In This Week’s Issue:
 
1. Video: Risk of Modeling Other Countries’ Drug Pricing: How a Canadian Child is Forced to Get Sicker to Access Treatment, click here to watch the video.
2. ICER’s Concern for Patients: Where’s the Beef?, click here to read the op-ed.
3. PIPC Urges House to Protect Patients and People with Disabilities in Title 1 of New House Bill, see below for details.
4. Proposed Changes to ICER Framework Available for Comment, click here to view the changes and to comment and see below for more.
5. PIPC Comments on ICER's Type 2 Diabetes Draft Evidence Report, click here to read the letter.
6. Liver Cancer Hill Briefing, see below for details.
7. New PQA Patient Engagement in Quality Measurement Rubric, click here to read more and to view the rubric.
8. How ICER Discriminates Against People with Rare Diseases, click here to read the article.
9. PCORI News and Updates, see details below.
10. Cancer Support Community is Hosting a Summit on Utilization Management, click here to learn more and register.
11. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more. 
12. ICER Studies: Acute Migraine, Type 2 Diabetes, Arthritis, Cardiovascular Disease, Sickle Cell Disease, Ulcerative Colitis, Cystic Fibrosis, click here to provide patient input.
13. Upcoming Events and Webinars, see details below.
14. Medical Journal Articles, see details below.
15. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. Reuters: CVS Drug Coverage Plan Based on Outside Pricing Review is Off to a Slow Start, see details below.
2. ICER Discriminates Against People with Rare Diseases, click here to read the article.
3. ICER Withdraws Draft Report on Rheumatoid Arthritis Therapies, click here to read more.
4. PCORI News and Updates, see details below.
5. Patient Advocacy Scholarships Available for Personalized Medicine Conference, click here to apply.
6. Cancer Support Community is Hosting a Summit on Utilization Management, click here to learn more and register.
7. Incorporating Patient Perspectives and Transparency for Patient-Centered Value Assessment, click here to read the article.
8. Not All QALYs are Created Equal, click here to read the article.
9. Proposed Changes to ICER Framework Available for Comment, click here to view the changes and to comment and see below for more.
10. AAR Seeks Recruits for Annual Senior Patient and Family Caregivers Network Training, click here to learn more and to apply for the training.
11. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more. 
12. ICER Studies: Acute Migraine, Type 2 Diabetes, Arthritis, Cardiovascular Disease, Sickle Cell Disease, Ulcerative Colitis, Cystic Fibrosis, click here to provide patient input.
13. Upcoming Events and Webinars, see details below.
14. Medical Journal Articles, see details below.
15. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. PIPC Urges House to Protect Patients and People with Disabilities in Title 1 of New House Bill, see details below.
2. Dr. Josie Briggs Appointed Interim PCORI Executive Director, see details below.
3. Patient Advocacy Scholarships Available for Personalized Medicine Conference, click here to apply.
4. Cancer Support Community is Hosting a Summit on Utilization Management, click here to learn more and register.
5. Proposed Changes to ICER Framework Available for Comment, click here to view the changes and to comment and see below for more.
6. ICER Announces Possible 2020 Assessments, click here to see the list of possible assessments.
7. AAR Seeks Recruits for Annual Senior Patient and Family Caregivers Network Training, click here to learn more and to apply for the training.
8. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more. 
9. ICER Studies: Acute Migraine, Type 2 Diabetes, Arthritis, Cardiovascular Disease, Sickle Cell Disease, Ulcerative Colitis, Cystic Fibrosis, click here to provide patient input.
10. Upcoming Events and Webinars, see details below.
11. Medical Journal Articles, see details below.
12. AHRQ Effective Program Updates, see details below

In This Week’s Issue:
 
1. PIPC Urges House to Protect Patients and People with Disabilities in Title 1 of New House Bill, see details below.
2. NHC Patient Community Training on Value Assessment, click here to read more and to watch the training.
3. PCORI Advocacy 101: The Politics and Policy of PCORI Reauthorization, click here for a complete recording of the event and the slides used in the presentation.
4. New NQF Resource on Patient-Centered Renal Care, click here to read more.
5. Proposed Changes to ICER Framework Available for Comment, click here to view the changes and to comment and see below for more.
6. ICER Announces Possible 2020 Assessments, click here to see the list of possible assessments.
7. AAR Seeks Recruits for Annual Senior Patient and Family Caregivers Network Training, click here to learn more and to apply for the training.
8. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more. 
9. ICER Studies: Acute Migraine, Type 2 Diabetes, Arthritis, Cardiovascular Disease, Sickle Cell Disease, Ulcerative Colitis, Cystic Fibrosis, click here to provide patient input.
10. Upcoming Events and Webinars, see details below.
11. Medical Journal Articles, see details below.
12. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. PCORI Advocacy 101: The Politics and Policy of PCORI Reauthorization, click here for a complete recording of the event and the slides used in the presentation.
2. Gottlieb: As FDA Advances RWE Use, Groups Other Than ICER Needed, click here to read more.
3. To Improve Health Care, Focus on Clinical Measures and Listen to Patients, click here to read more.
4. Now Is the Time to Develop Patient-Centered Quality Measures, click here to read the article.
5. Proposed Changes to ICER Framework Available for Comment, click here to view the changes and to comment and see below for more.
6. ICER Announces Possible 2020 Assessments, click here to see the list of possible assessments.
7. AAR Seeks Recruits for Annual Senior Patient and Family Caregivers Network Training, click here to learn more and to apply for the training.
8. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more. 
9. ICER Studies: Acute Migraine, Type 2 Diabetes, Arthritis, Cardiovascular Disease, Sickle Cell Disease, Ulcerative Colitis, Cystic Fibrosis, click here to provide patient input.
10. Upcoming Events and Webinars, see details below.
11. Medical Journal Articles, see details below.
12. AHRQ Effective Program Updates, see details below

In This Week’s Issue:
 
1. ICER's Methodology Fails to Properly Value Treatments, click here to read the article.
2. Making the Patient Voice Matter In Value Assessment, click here to read the article.
3. Disruptive Proposals May Undermine Medicare Part D’s Success, see below for more.
4. Proposed Changes to ICER Framework Available for Comment, click here to view the changes and to comment and see below for more.
5. ICER Announces Possible 2020 Assessments, click here to see the list of possible assessments.
6. AAR Seeks Recruits for Annual Senior Patient and Family Caregivers Network Training, click here to learn more and to apply for the training.
7. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more. 
8. ICER Studies: Acute Migraine, Type 2 Diabetes, Arthritis, Cardiovascular Disease, Sickle Cell Disease, Ulcerative Colitis, Cystic Fibrosis, click here to provide patient input.
9. Upcoming Events and Webinars, see details below.
10. Medical Journal Articles, see details below.
11. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:

1. Disruptive Proposals May Undermine Medicare Part D’s Success, see below for more.
2. PIPC Comments on ICER's Cardiovascular Disease Study, click here to read the letter.
3. Proposed Changes to ICER Framework Available for Comment, click here to view the changes and to comment and see below for more.
4. National Health Council Training on Value Assessment and Patient Voice Rubric, see below for more.
5. Patient-Reported Outcomes Help to Give Patients Better Care, Increased Quality of Life, click here to watch the interview.
6. ICER Announces Possible 2020 Assessments, click here to see the list of possible assessments.
7. AAR Seeks Recruits for Annual Senior Patient and Family Caregivers Network Training, click here to learn more and to apply for the training.
8. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
9. ICER Studies: Acute Migraine, Type 2 Diabetes, Arthritis, Cardiovascular Disease, Duchenne Muscular Dystrophy, Sickle Cell Disease, click here to provide patient input.
10. Upcoming Events and Webinars, see details below.
11. Medical Journal Articles, see details below.
12. AHRQ Effective Program Updates, see details below.

In This Week’s Issue:
 
1. PIPC Comments on ICER's Cardiovascular Disease Study, click here to read the letter.
2. Proposed Changes to ICER Framework Available for Comment, click here to view the changes and to comment and see below for more.
3. RetireSafe: IPI Would Hurt American Seniors, click here to view the article.
4. National Health Council Training on Value Assessment and Patient Voice Rubric, see below for more.
5. CARE About Fibroids White Paper and Upcoming Patient Tool, see below for more.
6. Maisie's Army Mobilizes to Help Toddlers Access Lifesaving SMA Therapy, click here to read the article.
7. ICER Announces Possible 2020 Assessments, click here to see the list of possible assessments.
8. AAR Seeks Recruits for Annual Senior Patient and Family Caregivers Network Training, click here to learn more and to apply for the training.
9. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more. 
10. ICER Studies: Acute Migraine, Type 2 Diabetes, Arthritis, Cardiovascular Disease, Duchenne Muscular Dystrophy, Sickle Cell Disease, click here to provide patient input.
11. Upcoming Events and Webinars, see details below.
12. Medical Journal Articles, see details below.
13. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. National Health Council Training on Value Assessment, click here for information and to register.
2. Value Our Health: What is a Quality Adjusted Life Year, or QALY? Click here for a video on how QALYs put patients’ access at risk.
3. Bloomberg: International Pricing Index Policy Expected in September, Opposed by Many Advocates, click here to view a letter from advocates and here for international case studies. Click here to view the Bloomberg article. 
4. Aging Advocate: Discrimination has No Place in American Prescription Drug Coverage, click here to read the article.
5. NHC Rubric on Capturing the Patient Voice -- Comment Opportunity, click here to see the Rubric and to comment.
6. ICER Announces Possible 2020 Assessments, click here to see the list of possible assessments.
7. AAR Seeks Recruits for Annual Senior Patient and Family Caregivers Network Training, click here to learn more and to apply for the training.
8. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more. 
9. ICER Studies: Acute Migraine, Type 2 Diabetes, Arthritis, Cardiovascular Disease, Duchenne Muscular Dystrophy, Sickle Cell Disease, click here to provide patient input.
10. Upcoming Events and Webinars, see details below.
11. Medical Journal Articles, see details below.
12. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. Value Our Health: What is a Quality Adjusted Life Year, or QALY? Click here for a video on how QALYs put patients’ access at risk.
2. SWHR Migraine Toolkit, click here to view the toolkit.
3. Bloomberg: International Pricing Index Policy Expected in September, Opposed by Many Advocates, click here to view a letter from advocates and here for international case studies. Click here to view the Bloomberg article. 
4. Aging Advocate: Discrimination has No Place in American Prescription Drug Coverage, click here to read the article.
5. RetireSafe: IPI Would Damage the Health of American Seniors, click here to read the article.
6. NHC Rubric on Capturing the Patient Voice -- Comment Opportunity, click here to see the Rubric and to comment.
7. CMS to Cover CAR-T Therapy for Patients Nationwide, click here to read the article.
8. ICER Announces Possible 2020 Assessments, click here to see the list of possible assessments.
9. AAR Seeks Recruits for Annual Senior Patient and Family Caregivers Network Training, click here to learn more and to apply for the training.
10. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more. 
11. ICER Studies: Type 2 Diabetes, Arthritis, Cardiovascular Disease, Duchenne Muscular Dystrophy click here to provide patient input.
12. Upcoming Events and Webinars, see details below.
13. Medical Journal Articles, see details below.
14. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. NHC Rubric on Capturing the Patient Voice -- Comment Opportunity, click here to see the Rubric and to comment.
2. New Medicare Primary Care Models and Their Potential for Seriously Ill Beneficiaries, click here to read the article.
3. Alliance for Health Policy Webinar on the Future of PCORI, click here to watch the webinar.
4. ICER Announces Possible 2020 Assessments, click here to see the list of possible assessments.
5. New NPC Resources on Value Assessment, see below for details.
6. AAR Seeks Recruits for Annual Senior Patient and Family Caregivers Network Training, click here to learn more and to apply for the training.
7. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more. 
8. ICER Studies: Type 2 Diabetes, Arthritis, Cardiovascular Disease, Duchenne Muscular Dystrophy click here to provide patient input.
9. Upcoming Events and Webinars, see details below.
10. Medical Journal Articles, see details below.
11. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. Value Assessments – the Impact on People with Rare Diseases, click here to learn more and watch the webinar.
2. The Hill: Health Systems Must Help Patients Make Informed Decisions, click here to read the article.
3. Op-Ed: ICER's Agenda Helped by Media Attention, click here to read the article.
4. FH Foundation Publication on Cardiovascular Outcomes, click here to read the article.
5. ICER Announces Possible 2020 Assessments, click here to see the list of possible assessments.
6. AAR Seeks Recruits for Annual Senior Patient and Family Caregivers Network Training, click here to learn more and to apply for the training.
7. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more. 
8. ICER Studies: Type 2 Diabetes, Arthritis, Cardiovascular Disease, Duchenne Muscular Dystrophy click here to provide patient input.
9. Upcoming Events and Webinars, see details below.
10. Medical Journal Articles, see details below.
11. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. Value Assessments – the Impact on People with Rare Diseases, click here to learn more and watch the webinar.
2. Webinar: What's Ahead for Comparative Effective Research? Click here to learn more and RSVP.
3. The Evidence Base Interview: Quarreling Over the QALY, click here to read the full interview.
4. Value Our Health Op-Ed: Stop Discriminatory Value Assessments, click here to read the op-ed.
5. Veterans Groups in California Comment on ICER’s 2020 Framework, click here to read the American Legion letter and click here to read the joint letter.
6. NHC Rubric to Capture the Patient Voice, click here to learn more and see the rubric.
7. AJMC: Precision Medicines Need Precision Patient Assistance Programs, click here to read the article.
8. ICER Announces Possible 2020 Assessments, click here to see the list of possible assessments.
9. AAR Seeks Recruits for Annual Senior Patient and Family Caregivers Network Training, click here to learn more and to apply for the training.
10. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more. 
11. ICER Studies: Type 2 Diabetes, Arthritis, Cardiovascular Disease, Duchenne Muscular Dystrophy click here to provide patient input.
12. Upcoming Events and Webinars, see details below.
13. Medical Journal Articles, see details below.
14. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. Webinar: Value Assessments – the Impact on People with Rare Diseases, see below for details.
2. Value Our Health Op-Ed: Stop Discriminatory Value Assessments, click here to read the op-ed.
3. Veterans Groups in California Comment on ICER’s 2020 Framework, click here to read the American Legion letter and click here to read the joint letter.
4. Alliance for Aging Research: Video on ICER’s Methodology, click here to see the video.
5. PIPC Patient Blog: CancerCare Response to 'Mouse That Roared,' click here to read the blog.
6. NHC Rubric to Capture the Patient Voice, click here to learn more and see the rubric.
7. ICER Announces Possible 2020 Assessments, click here to see the list of possible assessments.
8. University of Maryland Welcomes Patients, Researchers to PATIENTS Day, click here to read more.
9. AAR Seeks Recruits for Annual Senior Patient and Family Caregivers Network Training, click here to learn more and to apply for the training.
10. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more. 
11. ICER Studies: Type 2 Diabetes, Arthritis, Cardiovascular Disease, Duchenne Muscular Dystrophy click here to provide patient input.
12. Upcoming Events and Webinars, see details below.
13. Medical Journal Articles, see details below.
14. AHRQ Effective Program Updates, see details below.  

1. PIPC Patient Blog: CancerCare Response to 'Mouse That Roared,' click here to read the blog.
2. Patient Advocates Say ICER Uses Discriminatory Cost Metrics, click here to read the full article.
3. Pioneer Institute Report Addresses Shortcomings of ICER Models to Evaluate Rare Disease Treatments, click here to read the report.
4. Webinar: Value Assessments – the Impact on People with Rare Diseases, see below for details.
5. AAR Seeks Recruits for Annual Senior Patient and Family Caregivers Network Training, click here to learn more and to apply for the training.
6. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more. 
7. ICER Studies: Type 2 Diabetes, Arthritis, Cardiovascular Disease, Duchenne Muscular Dystrophy click here to provide patient input.
8. Upcoming Events and Webinars, see details below.
9. Medical Journal Articles, see details below.
10. AHRQ Effective Program Updates, see details below.