In This Week’s Issue:
1. Tell Insurers: Don't Discriminate on Care, click here to view.
2. PIPC/Xcenda: Finding the Patient Voice in ICER’s Value Assessments, click here to read the report.
3. Op-Ed: One-Size-Fits-All Cost-Based Formulas: Rationing Care for Cancer Patients, Click here to read the op-ed.
4. Patient EngagementHIT: Record Copying Fees, Admin Hurdles Harm Patient Data Access, click here to read the article.
5. The PCORI Blog: PCORI at Age Eight – Progress, Impact, and More to Do, click here to read the blog.
6. DBSA Meeting: Patient Focused Drug Development Meeting, click here to register.
7. Mental Health America: 2019 Call for Proposals is Now Open, click here for details
8. CMS Technical Expert Panel Opportunity: Impact Assessment of CMS Quality and Efficiency Measures, click here to apply.
9. Upcoming ICER Studies: Angiodema, Asthma, Opioid Use Disorder, click here to provide patient input.
10. 2018 Health Care Payment Learning and Action Network (LAN) Fall Summit, click here to register.
11. 2018 PCORI Annual Meeting, click here for details.
12. Upcoming Events and Webinars, see details below.
13. Medical Journal Articles, see details below.
14. AHRQ Effective Program Updates, see details below.
1. Tell Insurers: Don't Discriminate on Care, click here to view.
2. PIPC/Xcenda: Finding the Patient Voice in ICER’s Value Assessments, click here to read the report.
3. Op-Ed: One-Size-Fits-All Cost-Based Formulas: Rationing Care for Cancer Patients, Click here to read the op-ed.
4. Patient EngagementHIT: Record Copying Fees, Admin Hurdles Harm Patient Data Access, click here to read the article.
5. The PCORI Blog: PCORI at Age Eight – Progress, Impact, and More to Do, click here to read the blog.
6. DBSA Meeting: Patient Focused Drug Development Meeting, click here to register.
7. Mental Health America: 2019 Call for Proposals is Now Open, click here for details
8. CMS Technical Expert Panel Opportunity: Impact Assessment of CMS Quality and Efficiency Measures, click here to apply.
9. Upcoming ICER Studies: Angiodema, Asthma, Opioid Use Disorder, click here to provide patient input.
10. 2018 Health Care Payment Learning and Action Network (LAN) Fall Summit, click here to register.
11. 2018 PCORI Annual Meeting, click here for details.
12. Upcoming Events and Webinars, see details below.
13. Medical Journal Articles, see details below.
14. AHRQ Effective Program Updates, see details below.
1. Tell Insurers: Don't Discriminate on Care
PIPC Chairman stated in his blog, "Health-care payers are missing a tremendous opportunity to improve the health of our nation in a uniquely American way — by making health care about the individual person, based on his or her own characteristics.” Unfortunately, in August, the pharmacy benefit manager CVS Caremark announced that they would offer new plans to employers that exclude drugs if they exceed a subjective “cost-effectiveness” threshold. CVS would rely on a deeply flawed value assessment model developed by the Institute for Clinical and Economic Review (ICER) in determining whether treatments fall below a $100,000 “cost per quality-adjusted-life-year” limit. This type of cost effectiveness analysis discriminates against people with disabilities and other vulnerable groups like the elderly because it assigns higher value to people in “perfect health” than people in less-than-perfect health. Policy decisions based on cost-effectiveness ignore important differences among patients and instead rely on a single, one-size-fits-all assessment. Further, cost-effectiveness analysis discriminates against the chronically ill, the elderly and people with disabilities, using algorithms that calculate their lives as 'worth less' than people who are younger or non-disabled. Join PIPC in demanding that insurers and others stop relying on discriminatory cost-effectiveness thresholds to drive care decisions. Click here to learn more.
2. PIPC/Xcenda: Finding the Patient Voice in ICER’s Value Assessments
PIPC has partnered with Xcenda to quantify the extent to which ICER incorporates stakeholder input in its final assessments, particularly patients. Upon review of submitted comments, and comparing those comments to ICER’s final value assessments, Xcenda was able to quantify that patient perspectives were half as likely to be incorporated than other stakeholders. The brief published today by PIPC bolsters their argument that ICER needs to take steps to improve not only its process for engagement, but also its consideration of input received from patients. Click here to read the report.
3. Op-Ed: One-Size-Fits-All Cost-Based Formulas: Rationing Care for Cancer Patients
Salvatore Giorgianni & Ana Fadich-Tomšic of Men’s Health Network write how ICER’s value frameworks can impede access to care for cancer patients in an op-ed for Morning Consult. “...We agree that the cost of health care must be managed, but any method must give equal weight to economics and humanistic needs. ICER would find it unacceptable if patients and caregivers scored the scientific data. Yet their scoring of the humanistic parameters did not include nearly enough data input from those going through the thick and thin of treatment and survival.” Click here to read the op-ed.
4. Patient EngagementHIT: Record Copying Fees, Admin Hurdles Harm Patient Data Access
In an article for Patient EngagementHIT, Sara Heath notes that while research shows benefits to patient engagement, patient data access is limited due to numerous barriers. “In theory, a patient can submit a request with a hospital or clinic to retrieve medical records. From there, a hospital may charge a nominal fee but then disclose each of the records the patient requested. However, that is largely not what happens, according to new data published in the Journal of the American Medical Association (JAMA). In an assessment of 83 top-ranked hospitals across the country, researchers discovered that most organizations do not adhere to best practices for patient data access. Specifically, researchers looked at type of information requested, formats of release, costs, and request processing time. Per HIPAA, a patient shouldn’t see many restrictions to these, save for the minimal copying fee and small amount of time needed to make copies.However, patients saw obstacles. When using a request form, patients in only 53 percent of hospitals could access their entire medical record, and only 11 percent of hospitals allowed patients to choose the format of disclosure.” Click here to read the article.
5. The PCORI Blog: PCORI at Age Eight – Progress, Impact, and More to Do
PCORI Executive Director Dr. Joe Selby offers some commentary on PCORI’s eighth anniversary in a post for The PCORI Blog. “...We plan to invest more than $400 million in research and other initiatives by the end of our 2019 fiscal year. As results from many more of our funded studies become available, we'll expand our focus on making those findings available to the public as widely and quickly as possible and promoting the use of this information in practice...We've already put in place a process for creating a continuum of information products that can help lead to more definitive longer-term studies projects while at the same time providing information that stakeholders have told us they need sooner.” Click here to read the blog.
6. DBSA Meeting: Patient Focused Drug Development Meeting
As a part of the Depression and Bipolar Support Alliance’s (DBSA) “Well Beyond Blue” campaign, DBSA will be hosting a meeting with the Food and Drug Administration (FDA) that focuses on patient-focused drug development. “Putting wellness within every individual’s reach is at the core of the DBSA mission, strategies, and programs. Key to that mission is educating decision-makers who conduct research, and make public health policy on wellness. That’s why we are hosting a meeting in the Washington, D.C. metro area on November 16, 2018 with the U.S. Food and Drug Administration (FDA) and drug and medical device manufacturers. This meeting will empower people living with depression and/or bipolar to share personal views on aspects of wellness that go beyond mere symptom reduction, as well as, name wellness strategies that work best for them. But we can’t do it without you. Our collective voices are needed in-person at this meeting which will be held in Silver Spring, MD. We intentionally scheduled the meeting to begin at 12:30 p.m., enabling people who live within driving distance to attend.” Click here to register.
7. Mental Health America: 2019 Call for Proposals is Now Open
Mental Health America is now accepting workshop proposals for its 2019 Annual Conference Dueling Mental Health and Chronic Conditions in Children and Adults. “There is a lack of uniformity across the health spectrum in how illnesses are categorized and deemed as chronic diseases and chronic conditions. Not only does this create confusion, but it may lead professionals across the spectrum to focus on specific illnesses and disregard other aspects of the person being treated, including co-occurring issues like mental health conditions and broader societal conditions such as poverty, trauma, and racism. To effectively treat an individual, we must look at the whole person, which means examining the connections that exist between traditional chronic physical conditions and mental health concerns. At MHA’s Annual Conference, we will offer a traditional mixture of keynote speakers, plenary discussions and workshop panels.” Click here for details. Deadline: November 30, 2018.
8. CMS Technical Expert Panel Opportunity: Impact Assessment of CMS Quality and Efficiency Measures
The Centers for Medicare and Medicaid (CMS) are seeking nominations for a technical expert panel (TEP) examining CMS quality and efficiency measures. Health Services Advisory Group (HSAG) is seeking a TEP of approximately 15 to 20 individuals with the following perspectives and areas of expertise:
9. Upcoming ICER Studies: Angiodema, Asthma, Opioid Use Disorder
The Institute for Clinical Economic Review (ICER) conducts cost effectiveness studies for insurers using the cost-per-QALY methodology. ICER provides guidance on its website for patients and patient advocates to provide direct input related to their experiences with the disease. Click here to provide patient input. Click here to view the topics and deadlines. Please note the following upcoming formal ICER deadlines per their website:
Prostate Cancer: Final Evidence Report 10/4/18
Amyloidosis: Final Report 10/4/18
Hereditary Angiodema: Public Meeting 10/25/18
Opioid Use Disorder: Draft Evidence Report 9/5/2018 with comment period through 10/4/2018
Asthma: Draft Voting Questions and Evidence Report 9/24/2018 with comments through 10/22/2018
Atherosclerotic Cardiovascular Disease: Draft Scoping Document 8/30/2018, comments open through 12/17/18
Spinal Muscular Atrophy: Revised Scoping Document Published 9/19/18
10. 2018 Health Care Payment Learning and Action Network (LAN) Fall Summit
The 2018 Health Care Payment and Learning Action Network (LAN) will hold its fall summit on Monday, 0ctober 22, 2018, including a panel on patient engagement with PIPC Executive Director Sara van Geertruyden. The 2018 Summit will continue to build on the momentum of the LAN by bringing together stakeholders from across the health care system to transform payment in a way that emphasizes quality over volume. The Summit will feature leaders and innovators in health care as speakers in plenary and break-out sessions throughout the day, including the following: Industry leaders discussing an array of innovations in payment reform, touching on implementation methods and lessons learned; Federal and state health care purchasers describing how they are addressing the current and future health care delivery challenges via new payment models that put the patient first; and LAN Summit attendees collaborating in facilitated workshops designed for specific stakeholder groups focusing on vital areas of interest – and challenges — surrounding design and implementation of APMs. Click here to register, and click here to view the agenda.
11. 2018 PCORI Annual Meeting
The 2018 PCORI Annual Meeting will take place on Wednesday, October 31, 2018 to Friday, November 2, 2018 in Washington, DC. “As part of this year's theme, ‘From Evidence to Impact: Putting What Works into Action,’ attendees will hear about results from PCORI’s comparative clinical effectiveness (CER) studies, efforts to promote essential findings, and those findings’ impacts. We will also discuss important trends in patient-centered outcomes research and connect with colleagues to share ideas for future research opportunities that will help patients and those who care for them make better-informed healthcare decisions. We are pleased to host two keynote speakers, Amy Berman, RN, Senior Program Officer, John A. Hartford Foundation, and Mark Smith, MD, founding president, California Health Care Foundation.” Click here for details.
12. Upcoming Events and Webinars
Cycle 3 2018 Improving Methods Applicant Town Hall
October 17, 2018
Click here for details.
PCORI Online: Cycle 3 2018 LOI Submission Webinar
October 23, 2018
Click here for details.
PCORI's New Data Sharing and Data Management Policy: What You Need to Know
October 24, 2018
Click here for details.
Advisory Panel on Patient Engagement Fall 2018 Meeting
October 30, 2018
Click here for details.
Facebook Live: Does Telehealth Improve Outcomes for Patients with Serious Mental Illness?
November 1, 2018
Click here for details.
eyeforpharma Value Summit 2018
November 7-8, 2018
Click here for details.
14th Annual Personalized Medicine Conference: Preparing for the New Possible
November 14-15, 2018
Click here for details.
PQA Social Determinants of Health Forum: Exploring Medication Access and Quality
November 14-15, 2018
Click here for details.
Advisory Panel on Healthcare Delivery and Disparities Research Fall 2018 Meeting
November 15, 2018
Click here for details.
Advisory Panel on Clinical Effectiveness and Decision Science Fall 2018 Meeting
November 30, 2018
Click here for details.
PCORI Board of Governors Meeting
December 11, 2018
Click here for details.
Advisory Panel on Rare Disease Winter 2018 Meeting
December 14, 2018
Click here for details.
2019 NEC Symposium
June 2 - 5, 2019,
Click here for details.
13. Medical Journal Articles
Engaging Patients in Health Care Epidemiology Research: A Case Example, click here to view.
A Beginning to Principles of Ethical and Regulatory Oversight of Patient-Centered Research, click here to view.
Oversight of Patient-Centered Outcomes Research: Recommendations From a Delphi Panel, click here to view.
Key Issues and Potential Solutions for Understanding Healthcare Preference Heterogeneity Free from Patient-Level Scale Confounds, click here to view.
Applying a Community-Based Participatory Research Framework to Patient and Family Engagement in the Development of Patient-Centered Outcomes Research and Practice, click here to view.
The Community and Patient Partnered Research Network (CPPRN): Application of Patient-Centered Outcomes Research to Promote Behavioral Health Equity, click here to view.
Lessons on Patient and Stakeholder Engagement Strategies for Pipeline to Proposal Awards, click here to view.
"Precision Health" for High-Need, High-Cost Patients, click here to view.
Industry Sponsorship and Research Outcome: Systematic Review with Meta-Analysis, click here to view.
14. AHRQ Effective Program Updates
Addressing Social Isolation to Improve the Health of Older Adults: A Rapid Review, click here to view.
Labor Dystocia, click here to view.
Nonsurgical Treatments for Urinary Incontinence in Women: A Systematic Review Update, click here to view.
Randomized Trial of a Patient-Centered Decision Aid for Promoting Informed Decisions about Lung Cancer Screening: Implementation of a PCORI Study Protocol and Lessons Learned, click here to view.
Collaboration Is Key to Accelerating Diagnostics Access to Optimize Benefits of Precision Medicines, click here to view.
Registries for Evaluating Patient Outcomes: A User’s Guide Call for Case Examples, click here to view.
Telehealth for Acute and Chronic Care Consultations, click here to view.
Library of Patient-Centered Outcomes Research Resources, click here to view.
Mobile Health Applications for Self-Management of Diabetes, click here to view.
Role of Immunotherapy in the Treatment of Asthma, click here to view.
Library of Common Data Definitions: Atrial Fibrillation, click here to view.
Library of Common Data Definitions: Asthma, click here to view.
PIPC Chairman stated in his blog, "Health-care payers are missing a tremendous opportunity to improve the health of our nation in a uniquely American way — by making health care about the individual person, based on his or her own characteristics.” Unfortunately, in August, the pharmacy benefit manager CVS Caremark announced that they would offer new plans to employers that exclude drugs if they exceed a subjective “cost-effectiveness” threshold. CVS would rely on a deeply flawed value assessment model developed by the Institute for Clinical and Economic Review (ICER) in determining whether treatments fall below a $100,000 “cost per quality-adjusted-life-year” limit. This type of cost effectiveness analysis discriminates against people with disabilities and other vulnerable groups like the elderly because it assigns higher value to people in “perfect health” than people in less-than-perfect health. Policy decisions based on cost-effectiveness ignore important differences among patients and instead rely on a single, one-size-fits-all assessment. Further, cost-effectiveness analysis discriminates against the chronically ill, the elderly and people with disabilities, using algorithms that calculate their lives as 'worth less' than people who are younger or non-disabled. Join PIPC in demanding that insurers and others stop relying on discriminatory cost-effectiveness thresholds to drive care decisions. Click here to learn more.
2. PIPC/Xcenda: Finding the Patient Voice in ICER’s Value Assessments
PIPC has partnered with Xcenda to quantify the extent to which ICER incorporates stakeholder input in its final assessments, particularly patients. Upon review of submitted comments, and comparing those comments to ICER’s final value assessments, Xcenda was able to quantify that patient perspectives were half as likely to be incorporated than other stakeholders. The brief published today by PIPC bolsters their argument that ICER needs to take steps to improve not only its process for engagement, but also its consideration of input received from patients. Click here to read the report.
3. Op-Ed: One-Size-Fits-All Cost-Based Formulas: Rationing Care for Cancer Patients
Salvatore Giorgianni & Ana Fadich-Tomšic of Men’s Health Network write how ICER’s value frameworks can impede access to care for cancer patients in an op-ed for Morning Consult. “...We agree that the cost of health care must be managed, but any method must give equal weight to economics and humanistic needs. ICER would find it unacceptable if patients and caregivers scored the scientific data. Yet their scoring of the humanistic parameters did not include nearly enough data input from those going through the thick and thin of treatment and survival.” Click here to read the op-ed.
4. Patient EngagementHIT: Record Copying Fees, Admin Hurdles Harm Patient Data Access
In an article for Patient EngagementHIT, Sara Heath notes that while research shows benefits to patient engagement, patient data access is limited due to numerous barriers. “In theory, a patient can submit a request with a hospital or clinic to retrieve medical records. From there, a hospital may charge a nominal fee but then disclose each of the records the patient requested. However, that is largely not what happens, according to new data published in the Journal of the American Medical Association (JAMA). In an assessment of 83 top-ranked hospitals across the country, researchers discovered that most organizations do not adhere to best practices for patient data access. Specifically, researchers looked at type of information requested, formats of release, costs, and request processing time. Per HIPAA, a patient shouldn’t see many restrictions to these, save for the minimal copying fee and small amount of time needed to make copies.However, patients saw obstacles. When using a request form, patients in only 53 percent of hospitals could access their entire medical record, and only 11 percent of hospitals allowed patients to choose the format of disclosure.” Click here to read the article.
5. The PCORI Blog: PCORI at Age Eight – Progress, Impact, and More to Do
PCORI Executive Director Dr. Joe Selby offers some commentary on PCORI’s eighth anniversary in a post for The PCORI Blog. “...We plan to invest more than $400 million in research and other initiatives by the end of our 2019 fiscal year. As results from many more of our funded studies become available, we'll expand our focus on making those findings available to the public as widely and quickly as possible and promoting the use of this information in practice...We've already put in place a process for creating a continuum of information products that can help lead to more definitive longer-term studies projects while at the same time providing information that stakeholders have told us they need sooner.” Click here to read the blog.
6. DBSA Meeting: Patient Focused Drug Development Meeting
As a part of the Depression and Bipolar Support Alliance’s (DBSA) “Well Beyond Blue” campaign, DBSA will be hosting a meeting with the Food and Drug Administration (FDA) that focuses on patient-focused drug development. “Putting wellness within every individual’s reach is at the core of the DBSA mission, strategies, and programs. Key to that mission is educating decision-makers who conduct research, and make public health policy on wellness. That’s why we are hosting a meeting in the Washington, D.C. metro area on November 16, 2018 with the U.S. Food and Drug Administration (FDA) and drug and medical device manufacturers. This meeting will empower people living with depression and/or bipolar to share personal views on aspects of wellness that go beyond mere symptom reduction, as well as, name wellness strategies that work best for them. But we can’t do it without you. Our collective voices are needed in-person at this meeting which will be held in Silver Spring, MD. We intentionally scheduled the meeting to begin at 12:30 p.m., enabling people who live within driving distance to attend.” Click here to register.
7. Mental Health America: 2019 Call for Proposals is Now Open
Mental Health America is now accepting workshop proposals for its 2019 Annual Conference Dueling Mental Health and Chronic Conditions in Children and Adults. “There is a lack of uniformity across the health spectrum in how illnesses are categorized and deemed as chronic diseases and chronic conditions. Not only does this create confusion, but it may lead professionals across the spectrum to focus on specific illnesses and disregard other aspects of the person being treated, including co-occurring issues like mental health conditions and broader societal conditions such as poverty, trauma, and racism. To effectively treat an individual, we must look at the whole person, which means examining the connections that exist between traditional chronic physical conditions and mental health concerns. At MHA’s Annual Conference, we will offer a traditional mixture of keynote speakers, plenary discussions and workshop panels.” Click here for details. Deadline: November 30, 2018.
8. CMS Technical Expert Panel Opportunity: Impact Assessment of CMS Quality and Efficiency Measures
The Centers for Medicare and Medicaid (CMS) are seeking nominations for a technical expert panel (TEP) examining CMS quality and efficiency measures. Health Services Advisory Group (HSAG) is seeking a TEP of approximately 15 to 20 individuals with the following perspectives and areas of expertise:
- Patient/family/caregiver perspectives
- Consumer and patient advocacy
- Social risk factors and disparities
- Health care quality improvement and clinical expertise in various settings (e.g., long-term care, acute care, ambulatory care, hospice)
- Quality measure development and evaluation, including statistical methods and survey design
- Health care economics and policy
9. Upcoming ICER Studies: Angiodema, Asthma, Opioid Use Disorder
The Institute for Clinical Economic Review (ICER) conducts cost effectiveness studies for insurers using the cost-per-QALY methodology. ICER provides guidance on its website for patients and patient advocates to provide direct input related to their experiences with the disease. Click here to provide patient input. Click here to view the topics and deadlines. Please note the following upcoming formal ICER deadlines per their website:
Prostate Cancer: Final Evidence Report 10/4/18
Amyloidosis: Final Report 10/4/18
Hereditary Angiodema: Public Meeting 10/25/18
Opioid Use Disorder: Draft Evidence Report 9/5/2018 with comment period through 10/4/2018
Asthma: Draft Voting Questions and Evidence Report 9/24/2018 with comments through 10/22/2018
Atherosclerotic Cardiovascular Disease: Draft Scoping Document 8/30/2018, comments open through 12/17/18
Spinal Muscular Atrophy: Revised Scoping Document Published 9/19/18
10. 2018 Health Care Payment Learning and Action Network (LAN) Fall Summit
The 2018 Health Care Payment and Learning Action Network (LAN) will hold its fall summit on Monday, 0ctober 22, 2018, including a panel on patient engagement with PIPC Executive Director Sara van Geertruyden. The 2018 Summit will continue to build on the momentum of the LAN by bringing together stakeholders from across the health care system to transform payment in a way that emphasizes quality over volume. The Summit will feature leaders and innovators in health care as speakers in plenary and break-out sessions throughout the day, including the following: Industry leaders discussing an array of innovations in payment reform, touching on implementation methods and lessons learned; Federal and state health care purchasers describing how they are addressing the current and future health care delivery challenges via new payment models that put the patient first; and LAN Summit attendees collaborating in facilitated workshops designed for specific stakeholder groups focusing on vital areas of interest – and challenges — surrounding design and implementation of APMs. Click here to register, and click here to view the agenda.
11. 2018 PCORI Annual Meeting
The 2018 PCORI Annual Meeting will take place on Wednesday, October 31, 2018 to Friday, November 2, 2018 in Washington, DC. “As part of this year's theme, ‘From Evidence to Impact: Putting What Works into Action,’ attendees will hear about results from PCORI’s comparative clinical effectiveness (CER) studies, efforts to promote essential findings, and those findings’ impacts. We will also discuss important trends in patient-centered outcomes research and connect with colleagues to share ideas for future research opportunities that will help patients and those who care for them make better-informed healthcare decisions. We are pleased to host two keynote speakers, Amy Berman, RN, Senior Program Officer, John A. Hartford Foundation, and Mark Smith, MD, founding president, California Health Care Foundation.” Click here for details.
12. Upcoming Events and Webinars
Cycle 3 2018 Improving Methods Applicant Town Hall
October 17, 2018
Click here for details.
PCORI Online: Cycle 3 2018 LOI Submission Webinar
October 23, 2018
Click here for details.
PCORI's New Data Sharing and Data Management Policy: What You Need to Know
October 24, 2018
Click here for details.
Advisory Panel on Patient Engagement Fall 2018 Meeting
October 30, 2018
Click here for details.
Facebook Live: Does Telehealth Improve Outcomes for Patients with Serious Mental Illness?
November 1, 2018
Click here for details.
eyeforpharma Value Summit 2018
November 7-8, 2018
Click here for details.
14th Annual Personalized Medicine Conference: Preparing for the New Possible
November 14-15, 2018
Click here for details.
PQA Social Determinants of Health Forum: Exploring Medication Access and Quality
November 14-15, 2018
Click here for details.
Advisory Panel on Healthcare Delivery and Disparities Research Fall 2018 Meeting
November 15, 2018
Click here for details.
Advisory Panel on Clinical Effectiveness and Decision Science Fall 2018 Meeting
November 30, 2018
Click here for details.
PCORI Board of Governors Meeting
December 11, 2018
Click here for details.
Advisory Panel on Rare Disease Winter 2018 Meeting
December 14, 2018
Click here for details.
2019 NEC Symposium
June 2 - 5, 2019,
Click here for details.
13. Medical Journal Articles
Engaging Patients in Health Care Epidemiology Research: A Case Example, click here to view.
A Beginning to Principles of Ethical and Regulatory Oversight of Patient-Centered Research, click here to view.
Oversight of Patient-Centered Outcomes Research: Recommendations From a Delphi Panel, click here to view.
Key Issues and Potential Solutions for Understanding Healthcare Preference Heterogeneity Free from Patient-Level Scale Confounds, click here to view.
Applying a Community-Based Participatory Research Framework to Patient and Family Engagement in the Development of Patient-Centered Outcomes Research and Practice, click here to view.
The Community and Patient Partnered Research Network (CPPRN): Application of Patient-Centered Outcomes Research to Promote Behavioral Health Equity, click here to view.
Lessons on Patient and Stakeholder Engagement Strategies for Pipeline to Proposal Awards, click here to view.
"Precision Health" for High-Need, High-Cost Patients, click here to view.
Industry Sponsorship and Research Outcome: Systematic Review with Meta-Analysis, click here to view.
14. AHRQ Effective Program Updates
Addressing Social Isolation to Improve the Health of Older Adults: A Rapid Review, click here to view.
Labor Dystocia, click here to view.
Nonsurgical Treatments for Urinary Incontinence in Women: A Systematic Review Update, click here to view.
Randomized Trial of a Patient-Centered Decision Aid for Promoting Informed Decisions about Lung Cancer Screening: Implementation of a PCORI Study Protocol and Lessons Learned, click here to view.
Collaboration Is Key to Accelerating Diagnostics Access to Optimize Benefits of Precision Medicines, click here to view.
Registries for Evaluating Patient Outcomes: A User’s Guide Call for Case Examples, click here to view.
Telehealth for Acute and Chronic Care Consultations, click here to view.
Library of Patient-Centered Outcomes Research Resources, click here to view.
Mobile Health Applications for Self-Management of Diabetes, click here to view.
Role of Immunotherapy in the Treatment of Asthma, click here to view.
Library of Common Data Definitions: Atrial Fibrillation, click here to view.
Library of Common Data Definitions: Asthma, click here to view.
