In This Week’s Issue:
 
1. PIPC and the EveryLife Foundation for Rare Diseases Partner to Release a New White Paper Evaluating the Use of Value Assessments for Cell and Gene Therapies, click here to read the paper.
2. Most Favored Nations Executive Order Released Last Week Would Import Discriminatory QALYs, see details below.
3. PCORI Proposed Principles for the Consideration of the Full Range of Outcomes Data, click here to read the principles and to submit comments.
4. ADA 25 Advancing Leadership Forum on Disability Justice in the Fight for Racial Equity, click here to learn more and register.
5. The Bonnell Foundation Discusses Access Challenges for Cystic Fibrosis Patients Abroad, click here to listen to the podcast.
6. NMQF, Axis Advocacy, Sick Cells, and PIPC Release a White Paper on Value Assessments' Impact on Health Inequities, click here to read the paper.
7. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
8. ICER's QALY-Based Study Topics: Hemophilia A, Sickle Cell Disease, Ulcerative Colitis, Cystic Fibrosis, Bladder Cancer, Opioid Treatments, High Cholesterol, Anemia in Chronic Kidney Disease, Lupus Nephritis, Multiple Myeloma, click here to provide patient input.
9. Upcoming Events and Webinars, see details below.
10. Medical Journal Articles, see details below.
11. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. PIPC and the EveryLife Foundation for Rare Diseases Partner to Release a New White Paper Evaluating the Use of Value Assessments for Cell and Gene Therapies, click here to read the paper.
2. Most Favored Nations Executive Order Released Last Week Would Import Discriminatory QALYs, see details below.
3. PCORI Proposed Principles for the Consideration of the Full Range of Outcomes Data, click here to read the principles and to submit comments.
4. ADA 25 Advancing Leadership Forum on Disability Justice in the Fight for Racial Equity, click here to learn more and register.
5. The Bonnell Foundation Discusses Access Challenges for Cystic Fibrosis Patients Abroad, click here to listen to the podcast.
6. NMQF, Axis Advocacy, Sick Cells, and PIPC Release a White Paper on Value Assessments' Impact on Health Inequities, click here to read the paper.
7. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
8. ICER's QALY-Based Study Topics: Hemophilia A, Sickle Cell Disease, Ulcerative Colitis, Cystic Fibrosis, Bladder Cancer, Opioid Treatments, High Cholesterol, Anemia in Chronic Kidney Disease, Lupus Nephritis, Multiple Myeloma, click here to provide patient input.
9. Upcoming Events and Webinars, see details below.
10. Medical Journal Articles, see details below.
11. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. Most Favored Nation’s Executive Order Released Yesterday Would Import Discriminatory QALYs, see details below.
2. The Bonnell Foundation Discusses Access Challenges for Cystic Fibrosis Patients Abroad, click here to listen to the podcast.
3. NMQF, Axis Advocacy, Sick Cells, and PIPC Release a White Paper on Value Assessments' Impact on Health Inequities, click here to read the paper.
4. AAPD, NCD, and NCIL Caution About the Discriminatory Implications of the QALY and Foreign Reference Pricing, click here to view the webinar.
5. IVI Unveils New Major Depressive Disorder Value Assessment Initiative, click here to read more.
6. Advocates Call for Focus on People with Disabilities in Vaccine Allocation Framework, see details below.
7. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
8. PCORI Annual Meeting September 16-17, click here to learn more and to register.
9. ICER's QALY-Based Study Topics: Hemophilia A, Sickle Cell Disease, Ulcerative Colitis, Cystic Fibrosis, Bladder Cancer, Opioid Treatments, High Cholesterol, Anemia in Chronic Kidney Disease, Lupus Nephritis, Multiple Myeloma, click here to provide patient input.
10. Upcoming Events and Webinars, see details below.
11. Medical Journal Articles, see details below.
12. AHRQ Effective Program Updates, see details below. 

In This Week’s Issue:
 
1. NMQF, Axis Advocacy, Sick Cells, and PIPC Release a White Paper on Value Assessments' Impact on Health Disparities, click here to read the paper.
2. Advocates Call for Focus on People with Disabilities in Vaccine Allocation Framework, see details below.
3. AAPD, NCD, and NCIL Caution About the Discriminatory Implications of the QALY and Foreign Reference Pricing, click here to view the webinar.
4. Proposed 'Most Favored Nations' Order Would Import Discriminatory Value Assessments, see details below.
5. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
6. PCORI Annual Meeting September 16-17, click here to learn more and to register.
7. ICER's QALY-Based Study Topics: Hemophilia A, Sickle Cell Disease, Ulcerative Colitis, Cystic Fibrosis, Bladder Cancer, Opioid Treatments, High Cholesterol, Anemia in Chronic Kidney Disease, Lupus Nephritis, Multiple Myeloma, click here to provide patient input.
8. Upcoming Events and Webinars, see details below.
9. Medical Journal Articles, see details below.
10. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. AAPD, NCD, and NCIL Caution About the Discriminatory Implications of the QALY and Foreign Reference Pricing, click here to view the webinar.
2. Proposed 'Most Favored Nations' Order Would Import Discriminatory Value Assessments, see details below.
3. New Patient-Centered Research Agenda for Personalized Medicine, click here to read the report.
4. National Academy of Medicine Framework for COVID-19 Vaccine Allocation, see details below.
5. Canadian Cystic Fibrosis Advocate Cautions Americans Against Importing Foreign Drug Pricing Policies, click here to read the blog post.
6. Opinion: Global Pharmaceutical Models Would Destroy U.S. Innovation, click here to read the op-ed.
7. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
8. PCORI Annual Meeting September 16-17, click here to learn more and to register.
9. ICER's QALY-Based Study Topics: Hemophilia A, Sickle Cell Disease, Ulcerative Colitis, Cystic Fibrosis, Bladder Cancer, Opioid Treatments, High Cholesterol, Anemia in Chronic Kidney Disease, Lupus Nephritis, click here to provide patient input.
10. Upcoming Events and Webinars, see details below.
11. Medical Journal Articles, see details below.
12. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. Proposed 'Most Favored Nations' Order Would Import Discriminatory Value Assessments, see details below.
2. Canadian Cystic Fibrosis Advocate Cautions Americans Against Importing Foreign Drug Pricing Policies, click here to read the blog post.
3. National Council on Independent Living Resolution on QALYs, see details below.
4. Opinion: Global Pharmaceutical Models Would Destroy U.S. Innovation, click here to read the op-ed.
5. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
6. Patients Say USPS Slowdown is Delaying Delivery of Life-Saving Medications, click here to read the article.
7. PCORI Annual Meeting September 16-17, click here to learn more and to register.
8. ICER's QALY-Based Study Topics: Hemophilia A, Sickle Cell Disease, Ulcerative Colitis, Cystic Fibrosis, Bladder Cancer, Opioid Treatments, High Cholesterol, Anemia in Chronic Kidney Disease, Lupus Nephritis, click here to provide patient input.
9. Upcoming Events and Webinars, see details below.
10. Medical Journal Articles, see details below.
11. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. NCD and PIPC Chairman Issue Statements Opposing Executive Order to Reference Foreign QALY-Based Prices, see details below.
2. National Council on Independent Living Resolution on QALYs, see details below.
3. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
4. STAT News: Disability Advocacy Gains Traction in Presidential Politics, click here to read the article.
5. AARDA’s Randy Rutta Talks Step Therapy, click here to read the full interview.
6. PCORI Annual Meeting September 16-17, click here to learn more and to register.
7. ICER's QALY-Based Study Topics: Hemophilia A, Sickle Cell Disease, Ulcerative Colitis, Cystic Fibrosis, Bladder Cancer, Opioid Treatments, High Cholesterol, Anemia in Chronic Kidney Disease, Lupus Nephritis, click here to provide patient input.
8. Upcoming Events and Webinars, see details below.
9. Medical Journal Articles, see details below.
10. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. NCD and PIPC Chairman Issue Statements Opposing Executive Order to Reference Foreign QALY-Based Prices, see details below.
2. National Council on Independent Living Resolution on QALYs, see details below.
3. PCORI Annual Meeting September 16-17, click here to learn more and to register.
4. Patient Advocates Weigh in on Executive Orders in the Press, see details below.
5. Patient Groups Submit Comment Letters to ICER on Draft Evidence Report on UC Treatments, see details below.
6. NCD Chairman: Accessible Care is Equal Care, click here to read the article.
7. Senate COVID-19 Relief Proposal Overlooks Disability Community, Advocates Say, click here to read the article.
8. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
9. ICER's QALY-Based Study Topics: Hemophilia A, Sickle Cell Disease, Ulcerative Colitis, Cystic Fibrosis, Bladder Cancer, Opioid Treatments, High Cholesterol, Anemia in Chronic Kidney Disease, click here to provide patient input.
10. Upcoming Events and Webinars, see details below.
11. Medical Journal Articles, see details below.
12. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. Patient Groups: New Drug Pricing Executive Orders Would Import Discriminatory Metrics, see details below.
2. Patient Advocates Weigh in on Executive Orders in the Press, see details below.
3. Patient Groups Submit Comment Letters to ICER on Draft Evidence Report on UC Treatments, see details below.
4. NCD Chairman: Accessible Care is Equal Care, click here to read the article.
5. Senate COVID-19 Relief Proposal Overlooks Disability Community, Advocates Say, click here to read the article.
6. U.K. Physicians Offer Cautionary Tale for Importing Discriminatory Foreign Policies, see details below.
7. Webinar: Unpacking ICER’s Models Assessing COVID-19 Treatments, click here to view the webinar.
8. OCR Continues its Work to Resolve COVID-19 Discrimination Cases, see details below.
9. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
10. ICER's QALY-Based Study Topics: Hemophilia A, Sickle Cell Disease, Ulcerative Colitis, Cystic Fibrosis, Bladder Cancer, Opioid Treatments, High Cholesterol, Anemia in Chronic Kidney Disease, click here to provide patient input.
11. Upcoming Events and Webinars, see details below.
12. Medical Journal Articles, see details below.
13. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. Patient Groups: New Drug Pricing Executive Orders Would Import Discriminatory Metrics, see details below.
2. U.K. Physicians Offer Cautionary Tale for Importing Discriminatory Foreign Policies, see details below.
3. Avalere: IPI Would Not Reduce Out-of-Pocket Costs, click here to read the report.
4. New PAVE Paper on Patient-Centered Value Measures, click here to read the paper.
5. Value Assessment Should be Expanded to Incorporate Health Inequality, click here to read the article.
6. Webinar: Unpacking ICER’s Models Assessing COVID-19 Treatments, click here to view the webinar.
7. OCR Continues its Work to Resolve COVID-19 Discrimination Cases, see details below.
8. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
9. ICER's QALY-Based Study Topics: Hemophilia A, Sickle Cell Disease, Ulcerative Colitis, Cystic Fibrosis, Bladder Cancer, Opioid Treatments, High Cholesterol, Anemia in Chronic Kidney Disease, click here to provide patient input.
10. Upcoming Events and Webinars, see details below.
11. Medical Journal Articles, see details below.
12. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. Policymakers Should Avoid Importing Discrimination Through Foreign Reference Pricing, see details below.
2. Value Assessment Should be Expanded to Incorporate Health Inequality, click here to read the article.
3. Webinar: Unpacking ICER’s Models Assessing COVID-19 Treatments, click here to view the webinar.
4. Patients Know the Value of Medicines, click here to read the article.
5. OCR Continues its Work to Resolve COVID-19 Discrimination Cases, see details below.
6. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
7. ICER's QALY-Based Study Topics: Hemophilia A, Sickle Cell Disease, Ulcerative Colitis, Cystic Fibrosis, Bladder Cancer, Opioid Treatments, High Cholesterol, Anemia in Chronic Kidney Disease, click here to provide patient input.
8. Upcoming Events and Webinars, see details below.
9. Medical Journal Articles, see details below.
10. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. Webinar: Unpacking ICER’s Models Assessing COVID-19 Treatments, click here to view the webinar.
2. Experts and Advocates Oppose Importing Discrimination Through Foreign Reference Pricing, see details below.
3. Patients Know the Value of Medicines, click here to read the article.
4. Video: Bringing Patient Centered Outcomes Research to the CF Community, click here to view the video.
5. Dollars-and-Cents Calculations Should Not Figure in to Saving a Life, click here to read the full article from the Genetic Literacy Project.
6. OCR Settles Tennessee Case on COVID-19 Patient Non-Discrimination, see details below.
7. PIPC Submits Comment Letter to ICER on Draft Evidence Report for NASH, click here to read the letter.
8. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
9. ICER's QALY-Based Study Topics: Hemophilia A, Sickle Cell Disease, Ulcerative Colitis, Cystic Fibrosis, Bladder Cancer, Opioid Treatments, High Cholesterol, Anemia in Chronic Kidney Disease, click here to provide patient input.
10. Upcoming Events and Webinars, see details below.
11. Medical Journal Articles, see details below.
12. AHRQ Effective Program Updates, see details below.  

​In This Week’s Issue:
 
1. Webinar: Unpacking ICER’s Models Assessing COVID-19 Treatments, see details below.
 
2. Dollars-and-Cents Calculations Should Not Figure in to Saving a Life, click here to read the full article from the Genetic Literacy Project.
 
3. OCR Settles Tennessee Case on COVID-19 Patient Non-Discrimination, see details below.
4. Morning Consult: Cost-Effectiveness in Health Care Is Racist, click here to read the op-ed.
5. PIPC Submits Comment Letter to ICER on Draft Evidence Report for NASH, click here to read the letter.
6. Experts and Advocates Oppose Importing Discrimination Through Foreign Reference Pricing, see details below.
7. Cost Assessors Must Consider Novel Value Elements, click here to read the article.
8. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
9. ICER's QALY-Based Study Topics: Hemophilia A, Sickle Cell Disease, Ulcerative Colitis, Cystic Fibrosis, Bladder Cancer, Opioid Treatments, High Cholesterol, Anemia in Chronic Kidney Disease, click here to provide patient input.
10. Upcoming Events and Webinars, see details below.
11. Medical Journal Articles, see details below.
12. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. PIPC Submits Comment Letter to ICER on Draft Evidence Report for NASH, click here to read the letter.
2. Experts and Advocates Oppose Importing Discrimination Through Foreign Reference Pricing, see details below.
3. Cost Assessors Must Consider Novel Value Elements, click here to read the article.
4. Rethinking How We Measure a Drug's 'Value,' click here to read the article.
5. Over 50 Leading Patient Groups Join PIPC Letter on ICER’s COVID-19 Treatment Assessments, see details below.
6. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
7. ICER's QALY-Based Study Topics: Hemophilia A, Sickle Cell Disease, Ulcerative Colitis, Cystic Fibrosis, Bladder Cancer, Opioid Treatments, High Cholesterol, Anemia in Chronic Kidney Disease, click here to provide patient input.
8. Upcoming Events and Webinars, see details below.
9. Medical Journal Articles, see details below.
10. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. Experts Agree that Foreign Reference Pricing Has the Potential to Limit Access to Needed Treatments for Patients and People with Disabilities, see details below.
2. Rethinking How We Measure a Drug's 'Value,' click here to read the article.
3. Over 50 Leading Patient Groups Join PIPC Letter on ICER’s COVID-19 Treatment Assessments, see details below.
4. SWHR: ICER’s Value Framework is a Work in Progress for Women’s Health, click here to read the blog post.
5. Accounting for our Differences Matters in Value Assessment, click here to read the article.
6. Value Assessment Organizations Should Learn from the Experts on Patient Engagement, click here to read the blog post, the latest entry in PIPC's series The Data Mine.
7. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
8. ICER's QALY-Based Study Topics: Hemophilia A, Sickle Cell Disease, Ulcerative Colitis, Cystic Fibrosis, Bladder Cancer, Opioid Treatments, High Cholesterol, click here to provide patient input.
9. Upcoming Events and Webinars, see details below.
10. Medical Journal Articles, see details below.
11. AHRQ Effective Program Updates, see details below.