In this week's edition...

— Don’t Let Payer Investments in QALYs Undermine California’s Health Equity Goals. Click here to read the blog.
— PCORI Approves Strategic Plan at Board of Governors Meeting. See details below.
 
— A Blueprint to Advance Patient-Centered Core Impact Sets. Click here to read the article.
— Person-Driven Outcome Measures Help Achieve Equitable Outcomes. Click here to read the article.
— Emerging Threats in States for Use of Discriminatory Metrics. See details below.
— What Happens in Countries Using QALYs and Cost-Based Thresholds? See details below.
— ICER's QALY-Based Study Topics. See details below.
— Upcoming Events and Webinars. See details below.
— AHRQ Effective Program Updates. See details below. 

In This Week’s Issue:
 
1. Gaping Health Disparities Still Persist in U.S. Click here to view the opinion.
2. Upcoming Workshop Series: Accelerating the Use of PCOR Findings to Improve Health and Health Care - June 17th! Click here to view the project page.
3. Emerging Threats in States for Use of Discriminatory Metrics, see details below.
4. IVI Announces Health Equity Initiative. Click here to view the press release.
5. Lawmakers Introduce Legislation Barring the Use of QALYs in Federal Programs. Click here to view the press release.
6. Upcoming PCORI Funding Announcement to Fund Studies on the Science of Engagement - Postponed until July 12, 2022. Click here for more details.
7. NCD Health Equity Framework Includes Recommendation Against Use of QALYs, Following BBB Recommendation. Click here to view the framework.
8. Value Our Health: Advancing Value Assessment Principles Centered on Patients and People with Disabilities. See below for details.
9. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
10. ICER's QALY-Based Study Topics. Click here to provide patient input
11. Upcoming Events and Webinars, see details below
12. Medical Journal Articles, see details below.
13. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. Gaping Health Disparities Still Persist in U.S. Click here to view the opinion.
2. PIPC to MedPAC: Avoid Use of QALY in Medicare Coverage Policy. Click here to read the letter.
3. Emerging Threats in States for Use of Discriminatory Metrics, see details below.
4. Upcoming Workshop Series: Accelerating the Use of PCOR Findings to Improve Health and Health Care - June 9th! Click here to view the project page.
5. IVI Announces Health Equity Initiative. Click here to view the press release.
6. Lawmakers Introduce Legislation Barring the Use of QALYs in Federal Programs. Click here to view the press release.
7. PIPC Joins Over 60 Organizations Urging CMS to Reject QALY's in OR Waiver Renewal Application. Click here to read the letter.
8. Upcoming PCORI Funding Announcement to Fund Studies on the Science of Engagement - Postponed until July 12, 2022. Click here for more details.
9. Speaking Up on ADA with Tony Coelho. Click here to view the one pager.
10. NCD Health Equity Framework Includes Recommendation Against Use of QALYs, Following BBB Recommendation. Click here to view the framework.
11. Value Our Health: Advancing Value Assessment Principles Centered on Patients and People with Disabilities. See below for details.
12. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
13. ICER's QALY-Based Study Topics. Click here to provide patient input.
14. Upcoming Events and Webinars, see details below.
15. Medical Journal Articles, see details below.
16. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. Gaping Health Disparities Still Persist in U.S. Click here to view the opinion.
2. PIPC to MedPAC: Avoid Use of QALY in Medicare Coverage Policy. Click here to read the letter.
3. PCORI Funds Patients' and Pharmacists' Work to Address Social Determinants of Health. Click here to read the article.
4. Emerging Threats in States for Use of Discriminatory Metrics, see details below.
5. Upcoming Workshop Series: Accelerating the Use of PCOR Findings to Improve Health and Health Care. Click here to view the project page.
6. IVI Announces Health Equity Initiative. Click here to view the press release.
7. Lawmakers Introduce Legislation Barring the Use of QALYs in Federal Programs. Click here to view the press release.
8. ISPOR Conference: Can Pharmaceutical Pricing Move Beyond Cost QALY for Value Consideration? Click here to read the article.
9. PIPC Joins Over 60 Organizations Urging CMS to Reject QALY's in OR Waiver Renewal Application. Click here to read the letter.
10. Upcoming PCORI Funding Announcement to Fund Studies on the Science of Engagement - Postponed until July 12, 2022. Click here for more details.
11 Speaking Up on ADA with Tony Coelho. Click here to view the one pager.
12. NCD Health Equity Framework Includes Recommendation Against Use of QALYs, Following BBB Recommendation. Click here to view the framework.
13. Value Our Health: Advancing Value Assessment Principles Centered on Patients and People with Disabilities. See below for details.
14. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
15. ICER's QALY-Based Study Topics. Click here to provide patient input.
16. Upcoming Events and Webinars, see details below.
17. Medical Journal Articles, see details below.
18. AHRQ Effective Program Updates, see details below. 

In This Week’s Issue:
 
1. PIPC to MedPAC: Avoid Use of QALY in Medicare Coverage Policy. Click here to read the letter.
2. PCORI Funds Patients' and Pharmacists' Work to Address Social Determinants of Health. Click here to read the article.
3. Emerging Threats in States for Use of Discriminatory Metrics, see details below.
4. Upcoming Workshop Series: Accelerating the Use of PCOR Findings to Improve Health and Health Care. Click here to view the project page.
5. IVI Announces Health Equity Initiative. Click here to view the press release.
6. Lawmakers Introduce Legislation Barring the Use of QALYs in Federal Programs. Click here to view the press release.
7. ISPOR Conference: Can Pharmaceutical Pricing Move Beyond Cost QALY for Value Consideration? Click here to read the article.
8. PIPC Joins Over 60 Organizations Urging CMS to Reject QALY's in OR Waiver Renewal Application. Click here to read the letter.
9. Upcoming PCORI Funding Announcement to Fund Studies on the Science of Engagement - Postponed until July 12, 2022. Click here for more details.
10. Speaking Up on ADA with Tony Coelho. Click here to view the one pager.
11. NCD Health Equity Framework Includes Recommendation Against Use of QALYs, Following BBB Recommendation. Click here to view the framework.
12. Value Our Health: Advancing Value Assessment Principles Centered on Patients and People with Disabilities. See below for details.
13. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
14. ICER's QALY-Based Study Topics. Click here to provide patient input.
15. Upcoming Events and Webinars, see details below.
16. Medical Journal Articles, see details below.
17. AHRQ Effective Program Updates, see details below. 

In This Week’s Issue:
 
1. PIPC to MedPAC: Avoid Use of QALY in Medicare Coverage Policy. Click here to read the letter.
2. PCORI Funds Patients' and Pharmacists' Work to Address Social Determinants of Health. Click here to read the article.
3. IVI Announces Health Equity Initiative. Click here to view the press release.
4. Lawmakers Introduce Legislation Barring the Use of QALYs in Federal Programs. Click here to view the press release.
5. PIPC Joins Over 60 Organizations Urging CMS to Reject QALY's in OR Waiver Renewal Application. Click here to read the letter.
6. Upcoming PCORI Funding Announcement to Fund Studies on the Science of Engagement - Postponed until July 12, 2022. Click here for more details.
7. Speaking Up on ADA with Tony Coelho. Click here to view the one pager.
8. NCD Health Equity Framework Includes Recommendation Against Use of QALYs, Following BBB Recommendation. Click here to view the framework.
9. Value Our Health: Advancing Value Assessment Principles Centered on Patients and People with Disabilities. See below for details.
10. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
11. Emerging Threats in States for Use of Discriminatory Metrics, see details below.
12. ICER's QALY-Based Study Topics. Click here to provide patient input.
13. Upcoming Events and Webinars, see details below.
14. Medical Journal Articles, see details below.
15. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. PIPC to MedPAC: Avoid Use of QALY in Medicare Coverage Policy. Click here to read the letter.
2. IVI Announces Health Equity Initiative. Click here to view the press release.
3. Lawmakers Introduce Legislation Barring the Use of QALYs in Federal Programs. Click here to view the press release.
4. PIPC Joins Over 60 Organizations Urging CMS to Reject QALY's in OR Waiver Renewal Application. Click here to read the letter.
5. GAO Calls for Nominations to PCORI Board of Governors. Click here to read more.
6. Upcoming PCORI Funding Announcement to Fund Studies on the Science of Engagement - Postponed until July 12, 2022. Click here for more details.
7. Speaking Up on ADA with Tony Coelho. Click here to view the one pager.
8. NCD Health Equity Framework Includes Recommendation Against Use of QALYs, Following BBB Recommendation. Click here to view the framework.
9. Value Our Health: Advancing Value Assessment Principles Centered on Patients and People with Disabilities. See below for details.
10. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
11. Emerging Threats in States for Use of Discriminatory Metrics, see details below.
12. ICER's QALY-Based Study Topics. Click here to provide patient input.
13. Upcoming Events and Webinars, see details below.
14. Medical Journal Articles, see details below.
15. AHRQ Effective Program Updates, see details below.

In This Week’s Issue:
 
1. IVI Announces Health Equity Initiative. Click here to view the press release.
2. Lawmakers Introduce Legislation Barring the Use of QALYs in Federal Programs. Click here to view the press release.
3. PIPC Joins Over 60 Organizations Urging CMS to Reject QALY's in OR Waiver Renewal Application. Click here to read the letter.
4. GAO Calls for Nominations to PCORI Board of Governors. Click here to read more.
5. HHS Proposed Notice of Benefit and Payment Parameters Rule on Prohibited Discrimination under Section 1557. See below for details.
6. Upcoming PCORI Funding Announcement to Fund Studies on the Science of Engagement - Postponed until July 12, 2022. Click here for more details.
7. Person-Driven Outcome Measures Learning Collaborative - Applications Open! Click here to learn more and inquire about participation.
8. Speaking Up on ADA with Tony Coelho. Click here to view the one pager.
9. NCD Health Equity Framework Includes Recommendation Against Use of QALYs, Following BBB Recommendation. Click here to view the framework.
10. Value Our Health: Advancing Value Assessment Principles Centered on Patients and People with Disabilities. See below for details.
11. New Targeted PCORI Funding Announcement: Comparative Effectiveness of Interventions Targeting Mental Health in Individuals with Intellectual and Developmental Disabilities. See below for details.
12. Upcoming opportunity within the Center for Evidence and Practice Improvement at AHRQ, see details below.
13. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
14. Emerging Threats in States for Use of Discriminatory Metrics, see details below.
15. ICER's QALY-Based Study Topics: Alzheimer's Disease, Amyotrophic Lateral Sclerosis (ALS), Beta Thalassemia, COVID-19, Obesity Management, Type 2 Diabetes, Hypertrophic Cardiomyopathy, Asthma, Unsupported Price Increase, Fair Access: Coverage Policies. Click here to provide patient input.
16. Upcoming Events and Webinars, see details below.
17. Medical Journal Articles, see details below.
18. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. PIPC Joins Over 60 Organizations Urging CMS to Reject QALY's in OR Waiver Renewal Application. Click here to read the letter.
2. GAO Calls for Nominations to PCORI Board of Governors. Click here to read more.
3. HHS Proposed Notice of Benefit and Payment Parameters Rule on Prohibited Discrimination under Section 1557. See below for details.
4. Upcoming PCORI Funding Announcement to Fund Studies on the Science of Engagement - Postponed until July 12, 2022. Click here for more details.
5. Person-Driven Outcome Measures Learning Collaborative - Applications Open! Click here to learn more and inquire about participation.
6. Speaking Up on ADA with Tony Coelho. Click here to view the one pager.
7. NCD Health Equity Framework Includes Recommendation Against Use of QALYs, Following BBB Recommendation. Click here to view the framework.
8. Value Our Health: Advancing Value Assessment Principles Centered on Patients and People with Disabilities. See below for details.
9. New Targeted PCORI Funding Announcement: Comparative Effectiveness of Interventions Targeting Mental Health in Individuals with Intellectual and Developmental Disabilities. See below for details.
10. Upcoming opportunity within the Center for Evidence and Practice Improvement at AHRQ, see details below.
11. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
12. Emerging Threats in States for Use of Discriminatory Metrics, see details below.
13. ICER's QALY-Based Study Topics: Alzheimer's Disease, Amyotrophic Lateral Sclerosis (ALS), Beta Thalassemia, COVID-19, Obesity Management, Type 2 Diabetes, Hypertrophic Cardiomyopathy, Asthma, Unsupported Price Increase, Fair Access: Coverage Policies. Click here to provide patient input.
14. Upcoming Events and Webinars, see details below.
15. Medical Journal Articles, see details below.
16. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. PIPC Joins Over 60 Organizations Urging CMS to Reject QALY's in OR Waiver Renewal Application. Click here to read the letter.
2. GAO Calls for Nominations to PCORI Board of Governors. Click here to read more.
3. PCORI Board of Governors Meeting - Transcript Released. Click here to view the transcript.
4. HHS Proposed Notice of Benefit and Payment Parameters Rule on Prohibited Discrimination under Section 1557. See below for details.
5. Upcoming PCORI Funding Announcement to Fund Studies on the Science of Engagement. Click here for more details.
6. Person-Driven Outcome Measures Learning Collaborative - Applications Open! Click here to learn more and inquire about participation.
7. Speaking Up on ADA with Tony Coelho. Click here to view the one pager.
8. NCD Health Equity Framework Includes Recommendation Against Use of QALYs, Following BBB Recommendation. Click here to view the framework.
9. Value Our Health: Advancing Value Assessment Principles Centered on Patients and People with Disabilities. See below for details.
10. New Targeted PCORI Funding Announcement: Comparative Effectiveness of Interventions Targeting Mental Health in Individuals with Intellectual and Developmental Disabilities. See below for details.
11. Upcoming opportunity within the Center for Evidence and Practice Improvement at AHRQ, see details below.
12. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
13. Emerging Threats in States for Use of Discriminatory Metrics, see details below.
14. ICER's QALY-Based Study Topics: Alzheimer's Disease, Amyotrophic Lateral Sclerosis (ALS), Beta Thalassemia, COVID-19, Obesity Management, Type 2 Diabetes, Hypertrophic Cardiomyopathy, Asthma, Unsupported Price Increase, Fair Access: Coverage Policies. Click here to provide patient input.
15. Upcoming Events and Webinars, see details below.
16. Medical Journal Articles, see details below.
17. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. Opportunity to Comment on Oregon Waiver Renewal Application - Closes Next Wednesday! See details below.
2. HHS Proposed Notice of Benefit and Payment Parameters Rule on Prohibited Discrimination under Section 1557. See below for details.
3. Upcoming PCORI Funding Announcement to Fund Studies on the Science of Engagement. Click here for more details.
4. NMQF: A Roadmap for Real-World Evidence Generation in Alzheimer’s Disease. Click here to view the white paper.
5. Person-Driven Outcome Measures Learning Collaborative - Applications Open! Click here to learn more and inquire about participation.
6. Speaking Up on ADA with Tony Coelho. Click here to view the one pager.
7. NCD Health Equity Framework Includes Recommendation Against Use of QALYs, Following BBB Recommendation. Click here to view the framework.
8. Value Our Health: Advancing Value Assessment Principles Centered on Patients and People with Disabilities. See below for details.
9. New Targeted PCORI Funding Announcement: Comparative Effectiveness of Interventions Targeting Mental Health in Individuals with Intellectual and Developmental Disabilities. See below for details.
10. Upcoming opportunity within the Center for Evidence and Practice Improvement at AHRQ, see details below.
11. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
12. Emerging Threats in States for Use of Discriminatory Metrics, see details below.
13. ICER's QALY-Based Study Topics: Alzheimer's Disease, Amyotrophic Lateral Sclerosis (ALS), Beta Thalassemia, COVID-19, Obesity Management, Type 2 Diabetes, Hypertrophic Cardiomyopathy, Asthma, Unsupported Price Increase, Fair Access: Coverage Policies. Click here to provide patient input.
14. Upcoming Events and Webinars, see details below.
15. Medical Journal Articles, see details below.
16. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. Opportunity to Comment on Oregon Waiver Renewal Application! See details below.
2. HHS Proposed Notice of Benefit and Payment Parameters Rule on Prohibited Discrimination under Section 1557. See below for details.
3. Upcoming PCORI Funding Announcement to Fund Studies on the Science of Engagement. Click here for more details.
4. NMQF: A Roadmap for Real-World Evidence Generation in Alzheimer’s Disease. Click here to view the white paper.
5. Person-Driven Outcome Measures Learning Collaborative - Applications Open! Click here to learn more and inquire about participation.
6. Speaking Up on ADA with Tony Coelho. Click here to view the one pager.
7. NCD Health Equity Framework Includes Recommendation Against Use of QALYs, Following BBB Recommendation. Click here to view the framework.
8. Value Our Health: Advancing Value Assessment Principles Centered on Patients and People with Disabilities. See below for details.
9. New Targeted PCORI Funding Announcement: Comparative Effectiveness of Interventions Targeting Mental Health in Individuals with Intellectual and Developmental Disabilities. See below for details.
10. PCORI Seeks Nominations for Advisory Panels. Click here to learn more, submit a nomination, or apply to be on an advisory panel.
11. Upcoming opportunity within the Center for Evidence and Practice Improvement at AHRQ, see details below.
12. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
13. Emerging Threats in States for Use of Discriminatory Metrics, see details below.
14. ICER's QALY-Based Study Topics: Alzheimer's Disease, Amyotrophic Lateral Sclerosis (ALS), Beta Thalassemia, COVID-19, Obesity Management, Type 2 Diabetes, Hypertrophic Cardiomyopathy, Asthma, Unsupported Price Increase, Fair Access: Coverage Policies. Click here to provide patient input.
15. Upcoming Events and Webinars, see details below.
16. Medical Journal Articles, see details below.
17. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. Application Relying on QALYs is Open for Public Comment through April 13. See details below.
2. Upcoming PCORI Funding Announcement to Fund Studies on the Science of Engagement. Click here for more details.
3. NMQF: A Roadmap for Real-World Evidence Generation in Alzheimer’s Disease. Click here to view the white paper.
4. Person-Driven Outcome Measures Learning Collaborative - Applications Open! Click here to learn more and inquire about participation.
5. Speaking Up on ADA with Tony Coelho. Click here to view the one pager.
6. NCD Health Equity Framework Includes Recommendation Against Use of QALYs, Following BBB Recommendation. Click here to view the framework.
7. Value Our Health: Advancing Value Assessment Principles Centered on Patients and People with Disabilities. See below for details.
8. New Targeted PCORI Funding Announcement: Comparative Effectiveness of Interventions Targeting Mental Health in Individuals with Intellectual and Developmental Disabilities. See below for details.
9. PCORI Seeks Nominations for Advisory Panels. Click here to learn more, submit a nomination, or apply to be on an advisory panel.
10. Upcoming opportunity within the Center for Evidence and Practice Improvement at AHRQ, see details below.
11. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
12. Emerging Threats in States for Use of Discriminatory Metrics, see details below.
13. ICER's QALY-Based Study Topics: Alzheimer's Disease, Amyotrophic Lateral Sclerosis (ALS), Beta Thalassemia, COVID-19, Obesity Management, Type 2 Diabetes, Hypertrophic Cardiomyopathy, Asthma, Unsupported Price Increase, Fair Access: Coverage Policies. Click here to provide patient input.
14. Upcoming Events and Webinars, see details below.
15. Medical Journal Articles, see details below.
16. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. Application Relying on QALYs is Open for Public Comment. See details below.
2. Upcoming PCORI Funding Announcement to Fund Studies on the Science of Engagement. Click here for more details.
3. Person-Driven Outcome Measures Learning Collaborative - Applications Open! Click here to learn more and inquire about participation.
4. PCORI Board Approves Funding Awards to Support Clinical Effectiveness Research. Click here to view the presentation.
5. PIPC Submits Comments on ICER Assessment of COVID-19 Treatments. Click here to view the letter.
6. Speaking Up on ADA with Tony Coelho. Click here to view the one pager.
7. NCD Health Equity Framework Includes Recommendation Against Use of QALYs. Click here to view the framework.
8. Value Our Health: Advancing Value Assessment Principles Centered on Patients and People with Disabilities. See below for details.
9. NCD Recommendation to Include a Comprehensive QALY Ban in BBB Supported by Law and Public Opinion
10. PCORI Board Considers Health Care Cost and Value. Click here to view the PCORI presentation.
11. New Targeted PCORI Funding Announcement: Comparative Effectiveness of Interventions Targeting Mental Health in Individuals with Intellectual and Developmental Disabilities. See below for details.
12. PCORI Seeks Nominations for Advisory Panels. Click here to learn more, submit a nomination, or apply to be on an advisory panel.
13. Upcoming opportunity within the Center for Evidence and Practice Improvement at AHRQ, see details below.
14. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
15. Emerging Threats in States for Use of Discriminatory Metrics, see details below.
16. ICER's QALY-Based Study Topics: Alzheimer's Disease, Amyotrophic Lateral Sclerosis (ALS), Beta Thalassemia, COVID-19, Obesity Management, Type 2 Diabetes, Hypertrophic Cardiomyopathy, Asthma, Unsupported Price Increase, Fair Access: Coverage Policies. Click here to provide patient input.
17. Upcoming Events and Webinars, see details below.
18. Medical Journal Articles, see details below.
19. AHRQ Effective Program Updates, see details below.