In This Week’s Issue:
1. PIPC Chairman Tony Coelho Discusses Need for Change in Medicare’s Innovation Center in The Washington Post, click here to view the letter to the editor.
2. PIPC White Papers on Increasing Patient Engagement at CMMI and in Value Assessment, click here to view the CMMI White Paper and here to view the value assessment White Paper.
3. PIPC Hosts 7th Annual Forum: Patient Voices, Patient Value: Developing Patient-Centered Solutions, click here for a recap of the event.
4. Califf: Transforming Evidence Generation to Support Health and Health Care Decisions, click here to view the article and here to view the blog post.
5. Stat News: Patient Navigators Can Serve Crucial Roles in Hospitals, click here to view the article.
6. Sign and Share Petition to Give Patients and People Served by Health Systems a Voice in Healthcare, click here to view and sign the petition.
7. PCORI Allocates $42M for New Research, click here to view the article.
8. Upcoming Events and Webinars, see details below.
9. Medical Journal Articles, see details below.
10. AHRQ Effective Program Updates, see details below.
1. PIPC Chairman Tony Coelho Discusses Need for Change in Medicare’s Innovation Center in The Washington Post, click here to view the letter to the editor.
2. PIPC White Papers on Increasing Patient Engagement at CMMI and in Value Assessment, click here to view the CMMI White Paper and here to view the value assessment White Paper.
3. PIPC Hosts 7th Annual Forum: Patient Voices, Patient Value: Developing Patient-Centered Solutions, click here for a recap of the event.
4. Califf: Transforming Evidence Generation to Support Health and Health Care Decisions, click here to view the article and here to view the blog post.
5. Stat News: Patient Navigators Can Serve Crucial Roles in Hospitals, click here to view the article.
6. Sign and Share Petition to Give Patients and People Served by Health Systems a Voice in Healthcare, click here to view and sign the petition.
7. PCORI Allocates $42M for New Research, click here to view the article.
8. Upcoming Events and Webinars, see details below.
9. Medical Journal Articles, see details below.
10. AHRQ Effective Program Updates, see details below.
1. PIPC Chairman Tony Coelho Discusses Need for Change in Medicare’s Innovation Center in The Washington Post
In response to Washington Post opinion article, "Keep this part of Obamacare," PIPC Chairman Tony Coelho emphasizes the fact that while the Center for Medicare and Medicaid Innovation (CMMI) appears to be doing "some good work," it is also in serious need of changes to protect patients. "The Innovation Center created significant (if unintended) risks with some models that patients identified as going too far and driving “one-size-fits-all” care in stark contradiction of the nation’s drive to develop targeted therapies under the Precision Medicine Initiative and Cancer Moonshot," Coelho writes. "We all want health care to pay for value and not volume, but the real question is value for whom?" Click here to view the letter to the editor.
2. PIPC White Papers on Increasing Patient Engagement at CMMI and in Value Assessment
PIPC recently submitted two White Papers, the first entitled “A Roadmap to Increased Patient Engagement at CMMI” and the second entitled “A Roadmap to Increased Patient Engagement in Value Assessment.” The White Paper on CMMI addresses the fact that CMMI lacks the mechanisms to ensure new payment models are consistently developed and tested in ways that are transparent, that actively engage various stakeholders and that support patient-centered care. In this White Paper, PIPC offers a roadmap for consistent patient engagement in the CMMI model design and testing process. This roadmap draws on best practices employed by CMMI in the development of earlier model tests, as well as best practices for patient engagement that have demonstrated success at the Patient Centered Outcomes Research Institute (PCORI), Food and Drug Administration (FDA), and Office of the National Coordinator for Health Information Technology (ONC). Specifically, PIPC recommends:
In the second White Paper on value assessment, PIPC builds on existing calls for patient engagement by providing a guide to developers seeking to create value frameworks and tools that can become the foundation of a truly patient-centered health system. The paper describes best practices in procedures for conducting value assessments that are patient centered; it does not address the equally important issues related to methods used for value assessment. Click here to view the CMMI White Paper and here to view the value assessment White Paper.
3. PIPC Hosts 7th Annual Forum: Patient Voices, Patient Value: Developing Patient-Centered Solutions
At the Partnership to Improve Patient Care’s (PIPC) Seventh Annual Forum, patient and disability advocates highlighted their ongoing efforts to ensure all stakeholders are equipped with the tools they need to fully and meaningfully engage with patients and achieve value for the people served by health systems. Panelists discussed the significant strides the patient-centeredness movement has made through the creation of the Patient Centered Outcomes Research Institute (PCORI), the FDA’s program for Patient-Focused Drug Development, and the Precision Medicine Initiative, while acknowledging the crossroads the movement currently faces. Both panels debated the struggle between determining the value of health care based on what is cost effective for the average patient or based on achieving outcomes that matter to individual patients and people with disabilities. Moderator Tony Coelho, Chairman of PIPC, led two panels with representatives from the National Health Council, National Patient Advocate Foundation, Faster Cures, Cancer Support Community, Autism Speaks, and the National Alliance on Mental Illness. Click here for a recap of the event.
4. Califf: Transforming Evidence Generation to Support Health and Health Care Decisions
A consortium of top federal and other biomedical research funders, including Food and Drug Administration Commissioner Robert Califf, published an article in the New England Journal of Medicine calling for greater collaboration across the healthcare delivery and research communities in sharing data, computational capacity, and infrastructure for the purpose of conducting more effective clinical research. As detailed in a blog post by the Patient-Centered Outcomes Research Institute (PCORI), “The goal is to advance a vision and core commitment that PCORI shares with all of these funders: speeding the development of more high-quality evidence to support critical healthcare decisions.” Click here to view the article and here to view the blog post.
5. Stat News: Patient Navigators Can Serve Crucial Roles in Hospitals
Stat News highlights a new tool that helps guide patients and their families as they move through the healthcare system. The program, PICU Supports, uses a navigator to provide emotional, decision-making, and communication support for parents to critically ill children. “As Jane’s 7-year-old daughter, Kelsey, lay in the intensive care unit, shaking from seizures, Jane needed people to listen to her and trust her,” the article begins. “Jane — not a textbook — knew which of the five different seizure medicines worked best for Kelsey, and which had little effect. But the doctors weren’t paying much attention to “just a mom.” With help from her patient navigator, Jane convinced the doctors to stop treating Kelsey like a seizure disorder and start treating her like Kelsey.”
The article notes that there is a study supported by the Patient-Centered Outcomes Research Institute (PCORI) underway which is testing the impact of the program. Click here to view the article.
6. Sign and Share Petition to Give Patients and People Served by Health Systems a Voice in Healthcare
Sign and share PIPC Chairman Tony Coelho’s recently launched petition calling on health care stakeholders to recognize patients and people served by health system’s movement for greater say in their own health care. “We urge both the media and politicians to take heed of what matters to us… because in the end, we are all patients,” Chairman Coelho writes.
Join the petition to all those who define your health care to say…
PIPC encourages every individual to sign and share the petition in order to increase its impact and raise awareness of the important issue. Click here to view and sign the petition.
7. PCORI Allocates $42M for New Research
According to an article in Healthcare IT News, the Patient-Centered Outcomes Research Institute (PCORI) Board of Governors has approved nearly $42 million to fund 19 new studies. The article notes that the work will compare which healthcare approaches work best in treating a wide range of conditions and problems that affect patients, caregivers and the healthcare system. The new projects include: $6 million to compare the effectiveness of two types of palliative care, $3 million to determine the impact of different health plans on medication use and outcomes for patients with asthma, $2.7 million to determine the effect of acupressure on relieving treatment-related symptoms in children with cancer, and $2.3 million toward determine whether established treatment or a newer drug is more effective against treatment-resistant cases of Kawasaki disease. Click here to view the article.
8. Upcoming Events and Webinars
PCORI Online Training
January 12, 2016, 1:00-2:30PM ET
Click here for details.
PCORI Online Training
January 18, 2016, 10:00-11:30 AM ET
Click here for details.
Getting to Know PCORI: From Application to Closeout (January 2017)
January 23 - 24, 2017, Washington Marriott Georgetown
Click here for details.
2017 National Health Policy Conference
January 30 - 31, 2017, Marriott, Marquis, Washington D.C.
Click here for details.
National Value-Based Payment and Pay for Performance Summit
March 8, 2017, San Francisco, CA
Click here for details.
Evidence-Based Guidelines Affecting Policy, Practice and Stakeholders (E-GAPPS III) Conference
March 20-21, 2017, New York, NY
Click here for details.
9. Medical Journal Articles
Patient-Centered Outcomes Research to Improve Asthma Outcomes, click here to view.
Neonatologists' Opinions about the 'Foreseeable Risks' in Comparative Effectiveness Research: Results from an Online Survey, click here to view.
Choosing Important Health Outcomes for Comparative Effectiveness Research: An Updated Review and Identification of Gaps, click here to view.
10. AHRQ Effective Program Updates
Medication-Assisted Treatment Models of Care for Opioid Use Disorder in Primary Care Settings -- Final Report, click here to view.
Patient Safety in Ambulatory Settings -- Final Report, click here to view.
Strategies for Improving the Lives of Women Aged 40 and Above Living With HIV/AIDS -- Final Report, click here to view.
In response to Washington Post opinion article, "Keep this part of Obamacare," PIPC Chairman Tony Coelho emphasizes the fact that while the Center for Medicare and Medicaid Innovation (CMMI) appears to be doing "some good work," it is also in serious need of changes to protect patients. "The Innovation Center created significant (if unintended) risks with some models that patients identified as going too far and driving “one-size-fits-all” care in stark contradiction of the nation’s drive to develop targeted therapies under the Precision Medicine Initiative and Cancer Moonshot," Coelho writes. "We all want health care to pay for value and not volume, but the real question is value for whom?" Click here to view the letter to the editor.
2. PIPC White Papers on Increasing Patient Engagement at CMMI and in Value Assessment
PIPC recently submitted two White Papers, the first entitled “A Roadmap to Increased Patient Engagement at CMMI” and the second entitled “A Roadmap to Increased Patient Engagement in Value Assessment.” The White Paper on CMMI addresses the fact that CMMI lacks the mechanisms to ensure new payment models are consistently developed and tested in ways that are transparent, that actively engage various stakeholders and that support patient-centered care. In this White Paper, PIPC offers a roadmap for consistent patient engagement in the CMMI model design and testing process. This roadmap draws on best practices employed by CMMI in the development of earlier model tests, as well as best practices for patient engagement that have demonstrated success at the Patient Centered Outcomes Research Institute (PCORI), Food and Drug Administration (FDA), and Office of the National Coordinator for Health Information Technology (ONC). Specifically, PIPC recommends:
- Improve oversight of CMMI by creating a Patient Advisory Panel to ensure patient-centeredness in the agency’s work.
- Require CMMI to follow a consistent process to seek input from patients and caregivers both early in the development of new demonstrations and throughout the implementation and evaluation process.
- Improve the transparency of model test designs and evaluation results.
In the second White Paper on value assessment, PIPC builds on existing calls for patient engagement by providing a guide to developers seeking to create value frameworks and tools that can become the foundation of a truly patient-centered health system. The paper describes best practices in procedures for conducting value assessments that are patient centered; it does not address the equally important issues related to methods used for value assessment. Click here to view the CMMI White Paper and here to view the value assessment White Paper.
3. PIPC Hosts 7th Annual Forum: Patient Voices, Patient Value: Developing Patient-Centered Solutions
At the Partnership to Improve Patient Care’s (PIPC) Seventh Annual Forum, patient and disability advocates highlighted their ongoing efforts to ensure all stakeholders are equipped with the tools they need to fully and meaningfully engage with patients and achieve value for the people served by health systems. Panelists discussed the significant strides the patient-centeredness movement has made through the creation of the Patient Centered Outcomes Research Institute (PCORI), the FDA’s program for Patient-Focused Drug Development, and the Precision Medicine Initiative, while acknowledging the crossroads the movement currently faces. Both panels debated the struggle between determining the value of health care based on what is cost effective for the average patient or based on achieving outcomes that matter to individual patients and people with disabilities. Moderator Tony Coelho, Chairman of PIPC, led two panels with representatives from the National Health Council, National Patient Advocate Foundation, Faster Cures, Cancer Support Community, Autism Speaks, and the National Alliance on Mental Illness. Click here for a recap of the event.
4. Califf: Transforming Evidence Generation to Support Health and Health Care Decisions
A consortium of top federal and other biomedical research funders, including Food and Drug Administration Commissioner Robert Califf, published an article in the New England Journal of Medicine calling for greater collaboration across the healthcare delivery and research communities in sharing data, computational capacity, and infrastructure for the purpose of conducting more effective clinical research. As detailed in a blog post by the Patient-Centered Outcomes Research Institute (PCORI), “The goal is to advance a vision and core commitment that PCORI shares with all of these funders: speeding the development of more high-quality evidence to support critical healthcare decisions.” Click here to view the article and here to view the blog post.
5. Stat News: Patient Navigators Can Serve Crucial Roles in Hospitals
Stat News highlights a new tool that helps guide patients and their families as they move through the healthcare system. The program, PICU Supports, uses a navigator to provide emotional, decision-making, and communication support for parents to critically ill children. “As Jane’s 7-year-old daughter, Kelsey, lay in the intensive care unit, shaking from seizures, Jane needed people to listen to her and trust her,” the article begins. “Jane — not a textbook — knew which of the five different seizure medicines worked best for Kelsey, and which had little effect. But the doctors weren’t paying much attention to “just a mom.” With help from her patient navigator, Jane convinced the doctors to stop treating Kelsey like a seizure disorder and start treating her like Kelsey.”
The article notes that there is a study supported by the Patient-Centered Outcomes Research Institute (PCORI) underway which is testing the impact of the program. Click here to view the article.
6. Sign and Share Petition to Give Patients and People Served by Health Systems a Voice in Healthcare
Sign and share PIPC Chairman Tony Coelho’s recently launched petition calling on health care stakeholders to recognize patients and people served by health system’s movement for greater say in their own health care. “We urge both the media and politicians to take heed of what matters to us… because in the end, we are all patients,” Chairman Coelho writes.
Join the petition to all those who define your health care to say…
- We insist that on engaging patients, caregivers, and people living with incurable diseases or lifelong disabilities in health care decision-making.
- We want to be at the center of health care.
- We want policies to explicitly empower consumers, patients and providers.
- We want to know what decisions about our health are being made by the government.
- We want a health care system that rewards the outcomes that matter to us as patients and participants in this nation’s health system.
- We reject the notion that we should be bundled into one-size-fits-all care models, or valued against one-size-fits-all judgments of cost-effectiveness. Don’t tell us what we’re worth – ask us what we value.
- None of us is average. We are unique individuals with different genetics, characteristics, needs and preferences. Especially in this promising new age of personalized medicine, we are confounded by proposals in vital programs like Medicare that aim to eliminate, rather than empower, choice of treatments.
PIPC encourages every individual to sign and share the petition in order to increase its impact and raise awareness of the important issue. Click here to view and sign the petition.
7. PCORI Allocates $42M for New Research
According to an article in Healthcare IT News, the Patient-Centered Outcomes Research Institute (PCORI) Board of Governors has approved nearly $42 million to fund 19 new studies. The article notes that the work will compare which healthcare approaches work best in treating a wide range of conditions and problems that affect patients, caregivers and the healthcare system. The new projects include: $6 million to compare the effectiveness of two types of palliative care, $3 million to determine the impact of different health plans on medication use and outcomes for patients with asthma, $2.7 million to determine the effect of acupressure on relieving treatment-related symptoms in children with cancer, and $2.3 million toward determine whether established treatment or a newer drug is more effective against treatment-resistant cases of Kawasaki disease. Click here to view the article.
8. Upcoming Events and Webinars
PCORI Online Training
January 12, 2016, 1:00-2:30PM ET
Click here for details.
PCORI Online Training
January 18, 2016, 10:00-11:30 AM ET
Click here for details.
Getting to Know PCORI: From Application to Closeout (January 2017)
January 23 - 24, 2017, Washington Marriott Georgetown
Click here for details.
2017 National Health Policy Conference
January 30 - 31, 2017, Marriott, Marquis, Washington D.C.
Click here for details.
National Value-Based Payment and Pay for Performance Summit
March 8, 2017, San Francisco, CA
Click here for details.
Evidence-Based Guidelines Affecting Policy, Practice and Stakeholders (E-GAPPS III) Conference
March 20-21, 2017, New York, NY
Click here for details.
9. Medical Journal Articles
Patient-Centered Outcomes Research to Improve Asthma Outcomes, click here to view.
Neonatologists' Opinions about the 'Foreseeable Risks' in Comparative Effectiveness Research: Results from an Online Survey, click here to view.
Choosing Important Health Outcomes for Comparative Effectiveness Research: An Updated Review and Identification of Gaps, click here to view.
10. AHRQ Effective Program Updates
Medication-Assisted Treatment Models of Care for Opioid Use Disorder in Primary Care Settings -- Final Report, click here to view.
Patient Safety in Ambulatory Settings -- Final Report, click here to view.
Strategies for Improving the Lives of Women Aged 40 and Above Living With HIV/AIDS -- Final Report, click here to view.
