​In This Week’s Issue:
 
1. PIPC Chairman Tony Coehlo Writes: Rising Costs Must be Met with Patient-Centered Solutions, click here to read the article.
2. Morning Consult Poll Finds Americans Support Patient-Centered Solutions, click here to read the announcement and the survey results.
3. PIPC Joins CancerCare in Encouraging New York State to Reject QALYs, click here to read the letter.
4. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more. 
5. ICER Studies: Cardiovascular Disease, SMA, Depression, MS, Duchenne Muscular Dystrophy, Peanut Allergy, click here to provide patient input.
6. SWHR Study: Barriers to Care with Women with Endometrosis, click here to read the blog post and click here to read the study.
7. PCORI Blog: Mapping Evidence that Patients Can Use, click here to read the blog post.
8. New Pharmacy Quality Alliance Medication Access Framework for Quality Measurement, click here to read the blog post.
9. Review and Comment! IVI Releases New Value Assessment Platform for Non-Small Cell Lung Cancer Therapy Sequences, see details below.
10. PCORI Advisory Panel Openings, see details below.
11. Submit 2019 Fly-ins, Advocacy Days, and Conferences to Democratic Caucus, click here to submit your events.
12. Upcoming Events and Webinars, see details below.
13. Medical Journal Articles, see details below.
14. AHRQ Effective Program Updates, see details below. 

In This Week’s Issue:
 
1. PIPC Joins CancerCare in Encouraging New York State to Reject QALYs, click here to read the letter.
2. PIPC Webinar: Value Assessments and Their Impact on Patients, click here to view the webinar.
3. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? Click here to view. 
4. ICER Studies: Cardiovascular Disease, SMA, Depression, MS, Duchenne Muscular Dystrophy, Peanut Allergy, click here to provide patient input.
5. Experts at PCORI Discuss the Evolution of Patient Voices in Healthcare, click here to read the article.
6. PIPC Encourages Senate HELP Committee to Pursue Patient-Centered Approaches to Lower Health Care Costs, click here to read the letter.
7. PCORI Offering Scholarships to Attend its Annual Meeting, see details below.
8. Review and Comment! IVI Releases New Value Assessment Platform for Non-Small Cell Lung Cancer Therapy Sequences, see details below.
9. PCORI Advisory Panel Openings, see details below.
10. Roundtable Seeks to Create Patient-Centered Quality Measurement Rubric, click here to read a summary.
11. Submit 2019 Fly-ins, Advocacy Days, and Conferences to Democratic Caucus, click here to submit your events.
12. Upcoming Events and Webinars, see details below.
13. Medical Journal Articles, see details below.
14. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
1. PIPC Encourages Senate HELP Committee to Pursue Patient-Centered Approaches to Lower Health Care Costs, click here to read the letter.
2. PIPC Webinar: Value Assessments and Their Impact on Patients, click here to view the webinar.
3. The PCORI Blog: Spotlighting Rare Disease Research, click here to read the article.
4. Patient EngagementHIT: Patient Engagement Strategies for Improving Patient Activation, click here to read the article.
5. NYT: Doctors and Racial Bias: Still a Long Way to Go, click here to read the article.
6. PIPC Submits Comment Letter to ICER on International Collaborative to Develop New Methods to Guide Value-Based Pricing of Potential Cures, click here to read the letter.
7. Review and Comment! IVI Releases New Value Assessment Platform for Non-Small Cell Lung Cancer Therapy Sequences, see details below.
8. PCORI Advisory Panel Openings, see details below.
9. Submit 2019 Fly-ins, Advocacy Days, and Conferences to Democratic Caucus, click here to submit your events.
10. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? Click here to view. 
11. ICER Studies: Cardiovascular Disease, SMA, Depression, MS, Duchenne Muscular Dystrophy, Peanut Allergy, click here to provide patient input.
12. Upcoming Events and Webinars, see details below.
13. Medical Journal Articles, see details below.
14. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. PIPC Webinar: Value Assessments and Their Impact on Patients, click here to register.
2. Op-ed: The U.S. Shouldn't Use the 'QALY' in Drug Cost-Effectiveness Reviews, click here to read the op-ed.
3. Alliance for Aging Research: Governors Should Reject Unscientific and Discriminatory Approaches to Drug Pricing, click here to read the op-ed.
4. PIPC Submits Comment Letter to ICER on International Collaborative to Develop New Methods to Guide Value-Based Pricing of Potential Cures, click here to read the letter.
5. Upcoming IVI Webinars, see details below.
6. Review and Comment! IVI Releases New Value Assessment Platform for Non-Small Cell Lung Cancer Therapy Sequences, see details below.
7. PCORI Advisory Panel Openings, see details below.
8. PIPC Submits Comments to DoD on Proposed TRICARE Pharmacy Benefit Reforms, click here to read the letter.
9. Submit 2019 Fly-ins, Advocacy Days, and Conferences to Democratic Caucus, click here to submit your events.
10. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? Click here to view. 
11. ICER Studies: SMA, Depression, MS, Duchenne Muscular Dystrophy, Peanut Allergy click here to provide patient input
12. Upcoming Events and Webinars, see details below.
13. Medical Journal Articles, see details below.
14. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. PIPC Webinar: Value Assessments and Their Impact on Patients, click here to register.
2. PIPC Submits Comments to DoD on Proposed TRICARE Pharmacy Benefit Reforms, click here to read the letter.
3. Chairman's Corner: ICER Should Join Others in Moving Beyond QALYs, click here to read the blog.
4. PIPC Patient Blog: Patient Perspectives on the Quality Adjusted Life Year, click here to read the blog. 
5. Review and Comment! IVI Releases New Value Assessment Platform for Non-Small Cell Lung Cancer Therapy Sequences, see details below.
6. AcademyHealth: Engagement Science — Where Do We Go From Here? Click here to read the blog.
7. Patient EngagementHIT: Individualized Care Key for Employer-Sponsored Wellness Programs, click here to read the article.
8. Submit 2019 Fly-ins, Advocacy Days, and Conferences to Democratic Caucus, click here to submit your events.
9. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? Click here to view. 
10. ICER Studies: SMA, Depression, MS, Duchenne Muscular Dystrophy, Peanut Allergy click here to provide patient input
11. Upcoming Events and Webinars, see details below.
12. Medical Journal Articles, see details below.
13. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. PIPC Patient Blog: Patient Perspectives on the Quality Adjusted Life Year, click here to read the blog. 
2. Will ICER's Response to Attacks on the QALY Quiet the Critics? A Reply from the Partnership to Improve Patient Care, click here to read the full response.
3. Review and Comment! IVI Releases New Value Assessment Platform for Non-Small Cell Lung Cancer Therapy Sequences, see details below.
4. PIPC Webinar: Value Assessments and Their Impact on Patients, click here to register.
5. Column: Americans Have Healthier Hears. We Have A Healthier Budget, Too, click here to read the column. 
6. ONS Blog: Experience the Power of Patient-Centered Research Through PCORI, click here to read the blog.
7. Watch: Keeping Community Engagement Central to Rare Disease Research, click here to watch the video.
8. UNLV Blog: The Patient-Centered Approach to Quality-of-Care Life, click here to read the blog.
9. Submit 2019 Fly-ins, Advocacy Days, and Conferences to Democratic Caucus, click here to submit your events.
10. PIPC: Don't Discriminate on Care, click here to view.
11. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? Click here to view. 
12. Upcoming ICER Studies: Angiodema, Asthma, Opioid Use Disorder, MS, Peanut Allergy, SMA, Depression, click here to provide patient input
13. Upcoming Events and Webinars, see details below.
14. Medical Journal Articles, see details below.
15. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. Chairman's Corner: ICER Should Join Others in Moving Beyond QALYs, click here to read the blog.
2. Review and Comment! IVI Releases New Value Assessment Platform for Non-Small Cell Lung Cancer Therapy Sequences, see details below.
3. An Update From the Friends of PCORI Reauthorization Coalition, see details below. 
4. PIPC: Don't Discriminate on Care, click here to view.
5. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? Click here to view. 
6. Upcoming ICER Studies: Angiodema, Asthma, Opioid Use Disorder, MS, Peanut Allergy, SMA, Depression, click here to provide patient input
7. Upcoming Events and Webinars, see details below.
8. Medical Journal Articles, see details below.
9. AHRQ Effective Program Updates, see details below. 

In This Week’s Issue:
 
1. Health Affairs: To Get More Bang For Your Health-Care Buck, Invest In Innovation, click here to read the blog
2. PAVE Blog: Putting Our Guard Down — Engaging Multiple Stakeholders To Define Value In Healthcare, click here to read the blog.
3. PMC Webinar: Moving Beyond Population Averages — Patient Principles for a Personalized Medicine Research Agenda, see details below. 
4. An Update From the Friends of PCORI Reauthorization Coalition, see details below. 
5. The PCORI Blog: Making Research More Patient Centered, One Application at a Time, click here to read the blog.  
6. AcademyHealth Blog: Engagement Science — Factors Fueling the Need for Better Defined Engagement, click here to read the blog.
7. PIPC: Don't Discriminate on Care, click here to view.
8. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? Click here to view. 
9. Upcoming ICER Studies: Angiodema, Asthma, Opioid Use Disorder, MS, Peanut Allergy, SMA, Depression, click here to provide patient input
10. Upcoming Events and Webinars, see details below.
11. Medical Journal Articles, see details below.
12. AHRQ Effective Program Updates, see details below.

In This Week’s Issue:
​
1. Forbes: A QALY Is A QALY Is A QALY, Or Is It? Click here to read the column. 
2. Op-ed: A little known group is making decisions about which Orange County lives are worth living? Click here to read the op-ed.
3. Morning Consult: Emancipating Data — Science in the Open Is Key to Understanding Value, click here to read the op-ed 
4. Health Affairs: Putting Patients’ Goals And Needs At The Center Of Care — How Can We Do Better? Click here to read the blog.
5. Chairman Coelho in San Jose Mercury News: Trump Medicare drug plan would hurt most vulnerable, click here to read the op-ed
6. PIPC Submits Comment to CMS on Proposed International Pricing Index, click here to read the letter.
7. PIPC: Don't Discriminate on Care, click here to view.
8. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? Click here to view. 
9. Upcoming ICER Studies: Angiodema, Asthma, Opioid Use Disorder, MS, Peanut Allergy, SMA, Depression, click here to provide patient input
10. Upcoming Events and Webinars, see details below.
11. Medical Journal Articles, see details below.
12. AHRQ Effective Program Updates, see details below. 

In This Week’s Issue:
 
1. Chairman Coelho in San Jose Mercury News: Trump Medicare drug plan would hurt most vulnerable, click here to read the op-ed.
2. Friends of PCORI Reauthorization Event, see details below. 
3. PIPC Submits Comment Letter to CMS on Proposed International Pricing Index, click here to read the letter. 
4. Chairman's Corner: ICER Misses the Mark Again, click here to read the blog.
5. Summary of PIPC's 9th Annual Forum: Building Patient-Centered Value Standards, click here to read more.  
6. PIPC: Don't Discriminate on Care, click here to view.
7. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? Click here to view. 
8. Patient EngagementHIT: Rural Hospital Travel Times Increase, Hamper Patient Care Access, click here to read the article. 
9. Upcoming ICER Studies: Angiodema, Asthma, Opioid Use Disorder, MS, Peanut Allergy, SMA, Depression, click here to provide patient input.
10. Upcoming Events and Webinars, see details below.
11. Medical Journal Articles, see details below.
12. AHRQ Effective Program Updates, see details below. 

In This Week’s Issue:
 
1. Summary of PIPC's 9th Annual Forum: Building Patient-Centered Value Standards, click here to read more.  
2. Friends of PCORI Reauthorization Event, see details below. 
3. Chairman's Corner: ICER Misses the Mark Again, click here to read the blog.
4. PIPC: Don't Discriminate on Care, click here to view.
5. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for details.
6. IFAA Hosts Inaugural ACTion Council meeting, see details below. 
7. Upcoming ICER Studies: Angiodema, Asthma, Opioid Use Disorder, MS, Peanut Allergy, SMA, Depression, click here to provide patient input.
8. Upcoming Events and Webinars, see details below.
9. Medical Journal Articles, see details below.
10. AHRQ Effective Program Updates, see details below. 

In This Week’s Issue:
 
1. PIPC: Don't Discriminate on Care, click here to view.
2. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for details.
3. MedPage Today: Why do Patients Withhold Information? Click here to read the article.
4. Patient EngagementHIT: Low Patient Portal Use Sparks Calls for Patient Tech Education, click here to read the article. 
5. CARE About Fibroids, White Dress Project to Partner on Uterine Fibroids Patient “Share Your Story” Campaign, click here to share your story.
6. PCORI Blog: Engaging Parents to Help Reduce Medical Errors in the Hospital, click here to read the blog.
7. Upcoming ICER Studies: Angiodema, Asthma, Opioid Use Disorder, MS, Peanut Allergy, SMA, Depression, click here to provide patient input.
8. Upcoming Events and Webinars, see details below.
9. Medical Journal Articles, see details below.
10. AHRQ Effective Program Updates, see details below. 

In This Week’s Issue:
 
1. Join This Thursday For PIPC Forum 2018: Building Patient Standards — What do Patients Value? RSVP to dgleason@pipcpatients.org.
2. PIPC: Don't Discriminate on Care, click here to view.
3. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for details.
4. CARE About Fibroids, White Dress Project to Partner on Uterine Fibroids Patient “Share Your Story” Campaign, click here to share your story.
5. NEJM: Complementary Approaches to Patient Engagement in Patient-Centered Outcomes Research, Click here to read the article.
6. Fierce Healthcare: Want to make patients better partners in their care? Physicians group offers 4 guiding principles, click here to read the article. 
7. Blog: “High Value, Low Wastage Research” Is More Than Just a Catchphrase Now
8. Upcoming ICER Studies: Angiodema, Asthma, Opioid Use Disorder, MS, Peanut Allergy, SMA, Depression, click here to provide patient input.
9. Upcoming Events and Webinars, see details below.
10. Medical Journal Articles, see details below.
11. AHRQ Effective Program Updates, see details below. 

In This Week’s Issue:
 
1. AJMC: Patient Perspectives Must Meaningfully Inform Healthcare Value Measurement, click here to read the article.
2. PIPC Patient Blog: ‘Value’ Measures for Rationing Healthcare Devalue My Life, click here to read the blog.  
3. PIPC Forum 2018: Building Patient Standards — What do Patients Value? RSVP to dgleason@pipcpatients.org.
4. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for details.
5. NPAF Policy Consortium: Talking About the Cost of Care in Shared Decision Making — Patient and Provider Perspective, click here to register.
6. MedCity News: This is what empowered patients desire on their journey, click here to read the article. 
7. Patient EngagementHIT: Lacking Protocols Hit VHA Clinic Environment, click here to read the article. 
8. Tell Insurers: Don't Discriminate on Care, click here to view.
9. Mental Health America: 2019 Call for Proposals is Now Open, click here for details.
10. CARE About Fibroids Publishes Report on Uterine Fibroids in the U.S., click here to read the white paper.   
11. Upcoming ICER Studies: Angiodema, Asthma, Opioid Use Disorder, MS, Peanut Allergy, SMA, Depression, click here to provide patient input.
12. Upcoming Events and Webinars, see details below.
13. Medical Journal Articles, see details below.
14. AHRQ Effective Program Updates, see details below. 

In This Week’s Issue:
 
1. PIPC Patient Blog: ‘Value’ Measures for Rationing Healthcare Devalue My Life, click here to read the blog.  
2. PIPC Forum 2018: Building Patient Standards — What do Patients Value? RSVP to dgleason@pipcpatients.org.
3. CARE About Fibroids Publishes Report on Uterine Fibroids in the U.S., click here to read the white paper.   
4. Tell Insurers: Don't Discriminate on Care, click here to view.
5. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for details.
6. NPAF Policy Consortium: Talking About the Cost of Care in Shared Decision Making — Patient and Provider Perspective, click here to register.
7. Mental Health America: 2019 Call for Proposals is Now Open, click here for details.
8. Upcoming ICER Studies: Angiodema, Asthma, Opioid Use Disorder, MS, Peanut Allergy, SMA, Depression, click here to provide patient input.
9. Job Opening: Policy and Advocacy Coordinator for the Christopher and Dana Reeve Foundation, click here for details.
10. Upcoming Events and Webinars, see details below.
11. Medical Journal Articles, see details below.
12. AHRQ Effective Program Updates, see details below.