In This Week’s Issue:
 
1. Over 40 Leading Patient and Disability Groups Join PIPC Letter Opposing Most Favored Nations Rule, click here to read the letter.
2. AJMC: Practical Patient-Centered Value Assessment is Needed, click here to read the article.
3. PIPC Submits Comment Letter to ICER on Draft Evidence Report for High Cholesterol Treatments, click here to read the letter.
4. PIPC and National Alliance for Hispanic Health Statements on HHS Secretary-Designate Xavier Becerra, see details below.
5. COVID-19 Response for Vulnerable Patients, see details below.
6. PCORI Seeks Nominations for Advisory Panels, click here to learn more, submit a nomination, or apply to be on an advisory panel.
7. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
8. ICER's QALY-Based Study Topics: Atopic Dermatitis, Bladder Cancer, Opioid Treatments, High Cholesterol, Anemia in Chronic Kidney Disease, Lupus Nephritis, Multiple Myeloma, Alzheimer's Disease, click here to provide patient input.
9. Upcoming Events and Webinars, see details below.
10. Medical Journal Articles, see details below.
11. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. SPOTS STILL AVAILABLE — PIPC Forum 2020: Putting Patients and People with Disabilities at the Center of the Value Discussion, click here to learn more and RSVP.
2. PIPC Submits Comment Letter to ICER on Draft Evidence Report for High Cholesterol Treatments, click here to read the letter.
3. PIPC and National Alliance for Hispanic Health Statements on HHS Secretary-Designate Xavier Becerra, see details below.
4. COVID-19 Response for Vulnerable Patients, see details below.
5. PIPC Statement on Behalf of People with Disabilities and Serious Chronic Conditions on MFN Importing QALYs, see details below.
6. NASHP Report on Patient-Centered Outcomes Research in Telehealth Policymaking, click here to read the report.
7. National Health Council Webinar on Multi-Criteria Decision Analysis, click here to read about and watch clips from the webinar.
8. PIPC Primer: PCORI and ICER Background, Funding, and Impact on Patient-Centered Care, click here to view the primer.
9. PCORI Seeks Nominations for Advisory Panels, click here to learn more, submit a nomination, or apply to be on an advisory panel.
10. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
11. ICER's QALY-Based Study Topics: Atopic Dermatitis, Sickle Cell Disease, Bladder Cancer, Opioid Treatments, High Cholesterol, Anemia in Chronic Kidney Disease, Lupus Nephritis, Multiple Myeloma, Alzheimer's Disease, click here to provide patient input.
12. Upcoming Events and Webinars, see details below.
13. Medical Journal Articles, see details below.
14. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. PIPC and National Alliance for Hispanic Health Statements on HHS Secretary-Designate Xavier Becerra, see details below.
2. You're Invited! PIPC Forum 2020: Putting Patients and People with Disabilities at the Center of the Value Discussion, click here to learn more and RSVP.
3. COVID-19 Response for Vulnerable Patients, see details below.
4. PIPC Statement on Behalf of People with Disabilities and Serious Chronic Conditions on MFN Importing QALYs, see details below.
5. National Health Council Webinar on Multi-Criteria Decision Analysis, click here to read about and watch clips from the webinar.
6. PIPC Primer: PCORI and ICER Background, Funding, and Impact on Patient-Centered Care, click here to view the primer.
7. PCORI Seeks Nominations for Advisory Panels, click here to learn more, submit a nomination, or apply to be on an advisory panel.
8. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
9. ICER's QALY-Based Study Topics: Sickle Cell Disease, Bladder Cancer, Opioid Treatments, High Cholesterol, Anemia in Chronic Kidney Disease, Lupus Nephritis, Multiple Myeloma, Alzheimer's Disease, click here to provide patient input.
10. Upcoming Events and Webinars, see details below.
11. Medical Journal Articles, see details below.
12. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. PIPC Statement on Behalf of People with Disabilities and Serious Chronic Conditions on MFN Importing QALYs, see details below.
2. CCD Letter to President-elect Biden's COVID-19 Advisory Board, click here to read the letter.
3. You're Invited! PIPC Forum 2020: Putting Patients and People with Disabilities at the Center of the Value Discussion, click here to learn more and RSVP.
4. More than 40 Leading Patient and Disability Groups Join PIPC Comment Letter on PCORI Outcome Principles, click here to read the letter.
5. PIPC Primer: PCORI and ICER Background, Funding, and Impact on Patient-Centered Care, click here to view the primer.
6. PIPC Releases Targeted Literature Review on Patient-Centered Cost Outcomes, read the whole paper here.
7. New IVI Issue Brief on Open-Source Modeling for Value Assessment, click here to read the issue brief.
8. PhRMA Foundation Challenge Award Program Funding Opportunity -- LETTERS OF INTENT DUE TOMORROW, see details below.
9. PCORI Seeks Nominations for Advisory Panels, click here to learn more, submit a nomination, or apply to be on an advisory panel.
10. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
11. ICER's QALY-Based Study Topics: Sickle Cell Disease, Bladder Cancer, Opioid Treatments, High Cholesterol, Anemia in Chronic Kidney Disease, Lupus Nephritis, Multiple Myeloma, Alzheimer's Disease, click here to provide patient input.
12. Upcoming Events and Webinars, see details below.
13. Medical Journal Articles, see details below.
14. AHRQ Effective Program Updates, see details below

In This Week’s Issue:
 
1. Chairman Coelho Congratulates President-elect Joe Biden, see details below.
2. PIPC Primer: PCORI and ICER Background, Funding, and Impact on Patient-Centered Care, click here to view the primer.
3. PIPC Releases Targeted Literature Review on Patient-Centered Cost Outcomes, read the whole paper here.
4. Chairman Coelho to Receive Lifetime Achievement Award from the Bazelon Center, click here to learn more about the awards and to get a ticket for the live stream.
5. New IVI Issue Brief on Pandemic-Era Value Assessment, click here to read the issue brief.
6. Patient Advocate: Socialized Medicine and Rationing COVID Care Defy American Principles, click here to read the op-ed.
7. Men's Health Network Summit, 13th Annual Meeting, click here to view the Summit.
8. PhRMA Foundation Challenge Award Program Funding Opportunity, see details below.
9. PCORI Seeks Nominations for Advisory Panels, click here to learn more, submit a nomination, or apply to be on an advisory panel.
10. RESCHEDULED -- National Health Council Webinar on Multi-Criteria Decision Analysis, click here to learn more and register.
11. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
12. ICER's QALY-Based Study Topics: Hemophilia A, Sickle Cell Disease, Bladder Cancer, Opioid Treatments, High Cholesterol, Anemia in Chronic Kidney Disease, Lupus Nephritis, Multiple Myeloma, Alzheimer's Disease, click here to provide patient input.
13. Upcoming Events and Webinars, see details below.
14. Medical Journal Articles, see details below.
15. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. Patient Advocate: Socialized Medicine and Rationing COVID Care Defy American Principles, click here to read the op-ed.
2. PhRMA Foundation Challenge Award Program Funding Opportunity, see details below.
3. PCORI Seeks Nominations for Advisory Panels, click here to learn more, submit a nomination, or apply to be on an advisory panel.
4. Study: Step Therapy Can Lead to Higher OOP Costs for Crohn’s Disease Patients, click here to read more.
5. PCORI Proposed Principles for the Consideration of the Full Range of Outcomes Data and Webinar Series -- Comments Open through November 13, 2020, see details below.
6. RESCHEDULED -- National Health Council Webinar on Multi-Criteria Decision Analysis, click here to learn more and register.
7. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
8. ICER's QALY-Based Study Topics: Hemophilia A, Sickle Cell Disease, Bladder Cancer, Opioid Treatments, High Cholesterol, Anemia in Chronic Kidney Disease, Lupus Nephritis, Multiple Myeloma, Alzheimer's Disease, click here to provide patient input.
9. Upcoming Events and Webinars, see details below.
10. Medical Journal Articles, see details below.
11. AHRQ Effective Program Updates, see details below. 

In This Week’s Issue:
 
1. PhRMA Foundation Challenge Award Program Funding Opportunity, see details below.
2. PCORI Seeks Nominations for Advisory Panels, click here to learn more, submit a nomination, or apply to be on an advisory panel.
3. Study: Step Therapy Can Lead to Higher OOP Costs for Crohn’s Disease Patients, click here to read more.
4. 2020 NMQF Virtual Leadership Summit Panel on Value Assessment, see details below.
5. PCORI Proposed Principles for the Consideration of the Full Range of Outcomes Data and Webinar Series -- Comments Open through November 13, 2020, see details below.
6. RESCHEDULED -- National Health Council Webinar on Multi-Criteria Decision Analysis, click here to learn more and register.
7. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
8. ICER's QALY-Based Study Topics: Hemophilia A, Sickle Cell Disease, Bladder Cancer, Opioid Treatments, High Cholesterol, Anemia in Chronic Kidney Disease, Lupus Nephritis, Multiple Myeloma, Alzheimer's Disease, click here to provide patient input.
9. Upcoming Events and Webinars, see details below.
10. Medical Journal Articles, see details below.
11. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. PCORI Seeks Nominations for Advisory Panels, click here to learn more, submit a nomination, or apply to be on an advisory panel.
2. Study: Step Therapy Can Lead to Higher OOP Costs for Crohn’s Disease Patients, click here to read more.
3. 2020 NMQF Virtual Leadership Summit Panel on Value Assessment, see details below.
4. PCORI Proposed Principles for the Consideration of the Full Range of Outcomes Data and Webinar Series -- Comments Open through November 13, 2020, see details below.
5. PIPC and EveryLife Foundation for Rare Diseases Webinar on the Use of Value Assessments for Cell and Gene Therapy – Recording Available, click here to view a recording of the webinar.
6. PIPC Submits Comment Letter on ICER Draft Evidence Report for Bladder Cancer Treatments, click here to read the letter.
7. RESCHEDULED -- National Health Council Webinar on Multi-Criteria Decision Analysis, click here to learn more and register.
8. ADA 25 Advancing Leadership Forum on Disability Justice in the Fight for Racial Equity, click here to learn more and register.
9. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
10. ICER's QALY-Based Study Topics: Hemophilia A, Sickle Cell Disease, Ulcerative Colitis, Bladder Cancer, Opioid Treatments, High Cholesterol, Anemia in Chronic Kidney Disease, Lupus Nephritis, Multiple Myeloma, Alzheimer's Disease, click here to provide patient input.
11. Upcoming Events and Webinars, see details below.
12. Medical Journal Articles, see details below
13. AHRQ Effective Program Updates, see details below. 

In This Week’s Issue:
 
1. 2020 NMQF Virtual Leadership Summit Panel on Value Assessment, see details below.
2. PIPC and EveryLife Foundation for Rare Diseases Webinar on the Use of Value Assessments for Cell and Gene Therapy – Recording Available, click here to view a recording of the webinar.
3. PIPC Submits Comment Letter on ICER Draft Evidence Report for Bladder Cancer Treatments, click here to read the letter.
4. RESCHEDULED -- National Health Council Webinar on Multi-Criteria Decision Analysis, click here to learn more and register.
5. PCORI and RAND to Evaluate Measures of Patient and Stakeholder Engagement, click here to learn more.
6. Value Our Health Map on QALYs Around the World, click here to view the map.
7. ADA 25 Advancing Leadership Forum on Disability Justice in the Fight for Racial Equity, click here to learn more and register.
8. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
9. ICER's QALY-Based Study Topics: Hemophilia A, Sickle Cell Disease, Ulcerative Colitis, Bladder Cancer, Opioid Treatments, High Cholesterol, Anemia in Chronic Kidney Disease, Lupus Nephritis, Multiple Myeloma, Alzheimer's Disease, click here to provide patient input.
10. Upcoming Events and Webinars, see details below.
11. Medical Journal Articles, see details below.
12. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. National Health Council Webinar on Multi-Criteria Decision Analysis, click here to learn more and register.
2. Beyond Type 1 Offers Action Plans for Insulin Access, click here to visit GetInsulin.org.
3. Webinar on Understanding Value Assessment, click here to register.
4. Value Our Health Map on QALYs Around the World, click here to view the map.
5. PCORI Proposed Principles for the Consideration of the Full Range of Outcomes Data and Webinar Series, see details below.
6. ADA 25 Advancing Leadership Forum on Disability Justice in the Fight for Racial Equity, click here to learn more and register.
7. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
8. ICER's QALY-Based Study Topics: Hemophilia A, Sickle Cell Disease, Ulcerative Colitis, Bladder Cancer, Opioid Treatments, High Cholesterol, Anemia in Chronic Kidney Disease, Lupus Nephritis, Multiple Myeloma, Alzheimer's Disease, click here to provide patient input.
9. Upcoming Events and Webinars, see details below.
10. Medical Journal Articles, see details below.
11. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. PIPC Webinar on the Use of Value Assessments for Cell and Gene Therapy, see details below.
2. Sickle Cell Disease and Traditional Value Assessment Discussion at the 2020 NMQF Summit on Health Disparities, see details below.
3. Value Our Health Map on QALYs Around the World, click here to view the map.
4. PCORI Announces New Board of Governors Members, click here to read the press release.
5. PCORI Proposed Principles for the Consideration of the Full Range of Outcomes Data and Webinar Series, see details below.
6. SWHR Migraine Patient Toolkit: Living Well with Migraine, click here to view the toolkit.
7. ADA 25 Advancing Leadership Forum on Disability Justice in the Fight for Racial Equity, click here to learn more and register.
8. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
9. ICER's QALY-Based Study Topics: Hemophilia A, Sickle Cell Disease, Ulcerative Colitis, Bladder Cancer, Opioid Treatments, High Cholesterol, Anemia in Chronic Kidney Disease, Lupus Nephritis, Multiple Myeloma, Alzheimer's Disease, click here to provide patient input.
10. Upcoming Events and Webinars, see details below.
11. Medical Journal Articles, see details below.
12. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. PIPC and the EveryLife Foundation for Rare Diseases Partner to Release a New White Paper Evaluating the Use of Value Assessments for Cell and Gene Therapies, click here to read the paper.
2. Most Favored Nations Executive Order Released Last Week Would Import Discriminatory QALYs, see details below.
3. PCORI Proposed Principles for the Consideration of the Full Range of Outcomes Data, click here to read the principles and to submit comments.
4. ADA 25 Advancing Leadership Forum on Disability Justice in the Fight for Racial Equity, click here to learn more and register.
5. The Bonnell Foundation Discusses Access Challenges for Cystic Fibrosis Patients Abroad, click here to listen to the podcast.
6. NMQF, Axis Advocacy, Sick Cells, and PIPC Release a White Paper on Value Assessments' Impact on Health Inequities, click here to read the paper.
7. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
8. ICER's QALY-Based Study Topics: Hemophilia A, Sickle Cell Disease, Ulcerative Colitis, Cystic Fibrosis, Bladder Cancer, Opioid Treatments, High Cholesterol, Anemia in Chronic Kidney Disease, Lupus Nephritis, Multiple Myeloma, click here to provide patient input.
9. Upcoming Events and Webinars, see details below.
10. Medical Journal Articles, see details below.
11. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. PIPC and the EveryLife Foundation for Rare Diseases Partner to Release a New White Paper Evaluating the Use of Value Assessments for Cell and Gene Therapies, click here to read the paper.
2. Most Favored Nations Executive Order Released Last Week Would Import Discriminatory QALYs, see details below.
3. PCORI Proposed Principles for the Consideration of the Full Range of Outcomes Data, click here to read the principles and to submit comments.
4. ADA 25 Advancing Leadership Forum on Disability Justice in the Fight for Racial Equity, click here to learn more and register.
5. The Bonnell Foundation Discusses Access Challenges for Cystic Fibrosis Patients Abroad, click here to listen to the podcast.
6. NMQF, Axis Advocacy, Sick Cells, and PIPC Release a White Paper on Value Assessments' Impact on Health Inequities, click here to read the paper.
7. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
8. ICER's QALY-Based Study Topics: Hemophilia A, Sickle Cell Disease, Ulcerative Colitis, Cystic Fibrosis, Bladder Cancer, Opioid Treatments, High Cholesterol, Anemia in Chronic Kidney Disease, Lupus Nephritis, Multiple Myeloma, click here to provide patient input.
9. Upcoming Events and Webinars, see details below.
10. Medical Journal Articles, see details below.
11. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. Most Favored Nation’s Executive Order Released Yesterday Would Import Discriminatory QALYs, see details below.
2. The Bonnell Foundation Discusses Access Challenges for Cystic Fibrosis Patients Abroad, click here to listen to the podcast.
3. NMQF, Axis Advocacy, Sick Cells, and PIPC Release a White Paper on Value Assessments' Impact on Health Inequities, click here to read the paper.
4. AAPD, NCD, and NCIL Caution About the Discriminatory Implications of the QALY and Foreign Reference Pricing, click here to view the webinar.
5. IVI Unveils New Major Depressive Disorder Value Assessment Initiative, click here to read more.
6. Advocates Call for Focus on People with Disabilities in Vaccine Allocation Framework, see details below.
7. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
8. PCORI Annual Meeting September 16-17, click here to learn more and to register.
9. ICER's QALY-Based Study Topics: Hemophilia A, Sickle Cell Disease, Ulcerative Colitis, Cystic Fibrosis, Bladder Cancer, Opioid Treatments, High Cholesterol, Anemia in Chronic Kidney Disease, Lupus Nephritis, Multiple Myeloma, click here to provide patient input.
10. Upcoming Events and Webinars, see details below.
11. Medical Journal Articles, see details below.
12. AHRQ Effective Program Updates, see details below. 

In This Week’s Issue:
 
1. NMQF, Axis Advocacy, Sick Cells, and PIPC Release a White Paper on Value Assessments' Impact on Health Disparities, click here to read the paper.
2. Advocates Call for Focus on People with Disabilities in Vaccine Allocation Framework, see details below.
3. AAPD, NCD, and NCIL Caution About the Discriminatory Implications of the QALY and Foreign Reference Pricing, click here to view the webinar.
4. Proposed 'Most Favored Nations' Order Would Import Discriminatory Value Assessments, see details below.
5. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
6. PCORI Annual Meeting September 16-17, click here to learn more and to register.
7. ICER's QALY-Based Study Topics: Hemophilia A, Sickle Cell Disease, Ulcerative Colitis, Cystic Fibrosis, Bladder Cancer, Opioid Treatments, High Cholesterol, Anemia in Chronic Kidney Disease, Lupus Nephritis, Multiple Myeloma, click here to provide patient input.
8. Upcoming Events and Webinars, see details below.
9. Medical Journal Articles, see details below.
10. AHRQ Effective Program Updates, see details below.