In this week's edition...
 
— PIPC Chair Tony Coelho Testifies to Massachusetts Legislature Supporting Statewide QALY Ban, Michigan Bill Threatens Expanded Use of QALYs and Similar Measures. See details below. 
— ICER Finalizes 2023 Updates to Value Assessment Framework. See details below.
— Comments on Proposed Rule on Accessibility of Web Information and Services of State and Local Government Entities Due October 3. See details below.
— PCORI Seeks Nominations for Advisory Panels. Click here to learn more, to apply to serve on an advisory panel, or submit a nomination.
— CMS Process Should Provide Robust and Ongoing Engagement of Patients and People with Disabilities in Negotiation Process. See details below.
— Letter from Over 1900 Researchers, Organizations and Individuals Opposing NIMHD Exclusion of People with Disabilities. See details below.
— Emerging Threats in States for Use of Discriminatory Metrics. See details below.
— What Happens in Countries Using QALYs and Cost-Based Thresholds? See details below.
— ICER's QALY-Based Study Topics. See details below.
— Upcoming Events and Webinars. See details below.
— AHRQ Effective Program Updates. See details below.
— Job Openings. See details below.

In this week's edition...
 
— PCORI Seeks Nominations for Advisory Panels. Click here to learn more, to apply to serve on an advisory panel, or submit a nomination.
— CMS Process Should Provide Robust and Ongoing Engagement of Patients and People with Disabilities in Negotiation Process. See details below.
— Letter from Over 1400 Researchers, Organizations and Individuals Opposing NIMHD Exclusion of People with Disabilities. See details below.
— Statement from PIPC Chairman Tony Coelho on the Proposed Section 504 Rule. See details below.
— PIPC Statement on Selection of Drugs Under Medicare Drug Price Negotiation Program Guidance. Click here to read the statement.
— National Forum for Heart Disease and Stroke Prevention Annual Meeting October 26. Click here to register to attend in person or virtually.
— Emerging Threats in States for Use of Discriminatory Metrics. See details below.
— What Happens in Countries Using QALYs and Cost-Based Thresholds? See details below.
— ICER's QALY-Based Study Topics. See details below.
— Upcoming Events and Webinars. See details below.
— AHRQ Effective Program Updates. See details below.
— Job Openings. See details below.

In this week's edition...
 
— Statement from PIPC Chairman Tony Coelho on the Proposed Section 504 Rule. See details below.
— Letter from Over 1400 Researchers, Organizations and Individuals Opposing NIMHD Exclusion of People with Disabilities. See details below.
— PIPC Statement on Selection of Drugs Under Medicare Drug Price Negotiation Program Guidance. Click here to read the statement.
— PIPC Offers Comments on Transitional Coverage for Emerging Technologies. Click here to read the letter.
— National Forum for Heart Disease and Stroke Prevention Annual Meeting October 26. Click here to register to attend in person or virtually.
— Emerging Threats in States for Use of Discriminatory Metrics. See details below.
— What Happens in Countries Using QALYs and Cost-Based Thresholds? See details below.
— ICER's QALY-Based Study Topics. See details below.
— Upcoming Events and Webinars. See details below.
— AHRQ Effective Program Updates. See details below.
— Job Openings. See details below.

In this week's edition...
 
— PIPC Submits Comments on ICER Assessment of MLD Treatments. Click here to read the letter.
— PIPC Submits Comments on CMS Proposed Guidance for Coverage with Evidence Development. Click here to read the article.
— Takeaways from AcademyHealth’s Organizational Briefing with PCORI Executive Director Nakela Cook. Click here to read the blog.
— ICHOM Seeks Input on Patient Charter. See details below.
— Emerging Threats in States for Use of Discriminatory Metrics. See details below.
— What Happens in Countries Using QALYs and Cost-Based Thresholds? See details below.
— ICER's QALY-Based Study Topics. See details below.
— Upcoming Events and Webinars. See details below.
— AHRQ Effective Program Updates. See details below.
— Job Openings. See details below.

In this week's edition...
 
— PIPC Submits Comments on CMS Proposed Guidance for Coverage with Evidence Development. Click here to read the article.
— ICHOM Seeks Input on Patient Charter. See details below.
— New ASPE Report Assesses Relevant Outcomes for Patient-Centered Outcomes Research. See details below.
— Patient Engagement Is Key to the Success of Value-Based Care Programs. Click here to read the column.
— AAPD: What Health Equity Means to the Disability Community. Click here to read the blog.
— Drugs Extending My Life, but Boston Institute Disagrees. Click here to read the op-ed.
— Emerging Threats in States for Use of Discriminatory Metrics. See details below.
— What Happens in Countries Using QALYs and Cost-Based Thresholds? See details below.
— ICER's QALY-Based Study Topics. See details below.
— Upcoming Events and Webinars. See details below.
— AHRQ Effective Program Updates. See details below.
— Job Openings. See details below.

In this week's edition...
 
— Drugs Extending My Life, but Boston Institute Disagrees. Click here to read the op-ed.
— How CMS Can Advance – or Impede – Patient-Centered Decision-Making in its New Drug Pricing Program. Click here to read the column,
— QALYs: The Math Doesn’t Work. Click here to read the article.
— Opinion: Drug Pricing and the 'Impossible Trinity' for Patients. Click here to read the op-ed.
— PIPC Collaborates with Avalere on Investigation of Use of Patient-Centered Outcomes in Value Assessment. See details below.
— CCD Pens Letter of Support for Protecting Healthcare for All Patients Act. Click here to read the letter.
— Chairman's Corner: ​I introduced the ADA 35 years ago. Now Congress needs to act to ban a practice that devalues disabled lives. Click here to read the op-ed.
— Emerging Threats in States for Use of Discriminatory Metrics. See details below.
— What Happens in Countries Using QALYs and Cost-Based Thresholds? See details below.
— ICER's QALY-Based Study Topics. See details below.
— Upcoming Events and Webinars. See details below.
— AHRQ Effective Program Updates. See details below.

In this week's edition...
 
— Chairman's Corner: ​I introduced the ADA 35 years ago. Now Congress needs to act to ban a practice that devalues disabled lives. Click here to read the op-ed.
— PIPC Statement on Drug Negotiation Guidance. See details below.
— Over 75 Leading Patient Groups Join PIPC Comment Letter on ICER 2024 Value Assessment Framework. ​Click here to read the letter.
— PCORI Opens Applications for October 2023 Funding Announcements. See details below.
— Follow PIPC on LinkedIn! Click here to view the page.
— Emerging Threats in States for Use of Discriminatory Metrics. See details below.
— What Happens in Countries Using QALYs and Cost-Based Thresholds? See details below.
— ICER's QALY-Based Study Topics. See details below.
— Upcoming Events and Webinars. See details below.
— AHRQ Effective Program Updates. See details below.
— Job Openings. See details below.

In this week's edition...
 
— Over 75 Leading Patient Groups Join PIPC Comment Letter on ICER 2024 Value Assessment Framework. ​Click here to read the letter.
— PIPC Statement on Drug Negotiation Guidance. See details below.
— PIPC Submits Comments on FDA Guidance on Patient-Focused Drug Development. Click here to read the letter.
— With Guidance from the Field, AHRQ Launches an Ambitious Strategy for Patient-Centered Outcomes Research. Click here to read the blog.
— Follow PIPC on LinkedIn! Click here to view the page.
— Emerging Threats in States for Use of Discriminatory Metrics. See details below.
— What Happens in Countries Using QALYs and Cost-Based Thresholds? See details below.
— ICER's QALY-Based Study Topics. See details below.
— Upcoming Events and Webinars. See details below.
— AHRQ Effective Program Updates. See details below.
— Job Openings. See details below.

In this week's edition...
 
— PIPC Statement on Drug Negotiation Guidance. See details below.
— Over 75 Leading Patient Groups Join PIPC Comment Letter on ICER 2024 Value Assessment Framework. ​Click here to read the letter.
— PIPC Submits Comments on FDA Guidance on Patient-Focused Drug Development. Click here to read the letter.
— Doing Research Differently: The Unique Value of Engagement in PCORI-Funded Research. Click here to read the blog.
— Follow PIPC on LinkedIn! Click here to view the page.
— Emerging Threats in States for Use of Discriminatory Metrics. See details below.
— What Happens in Countries Using QALYs and Cost-Based Thresholds? See details below.
— ICER's QALY-Based Study Topics. See details below.
— Upcoming Events and Webinars. See details below.
— AHRQ Effective Program Updates. See details below.
— Job Openings. See details below.

In this week's edition...
 
— PCORI Creates New Funding Opportunity: Topical PFA. Click here to learn more.
— H.R. 485: Protecting Health Care for All Patients Act. See details below.
— Follow PIPC on LinkedIn! Click here to view the page.
— Emerging Threats in States for Use of Discriminatory Metrics. See details below.
— What Happens in Countries Using QALYs and Cost-Based Thresholds? See details below.
— ICER's QALY-Based Study Topics. See details below.
— Upcoming Events and Webinars. See details below.
— AHRQ Effective Program Updates. See details below.
— Job Openings. See details below.

— Blog: Un-QALY-fied. Click here to read the blog.
— ICER Requests Comment on an Updates Framework That Ignores Past Comments. Click here to read the post.
— PIPC Submits Comments to FDA on Patient Preference Information in Regulatory Submissions. Click here to read the letter.
— H.R. 485: Protecting Health Care for All Patients Act. See details below.
— IVI Releases Economic Impacts Research Framework. Click here to view the report.
— Follow PIPC on LinkedIn! Click here to view the page.
— Emerging Threats in States for Use of Discriminatory Metrics. See details below.
— What Happens in Countries Using QALYs and Cost-Based Thresholds? See details below.
— ICER's QALY-Based Study Topics. See details below.
— Upcoming Events and Webinars. See details below.
— AHRQ Effective Program Updates. See details below.
— Job Openings. See details below.

In this week's edition...
 
— PIPC Submits Comments to FDA on Patient Preference Information in Regulatory Submissions. Click here to read the letter.
— ICER Proposes Changes to Value Assessment Methods & Processes. Click here to read additional details.
— IVI Releases Economic Impacts Research Framework. Click here to view the report.
— PCORI to Award New Clinical Effectiveness Research Funding. Click here for additional details.
— H.R. 485: Protecting Health Care for All Patients Act. See details below.
— Follow PIPC on LinkedIn! Click here to view the page.
— Emerging Threats in States for Use of Discriminatory Metrics. See details below.
— What Happens in Countries Using QALYs and Cost-Based Thresholds? See details below.
— ICER's QALY-Based Study Topics. See details below.
— Upcoming Events and Webinars. See details below.
— AHRQ Effective Program Updates. See details below.
— Job Openings. See details below.

— H.R. 485: Protecting Health Care for All Patients Act. See details below.
— Podcast: Bill Smith – Rationing Medicine. Click here to listen to the podcast.
— Axios Interview with PCORI Executive Director. Click here to watch the conversation.
— Follow PIPC on LinkedIn! Click here to view the page.
— Emerging Threats in States for Use of Discriminatory Metrics. See details below.
— What Happens in Countries Using QALYs and Cost-Based Thresholds? See details below.
— ICER's QALY-Based Study Topics. See details below.
— Upcoming Events and Webinars. See details below.
— AHRQ Effective Program Updates. See details below.
— Job Openings. See details below.

In this week's edition...

— Patient Engagement & Experience Data: Missing Ingredients For CMS’ Successful IRA Implementation. Click here to read the article.
— Column: Washington Must Heed Patient Recommendations as Policymakers Implement the Inflation Reduction Act. Click here to read the column.
— PIPC Submits Comments on ICER Assessment of Sickle Cell Treatments. Click here to read the comment letter.
— Follow PIPC on LinkedIn! Click here to view the page.
— Emerging Threats in States for Use of Discriminatory Metrics. See details below.
— What Happens in Countries Using QALYs and Cost-Based Thresholds? See details below.
— ICER's QALY-Based Study Topics. See details below.
— Upcoming Events and Webinars. See details below.
— AHRQ Effective Program Updates. See details below.
— Job Openings. See details below.

In this week's edition...

— PIPC Submits Comments on ICER Assessment of Sickle Cell Treatments. Click here to read the comment letter.
— Biden Administration Pushed to Address Disability Discrimination in Health Care. Click here to read the article.
— Commentary: Hope is Its Own Form of Healing. See details below.
— PIPC Submits Comments on Maryland Prescription Drug Affordability Board Draft Regulations. Click here to read the letter.
— Follow PIPC on LinkedIn! Click here to view the page.
— Emerging Threats in States for Use of Discriminatory Metrics. See details below.
— What Happens in Countries Using QALYs and Cost-Based Thresholds? See details below.
— ICER's QALY-Based Study Topics. See details below.
— Upcoming Events and Webinars. See details below.
— AHRQ Effective Program Updates. See details below.
— Job Openings. See details below.