In This Week's Issue

1. Senate HELP Committee Discusses International Pricing, Germany and Health Technology Assessment, see details below.
2. Inside Health Policy: PIPC Reminds Democrats They Promised Not to Use QALYs, click here to read the article (subscription required).
3. Patient and Disability Stakeholders Applaud the PCORI Board for Approving Principles for Considering the Full Range of Outcomes Data, click here to read the full statement.
4. National Health Council Statement on PCORI Guiding Principles, see details below.
5. CLOSING WEDNESDAY: PCORI Seeks Nominations for Advisory Panels, click here to learn more, submit a nomination, or apply to be on an advisory panel.
6. IVI Webinar Series: Toward Equity in Value Assessment, see details below.
7. Emerging Threats in States like CO, ND, and ME for Use of Discriminatory Metrics, see details below.
8. 2021 AUCD Virtual Gala, click here to learn more and register.
9. Vaccination Equity and Communication, see details below.
10. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more
11. ICER's QALY-Based Study Topics: Myasthenia Gravis, Atopic Dermatitis, Lupus Nephritis, Multiple Myeloma, Alzheimer's Disease, click here to provide patient input.
12. Upcoming Events and Webinars, see details below.
13. Medical Journal Articles, see details below.
14. AHRQ Effective Program Updates, see details below. 

This article originally appeared in Inside Health Policy on March 25, 2021

In preparation for a Senate hearing that will highlight lower foreign drug prices, a coalition that includes drug makers and patients is reminding Democrats that their 2020 party platform opposes using a metric that is key to drug-value assessments: quality-adjusted life years (QALY).​

In This Week’s Issue:
 
1. Patient and Disability Stakeholders Applaud the PCORI Board for Approving Principles for Considering the Full Range of Outcomes Data, click here to read the full statement.
2. National Health Council Statement on PCORI Guiding Principles, see details below.
3. CLOSING MARCH 31: PCORI Seeks Nominations for Advisory Panels, click here to learn more, submit a nomination, or apply to be on an advisory panel.
4. IVI Webinar Series: Toward Equity in Value Assessment, see details below.
5. President Biden Appoints First White House Disability Policy Director, click here to read more about the appointment.
6. Emerging Threats in States like CO, ND, and ME for Use of Discriminatory Metrics, see details below.
7. TOMORROW: PCORI Virtual Briefing on COVID-19 & Telehealth, click here to learn more and register.
8. 2021 AUCD Virtual Gala, click here to learn more and register.
9. TOMORROW: EveryLife Foundation for Rare Diseases Rare on the Road Leadership Tour, see details below.
10. Vaccination Equity and Communication, see details below.
11. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
12. ICER's QALY-Based Study Topics: Myasthenia Gravis, Atopic Dermatitis, Lupus Nephritis, Multiple Myeloma, Alzheimer's Disease, click here to provide patient input.
13. Upcoming Events and Webinars, see details below.
14. Medical Journal Articles, see details below.
15. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. IfPA Blog: When Economists Decide Heart Patients' Fate, click here to read the blog post.
2. President Biden Appoints First White House Disability Policy Director, click here to read more about the appointment.
3. Drug Pricing Policy Must Prioritize Patients, click here to read the op-ed.
4. NYT: How America’s Vaccine System Makes People With Health Problems Fight for a Place in Line, click here to view the article. 
5. Emerging Threats in States like CO, ND, and ME for Use of Discriminatory Metrics, see details below.
6. PCORI Virtual Briefing on COVID-19 & Telehealth, click here to learn more and register.
7. 2021 AUCD Virtual Gala, click here to learn more and register.
8. EveryLife Foundation for Rare Diseases Rare on the Road Leadership Tour, see details below.
9. Vaccination Equity and Communication, see details below.
10. PCORI Seeks Nominations for Advisory Panels, click here to learn more, submit a nomination, or apply to be on an advisory panel.
11. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
12. ICER's QALY-Based Study Topics: Atopic Dermatitis, Treatments, High Cholesterol, Anemia in Chronic Kidney Disease, Lupus Nephritis, Multiple Myeloma, Alzheimer's Disease, click here to provide patient input.
13. Upcoming Events and Webinars, see details below.
14. Medical Journal Articles, see details below.
15. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. Drug Pricing Policy Must Prioritize Patients, click here to read the op-ed.
2. IfPA Blog: When Economists Decide Heart Patients' Fate, click here to read the blog post.
3. NCD Calls on HHS to Strengthen Rights and Protections for People with Disabilities in Letter, click here to read the letter.
4. PIPC Joins 30 Leading Disability and Civil Rights Stakeholders in Letter Asking HHS to Step Up Nondiscrimination Efforts, click here to read the letter.
5. Emerging Threats in States for Use of Discriminatory Metrics, see details below.
6. PCORI Virtual Briefing on COVID-19 & Telehealth, click here to learn more and register.
7. 2021 AUCD Virtual Gala, click here to learn more and register.
8. EveryLife Foundation for Rare Diseases Rare on the Road Leadership Tour, see details below.
9. Vaccination Equity and Communication, see details below.
10. PCORI Seeks Nominations for Advisory Panels, click here to learn more, submit a nomination, or apply to be on an advisory panel.
11. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
12. ICER's QALY-Based Study Topics: Atopic Dermatitis, Treatments, High Cholesterol, Anemia in Chronic Kidney Disease, Lupus Nephritis, Multiple Myeloma, Alzheimer's Disease, click here to provide patient input.
13. Upcoming Events and Webinars, see details below.
14. Medical Journal Articles, see details below.
15. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. NCD Calls on HHS to Strengthen Rights and Protections for People with Disabilities in Letter, click here to read the letter.
2. PIPC Joins 30 Leading Disability and Civil Rights Stakeholders in Letter Asking HHS to Step Up Nondiscrimination Efforts, click here to read the letter.
3. Chairman's Corner: CBO Confirms Use of Discriminatory Metrics in H.R. 3, see details below.
4. PCORI Virtual Briefing on COVID-19 & Telehealth, click here to learn more and register.
5. Emerging Threats in States for Use of Discriminatory Metrics, see details below.
6. 2021 AUCD Virtual Gala, click here to learn more and register.
7. EveryLife Foundation for Rare Diseases Report on the Economic Burden of Rare Diseases in America and the Rare on the Road Leadership Tour, see details below.
8. Vaccination Equity and Communication, see details below.
9. PCORI Seeks Nominations for Advisory Panels, click here to learn more, submit a nomination, or apply to be on an advisory panel.
10. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
11. ICER's QALY-Based Study Topics: Atopic Dermatitis, Treatments, High Cholesterol, Anemia in Chronic Kidney Disease, Lupus Nephritis, Multiple Myeloma, Alzheimer's Disease, click here to provide patient input.
12. Upcoming Events and Webinars, see details below.
13. Medical Journal Articles, see details below.
14. AHRQ Effective Program Updates, see details below.