Blog Archives

Chairman's Corner: A look at the Use of Patient-Centered Outcomes in Value Assessment

7/25/2023

The Partnership to Improve Patient Care (PIPC) has long expressed frustration with value assessments of health care that fail to incorporate outcomes that matter to patients into their conclusions about what care may be worth. We commissioned Avalere to do a deep dive to better understand how the Institute for Clinical and Economic Review (ICER) integrates patient input and preferences in its value assessments.

PIPC Weekly Update: July 24, 2023

7/24/2023

In this week's edition...

— Chairman's Corner: I introduced the ADA 35 years ago. Now Congress needs to act to ban a practice that devalues disabled lives. Click here to read the op-ed.
— PIPC Statement on Drug Negotiation Guidance. See details below.
— Over 75 Leading Patient Groups Join PIPC Comment Letter on ICER 2024 Value Assessment Framework. Click here to read the letter.
— PCORI Opens Applications for October 2023 Funding Announcements. See details below.
— Follow PIPC on LinkedIn! Click here to view the page.
— Emerging Threats in States for Use of Discriminatory Metrics. See details below.
— What Happens in Countries Using QALYs and Cost-Based Thresholds? See details below.
— ICER's QALY-Based Study Topics. See details below.
— Upcoming Events and Webinars. See details below.
— AHRQ Effective Program Updates. See details below.
— Job Openings. See details below.

Chairman's Corner: I introduced the ADA 35 years ago. Now Congress needs to act to ban a practice that devalues disabled lives

7/20/2023

Thirty-five years ago, I was proud to introduce the Americans with Disabilities Act in the House of Representatives, because I know firsthand what it is like to be devalued due to a disability — by society, potential employers, even my parents and my church. My epilepsy came with the added stigma of old Catholic doctrine that I must be possessed.

PIPC Weekly Update: July 17, 2023

7/17/2023

In this week's edition...

— Over 75 Leading Patient Groups Join PIPC Comment Letter on ICER 2024 Value Assessment Framework. Click here to read the letter.
— PIPC Statement on Drug Negotiation Guidance. See details below.
— PIPC Submits Comments on FDA Guidance on Patient-Focused Drug Development. Click here to read the letter.
— With Guidance from the Field, AHRQ Launches an Ambitious Strategy for Patient-Centered Outcomes Research. Click here to read the blog.
— Follow PIPC on LinkedIn! Click here to view the page.
— Emerging Threats in States for Use of Discriminatory Metrics. See details below.
— What Happens in Countries Using QALYs and Cost-Based Thresholds? See details below.
— ICER's QALY-Based Study Topics. See details below.
— Upcoming Events and Webinars. See details below.
— AHRQ Effective Program Updates. See details below.
— Job Openings. See details below.

PIPC Weekly Update: July 10, 2023

7/13/2023

In this week's edition...

— PIPC Statement on Drug Negotiation Guidance. See details below.
— Over 75 Leading Patient Groups Join PIPC Comment Letter on ICER 2024 Value Assessment Framework. Click here to read the letter.
— PIPC Submits Comments on FDA Guidance on Patient-Focused Drug Development. Click here to read the letter.
— Doing Research Differently: The Unique Value of Engagement in PCORI-Funded Research. Click here to read the blog.
— Follow PIPC on LinkedIn! Click here to view the page.
— Emerging Threats in States for Use of Discriminatory Metrics. See details below.
— What Happens in Countries Using QALYs and Cost-Based Thresholds? See details below.
— ICER's QALY-Based Study Topics. See details below.
— Upcoming Events and Webinars. See details below.
— AHRQ Effective Program Updates. See details below.
— Job Openings. See details below.

PIPC Statement on Medicare Drug Price Negotiation Program Guidance

7/6/2023

For Immediate Release
July 6, 2023

Contact: Thayer Roberts
[email protected]

The Partnership to Improve Patient Care (PIPC) has issued the following statement on the Centers for Medicare and Medicaid Services' (CMS) final guidance on the Medicare Drug Price Negotiation Program.

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