Blog Archives

PIPC Weekly Update: March 27, 2017

3/27/2017

In This Week’s Issue:

1. PIPC Patient Blog: Abigail Lore, click here to view the blog post.
2. FDA Mulls Establishing Patient Affairs Office to Support Drug Development, see details below.
3. FDA’s Califf to Head New Clinical Research Foundation, see details below.
4. Guidelines for Designing Patient-Centered Research Initiatives, Click here to view the article.
5. CMS: Commenting Open on Pediatric Alternative Payment Model Opportunities, Click here to view the announcement.
6. Epilepsy Foundation: 2017-2018 AAHD Frederick J. Krause Scholarship on Health and Disability, Click here to apply.
7. NYT: Informed Patient? Don’t Bet on It, Click here to view the article.
8. PCORI Blog: How Advisory Panels Contribute to PCORI's Research Agenda, Click here to view the blog post.
9. Upcoming Events and Webinars, see details below.
10. Medical Journal Articles, see details below.
11. AHRQ Effective Program Updates, see details below.

PIPC Patient Blog: Abigail Lore

3/22/2017

College is stressful. Especially being new in college. Your routine is turned upside down, you are focused on finding new friends, involving yourself in different clubs on campus, and passing your classes. There is a new load of stress that comes with your new world. Add managing an invisible chronic illness to that laundry list and it seems next to impossible to fit into the college lifestyle like your peers.

I had 14 years of diabetes management under my belt when I was a freshman political science student at American University. I prepared and thought about my transition to college for weeks. I had registered with my school’s Academic Support and Access Center for accommodations, scoped out the dining hall offerings, and had the nerve-wracking talk with my roommate about the Emergency Glucagon Pen.

PIPC Weekly Update - March 20, 2017

3/20/2017

In This Week’s Issue:

1. NYT: Informed Patient? Don’t Bet on It, click here to view the article.
2. PCORI Blog: How Advisory Panels Contribute to PCORI's Research Agenda, click here to view the blog post.
3. A Clinician's Plea for More Pragmatic Clinical Trials in Diabetes, click here to view the article.
4. Five Big Challenges to Utilizing Genomic Data for Precision Medicine, click here to view the article.
5. AJMC: Improving Value Frameworks and Guiding Them to Maturity, click here to view the article.
6. Upcoming Events and Webinars, see details below.
7. Medical Journal Articles, see details below.
8. AHRQ Effective Program Updates, see details below.

PIPC Weekly Update - March 13, 2017

3/13/2017

In This Week’s Issue:

1. How Healthcare Orgs Can Drive Family Engagement in Patient Care, click here to view the article.
2. The Hill: We Can Improve and Modernize the Drug Development Process in the United States, click here to view the article.
3. PCORI Blogs: Multiple Sclerosis Treatments; Assessing Research Quality; Kidney Failure, see details below.
4. ICER Updates: Multiple Sclerosis Drugs; Ovarian Cancer; Gene Therapy, see details below.
5. Video: Dr Roy Beveridge Discusses Humana's Efforts to Include Perspective of Patient and Provider, click here to view the video.
6. Congressional Briefing: State of Lung Cancer (3/16), click here for additional details.
7. Archived PIPC Webcast: PCORI Advocacy 101, click here for details.
8. Upcoming Events and Webinars, see details below
9. Medical Journal Articles, see details below.
10. AHRQ Effective Program Updates, see details below.

The PIPC Blog

PIPC Weekly Update: March 27, 2017

PIPC Patient Blog: Abigail Lore

PIPC Weekly Update - March 20, 2017

PIPC Weekly Update - March 13, 2017

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The PIPC Blog

PIPC Weekly Update: March 27, 2017

PIPC Patient Blog: Abigail Lore

﻿PIPC Weekly Update - March 20, 2017

PIPC Weekly Update - March 13, 2017

Topics

Archives

PIPC Weekly Update - March 20, 2017