The Friends of PCORI Reauthorization coalition applauds the action taken today to extend funding for the Patient-Centered Outcomes Research Institute (PCORI) for an additional ten years. PCORI is an independent organization authorized by the “Patient Protection and Affordable Care Act of 2010” to study how different medications and treatments compare, so patients and their caregivers have the information they need to choose the health care and treatment options that are best for them. The passage of H.R. 1865 shows Congress’ commitment to ensure continued support for critical research helping patients and providers make evidence-based health care decisions that work best for them.
In This Week’s Issue: 1. Please Join PIPC TODAY For Our 10th Annual Forum!, click here to view the invitation. 2. Patient Advocacy Groups Submit Letter Urging Massachusetts Health Policy Commission to Reject QALY-Based Value Assessments, click here to read the letter. 3. PIPC Submits Comment Letter to ICER on Draft Evidence Report for Acute Migraines, click here to read the letter 4. Expanding the Use of Multi-Criteria Decision Analysis, click here to read the article. 5. IVI Issue Brief on ICER's Analysis of JAK Inhibitors, see details below. 6. Needs of Older Patients Must Be Considered in Value Assessments, click here to read the interview. 7. One Patient's Path Towards Advocacy, click here to read the article. 8. Tennessee 1115 Waiver Application Would Reference “Cost Effectiveness," see details below. 9. PCORI Reauthorization Discussions Advance, see details below. 10. Input Due TODAY -- House Begins 21st Century Cures 2.0 Effort, see details below. 11. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more. 12. ICER's QALY-Based Study Topics: Beta Thalassemia, Acute Migraine, Arthritis, Sickle Cell Disease, Ulcerative Colitis, Cystic Fibrosis, click here to provide patient input. 13. Upcoming Events and Webinars, see details below. 14. Medical Journal Articles, see details below. 15. AHRQ Effective Program Updates, see details below In This Week’s Issue: 1. Please Join PIPC For Our 10th Annual Forum!, click here to view the invitation. 2. Tennessee 1115 Waiver Application Would Reference “Cost Effectiveness," see details below. 3. National Council on Disability Report on QALYs, click here to read the report. 4. PCORI Reauthorization Discussions Advance, see details below. 5. Medical Groups Push to Save PCORI, click here to read the article. 6. IVI: Future Value Assessments Must Include Patient-Defined Factors of Value, click here to read the article. 7. House Begins 21st Century Cures 2.0 Effort, see details below. 8. PIPC Urges Policymakers to Protect Patients and People with Disabilities, see below for details. 9. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more. 10. ICER's QALY-Based Study Topics: Beta Thalassemia, Acute Migraine, Type 2 Diabetes, Arthritis, Sickle Cell Disease, Ulcerative Colitis, Cystic Fibrosis, click here to provide patient input. 11. Upcoming Events and Webinars, see details below. 12. Medical Journal Articles, see details below. 13. AHRQ Effective Program Updates, see details below. In This Week’s Issue: 1. Please Join PIPC For Our 10th Annual Forum!, click here to view the invitation. 2. National Council on Disability Report on QALYs, click here to read the report. 3. EveryLife Foundation Briefing with the Rare Disease Caucus, click here to learn more and register. 4. International Reference Pricing Would Lead to Fewer New Medicines For People with Disabilities, Report Finds, click here to see the report. 5. PCORI Reauthorization Discussions Advance, see details below. 6. House Begins 21st Century Cures 2.0 Effort, see details below. 7. PIPC Urges Policymakers to Protect Patients and People with Disabilities, see below for details. 8. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more. 9. ICER's QALY-Based Study Topics: Acute Migraine, Type 2 Diabetes, Arthritis, Sickle Cell Disease, Ulcerative Colitis, Cystic Fibrosis, click here to provide patient input. 10. Upcoming Events and Webinars, see details below. 11. Medical Journal Articles, see details below. 12. AHRQ Effective Program Updates, see details below. |
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