In a comment letter to the Patient-Centered Outcomes Research Institute (PCORI), the Partnership to Improve Patient Care (PIPC) offered feedback on PCORI's Proposed National Priorities for Health.
The letter encourages PCORI work closely with stakeholders in identifying the topics to be prioritized within each broad area, the research agenda for each topic, and the outcomes data to be collected and analyzed as part of the research. PIPC also reiterated its strong support for PCORI’s mandate of conducting research on the comparative clinical effectiveness of medical treatments and services, as well as the statutory prohibition against cost- effectiveness analysis.
"We look forward to the next era of PCORI’s work as the institute standardizes the methods for collecting and analyzing outcomes data, including cost and economic data, thereby building the evidence base reflecting outcomes that matter to patients, including their preferences and priorities, and capturing the heterogeneity among patient subpopulations within the evidence," wrote PIPC Chairman Tony Coelho. "As you implement these new priorities, we hope you will consider our insights and recommendations on how PCORI can best translate its priorities into an agenda that meaningfully improves health care decision-making, advances health equity, and supports personalized and precision medicine."
"We look forward to the next era of PCORI’s work as the institute standardizes the methods for collecting and analyzing outcomes data, including cost and economic data, thereby building the evidence base reflecting outcomes that matter to patients, including their preferences and priorities, and capturing the heterogeneity among patient subpopulations within the evidence," wrote PIPC Chairman Tony Coelho. "As you implement these new priorities, we hope you will consider our insights and recommendations on how PCORI can best translate its priorities into an agenda that meaningfully improves health care decision-making, advances health equity, and supports personalized and precision medicine."
| pipc_pcori_comments_priorities_2021_final.pdf |
