On Monday, June 10, 2013, the Partnership to Improve Patient Care (PIPC) and the American Association of People with Disabilities (AAPD) convened a roundtable representing people with disabilities in an effort to provide PCORI with consensus recommendations to develop research contracts beneficial to the disability community. PCORI researchers were present to outline the parameters for the research projects that PCORI can fund, as well as the process for working with PCORI
As a result of this roundtable conversation, the participants concluded that they want to continue working with PCORI in several ways. The participants in the roundtable endorse a number of topics for consideration for targeted PCORI funding announcements, including: integrated care coordination, barriers to access to care, and technology enabled supports. Participants also expressed intention to collaborate with PCORI in the future in order to participate in the Pipeline to Proposals, while seeking clarification on how PCORI will seek input for intermediate funders to manage engagement contracts. Further, the roundtable participants conveyed the significant challenges surrounding the development of data related to people with disabilities, and want to work with PCORI to address those needs. Lastly, the roundtable recommended that PCORI develop protocols for the dissemination of research findings in consultation with organizations and individuals representing people with disabilities.
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