In This Week’s Issue:
1. PCORI Annual Meeting and Patient Networking Reception, click here to register.
2. Four Newspapers Publish Letter from Over 60 Leading Groups Calling for Voices of Patients and People at Center of Health Debate, click here to view the letter.
3. Care for Your Mind: Tony Coelho Reiterates that Patients Need to be Involved in Policy-making, click here to view the article.
4. PIPC Launches New Website!, click here to view the site.
5. PCORI: Enlisting the Brain in the Fight against Pain, click here to read the article.
6. A Letter from CMS to Clinicians in the Quality Payment Program: We Heard You and Will Continue Listening, click here to view the letter.
7. The Healthcare Blog: The Fine Print of MACRA's Final Rule: Good for Patients? click here to view the response.
8. Upcoming Events and Webinars, see details below.
9. Medical Journal Articles, see details below.
10. AHRQ Effective Program Updates, see details below.
1. PCORI Annual Meeting and Patient Networking Reception, click here to register.
2. Four Newspapers Publish Letter from Over 60 Leading Groups Calling for Voices of Patients and People at Center of Health Debate, click here to view the letter.
3. Care for Your Mind: Tony Coelho Reiterates that Patients Need to be Involved in Policy-making, click here to view the article.
4. PIPC Launches New Website!, click here to view the site.
5. PCORI: Enlisting the Brain in the Fight against Pain, click here to read the article.
6. A Letter from CMS to Clinicians in the Quality Payment Program: We Heard You and Will Continue Listening, click here to view the letter.
7. The Healthcare Blog: The Fine Print of MACRA's Final Rule: Good for Patients? click here to view the response.
8. Upcoming Events and Webinars, see details below.
9. Medical Journal Articles, see details below.
10. AHRQ Effective Program Updates, see details below.
1. PCORI Annual Meeting and Patient Networking Reception
The Patient-Centered Outcomes Research Institute (PCORI) is hosting its 2016 Annual Meeting entitled Changing the Conversation about Health Research on November 16-19 at the Gaylord National Resort and Convention Center in National Harbor, Maryland. They invite patients and caregivers to join more than 1,00 members of the healthcare community to hear updates on how scientists, patients, and other stakeholders are working together to make research more useful and relevant. Among those on Thursday’s panel (November 17) include PIPC Chairman Tony Coelho who will be speaking at 1:00pm and the National Alliance on Mental Illness’ (NAMI) Andrew Sperling, a PIPC Steering member, who will be speaking on the 3:30 PCORI panel on how patient needs and values can be made central to health research and decision making. The deadline to register for the PCORI 2016 Annual Meeting is Thursday, October 27, 2016.
Click here for more information on PCORI’s Annual Meeting and to register for their event. PIPC is excited to be hosting a reception for participating patients during the annual meeting as well.
2. Four Newspapers Publish Letter from Over 60 Leading Groups Calling for Patients and People at Center of Health Debate
On Friday, October 7 PIPC joined over 60 groups representing patients and people served by health systems in signing onto an Open Letter that was published in several leading newspapers across the country, including the St. Louis Dispatch, the Cleveland Plain Dealer, the Detroit Free Press, and the Miami Herald. The letter called on the Presidential candidates and the Presidential debate moderators to give voice to patients and people served by health systems and to give them a voice in health care. Furthermore, it calls for the creation of a health care system that rewards the outcomes that matter to patients, and emphasizes that when it comes to dictating patients’ treatment options, no patient is "average."
“We want to know, how will you as candidates make sure we are at the center of health care? What are your plans for empowering consumers, patients and providers? What decisions should be made by the government vs. individuals?” the letter states. “We reject the notion that we should be bundled into one-size-fits-all care models, or valued against one-size-fits-all judgments of cost-effectiveness. Don’t tell us what we’re worth – ask us what we value.” Click here to view the open letter.
3. Care For Your Mind: Tony Coelho Reiterates that Patients Need to be Involved in Policy-making
PIPC Chairman Tony Coelho shares his personal experiences as a lifetime disability advocate and discusses the need to prioritize patient involvement in healthcare policy in Care For Your Mind’s discussion forum. Chairman Coelho writes, “In order to create a system that better treats patients, we need legislators and decision-makers to create laws and regulations that value and support patient input. By bringing patients to the policymaking table, we can create a stronger healthcare system that addresses the needs of the individual and ensures more effective care for everyone as we move forward.”
Chairman Coelho goes on to highlight the need for patients to remain at the center of the discussion in healthcare decision-making, to steer away from one-size-fits-all policies, and outlines a number of policies that support patient-centeredness. “The patient’s input is important at every level of care, from the exam room to Capitol Hill,” Chairman Coelho says. “Medicare and Medicaid policies often dictate how physicians and patients are able to interact; policymakers should build a similar infrastructure for patient engagement within the Centers for Medicare and Medicaid Services. Patient input at the policy level is most crucial to ensure appropriate coverage and access to care.” Click here to read the post.
4. PIPC Launches New Website!
PIPC has launched a new website that highlights the Partnership’s work to give patients a seat at the table in the evolving healthcare landscape. The redesigned and revamped website aptly highlights PIPC's work to amplify the voices of patients and people with disabilities in three key areas in the discussion of value-based care: (1) implementing value-based payment, (2) developing and using tools to inform decisions on care value, and (3) supporting research on comparative value.
Among the key resources available on the new PIPC website (www.pipcpatients.org):
5. PCORI: Enlisting the Brain in the Fight Against Pain
Chronic pain is a major health problem, particularly among economically disadvantaged people. Preliminary results of a PCORI-funded project suggest that group sessions of cognitive behavioral therapy and education about pain can help disadvantaged people deal with chronic pain. If the methods prove effective, healthcare providers may be able to offer evidence-based pain-management approaches that don’t require advanced technology. Click here to view the article.
6. A Letter from CMS to Clinicians in the Quality Payment Program: We Heard You and Will Continue Listening
As written in a letter by Acting Administrator for the Centers for Medicare and Medicaid Services (CMS) Andy Slavitt, the agency has been listening and is responding to feedback on the CMS’ Medicare Quality Payment Program. Part of CMS’ response, Slavitt says, is focusing on the patient, as he said patients told them they want and expect policymakers to pay for what works and for high-quality outcomes. Furthermore, he announced more pathways to participate in Advanced Alternative Payment Models (APMs). “In listening to many of you and working with the Congress, we have heard strong interest in providing more opportunities for physicians to participate in Advanced APMs,” he said. “Our goal over the next few years is to have more options that fit the diversity of practices and care across the nation, while maintaining robust models that actively encourage high-value care – the best care at the best price – for our Medicare beneficiaries.” Read the letter here.
7. The Healthcare Blog: The Fine Print of MACRA's Final Rule: Good for Patients?
In a response to a letter by Acting Administrator for the Centers for Medicare and Medicaid Services (CMS) Andy Slavitt to clinicians posted online, Michael Millenson, president of Health Quality Advisors, expresses concern that CMS’ recent announcement does not go far enough to ensure that patients are at the center of the discussion on healthcare decision-making. “I’d like to distinguish between what the program is trying to have clinicians do for patients and what it wants them to do with patients. In simplest terms, the kind of regulations that, say, require hospitals to have fire doors and use licensed doctors and nurses are ‘patient-centered’ in that they help patients avoid being treated by incompetents working in a firetrap,” he says. “However, those types of rules don’t address the issue of engaging with patients as individuals.” Click here to view the response.
8. Upcoming Events and Webinars
PCORI: Advisory Panel on Addressing Disparities Fall 2016 Meeting
October 24, 2016, 9:00AM - 5:00PM ET
Click here for details.
LAN Fall Summit
October 25, 2016, 7:00 - 8:30AM ET
Click here for details.
Leveraging Patient and Stakeholder Engagement to Facilitate Study and Research Network Recruitment: Stories of Impact from PCORI Funded Projects
October 25, 2016, 12:00 - 1:00PM ET
Click here for details
ANCOR: Election 2016: Empowering the I/DD Community To Rock The Vote
October 25, 2016, 2:00PM - 3:00PM ET
Click here for details.
Breast Cancer Twitter Chat
October 25, 2016, 2:00 - 3:00PM ET
Click here for details.
Advisory Panel on Rare Disease Fall 2016 Meeting
October 27, 2016, 9:00AM - 4:00PM ET
Click here for details.
Measuring Our Impact on Science, Delivery of Care, and Patient Outcomes
October 27 - 28, 2016
Click here for details.
PCORI Board of Governors Meeting
October 31, 2016, 10:15AM - 5:30PM ET
Mayflower Hotel, 1127 Connecticut Ave, NW, Washington, DC 20036
Click here for details.
Cycle 3 2016 Broad PFA Applicant Town Hall
November 2, 2016, 2:30 - 4:00PM ET
Click here for details.
Strategies to Prevent Unsafe Opioid Prescribing in Primary Care PFA Applicant Town Hall
November 3, 2016, 12:00 - 1:30PM ET
Click here for details.
Health Systems and Addiction: The Use and Misuse of Legal Substances
November 16 - 17, 2016, National Academy of Sciences, Washington, DC
Click here to view.
2016 PCORI Annual Meeting
November 17 - 19, 2016, Gaylord National Resort & Convention Center, National Harbor, MD
Click here for details.
Cancer Support Community: Access to Care in Cancer 2016
November 30, 2016, 9:00AM – 12:00pm
Click here for details.
Recommendations of the Second Panel on Cost-Effectiveness in Health and Medicine
December 7, 2016, 9:00AM - 4:30PM
Click here for details.
9. Medical Journal Articles
10-Year Outcomes After Monitoring, Surgery, or Radiotherapy for Localized Prostate Cancer, click here to view.
Conceptual Model for Early Health Technology Assessment of Current and Novel Heart Valve Interventions, click here to view.
Using Stakeholder Engagement to Develop a Patient-Centered Pediatric Asthma Intervention, click here to view.
Evidence-Based Policy as Reflexive Practice. What Can We Learn From Evidence-Based Medicine? click here to view.
October Issue: Journal of Comparative Effectiveness Research, click here to view.
The Changing Landscape of Randomized Clinical Trials in Cardiovascular Disease, click here to view.
Observational Studies - Should We Simply Ignore Them in Assessing Transfusion Outcomes? click here to view.
Recommendations For the Conduct and Reporting of Modeling and Simulation Studies in Health Technology Assessment, click here to view.
Comparative Effectiveness of Dextrose Prolotherapy Versus Control Injections and Exercise in the Management of Osteoarthritis Pain: A Systematic Review and Meta-Analysis, click here to view.
Comparative Treatment Patterns Among Psoriasis Patients Using Adalimumab, Etanercept, or Ustekinumab, click here to view.
10. AHRQ Effective Program Updates
Diagnosis and Treatment of Attention Deficit Hyperactivity Disorder (ADHD) in Children and Adolescents, click here to view.
Patient Safety in Ambulatory Settings -- Final Report, click here to view.
The Patient-Centered Outcomes Research Institute (PCORI) is hosting its 2016 Annual Meeting entitled Changing the Conversation about Health Research on November 16-19 at the Gaylord National Resort and Convention Center in National Harbor, Maryland. They invite patients and caregivers to join more than 1,00 members of the healthcare community to hear updates on how scientists, patients, and other stakeholders are working together to make research more useful and relevant. Among those on Thursday’s panel (November 17) include PIPC Chairman Tony Coelho who will be speaking at 1:00pm and the National Alliance on Mental Illness’ (NAMI) Andrew Sperling, a PIPC Steering member, who will be speaking on the 3:30 PCORI panel on how patient needs and values can be made central to health research and decision making. The deadline to register for the PCORI 2016 Annual Meeting is Thursday, October 27, 2016.
Click here for more information on PCORI’s Annual Meeting and to register for their event. PIPC is excited to be hosting a reception for participating patients during the annual meeting as well.
2. Four Newspapers Publish Letter from Over 60 Leading Groups Calling for Patients and People at Center of Health Debate
On Friday, October 7 PIPC joined over 60 groups representing patients and people served by health systems in signing onto an Open Letter that was published in several leading newspapers across the country, including the St. Louis Dispatch, the Cleveland Plain Dealer, the Detroit Free Press, and the Miami Herald. The letter called on the Presidential candidates and the Presidential debate moderators to give voice to patients and people served by health systems and to give them a voice in health care. Furthermore, it calls for the creation of a health care system that rewards the outcomes that matter to patients, and emphasizes that when it comes to dictating patients’ treatment options, no patient is "average."
“We want to know, how will you as candidates make sure we are at the center of health care? What are your plans for empowering consumers, patients and providers? What decisions should be made by the government vs. individuals?” the letter states. “We reject the notion that we should be bundled into one-size-fits-all care models, or valued against one-size-fits-all judgments of cost-effectiveness. Don’t tell us what we’re worth – ask us what we value.” Click here to view the open letter.
3. Care For Your Mind: Tony Coelho Reiterates that Patients Need to be Involved in Policy-making
PIPC Chairman Tony Coelho shares his personal experiences as a lifetime disability advocate and discusses the need to prioritize patient involvement in healthcare policy in Care For Your Mind’s discussion forum. Chairman Coelho writes, “In order to create a system that better treats patients, we need legislators and decision-makers to create laws and regulations that value and support patient input. By bringing patients to the policymaking table, we can create a stronger healthcare system that addresses the needs of the individual and ensures more effective care for everyone as we move forward.”
Chairman Coelho goes on to highlight the need for patients to remain at the center of the discussion in healthcare decision-making, to steer away from one-size-fits-all policies, and outlines a number of policies that support patient-centeredness. “The patient’s input is important at every level of care, from the exam room to Capitol Hill,” Chairman Coelho says. “Medicare and Medicaid policies often dictate how physicians and patients are able to interact; policymakers should build a similar infrastructure for patient engagement within the Centers for Medicare and Medicaid Services. Patient input at the policy level is most crucial to ensure appropriate coverage and access to care.” Click here to read the post.
4. PIPC Launches New Website!
PIPC has launched a new website that highlights the Partnership’s work to give patients a seat at the table in the evolving healthcare landscape. The redesigned and revamped website aptly highlights PIPC's work to amplify the voices of patients and people with disabilities in three key areas in the discussion of value-based care: (1) implementing value-based payment, (2) developing and using tools to inform decisions on care value, and (3) supporting research on comparative value.
Among the key resources available on the new PIPC website (www.pipcpatients.org):
- An updated ‘Issues’ page which highlight’s PIPC’s previous work in the three key areas of focus;
- A new ‘Where We Stand’ page, which summarizes PIPC’s positive, forward-thinking agenda for how to include the voices of patients and people with disabilities at the center of the evolving healthcare landscape;
- An action-oriented call-to-action – the Patient Voices, Patient Value Initiative – which calls on patients and people with disabilities to engage with policymakers in the development of “value” policies;
- A revamped ‘Resources’ page – a sortable compendium including all of PIPC’s roundtable outputs, white papers, letters and comments, and polling data;
- The PIPC Blog, which includes everything from our ‘PIPC Patients Blog’ posts, the ‘Chairman’s Corner,’ recent news items, recent press releases, and all of our previous ‘PIPC Weekly Updates.’
5. PCORI: Enlisting the Brain in the Fight Against Pain
Chronic pain is a major health problem, particularly among economically disadvantaged people. Preliminary results of a PCORI-funded project suggest that group sessions of cognitive behavioral therapy and education about pain can help disadvantaged people deal with chronic pain. If the methods prove effective, healthcare providers may be able to offer evidence-based pain-management approaches that don’t require advanced technology. Click here to view the article.
6. A Letter from CMS to Clinicians in the Quality Payment Program: We Heard You and Will Continue Listening
As written in a letter by Acting Administrator for the Centers for Medicare and Medicaid Services (CMS) Andy Slavitt, the agency has been listening and is responding to feedback on the CMS’ Medicare Quality Payment Program. Part of CMS’ response, Slavitt says, is focusing on the patient, as he said patients told them they want and expect policymakers to pay for what works and for high-quality outcomes. Furthermore, he announced more pathways to participate in Advanced Alternative Payment Models (APMs). “In listening to many of you and working with the Congress, we have heard strong interest in providing more opportunities for physicians to participate in Advanced APMs,” he said. “Our goal over the next few years is to have more options that fit the diversity of practices and care across the nation, while maintaining robust models that actively encourage high-value care – the best care at the best price – for our Medicare beneficiaries.” Read the letter here.
7. The Healthcare Blog: The Fine Print of MACRA's Final Rule: Good for Patients?
In a response to a letter by Acting Administrator for the Centers for Medicare and Medicaid Services (CMS) Andy Slavitt to clinicians posted online, Michael Millenson, president of Health Quality Advisors, expresses concern that CMS’ recent announcement does not go far enough to ensure that patients are at the center of the discussion on healthcare decision-making. “I’d like to distinguish between what the program is trying to have clinicians do for patients and what it wants them to do with patients. In simplest terms, the kind of regulations that, say, require hospitals to have fire doors and use licensed doctors and nurses are ‘patient-centered’ in that they help patients avoid being treated by incompetents working in a firetrap,” he says. “However, those types of rules don’t address the issue of engaging with patients as individuals.” Click here to view the response.
8. Upcoming Events and Webinars
PCORI: Advisory Panel on Addressing Disparities Fall 2016 Meeting
October 24, 2016, 9:00AM - 5:00PM ET
Click here for details.
LAN Fall Summit
October 25, 2016, 7:00 - 8:30AM ET
Click here for details.
Leveraging Patient and Stakeholder Engagement to Facilitate Study and Research Network Recruitment: Stories of Impact from PCORI Funded Projects
October 25, 2016, 12:00 - 1:00PM ET
Click here for details
ANCOR: Election 2016: Empowering the I/DD Community To Rock The Vote
October 25, 2016, 2:00PM - 3:00PM ET
Click here for details.
Breast Cancer Twitter Chat
October 25, 2016, 2:00 - 3:00PM ET
Click here for details.
Advisory Panel on Rare Disease Fall 2016 Meeting
October 27, 2016, 9:00AM - 4:00PM ET
Click here for details.
Measuring Our Impact on Science, Delivery of Care, and Patient Outcomes
October 27 - 28, 2016
Click here for details.
PCORI Board of Governors Meeting
October 31, 2016, 10:15AM - 5:30PM ET
Mayflower Hotel, 1127 Connecticut Ave, NW, Washington, DC 20036
Click here for details.
Cycle 3 2016 Broad PFA Applicant Town Hall
November 2, 2016, 2:30 - 4:00PM ET
Click here for details.
Strategies to Prevent Unsafe Opioid Prescribing in Primary Care PFA Applicant Town Hall
November 3, 2016, 12:00 - 1:30PM ET
Click here for details.
Health Systems and Addiction: The Use and Misuse of Legal Substances
November 16 - 17, 2016, National Academy of Sciences, Washington, DC
Click here to view.
2016 PCORI Annual Meeting
November 17 - 19, 2016, Gaylord National Resort & Convention Center, National Harbor, MD
Click here for details.
Cancer Support Community: Access to Care in Cancer 2016
November 30, 2016, 9:00AM – 12:00pm
Click here for details.
Recommendations of the Second Panel on Cost-Effectiveness in Health and Medicine
December 7, 2016, 9:00AM - 4:30PM
Click here for details.
9. Medical Journal Articles
10-Year Outcomes After Monitoring, Surgery, or Radiotherapy for Localized Prostate Cancer, click here to view.
Conceptual Model for Early Health Technology Assessment of Current and Novel Heart Valve Interventions, click here to view.
Using Stakeholder Engagement to Develop a Patient-Centered Pediatric Asthma Intervention, click here to view.
Evidence-Based Policy as Reflexive Practice. What Can We Learn From Evidence-Based Medicine? click here to view.
October Issue: Journal of Comparative Effectiveness Research, click here to view.
The Changing Landscape of Randomized Clinical Trials in Cardiovascular Disease, click here to view.
Observational Studies - Should We Simply Ignore Them in Assessing Transfusion Outcomes? click here to view.
Recommendations For the Conduct and Reporting of Modeling and Simulation Studies in Health Technology Assessment, click here to view.
Comparative Effectiveness of Dextrose Prolotherapy Versus Control Injections and Exercise in the Management of Osteoarthritis Pain: A Systematic Review and Meta-Analysis, click here to view.
Comparative Treatment Patterns Among Psoriasis Patients Using Adalimumab, Etanercept, or Ustekinumab, click here to view.
10. AHRQ Effective Program Updates
Diagnosis and Treatment of Attention Deficit Hyperactivity Disorder (ADHD) in Children and Adolescents, click here to view.
Patient Safety in Ambulatory Settings -- Final Report, click here to view.
