Partnership to Improve Patient Care

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  • Home
  • About
    • Mission and Priorities
    • Meet the Chairman
    • Steering Committee
    • PIPC Member List
    • Contact
  • The Issues
    • Value Our Health
    • International
    • Where We Stand
    • Value Assessment Frameworks
    • Engaging Patients in Value-Based Payment
    • Patient-Centeredness in Research
  • Resources
    • Advocacy
    • Letters and Comments
    • PCORI Meeting Transcripts
    • Polling
    • Roundtables
    • White Papers
  • Blog
    • PIPC Patients' Blog
    • Chairman's Corner
    • PIPC Weekly Update
    • The Data Mine
  • Newsroom
    • PIPC in the News
    • Press Releases
    • Open Letter: We Deserve a Voice
  • Events
    • PIPC Forum 2022
    • Discrimination & Health Care
    • C & GT Webinar
    • ICER COVID Webinar
    • Value Our Health Briefing
    • QALY Briefing
    • QALY Panel
    • Past Webinars >
      • ICER SCD Webinar
      • VOH Sickle Cell Webinar
      • Rare Disease Webinar
      • QALY Webinar
      • PCORI Advocacy Webinar
      • APM Webinar
      • Patient Empowerment Webinar
      • Value Assessments Briefing
    • Past PIPC Forums >
      • 2021
      • 2020
      • 2019
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The PIPC Blog

PIPC Weekly Update - March 30, 2015

3/30/2015

 
In This Week’s Issue:
1. HHS Launches Health Care Payment Learning and Action Network, click here to view the article.
2. NHC: Meaningful Patient Engagement: Can We Agree on a Framework?, click here to view the article.
3. Fierce Health IT: PCORnet Project to Engage Health Systems, click here to view the article.
4. Here's One Flaw of a Patient-Centered Healthcare System, click here to view the article.
5. Wall Street Journal: How Big Data Can Make Your Doctor Smarter, click here to view the blog.
6. PCORI’s Joe Selby Comments on CER Survey, click here to view the statement.
7. PCORI Blog: Building Community Among Funders of Patient-Engaged Research, click here to view the blog.
8. Pink Sheet: Comparative Effectiveness Of MS Drugs, Biosimilars On PCORI's Radar, click here to view the article (subscription only).

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PIPC Weekly Update - March 16, 2015

3/23/2015

 
In This Week’s Issue:
1. PIPC: State on GAO Report on PCORI, Click here to view.
2. Statement on GAO Report on Dissemination of CER and Data Capacity, click here to view the statement.
3. Health IT Analytics: Can Healthcare Effectively Measure Patient Engagement? Click here  to view.
 
4. NHC: March 20 Understanding Patient Needs and the Health Insurance Marketplace, Click here to register.
5. M-CERSI Conference on Patient-Focused Drug Development, additional information can be found here.
6. Health Affairs Blog: Reconciling Prevention And Value In The Health Care System, click here to view. 
7. Forbes Column: Let Medicare Patients Decide Which Accountable Care Organization To Join, click here to view.
8. NIH Director Sees Solving Data Puzzle as Key to U.S. Precision Medicine, click here to view.
9. PCORI: Reducing the Burden of Kidney Disease, click here to view the full blog
10. Healthcare Informatics: Digging Out of a Hole: The Two Sides of Patient Engagement, click here to view the full article.
11. PCORI: Putting Research to Work for Individual Patients, click here to view the full blog.
12. New York Times: If Patients Only Knew How Often Treatments Could Harm Them, click here to view the full blog.
13. AHRQ Research Conference Returns in 2015, click here for details.

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PIPC Weekly Update - March 23, 2015

3/23/2015

 
In This Week’s Issue:
1. New York Times: The Importance of Sitting With Patients, click here to view the article.
2. NJBiz: Obamacare shoppers with chronic illnesses could use more online tools, study finds, click here to view.
3. Commentary: The Patient is in the Driver’s Seat, click here to view the article.
4. Health IT Analytics: How Does an ACO Differ from the Patient-Centered Medical Home?, click here to view the article.
5. Applied Clinical Trials: FDA, Sponsors Look to Expand Patient Input to Clinical Trials, click here to view the article.
6. Wall Street Journal: Hepatitis C Drugs are Cost Effective, but Affordability is Another Matter, click here to view the article.
7. Healthcare IT News: FDA Must Make Smarter Use of Big Data, click here to view the article.
8. HealthData Management: FDA's Sentinel System Harnesses Big Data to Monitor Medical Products, click here to view the article.
9. Fierce HealthIT: Geisinger Researchers Share Framework for Putting a Learning Health System into Practice, click here to view the article.

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PIPC Chairman Coelho Comments on GAO Report on PCORI

3/10/2015

 
On March 9, 2015, the Government Accountability Office (GAO) released a review of PCORI’s activities as mandated by law.  The Chairman of the Partnership to Improve Patient Care (PIPC), former Congressman Tony Coelho, stated: "PIPC remains vigilant in its efforts to ensure that PCORI’s work improves health care decision-making, and therefore is pleased that the GAO’s review of PCORI concluded that it is meeting its legislative mandate.  Although the report acknowledged stakeholder concerns that PCORI’s research priorities are too broad and lack specificity, I am pleased that the GAO found that PCORI has been responsive to PIPC and others by better utilizing advisory panels to identify more specific research questions and topics....

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PIPC Chairman Coelho Comments on GAO Report on PCORI

3/9/2015

 
On March 9, 2015, the Government Accountability Office (GAO) released a review of PCORI’s activities as mandated by law.  The Chairman of the Partnership to Improve Patient Care (PIPC), former Congressman Tony Coelho, stated: "PIPC remains vigilant in its efforts to ensure that PCORI’s work improves health care decision-making, and therefore is pleased that the GAO’s review of PCORI concluded that it is meeting its legislative mandate.  Although the report acknowledged stakeholder concerns that PCORI’s research priorities are too broad and lack specificity, I am pleased that the GAO found that PCORI has been responsive to PIPC and others by better utilizing advisory panels to identify more specific research questions and topics.  The report also acknowledged inherent challenges to measuring changes in health care delivery and practice that are attributable to PCORI-funded research.  PIPC hopes that PCORI will consider the recommendations we provided last year to more immediately evaluate the impact on its mission to “do research differently” by engaging patients in research, which will create evidence that is usable to patients and clinicians. PIPC’s members are dedicated to PCORI’s success and look forward to remaining an engaged and active partner in PCORI’s work."

PIPC Weekly Update - March 9, 2015

3/9/2015

 
In This Week’s Issue:
1. PIPC: Statement on GAO Report on CER, click here to view the statement.
2. AJMC: GAO Finds Much Work Remains for CER Dissemination, click here to view the full article.
3. Fierce Health IT: Improvements Needed in Dissemination of Clinical Effectiveness Research, click here to view the full article.
4. M-CERSI Conference on Patient-Focused Drug Development, additional information can be found here.
5. PCORI: Reducing the Burden of Kidney Disease, click here to view the full blog. 
6. Healthcare Informatics: Digging Out of a Hole: The Two Sides of Patient Engagement, click here to view the full article.
7. PCORI: Putting Research to Work for Individual Patients, click here to view the full blog.
8. New York Times: If Patients Only Knew How Often Treatments Could Harm Them, click here to view the full blog.
9. AHRQ Research Conference Returns in 2015, click here for details.
10. Medical Journal Articles, see details below.
11. AHRQ Effective Program Updates, see details below.

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PIPC Comments on GAO Report on CER Dissemination

3/4/2015

 
The Government Accountability Office (GAO) released a report yesterday entitled, “Comparative Effectiveness Research: HHS Needs to Strengthen Dissemination and Data-Capacity-Building Efforts.” The Chairman of the Partnership to Improve Patient Care (PIPC), former Congressman Tony Coelho, provided the following response to the report’s findings and recommendations:
“PIPC is pleased that GAO has evaluated some of the key issues in HHS’ use of comparative effectiveness research (CER) funds, particularly related to dissemination of research findings. The report highlights some of the same issues that PIPC has identified with AHRQ's CER dissemination activities, and the critical need for the agency to establish a strategic plan, standards, and procedures to advance new, patient-centered approaches to CER dissemination.  

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PIPC Weekly Update - March 2, 2015

3/2/2015

 
In This Week’s Issue: 
1. PIPC Patient Blog: Letitia Browne-James, click here to view the blog post. 
2. Stakeholders Respond to 21st Century Cures Initiative: House E&C Committee Posts Comments, click here to view.
3. PCORI Database Update: New Research and Results Search Page, click here to view the updated page. 
4. Wall Street Journal: Patient ‘Passports’ Make Sure People With Complex Cases Are Heard, click here to view the article. 
5. PCORI Awards $64 Million for Five Pragmatic Studies, click here to view the press release. 
6. PCORI Board Adopts Process for Peer Review and Public Release of Research Findings, click here to view the press release. 
7. Brookings Plan to Monitor Medical Device Performance Includes PCORI Integration, click here to view the article. 
8. Blog: The Right to Make Bad Choices, click here to view the blog post. 
9. Medical Journal Articles, see details below. 
10. AHRQ Effective Program Updates, see details below. 

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