In This Week’s Issue:
 
1. Lund Report: Oregon Faces Scrutiny Over One-Of-A-Kind Hurdles to Children’s Health Care. Click here to view the article.
2. New Targeted PCORI Funding Announcement: Comparative Effectiveness of Interventions Targeting Mental Health in Individuals with Intellectual and Developmental Disabilities. See below for details.
3. On the Podcast: Chronic Disease Care at Risk in Oregon. Click here to listen.
4. PCORI's Proposed Research Agenda: Public Comment Period is Open! Click here to read more.
5. PIPC Holds 12th Annual Forum: The Call to Action to Bar Reference to Discriminatory Metrics in U.S. Health Pricing and Coverage Policy. Click here to view the forum.
6. IHP: Disability Agency Urges Congress to Ban QALYs in All Federal Programs. Click here to read the article ($). Click here to view the NCD letter sent to Congress.
7. Comments Submitted: Patient Advocates Push to Overhaul Oregon Medicaid's 'Prioritized List' for Care. Click here to read the article.
8. PCORI Board of Governors Meeting. Click here to view the meeting transcript.
9. IVI-MDD Value Model Draft Protocol: Public Comment Period is Open! See details below.
10. PIPC and Morning Consult Publish Poll Showing Strong Support for NCD Recommendations to Ban QALYs. Click here to view the poll results.
11. PCORI Seeks Nominations for Advisory Panels. Click here to learn more, submit a nomination, or apply to be on an advisory panel.
12. DREDF Releases Report Responding to a Flawed ICER Analyses, Instead Finds that QALY Violates Disability Nondiscrimination Law. Click here to view the report.
13. Upcoming opportunity within the Center for Evidence and Practice Improvement at AHRQ, see details below.
14. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
15. Emerging Threats in States for Use of Discriminatory Metrics, see details below.
16. ICER's QALY-Based Study Topics: Alzheimer's Disease, Beta Thalassemia, Chemotherapy-Induced Neutropenia, COVID-19, Type 2 Diabetes, Hypertrophic Cardiomyopathy, Asthma, Unsupported Price Increase, Fair Access: Coverage Policies. Click here to provide patient input.
17. Upcoming Events and Webinars, see details below.
18. Medical Journal Articles, see details below.
19. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. PCORI's Proposed Research Agenda: Public Comment Period is Open! Click here to read more.
2. PIPC Holds 12th Annual Forum: The Call to Action to Bar Reference to Discriminatory Metrics in U.S. Health Pricing and Coverage Policy. Click here to view the forum.
3. IHP: Disability Agency Urges Congress to Ban QALYs in All Federal Programs. Click here to read the article ($). Click here to view the NCD letter sent to Congress.
4. Comments Submitted: Patient Advocates Push to Overhaul Oregon Medicaid's 'Prioritized List' for Care. Click here to read the article.
5. PCORI Board of Governors Meeting. Click here to view the meeting transcript.
6. IVI-MDD Value Model Draft Protocol: Public Comment Period is Open! See details below.
7. PIPC and Morning Consult Publish Poll Showing Strong Support for NCD Recommendations to Ban QALYs. Click here to view the poll results.
8. PCORI Seeks Nominations for Advisory Panels. Click here to learn more, submit a nomination, or apply to be on an advisory panel.
9. DREDF Releases Report Responding to a Flawed ICER Analyses, Instead Finds that QALY Violates Disability Nondiscrimination Law. Click here to view the report.
10. Upcoming opportunity within the Center for Evidence and Practice Improvement at AHRQ, see details below.
11. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
12. Emerging Threats in States for Use of Discriminatory Metrics, see details below.
13. ICER's QALY-Based Study Topics: Alzheimer's Disease, Beta Thalassemia, Chemotherapy-Induced Neutropenia, COVID-19, Type 2 Diabetes, Hypertrophic Cardiomyopathy, Asthma, Unsupported Price Increase, Fair Access: Coverage Policies. Click here to provide patient input.
14. Upcoming Events and Webinars, see details below.
15. Medical Journal Articles, see details below.
16. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. PIPC Holds 12th Annual Forum: The Call to Action to Bar Reference to Discriminatory Metrics in U.S. Health Pricing and Coverage Policy. Click here to view the forum.
2. IHP: Disability Agency Urges Congress to Ban QALYs in All Federal Programs. Click here to read the article ($). Click here to view the NCD letter sent to Congress.
3. Patient Advocates Push to Overhaul Oregon Medicaid's 'Prioritized List' for Care. Click here to read the article.
4. PCORI Board of Governors Meeting. Click here to view the meeting transcript.
5. IVI-MDD Value Model Draft Protocol: Public Comment Period is Open! See details below.
6. PIPC and Morning Consult Publish Poll Showing Strong Support for NCD Recommendations to Ban QALYs. Click here to view the poll results.
7. PCORI Seeks Nominations for Advisory Panels. Click here to learn more, submit a nomination, or apply to be on an advisory panel.
8. Effective Treatments for People with Chronic Diseases and Disabilities are Being Denied Based on the Discriminatory Quality-Adjusted Life Year. Click here to read the full article.
9. DREDF Releases Report Responding to a Flawed ICER Analyses, Instead Finds that QALY Violates Disability Nondiscrimination Law. Click here to view the report.
10. Upcoming opportunity within the Center for Evidence and Practice Improvement at AHRQ, see details below.
11. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
12. Emerging Threats in States for Use of Discriminatory Metrics, see details below.
13. ICER's QALY-Based Study Topics: Alzheimer's Disease, Beta Thalassemia, Chemotherapy-Induced Neutropenia, COVID-19, Type 2 Diabetes, Hypertrophic Cardiomyopathy, Asthma, Unsupported Price Increase, Fair Access: Coverage Policies. Click here to provide patient input.
14. Upcoming Events and Webinars, see details below.
15. Medical Journal Articles, see details below.
16. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. PIPC Holds 12th Annual Forum: The Call to Action to Bar Reference to Discriminatory Metrics in U.S. Health Pricing and Coverage Policy. Click here to view the forum.
2. IHP: Disability Agency Urges Congress to Ban QALYs in All Federal Programs. Click here to read the article ($).
3. IVI-MDD Value Model Draft Protocol: Public Comment Period is Open! See details below.
4. Patient Advocates Push to Overhaul Oregon Medicaid's 'Prioritized List' for Care. Click here to read the article.
5. NCD Calls for Build Back Better to Bar QALYs Throughout Medicare and Medicaid. Click here to view the letter.
6. PIPC and Morning Consult Publish Poll Showing Strong Support for NCD Recommendations to Ban QALYs. Click here to view the poll results.
7. PCORI Seeks Nominations for Advisory Panels. Click here to learn more, submit a nomination, or apply to be on an advisory panel.
8. DUE TODAY: Health Affairs Submits Request for Abstracts - Disability and Health. Click here to view the full release.
9. Effective Treatments for People with Chronic Diseases and Disabilities are Being Denied Based on the Discriminatory Quality-Adjusted Life Year. Click here to read the full article. 
10. DREDF Releases Report Responding to a Flawed ICER Analyses, Instead Finds that QALY Violates Disability Nondiscrimination Law. Click here to view the report.
11. Upcoming opportunity within the Center for Evidence and Practice Improvement at AHRQ, see details below.
12. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
13. Emerging Threats in States for Use of Discriminatory Metrics, see details below.
14. ICER's QALY-Based Study Topics: Beta Thalassemia, Chemotherapy-Induced Neutropenia, COVID-19, Type 2 Diabetes, Hypertrophic Cardiomyopathy, Asthma, Unsupported Price Increase, Fair Access: Coverage Policies. Click here to provide patient input.
15. Upcoming Events and Webinars, see details below.
16. Medical Journal Articles, see details below.
17. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. PIPC Annual Forum: December 14 at 12pm! See details below.
2. PCORI Hires Deputy Executive Director for Patient-Centered Programs. Click here to read the full article.
3. NCD Calls for Build Back Better to Bar QALYs Throughout Medicare and Medicaid. Click here to view the letter.
4. PIPC and Morning Consult Publish Poll Showing Strong Support for NCD Recommendations to Ban QALYs. Click here to view the poll results.
5. Patient Advocates Push to Overhaul Oregon Medicaid's 'Prioritized List' for Care. Click here to read the article.
6. PCORI Seeks Nominations for Advisory Panels. Click here to learn more, submit a nomination, or apply to be on an advisory panel.
7. Health Affairs Submits Request for Abstracts - Disability and Health. Click here to view the full release.
8. Effective Treatments for People with Chronic Diseases and Disabilities are Being Denied Based on the Discriminatory Quality-Adjusted Life Year. Click here to read the full article. 
9. DREDF Releases Report Responding to a Flawed ICER Analyses, Instead Finds that QALY Violates Disability Nondiscrimination Law. Click here to view the report.
10. Upcoming opportunity within the Center for Evidence and Practice Improvement at AHRQ, see details below.
11. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
12. Emerging Threats in States for Use of Discriminatory Metrics, see details below.
13. ICER's QALY-Based Study Topics: Beta Thalassemia, Chemotherapy-Induced Neutropenia, COVID-19, Type 2 Diabetes, Hypertrophic Cardiomyopathy, Asthma, Unsupported Price Increase, Fair Access: Coverage Policies. Click here to provide patient input.
14. Upcoming Events and Webinars, see details below.
15. Medical Journal Articles, see details below.
16. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. PIPC Annual Forum: Save the Date for December 14 at 12pm! See details below.
2. NCD Calls for Build Back Better to Bar QALYs Throughout Medicare and Medicaid. Click here to view the letter.
3. PIPC and Morning Consult Publish Poll Showing Strong Support for NCD Recommendations to Ban QALYs. Click here to view the poll results.
4. Patient Advocates Push to Overhaul Oregon Medicaid's 'Prioritized List' for Care. Click here to read the article.
5. PCORI Seeks Nominations for Advisory Panels. Click here to learn more, submit a nomination, or apply to be on an advisory panel.
6. Health Affairs Submits Request for Abstracts - Disability and Health. Click here to view the full release.
7. Effective Treatments for People with Chronic Diseases and Disabilities are Being Denied Based on the Discriminatory Quality-Adjusted Life Year. Click here to read the full article. 
8. Assessing the Value of Medicine for Diverse Patients: Implications of a QALY Approach for Health Disparities. Click here to read the full findings and report.
9. Arthritis Foundation and Innovation and Value Initiative Release Paper Highlighting Patient Perspectives in Rheumatoid Arthritis. Click here to read the full press release and here to view the white paper.
10. DREDF Releases Report Responding to a Flawed ICER Analyses, Instead Finds that QALY Violates Disability Nondiscrimination Law. Click here to view the report.
11. Issue Brief: Implications of Reliance on Health Technology Assessment in the VA and TRICARE Formularies. Click here to read the full report.
12. Washington Must Help Patients Choose, Not Dictate Their Care. Click here to read the article.
13. Upcoming opportunity within the Center for Evidence and Practice Improvement at AHRQ, see details below.
14. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
15. Emerging Threats in States for Use of Discriminatory Metrics, see details below.
16. ICER's QALY-Based Study Topics: Beta Thalassemia, Chemotherapy-Induced Neutropenia, COVID-19, Type 2 Diabetes, Hypertrophic Cardiomyopathy, Asthma, Unsupported Price Increase, Fair Access: Coverage Policies. Click here to provide patient input.
17. Upcoming Events and Webinars, see details below.
18. Medical Journal Articles, see details below.
19. AHRQ Effective Program Updates, see details below. 

In This Week’s Issue:
 
1. PIPC and Morning Consult Publish Poll Showing Strong Support for NCD Recommendations to Ban QALYs. Click here to view the poll results.
2. Patient Advocates Push to Overhaul Oregon Medicaid's 'Prioritized List' for Care. Click here to read the article.
3. PIPC Annual Forum: Save the Date for December 14 at 12pm! See details below.
4. Health Affairs Submits Request for Abstracts - Disability and Health. Click here to view the full release.
5. Effective Treatments for People with Chronic Diseases and Disabilities are Being Denied Based on the Discriminatory Quality-Adjusted Life Year. Click here to read the full article. 
6. Assessing the Value of Medicine for Diverse Patients: Implications of a QALY Approach for Health Disparities. Click here to read the full findings and report.
7. NCD Calls for Build Back Better to Bar QALYs Throughout Medicare and Medicaid. Click here to view the letter.
8. Arthritis Foundation and Innovation and Value Initiative Release Paper Highlighting Patient Perspectives in Rheumatoid Arthritis. Click here to read the full press release and here to view the white paper.
9. Use of QALY and Similar Metrics has Real and Tragic Implications for People with Disabilities. Click here to read the article.
10. DREDF Releases Report Responding to a Flawed ICER Analyses, Instead Finds that QALY Violates Disability Nondiscrimination Law. Click here to view the report.
11. Issue Brief: Implications of Reliance on Health Technology Assessment in the VA and TRICARE Formularies. Click here to read the full report.
12. Washington Must Help Patients Choose, Not Dictate Their Care. Click here to read the article.
13. Upcoming opportunity within the Center for Evidence and Practice Improvement at AHRQ, see details below.
14. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
15. Emerging Threats in States for Use of Discriminatory Metrics, see details below.
16. ICER's QALY-Based Study Topics: Beta Thalassemia, Chemotherapy-Induced Neutropenia, COVID-19, Type 2 Diabetes, Hypertrophic Cardiomyopathy, Asthma, Unsupported Price Increase, Fair Access: Coverage Policies. Click here to provide patient input.
17. Upcoming Events and Webinars, see details below.
18. Medical Journal Articles, see details below.
19. AHRQ Effective Program Updates, see details below

This op-ed originally appeared in Morning Consult on November 23, 2021 

In This Week’s Issue:
 
1. Effective Treatments for People with Chronic Diseases and Disabilities are Being Denied Based on the Discriminatory Quality-Adjusted Life Year. Click here to read the full article. 
2. NCD Calls for Build Back Better to Bar QALYs Throughout Medicare and Medicaid. Click here to view the letter.
3. In Response to Disability Rights Orgs, CVS Backs Down From Pursuing Supreme Court. Click here to view the announcement.
4. Assessing the Value of Medicine for Diverse Patients: Implications of a QALY Approach for Health Disparities. Click here to read the full findings and report.
5. Perspectives of Patients and Providers on ICER’s Assessment of Treatment for HCM. Click here to read the full release.
6. Arthritis Foundation and Innovation and Value Initiative Release Paper Highlighting Patient Perspectives in Rheumatoid Arthritis. Click here to read the full press release and here to view the white paper.
7. Use of QALY and Similar Metrics has Real and Tragic Implications for People with Disabilities. Click here to read the article.
8. DREDF Releases Report Responding to a Flawed ICER Analyses, Instead Finds that QALY Violates Disability Nondiscrimination Law. Click here to view the report.
9. Issue Brief: Implications of Reliance on Health Technology Assessment in the VA and TRICARE Formularies. Click here to read the full report.
10. Washington Must Help Patients Choose, Not Dictate Their Care. Click here to read the article.
11. Upcoming opportunity within the Center for Evidence and Practice Improvement at AHRQ, see details below.
12. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
13. Emerging Threats in States for Use of Discriminatory Metrics, see details below.
14. ICER's QALY-Based Study Topics:  ICER's QALY-Based Study Topics: Chemotherapy-Induced Neutropenia, COVID-19, Type 2 Diabetes, Hypertrophic Cardiomyopathy, Asthma, Unsupported Price Increase, Fair Access: Coverage Policies, click here to provide patient input.
15. Upcoming Events and Webinars, see details below.
16. Medical Journal Articles, see details below.
17. AHRQ Effective Program Updates, see details below.  

FOR IMMEDIATE RELEASE: November 17, 2021

On November 16, 2021, the Institute for Clinical and Economic Review (ICER) published its final evidence report for mavacamten, a new treatment for Hypertrophic Cardiomyopathy (HCM), a disease of the heart muscle affecting over 1 in 500 people. 

In This Week’s Issue:
 
1. NCD Calls for Build Back Better to Bar QALYs Throughout Medicare and Medicaid. Click here to view the letter.
2. In Response to Disability Rights Orgs, CVS Backs Down From Pursuing Supreme Court. Click here to view the announcement.
3. Arthritis Foundation and Innovation and Value Initiative Release Paper Highlighting Patient Perspectives in Rheumatoid Arthritis. Click here to read the full press release and here to view the white paper.
4. Use of QALY and Similar Metrics has Real and Tragic Implications for People with Disabilities. Click here to read the article.
5. DREDF Releases Report Responding to a Flawed ICER Analyses, Instead Finds that QALY Violates Disability Nondiscrimination Law. Click here to view the report.
6. PCORI Invites Your Input: Science of Engagement Potential Funding Initiative. See below for details.
7. Issue Brief: Implications of Reliance on Health Technology Assessment in the VA and TRICARE Formularies. Click here to read the full report.
8. Washington Must Help Patients Choose, Not Dictate Their Care. Click here to read the article.
9. Upcoming opportunity within the Center for Evidence and Practice Improvement at AHRQ, see details below.
10. 2021 PCORI Annual Meeting Scheduled for Nov. 17-19, click here for details.
11. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
12. Emerging Threats in States for Use of Discriminatory Metrics, see details below.
13. ICER's QALY-Based Study Topics:  ICER's QALY-Based Study Topics: Chemotherapy-Induced Neutropenia, COVID-19, Type 2 Diabetes, Hypertrophic Cardiomyopathy, Asthma, Unsupported Price Increase, Fair Access: Coverage Policies, click here to provide patient input.
14. Upcoming Events and Webinars, see details below.
15. Medical Journal Articles, see details below.
16. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. Arthritis Foundation and Innovation and Value Initiative Release Paper Highlighting Patient Perspectives in Rheumatoid Arthritis. Click here to read the full press release and here to view the white paper.
2. Use of QALY and Similar Metrics has Real and Tragic Implications for People with Disabilities. Click here to read the article.
3. Disability Rights Orgs Urge Supreme Court to Uphold Protections Against Disability Discrimination. Click here to view the press release.
4. The Key to Addressing Rising Health Care Costs is Patient-Centered Evidence. Click here to read the opinion piece.
5. DREDF Releases Report Responding to a Flawed ICER Analyses, Instead Finds that QALY Violates Disability Nondiscrimination Law. Click here to view the report.
6. PCORI Invites Your Input: Science of Engagement Potential Funding Initiative. See below for details.
7. Issue Brief: Implications of Reliance on Health Technology Assessment in the VA and TRICARE Formularies. Click here to read the full report.
8. Washington Must Help Patients Choose, Not Dictate Their Care. Click here to read the article.
9. PIPC Submits Submits Comments on ICER Draft Evidence Report for Severe Asthma. Click here to read the letter.
10. Upcoming opportunity within the Center for Evidence and Practice Improvement at AHRQ, see details below.
11. 2021 PCORI Annual Meeting Scheduled for Nov. 17-19, click here for details.
12. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
13. Emerging Threats in States for Use of Discriminatory Metrics, see details below.
14. ICER's QALY-Based Study Topics: Hypertrophic Cardiomyopathy, Myasthenia Gravis, Atopic Dermatitis, Alzheimer's Disease, Asthma, Type 2 Diabetes, click here to provide patient input.
15. Upcoming Events and Webinars, see details below.
16. Medical Journal Articles, see details below.
17. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. Disability Rights Orgs Urge Supreme Court to Uphold Protections Against Disability Discrimination. Click here to view the press release.
2. The Key to Addressing Rising Health Care Costs is Patient-Centered Evidence. Click here to read the opinion piece.
3. DREDF Releases Report Responding to a Flawed ICER Analyses, Instead Finds that QALY Violates Disability Nondiscrimination Law. Click here to view the report.
4. PCORI Invites Your Input: Science of Engagement Potential Funding Initiative. See below for details.
5. Issue Brief: Implications of Reliance on Health Technology Assessment in the VA and TRICARE Formularies. Click here to read the full report.
6. Washington Must Help Patients Choose, Not Dictate Their Care. Click here to read the article.
7. DREDF Comments on Tenncare III and Impact on People with Disabilities. Click here to view the comments.
8. PIPC Submits Submits Comments on ICER Draft Evidence Report for Severe Asthma. Click here to read the letter.
9. Upcoming opportunity within the Center for Evidence and Practice Improvement at AHRQ, see details below.
10. 2021 PCORI Annual Meeting Scheduled for Nov. 17-19, click here for details.
11. PCORI Transcript of Sept. 27-28 Meeting, see links to transcripts below.
12. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
13. Emerging Threats in States for Use of Discriminatory Metrics, see details below.
14. ICER's QALY-Based Study Topics: Hypertrophic Cardiomyopathy, Myasthenia Gravis, Atopic Dermatitis, Alzheimer's Disease, Asthma, Type 2 Diabetes, click here to provide patient input.
15. Upcoming Events and Webinars, see details below.
16. Medical Journal Articles, see details below.
17. AHRQ Effective Program Updates, see details below.