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  • Home
  • About
    • Mission and Priorities
    • Meet the Chairman
    • Steering Committee
    • PIPC Member List
    • Contact
  • The Issues
    • Action Center
    • Value Our Health
    • International
    • Where We Stand
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  • Events
    • Nevada AB 259
    • QALY Panel
    • QALY Briefing
    • Past Webinars >
      • MFN/IPI Webinar 2025
      • Discrimination & Health Care
      • C & GT Webinar
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      • VOH Sickle Cell Webinar
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Resource Center

PIPC Joins Over 1800 Researchers, Organizations and Individuals Opposing NIMHD Exclusion of People with Disabilities

9/12/2023

 
Picture
On September 8, 2023, PIPC joined more than 1800 researchers, organizations and individuals in expressing opposition to the NIMHD Advisory Committee's decision to reject a recommendation to add people with disabilities as a health disparity population. 
​The NIMHD Advisory Committee did not include people with disabilities. Additionally, several people have weighed in about exponential health equity barriers that disabled people from intersecting marginalized groups face - including people of color, people from the LBGTQ+ community, people who live in rural areas, and people who have low incomes. The 2 letters urged the administration to advance a swift course correction on this issue and move to designate people with disabilities as a health disparity population. 

Since the letter, the National Institutes of Health (NIH) officially decided to include people with disabilities as a health disparities population. The decision reflects years of advocacy and follows the recommendations of a subgroup of advisors to the NIH director that included people with disabilities and experts in disability-focused research. It means that people with disabilities will be included in NIH funding and programs focused on addressing health disparities, thereby also increasing the representation of researchers with disabilities and improving inclusion of people with disabilities in research studies. This important step will serve to address the exponential health equity barriers that disabled people from intersecting marginalized groups face - including people of color, people from the LBGTQ+ community, people who live in rural areas, and people who have low incomes. 
 
In addition to this announcement, the NIH also issued a notice of funding opportunity calling for research applications focused on novel and innovative approaches and interventions that address the intersecting impact of disability, race and ethnicity, and socioeconomic status on healthcare access and health outcomes. 
nimhd_sign_on_letter_for_the_research_community_9.14.23.pdf
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