The Partnership to Improve Patient Care (PIPC) and the Cancer Support Community (CSC) convened a roundtable on July 8, 2015 on “Patient-Driven Health Care and Evidence in Oncology: Setting an Agenda.” The roundtable participants represented patient organizations serving cancer patients, as well as a representative from the Patient-Centered Outcomes Research Institute (PCORI). Roundtable participants discussed the outcomes that matter to oncology patients and policies that would support high-quality, patient-driven cancer care.
As a result of the roundtable, the group developed consensus around a series of recommendations for policymakers, researchers and payers. The summary below refers to policymakers in the context of those working in federal government to influence health care policies, Members of Congress and their staff, agencies within the Department of Health and Human Services (HHS), particularly the Centers for Medicare and Medicaid Services (CMS), entities acting in an advisory capacity such as the National Quality Forum (NQF), and contractors hired to implement health care programs, particularly payers contracting with CMS as alternative payment models (APMs).
The roundtable served as a call to action for patient organizations to determine a guiding set of principles for the cancer patient communities that they represent, reflecting their priorities for public policy as the healthcare system shifts away from a fee-for-service (FFS) model to APMs that reward providers based on their ability to achieve “value.” It was agreed that the calculus used by some organizations to define “value” does not necessarily represent value to a patient. Therefore, it is vital for patients to come together around a core set of policy recommendations that will better achieve outcomes that matter to patients.
A summary of the roundtable, including recommendations from the panel, is included below.
The roundtable served as a call to action for patient organizations to determine a guiding set of principles for the cancer patient communities that they represent, reflecting their priorities for public policy as the healthcare system shifts away from a fee-for-service (FFS) model to APMs that reward providers based on their ability to achieve “value.” It was agreed that the calculus used by some organizations to define “value” does not necessarily represent value to a patient. Therefore, it is vital for patients to come together around a core set of policy recommendations that will better achieve outcomes that matter to patients.
A summary of the roundtable, including recommendations from the panel, is included below.
| pipc_csc_oncology_roundtable_summary_and_recommendations.pdf |