In This Week’s Issue:
 
1. AJMC: Patient Perspectives Must Meaningfully Inform Healthcare Value Measurement, click here to read the article.
2. PIPC Patient Blog: ‘Value’ Measures for Rationing Healthcare Devalue My Life, click here to read the blog.  
3. PIPC Forum 2018: Building Patient Standards — What do Patients Value? RSVP to [email protected].
4. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for details.
5. NPAF Policy Consortium: Talking About the Cost of Care in Shared Decision Making — Patient and Provider Perspective, click here to register.
6. MedCity News: This is what empowered patients desire on their journey, click here to read the article. 
7. Patient EngagementHIT: Lacking Protocols Hit VHA Clinic Environment, click here to read the article. 
8. Tell Insurers: Don't Discriminate on Care, click here to view.
9. Mental Health America: 2019 Call for Proposals is Now Open, click here for details.
10. CARE About Fibroids Publishes Report on Uterine Fibroids in the U.S., click here to read the white paper.   
11. Upcoming ICER Studies: Angiodema, Asthma, Opioid Use Disorder, MS, Peanut Allergy, SMA, Depression, click here to provide patient input.
12. Upcoming Events and Webinars, see details below.
13. Medical Journal Articles, see details below.
14. AHRQ Effective Program Updates, see details below. 

In This Week’s Issue:
 
1. PIPC Patient Blog: ‘Value’ Measures for Rationing Healthcare Devalue My Life, click here to read the blog.  
2. PIPC Forum 2018: Building Patient Standards — What do Patients Value? RSVP to [email protected].
3. CARE About Fibroids Publishes Report on Uterine Fibroids in the U.S., click here to read the white paper.   
4. Tell Insurers: Don't Discriminate on Care, click here to view.
5. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for details.
6. NPAF Policy Consortium: Talking About the Cost of Care in Shared Decision Making — Patient and Provider Perspective, click here to register.
7. Mental Health America: 2019 Call for Proposals is Now Open, click here for details.
8. Upcoming ICER Studies: Angiodema, Asthma, Opioid Use Disorder, MS, Peanut Allergy, SMA, Depression, click here to provide patient input.
9. Job Opening: Policy and Advocacy Coordinator for the Christopher and Dana Reeve Foundation, click here for details.
10. Upcoming Events and Webinars, see details below.
11. Medical Journal Articles, see details below.
12. AHRQ Effective Program Updates, see details below. 

By Rosie Bartel
​
Nine years ago, I had a routine knee replacement surgery. Instead of recovering and getting back on my feet, however, I contracted a surgical infection which took my right leg, hip, and part of my pelvic bone. My doctors told me I should have died. One said I had just a 30 percent chance of survival. But I’m a fighter. My life changed, and I am now confined to a wheelchair — but my passion for life didn’t change. I began fighting for the rights of people like myself and it has been the most meaningful work of my life.

In This Week’s Issue:
 
1. PIPC Forum 2018: Building Patient Standards — What do Patients Value? RSVP to [email protected].
2. IHP: Azar Brings Back Mandatory Demos, Including Those CMS Canceled, see details below.
3. HealthLeaders: Tapping Patient Engagement to Reduce Diagnostic Errors, click here to read the article.  
4. Tell Insurers: Don't Discriminate on Care, click here to view.
5. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for details.
6. Register: PQA’s Social Determinants of Health Forum, click here to register.
7. DBSA Meeting: Patient Focused Drug Development Meeting, click here to register.
8. Mental Health America: 2019 Call for Proposals is Now Open, click here for details.
9. Upcoming ICER Studies: Angiodema, Asthma, Opioid Use Disorder, click here to provide patient input.
10. Job Opening: Policy and Advocacy Coordinator for the Christopher and Dana Reeve Foundation, click here for details.
11. Upcoming Events and Webinars, see details below.
12. Medical Journal Articles, see details below.
13. AHRQ Effective Program Updates, see details below. 

In This Week’s Issue:
 
1. PIPC Forum 2018: Building Patient Standards — What do Patients Value? RSVP to [email protected].
2. PIPC Patient Blog: Formulary Restrictions Devalue And Endanger The Lives Of Disabled People, click here to read the blog. 
3. MedPage Today: Outcomes Research Group Likely to Be Reauthorized, click here to read the article
4. Briefing: Value Assessment and Patient Engagement — Why Patient Voices Matter,click here to RSVP.
5. Tell Insurers: Don't Discriminate on Care, click here to view.
6. Aimed Alliance Report: Putting Profits Before Patients — Provider Perspectives on Health Insurance Barriers That Harm Patients, click here to read the report.   
7. IFAA Hosts Inaugural ACTion Council Meeting, click here to learn more.
8. CMS Technical Expert Panel Opportunity: Impact Assessment of CMS Quality and Efficiency Measures, click here to apply. 
9. Register: PQA’s Social Determinants of Health Forum, click here to register.
10. The PCORI Blog: Partnering to Help People with Obesity Better Understand Their Surgical Options, click here to read the blog.   
11. DBSA Meeting: Patient Focused Drug Development Meeting, click here to register.
12. Mental Health America: 2019 Call for Proposals is Now Open, click here for details.
13. Upcoming ICER Studies: Angiodema, Asthma, Opioid Use Disorder, click here to provide patient input.
14. Upcoming Events and Webinars, see details below.
15. Medical Journal Articles, see details below.
16. AHRQ Effective Program Updates, see details below.