Blog Archives

PIPC Weekly Update: August 31, 2017

8/31/2017

In This Week’s Issue:

1. PIPC Patient Blog: Patients are Changing the Conversation about Health Research, click here to read the blog.
2. PIPC Patient Blog: Better Information Means Better-Informed Treatment Choices, click here to read the blog.
3. PCORI Blog: A Clinician's View: Patient-Centered Research Is the Path to Better Health Care, click here to read the blog.
4. Register Now! UCP’s Speak for Yourself Workshop, click here to RSVP.
5. CMMI Summit: Behavioral Health Payment and Care Delivery Innovation, click here to register.
6. Take the iHOPE Hospital Questions Survey: Have you ever left the hospital with unanswered questions? Click here to complete the survey.
7. Lupus: Patient-Focused Drug Development Meeting, click here to register!
8. Epilepsy Foundation: 2017-2018 AAHD Frederick J. Krause Scholarship on Health and Disability, click here to apply.
9. Upcoming Events and Webinars, see details below
10. Medical Journal Articles, see details below.
11. AHRQ Effective Program Updates, see details below.

PIPC Patient Blog: Patients are Changing the Conversation about Health Research

8/23/2017

By Regina Greer-Smith

Now more than ever, patients, caregivers, and others across the healthcare community are having a meaningful say in what traditionally has been the domain of scientists. Today, these diverse voices are helping to decide which research questions to study and which outcomes to focus on.

PIPC Weekly Update: August 21, 2017

8/21/2017

In This Week’s Issue:

1. PIPC Patient Blog: Better Information Means Better-Informed Treatment Choices, click here to read the blog.
2. Patient Input Needed (DEADLINE TODAY @ 5:00) CMS Rule on CY 2018 Updates to the Quality Payment Program, click here for details.
3. Phil on the Hill: The Value of Comparative Effectiveness Research, click here to read the blog.
4. PCORI Video: Adding Value to Research, click here to watch the video.
5. Register Now! UCP’s Speak for Yourself Workshop, click here to RSVP.
6. CMMI Summit: Behavioral Health Payment and Care Delivery Innovation, click here to register.
7. Take the iHOPE Hospital Questions Survey: Have you ever left the hospital with unanswered questions? Click here to complete the survey.
8. Lupus: Patient-Focused Drug Development Meeting, click here to register!
9. Epilepsy Foundation: 2017-2018 AAHD Frederick J. Krause Scholarship on Health and Disability, click here to apply.
10. Upcoming Events and Webinars, see details below
11. Medical Journal Articles, see details below.
12. AHRQ Effective Program Updates, see details below.

PIPC Patient Blog: Better Information Means Better-Informed Treatment Choices

8/17/2017

By Donna Cryer

As patients, we know better than anyone that information is power when it comes to deciding which treatment or care choice is best for us. Whether we face a life-threatening illness or a chronic condition, a common or rare disease, we want to know not what might be effective for the “average” patient but what will be right for us given our particular circumstances.

PIPC Weekly Update: August 14, 2017

8/15/2017

In This Week’s Issue:

1. Register Now! UCP’s Speak for Yourself Workshop, click here to RSVP.
2. PCORI Video: Hearing the Patient Voice and Improving Care, click here to watch the video.
3. AJMC: From “Magic Bullets” to Precision Medicine—Ensuring More Patient-Centered Cancer Care, see details below
4. CMMI Summit: Behavioral Health Payment and Care Delivery Innovation, click here to register.
5. Patient Input Needed! CMS Rule on CY 2018 Updates to the Quality Payment Program, click here for details.
6. Take the iHOPE Hospital Questions Survey: Have you ever left the hospital with unanswered questions? Click here to complete the survey.
7. Lupus: Patient-Focused Drug Development Meeting, click here to register!
8. Epilepsy Foundation: 2017-2018 AAHD Frederick J. Krause Scholarship on Health and Disability, click here to apply.
9. Upcoming Events and Webinars, see details below
10. Medical Journal Articles, see details below.
11. AHRQ Effective Program Updates, see details below.

PIPC Weekly Update: August 7, 2017

8/7/2017

In This Week’s Issue:

1. Uses and Misuses of the QALY: Ethical Issues and Alternative Measures of Value, click here to read the summary.
2. BPC: PIPC on Panel on Future of Comparative Effectiveness Research, click here to view the webcast.
3. PCORI VIDEO: Meeting Patients on Their Terms, click here to watch the video.
4. Register Now! UCP’s Speak for Yourself Workshop, click here to RSVP.
5. DPAC: Says Who — Who Is Involved in Policy-Making Regarding Diabetes? Click here to read more.
6. Patients - Apply Now! Technical Expert Panel (TEP) on Quality Measure Development: Supporting Efficiency and Innovation in the Process of Developing CMS Quality Measures, click here to apply.
7. CMMI Summit: Behavioral Health Payment and Care Delivery Innovation, click here to register.
8. Patient Input Needed! CMS Rule on CY 2018 Updates to the Quality Payment Program, click here for details.
9. Take the iHOPE Hospital Questions Survey: Have you ever left the hospital with unanswered questions? Click here to complete the survey.
10. Lupus: Patient-Focused Drug Development Meeting, click here to register!
11. Epilepsy Foundation: 2017-2018 AAHD Frederick J. Krause Scholarship on Health and Disability, click here to apply.
12. Upcoming Events and Webinars, see details below
13. Medical Journal Articles, see details below.
14. AHRQ Effective Program Updates, see details below.

The PIPC Blog