Assessment with Efforts to Advance Health Equity

11/4/2022

 
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The Partnership to Improve Patient Care (PIPC),  Global Liver Institute, National Minority Quality Forum, and the Preparedness & Treatment Equity Coalition have published a new report (executive summary) to assist ​organizations, health systems, payers, and policymakers that want to center their value assessment work on health equity.


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PIPC White Paper: Targeted Literature Review on Patient-Centered Cost Outcomes

11/16/2020

 
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​In September 2020, the Board of Governors for the Patient-Centered Outcomes Research Institute (PCORI) approved the proposed Principles for the Consideration of the Full Range of Outcomes Data for public comment. The goal of these principles is to outline PCORI’s compliance with its reauthorization legislation, which states that, in addition to clinical outcomes, research should also endeavor to capture patient-important outcomes that assess the economic burden of treatments and services. 

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Issue Brief: Traditional Value Assessment Methods Fail Communities of Color and Exacerbate Health Inequities

9/28/2020

 
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As healthcare costs in the United States have continued to grow, there has been an increasing desire to move towards “value-based” care in which patients and payers would be paying for the “value” of the treatment patients receive. This idea has been gaining particular momentum as policymakers look for strategies to curtail spending on pharmaceuticals. While there is merit in paying for services and treatments that work and eliminating wasteful spending, it is important to step back and consider to whom “value” is being provided. As the ultimate beneficiary, we would advocate that the measure of “value” in a healthcare setting should focus on value to the patient, but currently, we are concerned that the trend is to look towards “value” to the payer by prioritizing reduced cost over care outcomes for patients in the form of cost-effectiveness analyses. 


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White Paper: Value for Whom? Incorporating Patient Perspectives into Value Assessment for Novel Cell and Gene Therapies

9/21/2020

 
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​Cell and gene therapies (C&GTs) are revolutionary advancements that offer potentially life-altering therapies – and in some cases even cures – for patients with rare and severe diseases. Around the globe, various health technology assessment (HTA) and value assessment organizations are attempting to estimate the health and economic value of new C&GTs to better inform healthcare decision making. These organizations most commonly employ cost-effectiveness analysis (CEA), which seeks to determine whether the costs of a given therapy are justified by its benefits; that is, whether it is a “good buy.”


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Responding to Stakeholder Input: Finding the Patient Voice in ICER's Value Assessments

10/1/2018

 
PIPC has partnered with Xcenda to quantify the extent to which ICER incorporates stakeholder input in its final assessments, particularly patients.  Upon review of submitted comments, and comparing those comments to ICER’s final value assessments, Xcenda was able to quantify that patient perspectives were half as likely to be incorporated than other stakeholders. The report published today by PIPC bolsters their argument that ICER needs to take steps to improve not only its process for engagement, but also its consideration of input received from patients. 

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