Today, PIPC Chairman Tony Coelho issued the following statement of support for H.R. 485, The Protecting Health Care for All Patients Act.

— Patient and Disability Advocates Support H.R. 485 Extending Medicare’s Ban on QALYs and Similar Measures. See details below.
— DOJ Enforces ADA to Ensure People with SUD Access Hepatitis C Medications. See details below.
— PIPC Responds to Cassidy RFI on Access to Cell and Gene Therapies. Click here to read the letter.
— PIPC Submits Comments on PCORI's Patient-Centered Economic Outcomes Landscape for Considering the Full Range of Outcomes. Click here to read the letter.
— AHRQ and PCORI Invest in Learning Health Systems Scientist Training. Click here to read the blog.
— PCORI Engagement Awards Now Open for LOI Submission. Click here for additional details on the upcoming engagement awards.
— Ban Quality-Adjusted Life-Years in Oregon. Click here to sign the petition. 
— PCORI Seeks Nominations for Advisory Panels. Click here to learn more, to apply to serve on an advisory panel, or submit a nomination.
— Emerging Threats in States for Use of Discriminatory Metrics. See details below.
— What Happens in Countries Using QALYs and Cost-Based Thresholds? See details below.
— ICER's QALY-Based Study Topics. See details below.
— Upcoming Events and Webinars. See details below.
— AHRQ Effective Program Updates. See details below.

In this week's edition...
 
— PIPC Submits Comments on PCORI's Patient-Centered Economic Outcomes Landscape for Considering the Full Range of Outcomes. Click here to read the letter.
— Due Today! Cassidy Requests Information on Improving Access to Gene Therapies. See details below.
— PIPC Comments on Adding a Patient Representative on P&T Committees. Click here to read the letter.
— Senate HELP Committee to Discuss Importing Value Assessments from Other Countries. See details below.
— PIPC Submits Comments on ICER Assessment of PNH Treatments. Click here to read the letter.
— PCORI Engagement Awards Now Open for LOI Submission. Click here for additional details on the upcoming engagement awards.
— Ban Quality-Adjusted Life-Years in Oregon. Click here to sign the petition. 
— PCORI Seeks Nominations for Advisory Panels. Click here to learn more, to apply to serve on an advisory panel, or submit a nomination.
— Emerging Threats in States for Use of Discriminatory Metrics. See details below.
— What Happens in Countries Using QALYs and Cost-Based Thresholds? See details below
— ICER's QALY-Based Study Topics. See details below.
— Upcoming Events and Webinars. See details below.
— AHRQ Effective Program Updates. See details below.

In this week's edition...
 
— Senate HELP Committee to Discuss Importing Value Assessments from Other Countries. See details below.
— Impact of Healthcare Algorithms on Racial and Ethnic Disparities in Health and Healthcare. Click here to view the AHRQ systematic review.
— PIPC Submits Comments on ICER Assessment of PNH Treatments. Click here to read the letter.
— PIPC Comments on Adding a Patient Representative on P&T Committees. Click here to read the letter.
— Due TODAY! Patient-Centered Economic Outcomes Landscape (2023-2024): Request for Public Input. See details below.
— Cassidy Requests Information on Improving Access to Gene Therapies. See details below.
— Ban Quality-Adjusted Life-Years in Oregon. Click here to sign the petition. 
— PCORI Seeks Nominations for Advisory Panels. Click here to learn more, to apply to serve on an advisory panel, or submit a nomination.
— Emerging Threats in States for Use of Discriminatory Metrics. See details below.
— What Happens in Countries Using QALYs and Cost-Based Thresholds? See details below.
— ICER's QALY-Based Study Topics. See details below.
— Upcoming Events and Webinars. See details below.
— AHRQ Effective Program Updates. See details below.

— PIPC Submits Comments on ICER Assessment of Schizophrenia Treatment. Click here to read the letter.
— Deadline TODAY to Comment on Notice of Benefits and Payment Parameters for 2025! Click here to view the proposed rule and comment.
— Recapping #PIPCForum2023. See details below.
— Patient-Centered Economic Outcomes Landscape (2023-2024): Request for Public Input. See details below.
— Cassidy Requests Information on Improving Access to Gene Therapies. See details below.
— Ban Quality-Adjusted Life-Years in Oregon. Click here to sign the petition. 
— PCORI Seeks Nominations for Advisory Panels. Click here to learn more, to apply to serve on an advisory panel, or submit a nomination.
— Emerging Threats in States for Use of Discriminatory Metrics. See details below.
— What Happens in Countries Using QALYs and Cost-Based Thresholds? See details below.
— ICER's QALY-Based Study Topics. See details below.
— Upcoming Events and Webinars. See details below.
— AHRQ Effective Program Updates. See details below.

In this week's edition...
 
— Recapping #PIPCForum2023. See details below.
— Patient-Centered Economic Outcomes Landscape (2023-2024): Request for Public Input. See details below.
— Patients Suffer When We Don't Evaluate Prescription Drug Costs and Benefits Honestly. Click here to read the column.
— A Roadmap for Accelerating Research in Intellectual and Developmental Disabilities Using PCORnet. Click here to read the report.
— Cassidy Requests Information on Improving Access to Gene Therapies. See details below.
— Ban Quality-Adjusted Life-Years in Oregon. Click here to sign the petition. 
— PCORI Seeks Nominations for Advisory Panels. Click here to learn more, to apply to serve on an advisory panel, or submit a nomination.
— Emerging Threats in States for Use of Discriminatory Metrics. See details below.
— What Happens in Countries Using QALYs and Cost-Based Thresholds? See details below.
— ICER's QALY-Based Study Topics. See details below.
— Upcoming Events and Webinars. See details below.
— AHRQ Effective Program Updates. See details below.