In This Week’s Issue:
 
1. Chairman Coelho in San Jose Mercury News: Trump Medicare drug plan would hurt most vulnerable, click here to read the op-ed.
2. Friends of PCORI Reauthorization Event, see details below. 
3. PIPC Submits Comment Letter to CMS on Proposed International Pricing Index, click here to read the letter. 
4. Chairman's Corner: ICER Misses the Mark Again, click here to read the blog.
5. Summary of PIPC's 9th Annual Forum: Building Patient-Centered Value Standards, click here to read more.  
6. PIPC: Don't Discriminate on Care, click here to view.
7. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? Click here to view. 
8. Patient EngagementHIT: Rural Hospital Travel Times Increase, Hamper Patient Care Access, click here to read the article. 
9. Upcoming ICER Studies: Angiodema, Asthma, Opioid Use Disorder, MS, Peanut Allergy, SMA, Depression, click here to provide patient input.
10. Upcoming Events and Webinars, see details below.
11. Medical Journal Articles, see details below.
12. AHRQ Effective Program Updates, see details below. 

In This Week’s Issue:
 
1. Summary of PIPC's 9th Annual Forum: Building Patient-Centered Value Standards, click here to read more.  
2. Friends of PCORI Reauthorization Event, see details below. 
3. Chairman's Corner: ICER Misses the Mark Again, click here to read the blog.
4. PIPC: Don't Discriminate on Care, click here to view.
5. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for details.
6. IFAA Hosts Inaugural ACTion Council meeting, see details below. 
7. Upcoming ICER Studies: Angiodema, Asthma, Opioid Use Disorder, MS, Peanut Allergy, SMA, Depression, click here to provide patient input.
8. Upcoming Events and Webinars, see details below.
9. Medical Journal Articles, see details below.
10. AHRQ Effective Program Updates, see details below. 

In This Week’s Issue:
 
1. PIPC: Don't Discriminate on Care, click here to view.
2. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for details.
3. MedPage Today: Why do Patients Withhold Information? Click here to read the article.
4. Patient EngagementHIT: Low Patient Portal Use Sparks Calls for Patient Tech Education, click here to read the article. 
5. CARE About Fibroids, White Dress Project to Partner on Uterine Fibroids Patient “Share Your Story” Campaign, click here to share your story.
6. PCORI Blog: Engaging Parents to Help Reduce Medical Errors in the Hospital, click here to read the blog.
7. Upcoming ICER Studies: Angiodema, Asthma, Opioid Use Disorder, MS, Peanut Allergy, SMA, Depression, click here to provide patient input.
8. Upcoming Events and Webinars, see details below.
9. Medical Journal Articles, see details below.
10. AHRQ Effective Program Updates, see details below. 

In This Week’s Issue:
 
1. Join This Thursday For PIPC Forum 2018: Building Patient Standards — What do Patients Value? RSVP to dgleason@pipcpatients.org.
2. PIPC: Don't Discriminate on Care, click here to view.
3. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for details.
4. CARE About Fibroids, White Dress Project to Partner on Uterine Fibroids Patient “Share Your Story” Campaign, click here to share your story.
5. NEJM: Complementary Approaches to Patient Engagement in Patient-Centered Outcomes Research, Click here to read the article.
6. Fierce Healthcare: Want to make patients better partners in their care? Physicians group offers 4 guiding principles, click here to read the article. 
7. Blog: “High Value, Low Wastage Research” Is More Than Just a Catchphrase Now
8. Upcoming ICER Studies: Angiodema, Asthma, Opioid Use Disorder, MS, Peanut Allergy, SMA, Depression, click here to provide patient input.
9. Upcoming Events and Webinars, see details below.
10. Medical Journal Articles, see details below.
11. AHRQ Effective Program Updates, see details below. 

In This Week’s Issue:
 
1. AJMC: Patient Perspectives Must Meaningfully Inform Healthcare Value Measurement, click here to read the article.
2. PIPC Patient Blog: ‘Value’ Measures for Rationing Healthcare Devalue My Life, click here to read the blog.  
3. PIPC Forum 2018: Building Patient Standards — What do Patients Value? RSVP to dgleason@pipcpatients.org.
4. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for details.
5. NPAF Policy Consortium: Talking About the Cost of Care in Shared Decision Making — Patient and Provider Perspective, click here to register.
6. MedCity News: This is what empowered patients desire on their journey, click here to read the article. 
7. Patient EngagementHIT: Lacking Protocols Hit VHA Clinic Environment, click here to read the article. 
8. Tell Insurers: Don't Discriminate on Care, click here to view.
9. Mental Health America: 2019 Call for Proposals is Now Open, click here for details.
10. CARE About Fibroids Publishes Report on Uterine Fibroids in the U.S., click here to read the white paper.   
11. Upcoming ICER Studies: Angiodema, Asthma, Opioid Use Disorder, MS, Peanut Allergy, SMA, Depression, click here to provide patient input.
12. Upcoming Events and Webinars, see details below.
13. Medical Journal Articles, see details below.
14. AHRQ Effective Program Updates, see details below. 

In This Week’s Issue:
 
1. PIPC Patient Blog: ‘Value’ Measures for Rationing Healthcare Devalue My Life, click here to read the blog.  
2. PIPC Forum 2018: Building Patient Standards — What do Patients Value? RSVP to dgleason@pipcpatients.org.
3. CARE About Fibroids Publishes Report on Uterine Fibroids in the U.S., click here to read the white paper.   
4. Tell Insurers: Don't Discriminate on Care, click here to view.
5. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for details.
6. NPAF Policy Consortium: Talking About the Cost of Care in Shared Decision Making — Patient and Provider Perspective, click here to register.
7. Mental Health America: 2019 Call for Proposals is Now Open, click here for details.
8. Upcoming ICER Studies: Angiodema, Asthma, Opioid Use Disorder, MS, Peanut Allergy, SMA, Depression, click here to provide patient input.
9. Job Opening: Policy and Advocacy Coordinator for the Christopher and Dana Reeve Foundation, click here for details.
10. Upcoming Events and Webinars, see details below.
11. Medical Journal Articles, see details below.
12. AHRQ Effective Program Updates, see details below. 

In This Week’s Issue:
 
1. PIPC Forum 2018: Building Patient Standards — What do Patients Value? RSVP to dgleason@pipcpatients.org.
2. IHP: Azar Brings Back Mandatory Demos, Including Those CMS Canceled, see details below.
3. HealthLeaders: Tapping Patient Engagement to Reduce Diagnostic Errors, click here to read the article.  
4. Tell Insurers: Don't Discriminate on Care, click here to view.
5. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for details.
6. Register: PQA’s Social Determinants of Health Forum, click here to register.
7. DBSA Meeting: Patient Focused Drug Development Meeting, click here to register.
8. Mental Health America: 2019 Call for Proposals is Now Open, click here for details.
9. Upcoming ICER Studies: Angiodema, Asthma, Opioid Use Disorder, click here to provide patient input.
10. Job Opening: Policy and Advocacy Coordinator for the Christopher and Dana Reeve Foundation, click here for details.
11. Upcoming Events and Webinars, see details below.
12. Medical Journal Articles, see details below.
13. AHRQ Effective Program Updates, see details below. 

In This Week’s Issue:
 
1. PIPC Forum 2018: Building Patient Standards — What do Patients Value? RSVP to dgleason@pipcpatients.org.
2. PIPC Patient Blog: Formulary Restrictions Devalue And Endanger The Lives Of Disabled People, click here to read the blog. 
3. MedPage Today: Outcomes Research Group Likely to Be Reauthorized, click here to read the article
4. Briefing: Value Assessment and Patient Engagement — Why Patient Voices Matter,click here to RSVP.
5. Tell Insurers: Don't Discriminate on Care, click here to view.
6. Aimed Alliance Report: Putting Profits Before Patients — Provider Perspectives on Health Insurance Barriers That Harm Patients, click here to read the report.   
7. IFAA Hosts Inaugural ACTion Council Meeting, click here to learn more.
8. CMS Technical Expert Panel Opportunity: Impact Assessment of CMS Quality and Efficiency Measures, click here to apply. 
9. Register: PQA’s Social Determinants of Health Forum, click here to register.
10. The PCORI Blog: Partnering to Help People with Obesity Better Understand Their Surgical Options, click here to read the blog.   
11. DBSA Meeting: Patient Focused Drug Development Meeting, click here to register.
12. Mental Health America: 2019 Call for Proposals is Now Open, click here for details.
13. Upcoming ICER Studies: Angiodema, Asthma, Opioid Use Disorder, click here to provide patient input.
14. Upcoming Events and Webinars, see details below.
15. Medical Journal Articles, see details below.
16. AHRQ Effective Program Updates, see details below. 

In This Week’s Issue:
 
1. Health Affairs: Formulary Restrictions Devalue And Endanger The Lives Of Disabled People, click here to read the blog.
2. 2018 PCORI Annual Meeting, see details below.
3.PCORI Advocacy Webinar: The Politics and Policy of PCORI Reauthorization,click here to access a recording and slides. 
4. Tell Insurers: Don't Discriminate on Care, click here to view.
5. Register: PQA’s Social Determinants of Health Forum, click here to register
6. STAT: Turning the tables, people with mental illness share what they want scientists to study, click here read the article
7. Call for Webinar Participants: To Inform a Patient-Centered Outcomes Research Agenda for Personalized Medicine, see details below.
8. DBSA Meeting: Patient Focused Drug Development Meeting, click here to register.
9. Mental Health America: 2019 Call for Proposals is Now Open, click here for details
10. CMS Technical Expert Panel Opportunity: Impact Assessment of CMS Quality and Efficiency Measures, click here to apply. 
11. Upcoming ICER Studies: Angiodema, Asthma, Opioid Use Disorder, click here to provide patient input.
12. Upcoming Events and Webinars, see details below.
13. Medical Journal Articles, see details below.
14. AHRQ Effective Program Updates, see details below. 

In This Week’s Issue:
 
1. Tell Insurers: Don't Discriminate on Care, click here to view.
2. PIPC/Xcenda: Finding the Patient Voice in ICER’s Value Assessments, click here to read the report.
3. PCORI Advocacy Webinar: The Politics and Policy of PCORI Reauthorization
4. Call for Webinar Participants: To Inform a Patient-Centered Outcomes Research Agenda for Personalized Medicine, see details below.
5. Op-ed: Looking to the future of patient-centered cancer research and treatment, click here to read the op-ed
6. Watch: Research on Voluntary Patient-Centered Opioid Tapering, click here to watch the video. 
7. DBSA Meeting: Patient Focused Drug Development Meeting, click here to register.
8. Mental Health America: 2019 Call for Proposals is Now Open, click here for details
9. CMS Technical Expert Panel Opportunity: Impact Assessment of CMS Quality and Efficiency Measures, click here to apply. 
10. Upcoming ICER Studies: Angiodema, Asthma, Opioid Use Disorder, click here to provide patient input.
11. 2018 PCORI Annual Meeting, click here for details.
12. Upcoming Events and Webinars, see details below.
13. Medical Journal Articles, see details below.
14. AHRQ Effective Program Updates, see details below. 

In This Week’s Issue:
 
1. Tell Insurers: Don't Discriminate on Care, click here to view.
2. PIPC/Xcenda: Finding the Patient Voice in ICER’s Value Assessments, click here to read the report.
3. Op-Ed: One-Size-Fits-All Cost-Based Formulas: Rationing Care for Cancer Patients, Click here to read the op-ed.  
4. Patient EngagementHIT: Record Copying Fees, Admin Hurdles Harm Patient Data Access, click here to read the article.
5. The PCORI Blog: PCORI at Age Eight – Progress, Impact, and More to Do, click here to read the blog.
6. DBSA Meeting: Patient Focused Drug Development Meeting, click here to register.
7. Mental Health America: 2019 Call for Proposals is Now Open, click here for details
8. CMS Technical Expert Panel Opportunity: Impact Assessment of CMS Quality and Efficiency Measures, click here to apply. 
9. Upcoming ICER Studies: Angiodema, Asthma, Opioid Use Disorder, click here to provide patient input.
10. 2018 Health Care Payment Learning and Action Network (LAN) Fall Summit, click here to register.
11. 2018 PCORI Annual Meeting, click here for details.
12. Upcoming Events and Webinars, see details below.
13. Medical Journal Articles, see details below.
14. AHRQ Effective Program Updates, see details below. 

In This Week’s Issue:
 
1. PIPC/Xcenda: Finding the Patient Voice in ICER’s Value Assessments, click here to read the report.
2. Over 90 Stakeholder Groups to CVS: Don't Discriminate on Care, view letter here.
3. NAM Essay: Transformation — My Experience as a Patient and an Advocate in Three Chapters, click here to view Gwen’s personal story.
4. DBSA Meeting: Patient Focused Drug Development Meeting, click here to register.
5. Patient EngagementHIT: How Does Medication Prescribing Impact Patient Satisfaction Levels? Click here to read the article.
6. The PCORI Blog: An Exciting Step Forward — New Support for the Next Generation of Learning-Health-System Researchers, click here to read the blog.
7. Mental Health America: 2019 Call for Proposals is Now Open, click here for details
8. CMS Technical Expert Panel Opportunity: Impact Assessment of CMS Quality and Efficiency Measures, click here to apply.  
9. Upcoming ICER Studies: Angiodema, Asthma, Opioid Use Disorder, click here to provide patient input.
10. 2018 Health Care Payment Learning and Action Network (LAN) Fall Summit, click here to register. 
11. 2018 PCORI Annual Meeting, click here for details.
12. Upcoming Events and Webinars, see details below.
13. Medical Journal Articles, see details below.
14. AHRQ Effective Program Updates, see details below. 

In This Week's Issue:
​
1. New Report from PIPC and Xcenda: Quantifying Incorporation of Patient Input in Value Frameworks, click here to read the report.
2. Over 90 Stakeholder Groups to CVS: Don't Discriminate on Care, see details below.
3. GAO Makes Appointments to PCORI Governing Board, click here to view the announcement from the GAO.
4. This Tuesday — Beyond Opioids: Evidence-Based Delivery of Alternative Treatments for Chronic Pain, click here for details. 
5. Health IT Analytics: $40M AHRQ, PCORI Grants Will Support a Learning Health System, click here to read the article.
6. The PCORI Blog: Putting PCORI's Updated Engagement Plan Template to Work in Research, click here to read the blog.
7. Mental Health America: 2019 Call for Proposals is Now Open, click here for details
8. CMS Technical Expert Panel Opportunity: Impact Assessment of CMS Quality and Efficiency Measures, click here to apply.  
9. Other Upcoming ICER Studies: Angiodema, Asthma, Opioid Use Disorder, click here to provide patient input.
10. 2018 Health Care Payment Learning and Action Network (LAN) Fall Summit, click here to register. 
11. 2018 PCORI Annual Meeting, click here for details.
12. Upcoming Events and Webinars, see details below.
13. Medical Journal Articles, see details below.
14. AHRQ Effective Program Updates, see details below. 

In This Week’s Issue:
 
1. Over 90 Stakeholder Groups to CVS: Don't Discriminate on Care, see details below.
2. Forbes: Will CVS Caremark Make ICER The American NICE? Click here to read the column. 
3. Health Affairs: Blogs on CVS Caremark use of QALY Thresholds to Withhold Coverage, see details below.
4. Mental Health America: 2019 Call for Proposals is Now Open, click here for details
5. Don’t Miss a Beat: The Latest on Heart Valve Disease Research and Policy, see details below.
6. Beyond Opioids: Evidence-Based Delivery of Alternative Treatments for Chronic Pain, click here for details.  
7. Other Upcoming ICER Studies: Angiodema, Asthma, Opioid Use Disorder, click here to provide patient input.
8. GHLF: A Patient’s Guide to Insurance Enrollment, click here to view.   
9. Medical Xpress: Patient-Centered Visual Aid Helps Physicians Discuss Risks, Treatments With Parents, click here to read the article. 
10. 2018 Health Care Payment Learning and Action Network (LAN) Fall Summit, click here to register. 
11. 2018 PCORI Annual Meeting, click here for details.
12. Upcoming Events and Webinars, see details below.
13. Medical Journal Articles, see details below.
14. AHRQ Effective Program Updates, see details below. 

 In This Week’s Issue:
 
1. Over 90 Stakeholder Groups to CVS: Don't Discriminate on Care, see details below.
2. Chairman’s Corner:  Tony Coelho Discusses How “Cost-Effectiveness” Measures Used by CVS Caremark Discriminate Against People with Disabilities, Click here to read the blog.
3. Health Affairs: Blogs on CVS Caremark use of QALY Thresholds to Withhold Coverage, see details below.
4. Column: Calculating patient’s ‘worth’ by simple formula is wrong, click here to read the column.
5. The Hill: CMS Should Reconsider and Withdraw the Potentially Harmful Step Therapy Guidance, click here to read the op-ed.
6. Other Upcoming ICER Studies: Angiodema, Asthma, Opioid Use Disorder, click here to provide patient input.
7. GHLF: A Patient’s Guide to Insurance Enrollment, click here to view.   
8. The PCORI Blog: PCORI's New Policy on Data Management and Data Sharing — A Step Forward for Open Science,click here to read the blog.
9. 2018 Health Care Payment Learning and Action Network (LAN) Fall Summit, click here to register. 
10. 2018 PCORI Annual Meeting, click here for details.
11. Upcoming Events and Webinars, see details below.
12. Medical Journal Articles, see details below.
13. AHRQ Effective Program Updates, see details below.