In This Week’s Issue:
 
1. Oregon Submits Waiver Renewal to CMS Acknowledging Use of QALYs. See details below.
2. NCD Health Equity Framework Includes Recommendation Against Use of QALYs. Click here to view the framework.
3. Value Our Health: Advancing Value Assessment Principles Centered on Patients and People with Disabilities. See below for details.
4. NCD Recommendation to Include a Comprehensive QALY Ban in BBB Supported by Law and Public Opinion
5. PCORI Board Considers Health Care Cost and Value. Click here to view the PCORI presentation.
6. For Two Years, Australia Failed People with Cystic Fibrosis; It Can’t Happen Again. Click here to view the article.
7. PIPC Submits Comments to CMMI on Listening Session on Incorporating Beneficiary Perspectives into Model Testing, Implementation, and Evaluation. Click here to view the letter.
8. PIPC Submits Comments to PCORI on Proposed Research Agenda. Click here to view the letter.
9. New Targeted PCORI Funding Announcement: Comparative Effectiveness of Interventions Targeting Mental Health in Individuals with Intellectual and Developmental Disabilities. See below for details.
10. PCORI Seeks Nominations for Advisory Panels. Click here to learn more, submit a nomination, or apply to be on an advisory panel.
11. Upcoming opportunity within the Center for Evidence and Practice Improvement at AHRQ, see details below.
12. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
13. Emerging Threats in States for Use of Discriminatory Metrics, see details below.
14. ICER's QALY-Based Study Topics: Alzheimer's Disease, Amyotrophic Lateral Sclerosis (ALS), Beta Thalassemia, COVID-19, Type 2 Diabetes, Hypertrophic Cardiomyopathy, Asthma, Unsupported Price Increase, Fair Access: Coverage Policies. Click here to provide patient input.
15. Upcoming Events and Webinars, see details below.
16. Medical Journal Articles, see details below.
17. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. Oregon Will Phase Out Its 1115 Medicaid Waiver for EPSDT. See details below.
2. Vanderbilt to House PCORnet Engagement Coordinating Center. Click here to view the article.
3. For Two Years, Australia Failed People with Cystic Fibrosis; It Can’t Happen Again. Click here to view the article.
4. PIPC Submits Comments to CMMI on Listening Session on Incorporating Beneficiary Perspectives into Model Testing, Implementation, and Evaluation. Click here to view the letter.
5. PIPC Submits Comments to PCORI on Proposed Research Agenda. Click here to view the letter.
6. PIPC Submits Comments to HHS on Proposed Notice of Benefit and Payment Parameters Rule. Click here to view the letter.
7. New Targeted PCORI Funding Announcement: Comparative Effectiveness of Interventions Targeting Mental Health in Individuals with Intellectual and Developmental Disabilities. See below for details.
8. On the Podcast: Chronic Disease Care at Risk in Oregon. Click here to listen.
9. PIPC Holds 12th Annual Forum: The Call to Action to Bar Reference to Discriminatory Metrics in U.S. Health Pricing and Coverage Policy. Click here to view the forum.
10. PIPC and Morning Consult Publish Poll Showing Strong Support for NCD Recommendations to Ban QALYs. Click here to view the poll results.
11. PCORI Seeks Nominations for Advisory Panels. Click here to learn more, submit a nomination, or apply to be on an advisory panel.
12. DREDF Releases Report Responding to a Flawed ICER Analyses, Instead Finds that QALY Violates Disability Nondiscrimination Law. Click here to view the report.
13. Upcoming opportunity within the Center for Evidence and Practice Improvement at AHRQ, see details below.
14. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
15. Emerging Threats in States for Use of Discriminatory Metrics, see details below.
16. ICER's QALY-Based Study Topics: Alzheimer's Disease, Amyotrophic Lateral Sclerosis (ALS), Beta Thalassemia, COVID-19, Type 2 Diabetes, Hypertrophic Cardiomyopathy, Asthma, Unsupported Price Increase, Fair Access: Coverage Policies. Click here to provide patient input.
17. Upcoming Events and Webinars, see details below.
18. Medical Journal Articles, see details below.
19. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. Oregon Will Phase Out Its 1115 Medicaid Waiver for EPSDT. See details below.
2. Vanderbilt to House PCORnet Engagement Coordinating Center. Click here to view the article.
3. PIPC Submits Comments to CMMI on Listening Session on Incorporating Beneficiary Perspectives into Model Testing, Implementation, and Evaluation. Click here to view the letter.
4. PIPC Submits Comments to PCORI on Proposed Research Agenda. Click here to view the letter.
5. PIPC Offers Feedback on IVI Draft Model on Major Depressive Disorder. Click here to view the letter.
6. PIPC Submits Comments to HHS on Proposed Notice of Benefit and Payment Parameters Rule. Click here to view the letter.
7. New Targeted PCORI Funding Announcement: Comparative Effectiveness of Interventions Targeting Mental Health in Individuals with Intellectual and Developmental Disabilities. See below for details.
8. On the Podcast: Chronic Disease Care at Risk in Oregon. Click here to listen.
9. PIPC Holds 12th Annual Forum: The Call to Action to Bar Reference to Discriminatory Metrics in U.S. Health Pricing and Coverage Policy. Click here to view the forum.
10. PIPC and Morning Consult Publish Poll Showing Strong Support for NCD Recommendations to Ban QALYs. Click here to view the poll results.
11. PCORI Seeks Nominations for Advisory Panels. Click here to learn more, submit a nomination, or apply to be on an advisory panel.
12. DREDF Releases Report Responding to a Flawed ICER Analyses, Instead Finds that QALY Violates Disability Nondiscrimination Law. Click here to view the report.
13. Upcoming opportunity within the Center for Evidence and Practice Improvement at AHRQ, see details below.
14. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
15. Emerging Threats in States for Use of Discriminatory Metrics, see details below.
16. ICER's QALY-Based Study Topics: Alzheimer's Disease, Amyotrophic Lateral Sclerosis (ALS), Beta Thalassemia, Chemotherapy-Induced Neutropenia, COVID-19, Type 2 Diabetes, Hypertrophic Cardiomyopathy, Asthma, Unsupported Price Increase, Fair Access: Coverage Policies. Click here to provide patient input.
17. Upcoming Events and Webinars, see details below.
18. Medical Journal Articles, see details below.
19. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. PIPC Submits Comments to PCORI on Proposed Research Agenda. Click here to view the letter.
2. PIPC Offers Feedback on IVI Draft Model on Major Depressive Disorder. Click here to view the letter.
3. PIPC Submits Comments to HHS on Proposed Notice of Benefit and Payment Parameters Rule. Click here to view the letter.
4. MACPAC Panel Urges Commission to Increase Beneficiary Involvement. Click here to view the article.
5. Lund Report: Oregon Faces Scrutiny Over One-Of-A-Kind Hurdles to Children’s Health Care. Click here to view the article.
6. New Targeted PCORI Funding Announcement: Comparative Effectiveness of Interventions Targeting Mental Health in Individuals with Intellectual and Developmental Disabilities. See below for details.
7. On the Podcast: Chronic Disease Care at Risk in Oregon. Click here to listen.
8. PIPC Holds 12th Annual Forum: The Call to Action to Bar Reference to Discriminatory Metrics in U.S. Health Pricing and Coverage Policy. Click here to view the forum.
9. IHP: Disability Agency Urges Congress to Ban QALYs in All Federal Programs. Click here to read the article ($). Click here to view the NCD letter sent to Congress.
10. PIPC and Morning Consult Publish Poll Showing Strong Support for NCD Recommendations to Ban QALYs. Click here to view the poll results.
11. PCORI Seeks Nominations for Advisory Panels. Click here to learn more, submit a nomination, or apply to be on an advisory panel.
12. DREDF Releases Report Responding to a Flawed ICER Analyses, Instead Finds that QALY Violates Disability Nondiscrimination Law. Click here to view the report.
13. Upcoming opportunity within the Center for Evidence and Practice Improvement at AHRQ, see details below.
14. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
15. Emerging Threats in States for Use of Discriminatory Metrics, see details below.
16. ICER's QALY-Based Study Topics: Alzheimer's Disease, Beta Thalassemia, Chemotherapy-Induced Neutropenia, COVID-19, Type 2 Diabetes, Hypertrophic Cardiomyopathy, Asthma, Unsupported Price Increase, Fair Access: Coverage Policies. Click here to provide patient input.
17. Upcoming Events and Webinars, see details below.
18. Medical Journal Articles, see details below.
19. AHRQ Effective Program Updates, see details below.