In This Week’s Issue:
 
1. AAPD, NCD, and NCIL Caution About the Discriminatory Implications of the QALY and Foreign Reference Pricing, click here to view the webinar.
2. Proposed 'Most Favored Nations' Order Would Import Discriminatory Value Assessments, see details below.
3. New Patient-Centered Research Agenda for Personalized Medicine, click here to read the report.
4. National Academy of Medicine Framework for COVID-19 Vaccine Allocation, see details below.
5. Canadian Cystic Fibrosis Advocate Cautions Americans Against Importing Foreign Drug Pricing Policies, click here to read the blog post.
6. Opinion: Global Pharmaceutical Models Would Destroy U.S. Innovation, click here to read the op-ed.
7. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
8. PCORI Annual Meeting September 16-17, click here to learn more and to register.
9. ICER's QALY-Based Study Topics: Hemophilia A, Sickle Cell Disease, Ulcerative Colitis, Cystic Fibrosis, Bladder Cancer, Opioid Treatments, High Cholesterol, Anemia in Chronic Kidney Disease, Lupus Nephritis, click here to provide patient input.
10. Upcoming Events and Webinars, see details below.
11. Medical Journal Articles, see details below.
12. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. Proposed 'Most Favored Nations' Order Would Import Discriminatory Value Assessments, see details below.
2. Canadian Cystic Fibrosis Advocate Cautions Americans Against Importing Foreign Drug Pricing Policies, click here to read the blog post.
3. National Council on Independent Living Resolution on QALYs, see details below.
4. Opinion: Global Pharmaceutical Models Would Destroy U.S. Innovation, click here to read the op-ed.
5. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
6. Patients Say USPS Slowdown is Delaying Delivery of Life-Saving Medications, click here to read the article.
7. PCORI Annual Meeting September 16-17, click here to learn more and to register.
8. ICER's QALY-Based Study Topics: Hemophilia A, Sickle Cell Disease, Ulcerative Colitis, Cystic Fibrosis, Bladder Cancer, Opioid Treatments, High Cholesterol, Anemia in Chronic Kidney Disease, Lupus Nephritis, click here to provide patient input.
9. Upcoming Events and Webinars, see details below.
10. Medical Journal Articles, see details below.
11. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. NCD and PIPC Chairman Issue Statements Opposing Executive Order to Reference Foreign QALY-Based Prices, see details below.
2. National Council on Independent Living Resolution on QALYs, see details below.
3. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
4. STAT News: Disability Advocacy Gains Traction in Presidential Politics, click here to read the article.
5. AARDA’s Randy Rutta Talks Step Therapy, click here to read the full interview.
6. PCORI Annual Meeting September 16-17, click here to learn more and to register.
7. ICER's QALY-Based Study Topics: Hemophilia A, Sickle Cell Disease, Ulcerative Colitis, Cystic Fibrosis, Bladder Cancer, Opioid Treatments, High Cholesterol, Anemia in Chronic Kidney Disease, Lupus Nephritis, click here to provide patient input.
8. Upcoming Events and Webinars, see details below.
9. Medical Journal Articles, see details below.
10. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. NCD and PIPC Chairman Issue Statements Opposing Executive Order to Reference Foreign QALY-Based Prices, see details below.
2. National Council on Independent Living Resolution on QALYs, see details below.
3. PCORI Annual Meeting September 16-17, click here to learn more and to register.
4. Patient Advocates Weigh in on Executive Orders in the Press, see details below.
5. Patient Groups Submit Comment Letters to ICER on Draft Evidence Report on UC Treatments, see details below.
6. NCD Chairman: Accessible Care is Equal Care, click here to read the article.
7. Senate COVID-19 Relief Proposal Overlooks Disability Community, Advocates Say, click here to read the article.
8. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
9. ICER's QALY-Based Study Topics: Hemophilia A, Sickle Cell Disease, Ulcerative Colitis, Cystic Fibrosis, Bladder Cancer, Opioid Treatments, High Cholesterol, Anemia in Chronic Kidney Disease, click here to provide patient input.
10. Upcoming Events and Webinars, see details below.
11. Medical Journal Articles, see details below.
12. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. Patient Groups: New Drug Pricing Executive Orders Would Import Discriminatory Metrics, see details below.
2. Patient Advocates Weigh in on Executive Orders in the Press, see details below.
3. Patient Groups Submit Comment Letters to ICER on Draft Evidence Report on UC Treatments, see details below.
4. NCD Chairman: Accessible Care is Equal Care, click here to read the article.
5. Senate COVID-19 Relief Proposal Overlooks Disability Community, Advocates Say, click here to read the article.
6. U.K. Physicians Offer Cautionary Tale for Importing Discriminatory Foreign Policies, see details below.
7. Webinar: Unpacking ICER’s Models Assessing COVID-19 Treatments, click here to view the webinar.
8. OCR Continues its Work to Resolve COVID-19 Discrimination Cases, see details below.
9. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
10. ICER's QALY-Based Study Topics: Hemophilia A, Sickle Cell Disease, Ulcerative Colitis, Cystic Fibrosis, Bladder Cancer, Opioid Treatments, High Cholesterol, Anemia in Chronic Kidney Disease, click here to provide patient input.
11. Upcoming Events and Webinars, see details below.
12. Medical Journal Articles, see details below.
13. AHRQ Effective Program Updates, see details below.