In This Week’s Issue:
 
1. PIPC and the EveryLife Foundation for Rare Diseases Partner to Release a New White Paper Evaluating the Use of Value Assessments for Cell and Gene Therapies, click here to read the paper.
2. Most Favored Nations Executive Order Released Last Week Would Import Discriminatory QALYs, see details below.
3. PCORI Proposed Principles for the Consideration of the Full Range of Outcomes Data, click here to read the principles and to submit comments.
4. ADA 25 Advancing Leadership Forum on Disability Justice in the Fight for Racial Equity, click here to learn more and register.
5. The Bonnell Foundation Discusses Access Challenges for Cystic Fibrosis Patients Abroad, click here to listen to the podcast.
6. NMQF, Axis Advocacy, Sick Cells, and PIPC Release a White Paper on Value Assessments' Impact on Health Inequities, click here to read the paper.
7. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
8. ICER's QALY-Based Study Topics: Hemophilia A, Sickle Cell Disease, Ulcerative Colitis, Cystic Fibrosis, Bladder Cancer, Opioid Treatments, High Cholesterol, Anemia in Chronic Kidney Disease, Lupus Nephritis, Multiple Myeloma, click here to provide patient input.
9. Upcoming Events and Webinars, see details below.
10. Medical Journal Articles, see details below.
11. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. PIPC and the EveryLife Foundation for Rare Diseases Partner to Release a New White Paper Evaluating the Use of Value Assessments for Cell and Gene Therapies, click here to read the paper.
2. Most Favored Nations Executive Order Released Last Week Would Import Discriminatory QALYs, see details below.
3. PCORI Proposed Principles for the Consideration of the Full Range of Outcomes Data, click here to read the principles and to submit comments.
4. ADA 25 Advancing Leadership Forum on Disability Justice in the Fight for Racial Equity, click here to learn more and register.
5. The Bonnell Foundation Discusses Access Challenges for Cystic Fibrosis Patients Abroad, click here to listen to the podcast.
6. NMQF, Axis Advocacy, Sick Cells, and PIPC Release a White Paper on Value Assessments' Impact on Health Inequities, click here to read the paper.
7. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
8. ICER's QALY-Based Study Topics: Hemophilia A, Sickle Cell Disease, Ulcerative Colitis, Cystic Fibrosis, Bladder Cancer, Opioid Treatments, High Cholesterol, Anemia in Chronic Kidney Disease, Lupus Nephritis, Multiple Myeloma, click here to provide patient input.
9. Upcoming Events and Webinars, see details below.
10. Medical Journal Articles, see details below.
11. AHRQ Effective Program Updates, see details below.  

An article for MedPage Today highlighted Partnership to Improve Patient Care's (PIPC) opposition to the Trump administration’s executive order that would import discriminatory quality-adjusted-life-years metrics into the U.S. PIPC Chairman Tony Coelho’s noted that the discriminatory metrics that the order is set to adopt would  “devalue the lives of seniors, people with disabilities and serious chronic conditions." "Other countries use these metrics to ration healthcare,” said Chairman Coelho. “It is dangerous to import foreign pricing policies, and the associated access barriers that come with them."

In This Week’s Issue:
 
1. Most Favored Nation’s Executive Order Released Yesterday Would Import Discriminatory QALYs, see details below.
2. The Bonnell Foundation Discusses Access Challenges for Cystic Fibrosis Patients Abroad, click here to listen to the podcast.
3. NMQF, Axis Advocacy, Sick Cells, and PIPC Release a White Paper on Value Assessments' Impact on Health Inequities, click here to read the paper.
4. AAPD, NCD, and NCIL Caution About the Discriminatory Implications of the QALY and Foreign Reference Pricing, click here to view the webinar.
5. IVI Unveils New Major Depressive Disorder Value Assessment Initiative, click here to read more.
6. Advocates Call for Focus on People with Disabilities in Vaccine Allocation Framework, see details below.
7. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
8. PCORI Annual Meeting September 16-17, click here to learn more and to register.
9. ICER's QALY-Based Study Topics: Hemophilia A, Sickle Cell Disease, Ulcerative Colitis, Cystic Fibrosis, Bladder Cancer, Opioid Treatments, High Cholesterol, Anemia in Chronic Kidney Disease, Lupus Nephritis, Multiple Myeloma, click here to provide patient input.
10. Upcoming Events and Webinars, see details below.
11. Medical Journal Articles, see details below.
12. AHRQ Effective Program Updates, see details below. 

​Today, the Administration released the text of an Executive Order allowing the Department of Health and Human Services (HHS) to rely on foreign governments to set prices for drugs covered under Medicare, regardless of the metrics used by those countries or implications for access to care for patients. The Partnership to Improve Patient Care (PIPC), along with other prominent patient and disability advocacy groups, has consistently expressed strong opposition to this concept, as it will have the impact of limiting and delaying access to needed treatments for Americans. 

In This Week’s Issue:
 
1. NMQF, Axis Advocacy, Sick Cells, and PIPC Release a White Paper on Value Assessments' Impact on Health Disparities, click here to read the paper.
2. Advocates Call for Focus on People with Disabilities in Vaccine Allocation Framework, see details below.
3. AAPD, NCD, and NCIL Caution About the Discriminatory Implications of the QALY and Foreign Reference Pricing, click here to view the webinar.
4. Proposed 'Most Favored Nations' Order Would Import Discriminatory Value Assessments, see details below.
5. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
6. PCORI Annual Meeting September 16-17, click here to learn more and to register.
7. ICER's QALY-Based Study Topics: Hemophilia A, Sickle Cell Disease, Ulcerative Colitis, Cystic Fibrosis, Bladder Cancer, Opioid Treatments, High Cholesterol, Anemia in Chronic Kidney Disease, Lupus Nephritis, Multiple Myeloma, click here to provide patient input.
8. Upcoming Events and Webinars, see details below.
9. Medical Journal Articles, see details below.
10. AHRQ Effective Program Updates, see details below.