- Patient Partnership. Patients should be involved in every step of the value model development and dissemination process.
- Transparency to Patients. The assumptions and inputs into the value model itself – and each step in the process – should be disclosed to patients in an understandable way and in a timely fashion.
- Inclusiveness of Patients. The value model should reflect perspectives drawn from a broad range of stakeholders, including the patient community.
- Diversity of Patients/Populations. The value model should account for differences across patient subpopulations, trajectory of disease, and stage of a patient’s life.
- Outcomes Patients Care About. The outcomes integrated into the value model should include those that patients have identified as important and consistent with their goals, aspirations, and experiences.
- Patient-Centered Data Sources. The value model should rely on a variety of credible data sources that allow for timely incorporation of new information and account for the diversity of patient populations and patient-centered outcomes, especially those from real-world settings and reported by patients directly. The data sources included should reflect the outcomes most important to patients and capture their experiences to the extent possible.
Private payers are already relying on one-size-fits-all assessments of value, often making it difficult for patients to access the care they want and need. Therefore, PIPC and its partners support the use of the National Health Council’s (NHC) Patient-Centered Value Model Rubric by developers of value assessments to mitigate the existing shortcomings of value assessments and tools. The NHC’s rubric already provides a guide to evaluate the patient-centeredness of value models and to gude value model developers on the meaningful incorporation of patient engagement throughout their processes
The rubric outlines the domains that must exist for a value framework to be patient-centered: