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  • Home
  • About
    • Mission and Priorities
    • Meet the Chairman
    • Steering Committee
    • PIPC Member List
    • Contact
  • The Issues
    • Action Center
    • Value Our Health
    • International
    • Where We Stand
    • Value Assessment Frameworks
    • Engaging Patients in Value-Based Payment
    • Patient-Centeredness in Research
  • Resources
    • Advocacy
    • Letters and Comments
    • PCORI Meeting Transcripts
    • Polling
    • Roundtables
    • White Papers
  • Blog
    • PIPC Patients' Blog
    • Chairman's Corner
    • PIPC Weekly Update
    • The Data Mine
  • Newsroom
    • PIPC in the News
    • Press Releases
    • Open Letter: We Deserve a Voice
  • Events
    • PIPC Forum 2022
    • Discrimination & Health Care
    • C & GT Webinar
    • ICER COVID Webinar
    • Value Our Health Briefing
    • QALY Briefing
    • QALY Panel
    • Past Webinars >
      • ICER SCD Webinar
      • VOH Sickle Cell Webinar
      • Rare Disease Webinar
      • QALY Webinar
      • PCORI Advocacy Webinar
      • APM Webinar
      • Patient Empowerment Webinar
      • Value Assessments Briefing
    • Past PIPC Forums >
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The PIPC Blog

PIPC Weekly Update: June 5, 2023

6/5/2023

 
— H.R. 485: Protecting Health Care for All Patients Act. See details below.
— Podcast: Bill Smith – Rationing Medicine. Click here to listen to the podcast.
— Axios Interview with PCORI Executive Director. Click here to watch the conversation.
— Follow PIPC on LinkedIn! Click here to view the page.
— Emerging Threats in States for Use of Discriminatory Metrics. See details below.
— What Happens in Countries Using QALYs and Cost-Based Thresholds? See details below.
— ICER's QALY-Based Study Topics. See details below.
— Upcoming Events and Webinars. See details below.
— AHRQ Effective Program Updates. See details below.
— Job Openings. See details below.

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PIPC Weekly Update: May 22, 2023

5/22/2023

 
In this week's edition...

— Patient Engagement & Experience Data: Missing Ingredients For CMS’ Successful IRA Implementation. Click here to read the article.
— Column: Washington Must Heed Patient Recommendations as Policymakers Implement the Inflation Reduction Act. Click here to read the column.
— PIPC Submits Comments on ICER Assessment of Sickle Cell Treatments. Click here to read the comment letter.
— Follow PIPC on LinkedIn! Click here to view the page.
— Emerging Threats in States for Use of Discriminatory Metrics. See details below.
— What Happens in Countries Using QALYs and Cost-Based Thresholds? See details below.
— ICER's QALY-Based Study Topics. See details below.
— Upcoming Events and Webinars. See details below.
— AHRQ Effective Program Updates. See details below.
— Job Openings. See details below.

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PIPC Weekly Update: May 15, 2023

5/15/2023

 
In this week's edition...

— PIPC Submits Comments on ICER Assessment of Sickle Cell Treatments. Click here to read the comment letter.
— Biden Administration Pushed to Address Disability Discrimination in Health Care. Click here to read the article.
— Commentary: Hope is Its Own Form of Healing. See details below.
— PIPC Submits Comments on Maryland Prescription Drug Affordability Board Draft Regulations. Click here to read the letter.
— Follow PIPC on LinkedIn! Click here to view the page.
— Emerging Threats in States for Use of Discriminatory Metrics. See details below.
— What Happens in Countries Using QALYs and Cost-Based Thresholds? See details below.
— ICER's QALY-Based Study Topics. See details below.
— Upcoming Events and Webinars. See details below.
— AHRQ Effective Program Updates. See details below.
— Job Openings. See details below.

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PIPC Weekly Update: May 8, 2023

5/8/2023

 
In this week's edition...

— PIPC Submits Comments on Maryland Prescription Drug Affordability Board Draft Regulations. Click here to read the letter.
— PCORI Unveils Comparative Clinical Effectiveness Research Funding Opportunities. Click here for additional details on these funding opportunities.
— Chairman's Corner: In Medicare Drug Price Negotiations, Avoid Metrics Steeped In Stigma. Click here to read the column.
— Follow PIPC on LinkedIn! Click here to view the page.
— Emerging Threats in States for Use of Discriminatory Metrics. See details below.
— What Happens in Countries Using QALYs and Cost-Based Thresholds? See details below.
— ICER's QALY-Based Study Topics. See details below.
— Upcoming Events and Webinars. See details below.
— AHRQ Effective Program Updates. See details below.
— Job Openings. See details below.

Read More

PIPC Weekly Update: May 1, 2023

5/1/2023

 
In this week's edition...

— National Health Council Comments Urge CMS Not to Use QALYs in Medicare Drug Price Negotiations. Click here to read the letter.
— Fatty Liver Foundation Submits Comments on ICER's Assessment of NASH Treatments. Click here to read more.
— Chairman's Corner: In Medicare Drug Price Negotiations, Avoid Metrics Steeped In Stigma. Click here to read the column.
— Follow PIPC on LinkedIn! Click here to view the page.
— Emerging Threats in States for Use of Discriminatory Metrics. See details below.
— What Happens in Countries Using QALYs and Cost-Based Thresholds? See details below.
— ICER's QALY-Based Study Topics. See details below.
— Upcoming Events and Webinars. See details below.
— AHRQ Effective Program Updates. See details below.
— Job Openings. See details below.

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Chairman's Corner: In Medicare Drug Price Negotiations, Avoid Metrics Steeped In Stigma

4/24/2023

 
Picture
PIPC Chairman Tony Coelho
In a January 4 Health Affairs Forefront article, “Options for CMS Drug Price Negotiations,” Daniel Ollendorf and Dominic Voehler discuss pricing methodologies based on how much a drug improves health. However, the authors overemphasize reliance on frameworks that, especially for people with disabilities, are red flags due to their reliance on valuing people’s lives in dollars. Instead, the Centers for Medicare and Medicaid Services (CMS) has an opportunity to achieve a level of patient-centeredness that other programs lack.

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PIPC Weekly Update: April 24, 2023

4/24/2023

 
In this week's edition...

— Chairman's Corner: In Medicare Drug Price Negotiations, Avoid Metrics Steeped In Stigma. Click here to read the column.
— Follow PIPC on LinkedIn! Click here to view the page.
— Patients and People with Disabilities Urge Robust Engagement, Avoid Use of QALYs and Similar Measures in Drug Negotiation. See details below.
— Column: Keeping QALYs Out of the U.S. Will Save Lives. Click here to read the column.
— Disability Organizations Support the Protecting Health Care for All Patients Act. See details below.
— Emerging Threats in States for Use of Discriminatory Metrics. See details below.
— What Happens in Countries Using QALYs and Cost-Based Thresholds? See details below.
— ICER's QALY-Based Study Topics. See details below.
— Upcoming Events and Webinars. See details below.
— AHRQ Effective Program Updates. See details below.
— Job Openings. See details below.

Read More

PIPC Weekly Update: April 17, 2023

4/17/2023

 
In this week's edition...

— Patients and People with Disabilities Urge Robust Engagement, Avoid Use of QALYs and Similar Measures in Drug Negotiation. See details below.
— Disability Organizations Support the Protecting Health Care for All Patients Act. See details below.
— PCORI Transcript for March 7, 2023 Meeting. See details below.
— Identifying Meaningful Health Equity Research: Racial Health Equity and Social Needs Review. Click here to read more.
— Lawmakers: Disability Leaders, Government Agencies Must Work Together to Expand Opportunities for People with Disabilities. Click here to read the article.
— Emerging Threats in States for Use of Discriminatory Metrics. See details below.
— What Happens in Countries Using QALYs and Cost-Based Thresholds? See details below.
— ICER's QALY-Based Study Topics. See details below.
— Upcoming Events and Webinars. See details below.
— AHRQ Effective Program Updates. See details below.
— Job Openings. See details below.

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Statement on H.R. 485: The Protecting Health Care for All Patients Act

3/23/2023

 
For Immediate Release
March 23, 2023

PIPC Chairman Tony Coelho issued the following statement on H.R. 485, the Protecting Health Care for All Patients Act. 

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PIPC Weekly Update: March 20, 2023

3/20/2023

 
In this week's edition...
 
— IVI Releases Health Equity Initiative Update. Click here to view the update.
— ICER Names Linda Goler Blount, MPH, to Governance Board. Click here to read the full announcement.
— Applications Due Soon! PCORI Seeks Nominations for Advisory Panels. Click here to learn more, submit a nomination, or apply to be on an advisory panel.
— IVI Requesting Papers for Valuing Innovation Project. Click here for additional details.
— Emerging Threats in States for Use of Discriminatory Metrics. See details below.
— What Happens in Countries Using QALYs and Cost-Based Thresholds? See details below.
— ICER's QALY-Based Study Topics. See details below.
— Upcoming Events and Webinars. See details below.
— AHRQ Effective Program Updates. See details below.

Read More

PIPC Weekly Update: March 13, 2023

3/13/2023

 
In this week's edition...
 
— IVI 2023 Methods Summit Begins Today! Click here for additional details.
— E&C Closes in on QALY Ban. See details below.
— Comments Due Friday! PCORI Request for Information to Enhance Workforce Development Now Open. Click here to view the RFI.
— Applications Due Soon! PCORI Seeks Nominations for Advisory Panels. Click here to learn more, submit a nomination, or apply to be on an advisory panel.
— Op-Ed: The Eugenic Roots of 'Quality Adjusted Life Years' and Why They Matter. Click here to read the op-ed.
— PIPC Submits Comments on PCORI Stakeholder Views on Components of 'Patient-Centered Value' in Health Care. Click here to read the letter.
— IVI Requesting Papers for Valuing Innovation Project. Click here for additional details.
— Emerging Threats in States for Use of Discriminatory Metrics. See details below.
— What Happens in Countries Using QALYs and Cost-Based Thresholds? See details below.
— ICER's QALY-Based Study Topics. See details below.
— Upcoming Events and Webinars. See details below.
— AHRQ Effective Program Updates. See details below.

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PIPC Weekly Update: March 6, 2023

3/6/2023

 
— PIPC Submits Comments on PCORI Stakeholder Views on Components of 'Patient-Centered Value' in Health Care. Click here to read the letter.
— Finance Committee GOP Urges HHS to Ban QALYs. Click here to read the letter.
— IVI Requesting Papers for Valuing Innovation Project. Click here for additional details.
— PCORI Partners With 42 Health Systems to Speed Uptake of Health Research. Click here to learn more.
— Comments Due Soon! PCORI Request for Information to Enhance Workforce Development Now Open. Click here to view the RFI.
— Applications Due Soon! PCORI Seeks Nominations for Advisory Panels. Click here to learn more, submit a nomination, or apply to be on an advisory panel.
— New NCD Funding Opportunity: The Absence of People with Disabilities in Clinical Trials. Click here to view the report.
— Emerging Threats in States for Use of Discriminatory Metrics. See details below.
— What Happens in Countries Using QALYs and Cost-Based Thresholds? See details below.
— ICER's QALY-Based Study Topics. See details below.
— Upcoming Events and Webinars. See details below.
— AHRQ Effective Program Updates. See details below.

Read More

PIPC Weekly Update: February 27, 2023

2/27/2023

 
In this week's edition...
 
— Comments Due Friday! Stakeholder Views on Components of "Patient-Centered Value” in Health and Health Care. Click here to view the report.
— PCORI Seeks Nominations for Advisory Panels. Click here to learn more, submit a nomination, or apply to be on an advisory panel.
— Interview: A Bipartisan End to QALYs? Click here to view the report.
— New NCD Funding Opportunity: The Absence of People with Disabilities in Clinical Trials. Click here to view the report.
— House Labor-HHS Subcommittee Announces Public Witness Hearing. See details below.
— PCORI Request for Information to Enhance Workforce Development Now Open. Click here to view the RFI.
— Emerging Threats in States for Use of Discriminatory Metrics. See details below.
— What Happens in Countries Using QALYs and Cost-Based Thresholds? See details below.
— ICER's QALY-Based Study Topics. See details below.
— Upcoming Events and Webinars. See details below.
— AHRQ Effective Program Updates. See details below.

Read More

PIPC Weekly Update: February 21, 2023

2/21/2023

 
In this week's edition...
 
— Comments Due Soon! Stakeholder Views on Components of "Patient-Centered Value” in Health and Health Care. Click here to view the report.
— Op-Ed: Nothing Life Giving About 'Quality Adjusted.' Click here to read the op-ed.
— Op-Ed: Disabled Lives Aren’t Worth Less. Click here to read the op-ed.
— Helping Patients with Chest Pain in the ER Pinpoint Their Risk of a Cardiac Event. Click here to watch the video.
— PCORI Request for Information to Enhance Workforce Development Now Open. Click here to view the RFI.
— PCORI Seeks Nominations for Advisory Panels. Click here to learn more, submit a nomination, or apply to be on an advisory panel.
— Emerging Threats in States for Use of Discriminatory Metrics. See details below.
— What Happens in Countries Using QALYs and Cost-Based Thresholds? See details below.
— ICER's QALY-Based Study Topics. See details below.
— Upcoming Events and Webinars. See details below.
— AHRQ Effective Program Updates. See details below.

Read More

PIPC Weekly Update: February 13, 2023

2/13/2023

 
In this week's edition...
 
— Everylife Foundation and IVI Announce Rare Disease Initiative. Click here for details.
— Op-Ed: Disabled Lives Aren’t Worth Less. Click here to read the op-ed.
— AHRQ and the Patient-Centered Outcomes Research Institute Collaborate to Train a New Generation of Learning Health System Scientists. See details below.
— Need a New Drug? You May Be Asked to 'Fail' An Old Drug First. Click here to read the column.
— Lawmakers Say QALY Limits Access to Care. Click here to read the article.
— Statement Supporting the Protecting Health Care for All Patients Act. Click here to view PIPC's statement of support.
— Stakeholder Views on Components of "Patient-Centered Value” in Health and Health Care. Click here to view the report.
— PCORI Request for Information to Enhance Workforce Development Now Open. Click here to view the RFI.
— PCORI Seeks Nominations for Advisory Panels. Click here to learn more, submit a nomination, or apply to be on an advisory panel.
— Emerging Threats in States for Use of Discriminatory Metrics. See details below.
— What Happens in Countries Using QALYs and Cost-Based Thresholds? See details below.
— ICER's QALY-Based Study Topics. See details below.
— Upcoming Events and Webinars. See details below.
— AHRQ Effective Program Updates. See details below.

Read More
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