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  • Home
  • About
    • Mission and Priorities
    • Meet the Chairman
    • Steering Committee
    • PIPC Member List
    • Contact
  • The Issues
    • Value Our Health
    • International
    • Where We Stand
    • Value Assessment Frameworks
    • Engaging Patients in Value-Based Payment
    • Patient-Centeredness in Research
  • Resources
    • Advocacy
    • Letters and Comments
    • PCORI Meeting Transcripts
    • Polling
    • Roundtables
    • White Papers
  • Blog
    • PIPC Patients' Blog
    • Chairman's Corner
    • PIPC Weekly Update
    • The Data Mine
  • Newsroom
    • PIPC in the News
    • Press Releases
    • Open Letter: We Deserve a Voice
  • Events
    • PIPC Forum 2022
    • Discrimination & Health Care
    • C & GT Webinar
    • ICER COVID Webinar
    • Value Our Health Briefing
    • QALY Briefing
    • QALY Panel
    • Past Webinars >
      • ICER SCD Webinar
      • VOH Sickle Cell Webinar
      • Rare Disease Webinar
      • QALY Webinar
      • PCORI Advocacy Webinar
      • APM Webinar
      • Patient Empowerment Webinar
      • Value Assessments Briefing
    • Past PIPC Forums >
      • 2021
      • 2020
      • 2019
      • 2018
      • 2017
      • 2016
      • 2015
      • 2014
      • 2013
      • 2012
      • 2011
      • 2010

The PIPC Blog

PIPC Weekly Update: July 30, 2018

7/30/2018

 
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In This Week’s Issue:
 
1. PIPC Submits Comments on HHS Blueprint to Lower Drug Prices and Reduce Out-of-Pocket Costs, click here to read the letter.
2. PIPC Patient Blog: Our Children Are Worth It, click here to read the blog.
3. Quality, Not Quantity, Should Guide Medicare Coverage for Heart Valve Disease Treatment, click here to read the op-ed.
4. Op-Ed: The Disability Trap, click here to read the op-ed.
5. Patient EngagementHIT: Best Practices for Patient-Centered Appointment Agenda-Setting, click here to read the article. 
6. 2018 PCORI Annual Meeting, click here for details.
7. PCORI Peer Review Opportunity, click here to apply.
8. Upcoming Events and Webinars, see details below.
9. Medical Journal Articles, see details below.
10. AHRQ Effective Program Updates, see details below.


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PIPC Weekly Update: July 23, 2018

7/23/2018

 
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In This Week’s Issue:
  
1. PIPC Patient Blog: Our Children Are Worth It, click here to read the blog.
2. PIPC Submits Comments on HHS Blueprint to Lower Drug Prices and Reduce Out-of-Pocket Costs, click here to read the letter.
3. PCORI Funding Announcement: Implementation of Effective Shared Decision Making Approaches in Practice Settings -- Cycle 2 2018, click here to apply.
4. PCORI Peer Review Opportunity, click here to apply.
5. Op-Ed: Quality, Not Quantity, Should Guide Medicare Coverage for Heart Valve Disease Treatment, click here to read the op-ed.
6. Patient EngagementHIT: Consumer-Centric Healthcare Lags Amid Value-Based Care Priorities, click here to read the article.
7. CMS Webinar: Technical Expert Panels: Developing and Implementing a TEP for Better Quality Measures, Click here to register. 
8. 2018 PCORI Annual Meeting, click here for details.
9. Upcoming Events and Webinars, see details below.
10. Medical Journal Articles, see details below.
11. AHRQ Effective Program Updates, see details below. 


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PIPC Patient Blog: Our Children Are Worth It

7/17/2018

 
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This post was originally published as a July 17, 2018 article in Disabled World.

By: Stephanie Bozarth 

​
Should one consider the life of a person with a disability less valuable than the life of a person without a disability? Alarmingly, states are increasingly relying on policies that do just that, in order to determine the value of health care services and treatments. For children suffering from life-threatening and debilitating disorders, like my daughter, reliance on any standard that considers her life less valuable than someone without a disability, is simply unacceptable.


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PIPC Weekly Update: July 16, 2018

7/16/2018

 
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In This Week’s Issue:
  
1. PCORI Funding Announcement: Implementation of Effective Shared Decision Making Approaches in Practice Settings -- Cycle 2 2018, click here to apply.
2. PCORI Peer Review Opportunity, click here to apply.
3. Kaiser Health News: A Hospital’s Human Touch: Why Taking Care In Discharging A Patient Matters, click here to read the article.
4. IFPA: Patients Shouldn’t Have to ‘Fail First,’ click here to watch the video. 
5. Patient EngagementHIT: What Are the Top Patient Engagement Measures in Value-Based Care? Click here to read the article.
6. CMS Webinar: Technical Expert Panels: Developing and Implementing a TEP for Better Quality Measures, Click here to register. 
7. The PCORI Blog: The Latest Published Results of PCORI-Funded Studies, click here to read the blog.
8. Study: Specialty Drug Coverage Varies Across Commercial Health Plans In The US, click here to read the study.
9. Upcoming Events and Webinars, see details below.
10. Medical Journal Articles, see details below
11. AHRQ Effective Program Updates, see details below


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PIPC Weekly Update: July 9, 2018

7/9/2018

 
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In This Week’s Issue:
  
1. Today: FDA Meeting for Patient-Focused Drug Development on Chronic Pain, click here to register.
2. PCORI Video: Mentorship and Training to Improve Patient Engagement, click here to watch the video. 
3. Patient EngagementHIT: Top Challenges Impacting Patient Access to Healthcare, click here to read the article. 
4. FierceHealthcare: It’s time to move to 'value 2.0' in healthcare,  click here to read the article.
5. Forbes: Canaries in the Coal Mine, click here to read the article.
6. Upcoming Events and Webinars, see details below.
7. Medical Journal Articles, see details below.
8. AHRQ Effective Program Updates, see details below.


Read More

PIPC Weekly Update: July 2, 2018

7/2/2018

 
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In This Week’s Issue:
  
1. Alliance for Aging Research: Promoting Wellness in Older Adults with Mental Illnesses and Substance Use Disorders: Call to Action to All Stakeholders, click here to read the white paper. 
2. HealthLeaders: 6 Themes Driving Healthcare Leaders To Change, click here read the article.
3. Patient EngagementHIT: Patient Engagement Technology Comes to Forefront in Healthcare, click here to read the article.
4. FierceHealthcare: Patient-Centered Medical Home Program Saves Carefirst $1.2B, Pays Off For Doctors, click here to read the article.
5. Video: It All Starts with Patient Engagement, click here to watch the video.
6. FDA Meeting for Patient-Focused Drug Development on Chronic Pain, click here to register.
7. Upcoming Events and Webinars, see details below.
8. Medical Journal Articles, see details below.
9. AHRQ Effective Program Updates, see details below


Read More

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