In This Week’s Issue:
1. PIPC Forum 2018: Building Patient Standards — What do Patients Value? RSVP to [email protected].
2. IHP: Azar Brings Back Mandatory Demos, Including Those CMS Canceled, see details below.
3. HealthLeaders: Tapping Patient Engagement to Reduce Diagnostic Errors, click here to read the article.
4. Tell Insurers: Don't Discriminate on Care, click here to view.
5. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for details.
6. Register: PQA’s Social Determinants of Health Forum, click here to register.
7. DBSA Meeting: Patient Focused Drug Development Meeting, click here to register.
8. Mental Health America: 2019 Call for Proposals is Now Open, click here for details.
9. Upcoming ICER Studies: Angiodema, Asthma, Opioid Use Disorder, click here to provide patient input.
10. Job Opening: Policy and Advocacy Coordinator for the Christopher and Dana Reeve Foundation, click here for details.
11. Upcoming Events and Webinars, see details below.
12. Medical Journal Articles, see details below.
13. AHRQ Effective Program Updates, see details below.
1. PIPC Forum 2018: Building Patient Standards — What do Patients Value? RSVP to [email protected].
2. IHP: Azar Brings Back Mandatory Demos, Including Those CMS Canceled, see details below.
3. HealthLeaders: Tapping Patient Engagement to Reduce Diagnostic Errors, click here to read the article.
4. Tell Insurers: Don't Discriminate on Care, click here to view.
5. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for details.
6. Register: PQA’s Social Determinants of Health Forum, click here to register.
7. DBSA Meeting: Patient Focused Drug Development Meeting, click here to register.
8. Mental Health America: 2019 Call for Proposals is Now Open, click here for details.
9. Upcoming ICER Studies: Angiodema, Asthma, Opioid Use Disorder, click here to provide patient input.
10. Job Opening: Policy and Advocacy Coordinator for the Christopher and Dana Reeve Foundation, click here for details.
11. Upcoming Events and Webinars, see details below.
12. Medical Journal Articles, see details below.
13. AHRQ Effective Program Updates, see details below.
1. PIPC Forum 2018: Building Patient Standards — What do Patients Value?
The 8th Annual PIPC Forum will be held on December 6 from 12:30-2:30pm at the Reserve Officers Association located at 1 Constitution Avenue, NE, Washington, DC 20002. Please RSVP to [email protected] “Health care payers, policy-makers and providers are proposing and implementing new payment incentives and building value standards. In concept, the move to value can help patients by promoting access to affordable care that they value sustaining the system overall. In practice, many real-world examples of moving to value leave patients and people with disabilities behind. It is essential for patients and people with disabilities to be leading the way on new solutions. Please join us at the PIPC Annual Forum where we will focus on alternative, evidence-based strategies for making health care decisions that reflect our values.” Click here for details.
2. IHP: Azar Brings Back Mandatory Demos, Including Those CMS Canceled
Inside Health Policy reported last week that HHS Secretary Alex Azar said that CMS plans to "both bring back the mandatory bundled-pay models the agency canceled last year and look at new models, including for radiation oncology. Azar also said CMS' innovation center will propose new primary care models before the end of the year.” PIPC has over the last two years provided comments to CMS related to its proposed and proposed cancellation of bundled payments. On April 19, 2017, PIPC Chairman Tony Coelho commented to CMS on its proposed episode payment models that, "We conclude that patient engagement must occur early in the model design process to positively shape the direction of the Innovation Center’s proposals. Additionally, new models should be tested and validated as meeting criteria for patient-centeredness before being considered for widespread implementation as mandatory models. With patient engagement, new models could be introduced with support and buy-in from the impacted patient communities that will be integral to their success.” On October 15, 2017, Chairman Coelho reiterated that, “Innovation in health care does not happen overnight, but is the result of significant testing for effectiveness to achieve the desired outcome...Payment reform should be no different.” PIPC looks forward to a process of meaningful engagement of patients and people with disabilities as the Innovation Center advances alternative payment models. Click here and here to view PIPC’s prior comments on these issues.
3. HealthLeaders: Tapping Patient Engagement to Reduce Diagnostic Errors
In an article for HealthLeaders, Christopher Cheney discusses how patient engagement can help reduce errors in medical diagnostics. “A multi-pronged approach is needed to address aberrant clinician behaviors that lead to diagnostic errors, Traber Giardina, PhD, lead author of the Health Affairs research, told HealthLeaders today.’We recommend health systems use a systematic method to collect patient reports of these types of behaviors. This would allow for these behaviors to be identified and monitored. A safety culture that encourages not just patients but also clinicians and staff to report these behaviors is needed. Additionally, we suggest reforms in medical education that highlight patient safety.’” Click here to read the article.
4. Tell Insurers: Don't Discriminate on Care
PIPC Chairman stated in his blog, "Health-care payers are missing a tremendous opportunity to improve the health of our nation in a uniquely American way — by making health care about the individual person, based on his or her own characteristics.” Unfortunately, in August, the pharmacy benefit manager CVS Caremark announced that they would offer new plans to employers that exclude drugs if they exceed a subjective “cost-effectiveness” threshold. CVS would rely on a deeply flawed value assessment model developed by the Institute for Clinical and Economic Review (ICER) in determining whether treatments fall below a $100,000 “cost per quality-adjusted-life-year” limit. This type of cost effectiveness analysis discriminates against people with disabilities and other vulnerable groups like the elderly because it assigns higher value to people in “perfect health” than people in less-than-perfect health. Policy decisions based on cost-effectiveness ignore important differences among patients and instead rely on a single, one-size-fits-all assessment. Further, cost-effectiveness analysis discriminates against the chronically ill, the elderly and people with disabilities, using algorithms that calculate their lives as 'worth less' than people who are younger or non-disabled. Join PIPC in demanding that insurers and others stop relying on discriminatory cost-effectiveness thresholds to drive care decisions. Click here to learn more.
5. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage?
Other countries are often referenced as examples of how the use of QALYs or similar cost-based thresholds impact access to care. In Canada, cystic fibrosis activists are petitioning their government for access to a new gene therapy drug. Click here to view the article. Spinal muscular atrophy advocates are similarly petitioning Health Canada to expand access to treatment. Click here to view the article. Similarly, in the United Kingdom, activists fight for access to treatments for cystic fibrosis and cancer. Click here and here for articles related to cystic fibrosis, and here for an article related to limited access to treatments for lung cancer. The Wall Street Journal’s Editorial Board recently opined on "why the U.S. shouldn’t put the world’s most innovative drug market at the mercy of what Greece is willing to pay for a cancer treatment.” Click here to view.
6. Access Register: PQA’s Social Determinants of Health Forum
The Pharmacy Quality Alliance (PQA) is hosting the “Social Determinants of Health Forum: Exploring Medication Access and Quality” November 14-15 in Alexandria, Va. “Healthcare improvement initiatives have focused largely on health system factors. There is growing recognition that improving access to care and patient health, including access to medications, requires focus on social, economic and environmental factors. To help forum participants identify opportunities to improve medication access, PQA will unveil a conceptual framework describing the medication access patient journey and its implications for quality measurement. The forum also will explore the ROI of new care delivery models, discuss the role of healthcare providers, including pharmacists, and the utility of new data ecosystems in these models. PQA invites senior healthcare decision-makers to attend this interactive forum, as consensus and collaboration are needed to address unmet social needs and their impact on medication access and healthcare quality. There is no charge to attend, but individuals must register in advance. Please limit 2-3 representatives per organization.” Click here to register.
7. DBSA Meeting: Patient Focused Drug Development Meeting
As a part of the Depression and Bipolar Support Alliance’s (DBSA) “Well Beyond Blue” campaign, DBSA will be hosting a meeting with the Food and Drug Administration (FDA) that focuses on patient-focused drug development. “Putting wellness within every individual’s reach is at the core of the DBSA mission, strategies, and programs. Key to that mission is educating decision-makers who conduct research, and make public health policy on wellness. That’s why we are hosting a meeting in the Washington, D.C. metro area on November 16, 2018 with the U.S. Food and Drug Administration (FDA) and drug and medical device manufacturers. This meeting will empower people living with depression and/or bipolar to share personal views on aspects of wellness that go beyond mere symptom reduction, as well as, name wellness strategies that work best for them. But we can’t do it without you. Our collective voices are needed in-person at this meeting which will be held in Silver Spring, MD. We intentionally scheduled the meeting to begin at 12:30 p.m., enabling people who live within driving distance to attend.” Click here to register.
8. Mental Health America: 2019 Call for Proposals is Now Open
Mental Health America is now accepting workshop proposals for its 2019 Annual Conference Dueling Mental Health and Chronic Conditions in Children and Adults. “There is a lack of uniformity across the health spectrum in how illnesses are categorized and deemed as chronic diseases and chronic conditions. Not only does this create confusion, but it may lead professionals across the spectrum to focus on specific illnesses and disregard other aspects of the person being treated, including co-occurring issues like mental health conditions and broader societal conditions such as poverty, trauma, and racism. To effectively treat an individual, we must look at the whole person, which means examining the connections that exist between traditional chronic physical conditions and mental health concerns. At MHA’s Annual Conference, we will offer a traditional mixture of keynote speakers, plenary discussions and workshop panels.” Click here for details. Deadline: November 30, 2018.
9. Upcoming ICER Studies: Angiodema, Asthma, Opioid Use Disorder
The Institute for Clinical Economic Review (ICER) conducts cost effectiveness studies for insurers using the cost-per-QALY methodology. ICER provides guidance on its website for patients and patient advocates to provide direct input related to their experiences with the disease. Click here to provide patient input. Click here to view the topics and deadlines. Please note the following upcoming formal ICER deadlines per their website:
Prostate Cancer: Final Evidence Report 10/4/18
Amyloidosis: Final Report 10/4/18
Hereditary Angiodema: Public Meeting 10/25/18
Opioid Use Disorder: Draft Evidence Report 9/5/2018, Meeting agenda posted 10/25/18
Asthma: Draft Voting Questions and Evidence Report 9/24/2018 with comments through 10/22/2018
Spinal Muscular Atrophy: Revised Scoping Document Published 9/19/18, Research Protocol posted 10/17/18
10. Job Opening: Policy and Advocacy Coordinator for the Christopher and Dana Reeve Foundation
The Christopher and Dana Reeve Foundation is seeking applications for an open Policy and Advocacy Coordinator position. “This is a remote opportunity, located in Washington DC, for a motivated individual to join a policy team committed to making a difference in the lives of people with paralysis and/or mobility impairments. This role will offer an opportunity to learn more about the issues and initiatives that the Reeve Foundation is working on to address the difficulties faced by people with paralysis and their families and help support and advance that work. The role will also offer an opportunity to oversee the Reeve Foundation’s Regional Champions grassroots advocacy education program.” Click here for details.
11. Upcoming Events and Webinars
Measure Development Tools and Resources
November 14, 2018
Click here for details.
14th Annual Personalized Medicine Conference: Preparing for the New Possible
November 14-15, 2018
Click here for details.
PQA Social Determinants of Health Forum: Exploring Medication Access and Quality
November 14-15, 2018
Click here for details.
Advisory Panel on Healthcare Delivery and Disparities Research Fall 2018 Meeting
November 15, 2018
Click here for details.
Advisory Panel on Clinical Effectiveness and Decision Science Fall 2018 Meeting
November 30, 2018
Click here for details.
Pre-rulemaking Overview: The 2018 Measures Under Consideration (MUC) List and How to Prepare for and Navigate the Process in 2019
December 5, 2018
Click here for details.
PCORI Board of Governors Meeting
December 11, 2018
Click here for details.
Advisory Panel on Rare Disease Winter 2018 Meeting
December 14, 2018
Click here for details.
2019 NEC Symposium
June 2 - 5, 2019,
Click here for details.
12. Medical Journal Articles
Comparative Effectiveness and Safety of Bariatric Procedures for Weight Loss: A PCORnet Cohort Study, click here to view.
Oh, the Places We'll Go: Patient-Reported Outcomes and Electronic Health Records, click here to view.
Putting Patients at the Centre of Healthcare: Progress and Challenges for Health Technology Assessments, click here to view.
Development and Pre-Testing of the Patient Engagement In Research Scale (PEIRS) to Assess the Quality of Engagement from a Patient Perspective, click here to view.
Researchers, Patients, and Stakeholders Evaluating Comparative-Effectiveness Research- A Mixed-Methods Study of the PCORI Reviewer Experience, click here to view.
Unique Review Criteria and Patient and Stakeholder Reviewers- Analysis of PCORI's Approach to Research Funding, click here to view.
Patient Centered Research to Improve Community Involvement (PaRTICIpate) in Diabetes Self-Management: A Conference Series for Developing Collaborations Between Researchers, Stakeholders, and Patients, click here to view.
Synthesising Conceptual Frameworks for Patient and Public Involvement in Research – A Critical Appraisal of a Meta-Narrative Review, click here to view.
Go Slow to Go Fast: Successful Engagement Strategies for Patient-Centered, Multi-Site Research, Involving Academic and Community-Based Organizations, click here to view.
Unique Review Criteria and Patient and Stakeholder Reviewers: Analysis of PCORI's Approach to Research Funding, click here to view.
Researchers, Patients, and Stakeholders Evaluating Comparative-Effectiveness Research: A Mixed-Methods Study of the PCORI Reviewer Experience, click here to view.
Patient-Engaged Research: Choosing the "Right" Patients to Avoid Pitfalls, click here to view.
Engaging Patients in Health Care Epidemiology Research: A Case Example, click here to view.
A Beginning to Principles of Ethical and Regulatory Oversight of Patient-Centered Research, click here to view.
Oversight of Patient-Centered Outcomes Research: Recommendations From a Delphi Panel, click here to view.
13. AHRQ Effective Program Updates
Stroke Prevention in Patients With Atrial Fibrillation: A Systematic Review Update, click here to view.
Long-term Drug Therapy and Drug Holidays for Osteoporosis Fracture Prevention: A Systematic Review, click here to view.
Addressing Social Isolation to Improve the Health of Older Adults: A Rapid Review, click here to view.
Labor Dystocia, click here to view.
Nonsurgical Treatments for Urinary Incontinence in Women: A Systematic Review Update, click here to view.
Randomized Trial of a Patient-Centered Decision Aid for Promoting Informed Decisions about Lung Cancer Screening: Implementation of a PCORI Study Protocol and Lessons Learned, click here to view.
Collaboration Is Key to Accelerating Diagnostics Access to Optimize Benefits of Precision Medicines, click here to view.
Telehealth for Acute and Chronic Care Consultations, click here to view.
Library of Patient-Centered Outcomes Research Resources, click here to view.
The 8th Annual PIPC Forum will be held on December 6 from 12:30-2:30pm at the Reserve Officers Association located at 1 Constitution Avenue, NE, Washington, DC 20002. Please RSVP to [email protected] “Health care payers, policy-makers and providers are proposing and implementing new payment incentives and building value standards. In concept, the move to value can help patients by promoting access to affordable care that they value sustaining the system overall. In practice, many real-world examples of moving to value leave patients and people with disabilities behind. It is essential for patients and people with disabilities to be leading the way on new solutions. Please join us at the PIPC Annual Forum where we will focus on alternative, evidence-based strategies for making health care decisions that reflect our values.” Click here for details.
2. IHP: Azar Brings Back Mandatory Demos, Including Those CMS Canceled
Inside Health Policy reported last week that HHS Secretary Alex Azar said that CMS plans to "both bring back the mandatory bundled-pay models the agency canceled last year and look at new models, including for radiation oncology. Azar also said CMS' innovation center will propose new primary care models before the end of the year.” PIPC has over the last two years provided comments to CMS related to its proposed and proposed cancellation of bundled payments. On April 19, 2017, PIPC Chairman Tony Coelho commented to CMS on its proposed episode payment models that, "We conclude that patient engagement must occur early in the model design process to positively shape the direction of the Innovation Center’s proposals. Additionally, new models should be tested and validated as meeting criteria for patient-centeredness before being considered for widespread implementation as mandatory models. With patient engagement, new models could be introduced with support and buy-in from the impacted patient communities that will be integral to their success.” On October 15, 2017, Chairman Coelho reiterated that, “Innovation in health care does not happen overnight, but is the result of significant testing for effectiveness to achieve the desired outcome...Payment reform should be no different.” PIPC looks forward to a process of meaningful engagement of patients and people with disabilities as the Innovation Center advances alternative payment models. Click here and here to view PIPC’s prior comments on these issues.
3. HealthLeaders: Tapping Patient Engagement to Reduce Diagnostic Errors
In an article for HealthLeaders, Christopher Cheney discusses how patient engagement can help reduce errors in medical diagnostics. “A multi-pronged approach is needed to address aberrant clinician behaviors that lead to diagnostic errors, Traber Giardina, PhD, lead author of the Health Affairs research, told HealthLeaders today.’We recommend health systems use a systematic method to collect patient reports of these types of behaviors. This would allow for these behaviors to be identified and monitored. A safety culture that encourages not just patients but also clinicians and staff to report these behaviors is needed. Additionally, we suggest reforms in medical education that highlight patient safety.’” Click here to read the article.
4. Tell Insurers: Don't Discriminate on Care
PIPC Chairman stated in his blog, "Health-care payers are missing a tremendous opportunity to improve the health of our nation in a uniquely American way — by making health care about the individual person, based on his or her own characteristics.” Unfortunately, in August, the pharmacy benefit manager CVS Caremark announced that they would offer new plans to employers that exclude drugs if they exceed a subjective “cost-effectiveness” threshold. CVS would rely on a deeply flawed value assessment model developed by the Institute for Clinical and Economic Review (ICER) in determining whether treatments fall below a $100,000 “cost per quality-adjusted-life-year” limit. This type of cost effectiveness analysis discriminates against people with disabilities and other vulnerable groups like the elderly because it assigns higher value to people in “perfect health” than people in less-than-perfect health. Policy decisions based on cost-effectiveness ignore important differences among patients and instead rely on a single, one-size-fits-all assessment. Further, cost-effectiveness analysis discriminates against the chronically ill, the elderly and people with disabilities, using algorithms that calculate their lives as 'worth less' than people who are younger or non-disabled. Join PIPC in demanding that insurers and others stop relying on discriminatory cost-effectiveness thresholds to drive care decisions. Click here to learn more.
5. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage?
Other countries are often referenced as examples of how the use of QALYs or similar cost-based thresholds impact access to care. In Canada, cystic fibrosis activists are petitioning their government for access to a new gene therapy drug. Click here to view the article. Spinal muscular atrophy advocates are similarly petitioning Health Canada to expand access to treatment. Click here to view the article. Similarly, in the United Kingdom, activists fight for access to treatments for cystic fibrosis and cancer. Click here and here for articles related to cystic fibrosis, and here for an article related to limited access to treatments for lung cancer. The Wall Street Journal’s Editorial Board recently opined on "why the U.S. shouldn’t put the world’s most innovative drug market at the mercy of what Greece is willing to pay for a cancer treatment.” Click here to view.
6. Access Register: PQA’s Social Determinants of Health Forum
The Pharmacy Quality Alliance (PQA) is hosting the “Social Determinants of Health Forum: Exploring Medication Access and Quality” November 14-15 in Alexandria, Va. “Healthcare improvement initiatives have focused largely on health system factors. There is growing recognition that improving access to care and patient health, including access to medications, requires focus on social, economic and environmental factors. To help forum participants identify opportunities to improve medication access, PQA will unveil a conceptual framework describing the medication access patient journey and its implications for quality measurement. The forum also will explore the ROI of new care delivery models, discuss the role of healthcare providers, including pharmacists, and the utility of new data ecosystems in these models. PQA invites senior healthcare decision-makers to attend this interactive forum, as consensus and collaboration are needed to address unmet social needs and their impact on medication access and healthcare quality. There is no charge to attend, but individuals must register in advance. Please limit 2-3 representatives per organization.” Click here to register.
7. DBSA Meeting: Patient Focused Drug Development Meeting
As a part of the Depression and Bipolar Support Alliance’s (DBSA) “Well Beyond Blue” campaign, DBSA will be hosting a meeting with the Food and Drug Administration (FDA) that focuses on patient-focused drug development. “Putting wellness within every individual’s reach is at the core of the DBSA mission, strategies, and programs. Key to that mission is educating decision-makers who conduct research, and make public health policy on wellness. That’s why we are hosting a meeting in the Washington, D.C. metro area on November 16, 2018 with the U.S. Food and Drug Administration (FDA) and drug and medical device manufacturers. This meeting will empower people living with depression and/or bipolar to share personal views on aspects of wellness that go beyond mere symptom reduction, as well as, name wellness strategies that work best for them. But we can’t do it without you. Our collective voices are needed in-person at this meeting which will be held in Silver Spring, MD. We intentionally scheduled the meeting to begin at 12:30 p.m., enabling people who live within driving distance to attend.” Click here to register.
8. Mental Health America: 2019 Call for Proposals is Now Open
Mental Health America is now accepting workshop proposals for its 2019 Annual Conference Dueling Mental Health and Chronic Conditions in Children and Adults. “There is a lack of uniformity across the health spectrum in how illnesses are categorized and deemed as chronic diseases and chronic conditions. Not only does this create confusion, but it may lead professionals across the spectrum to focus on specific illnesses and disregard other aspects of the person being treated, including co-occurring issues like mental health conditions and broader societal conditions such as poverty, trauma, and racism. To effectively treat an individual, we must look at the whole person, which means examining the connections that exist between traditional chronic physical conditions and mental health concerns. At MHA’s Annual Conference, we will offer a traditional mixture of keynote speakers, plenary discussions and workshop panels.” Click here for details. Deadline: November 30, 2018.
9. Upcoming ICER Studies: Angiodema, Asthma, Opioid Use Disorder
The Institute for Clinical Economic Review (ICER) conducts cost effectiveness studies for insurers using the cost-per-QALY methodology. ICER provides guidance on its website for patients and patient advocates to provide direct input related to their experiences with the disease. Click here to provide patient input. Click here to view the topics and deadlines. Please note the following upcoming formal ICER deadlines per their website:
Prostate Cancer: Final Evidence Report 10/4/18
Amyloidosis: Final Report 10/4/18
Hereditary Angiodema: Public Meeting 10/25/18
Opioid Use Disorder: Draft Evidence Report 9/5/2018, Meeting agenda posted 10/25/18
Asthma: Draft Voting Questions and Evidence Report 9/24/2018 with comments through 10/22/2018
Spinal Muscular Atrophy: Revised Scoping Document Published 9/19/18, Research Protocol posted 10/17/18
10. Job Opening: Policy and Advocacy Coordinator for the Christopher and Dana Reeve Foundation
The Christopher and Dana Reeve Foundation is seeking applications for an open Policy and Advocacy Coordinator position. “This is a remote opportunity, located in Washington DC, for a motivated individual to join a policy team committed to making a difference in the lives of people with paralysis and/or mobility impairments. This role will offer an opportunity to learn more about the issues and initiatives that the Reeve Foundation is working on to address the difficulties faced by people with paralysis and their families and help support and advance that work. The role will also offer an opportunity to oversee the Reeve Foundation’s Regional Champions grassroots advocacy education program.” Click here for details.
11. Upcoming Events and Webinars
Measure Development Tools and Resources
November 14, 2018
Click here for details.
14th Annual Personalized Medicine Conference: Preparing for the New Possible
November 14-15, 2018
Click here for details.
PQA Social Determinants of Health Forum: Exploring Medication Access and Quality
November 14-15, 2018
Click here for details.
Advisory Panel on Healthcare Delivery and Disparities Research Fall 2018 Meeting
November 15, 2018
Click here for details.
Advisory Panel on Clinical Effectiveness and Decision Science Fall 2018 Meeting
November 30, 2018
Click here for details.
Pre-rulemaking Overview: The 2018 Measures Under Consideration (MUC) List and How to Prepare for and Navigate the Process in 2019
December 5, 2018
Click here for details.
PCORI Board of Governors Meeting
December 11, 2018
Click here for details.
Advisory Panel on Rare Disease Winter 2018 Meeting
December 14, 2018
Click here for details.
2019 NEC Symposium
June 2 - 5, 2019,
Click here for details.
12. Medical Journal Articles
Comparative Effectiveness and Safety of Bariatric Procedures for Weight Loss: A PCORnet Cohort Study, click here to view.
Oh, the Places We'll Go: Patient-Reported Outcomes and Electronic Health Records, click here to view.
Putting Patients at the Centre of Healthcare: Progress and Challenges for Health Technology Assessments, click here to view.
Development and Pre-Testing of the Patient Engagement In Research Scale (PEIRS) to Assess the Quality of Engagement from a Patient Perspective, click here to view.
Researchers, Patients, and Stakeholders Evaluating Comparative-Effectiveness Research- A Mixed-Methods Study of the PCORI Reviewer Experience, click here to view.
Unique Review Criteria and Patient and Stakeholder Reviewers- Analysis of PCORI's Approach to Research Funding, click here to view.
Patient Centered Research to Improve Community Involvement (PaRTICIpate) in Diabetes Self-Management: A Conference Series for Developing Collaborations Between Researchers, Stakeholders, and Patients, click here to view.
Synthesising Conceptual Frameworks for Patient and Public Involvement in Research – A Critical Appraisal of a Meta-Narrative Review, click here to view.
Go Slow to Go Fast: Successful Engagement Strategies for Patient-Centered, Multi-Site Research, Involving Academic and Community-Based Organizations, click here to view.
Unique Review Criteria and Patient and Stakeholder Reviewers: Analysis of PCORI's Approach to Research Funding, click here to view.
Researchers, Patients, and Stakeholders Evaluating Comparative-Effectiveness Research: A Mixed-Methods Study of the PCORI Reviewer Experience, click here to view.
Patient-Engaged Research: Choosing the "Right" Patients to Avoid Pitfalls, click here to view.
Engaging Patients in Health Care Epidemiology Research: A Case Example, click here to view.
A Beginning to Principles of Ethical and Regulatory Oversight of Patient-Centered Research, click here to view.
Oversight of Patient-Centered Outcomes Research: Recommendations From a Delphi Panel, click here to view.
13. AHRQ Effective Program Updates
Stroke Prevention in Patients With Atrial Fibrillation: A Systematic Review Update, click here to view.
Long-term Drug Therapy and Drug Holidays for Osteoporosis Fracture Prevention: A Systematic Review, click here to view.
Addressing Social Isolation to Improve the Health of Older Adults: A Rapid Review, click here to view.
Labor Dystocia, click here to view.
Nonsurgical Treatments for Urinary Incontinence in Women: A Systematic Review Update, click here to view.
Randomized Trial of a Patient-Centered Decision Aid for Promoting Informed Decisions about Lung Cancer Screening: Implementation of a PCORI Study Protocol and Lessons Learned, click here to view.
Collaboration Is Key to Accelerating Diagnostics Access to Optimize Benefits of Precision Medicines, click here to view.
Telehealth for Acute and Chronic Care Consultations, click here to view.
Library of Patient-Centered Outcomes Research Resources, click here to view.
