In This Week’s Issue:
 
1. Please Join PIPC For Our 10th Annual Forum!, click here to view the invitation.
2. National Council on Disability Report on QALYs, click here to read the report.
3. EveryLife Foundation Briefing with the Rare Disease Caucus, click here to learn more and register.
4. International Reference Pricing Would Lead to Fewer New Medicines For People with Disabilities, Report Finds, click here to see the report.
5. PCORI Reauthorization Discussions Advance, see details below.
6. House Begins 21st Century Cures 2.0 Effort, see details below.
7. PIPC Urges Policymakers to Protect Patients and People with Disabilities, see below for details.
8. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more. 
9. ICER's QALY-Based Study Topics: Acute Migraine, Type 2 Diabetes, Arthritis, Sickle Cell Disease, Ulcerative Colitis, Cystic Fibrosis, click here to provide patient input.
10. Upcoming Events and Webinars, see details below.
11. Medical Journal Articles, see details below.
12. AHRQ Effective Program Updates, see details below. 

In This Week’s Issue:
 
1. Please Join PIPC For Our 10th Annual Forum!, click here to view the invitation.
2. National Council on Disability Report on QALYs, click here to read the report.
3. Advocates Speak Out Against ICER's Flawed and Discriminatory Methods, click here to read the letters.
4. Patient-Centered Outcomes Research Institute: Healthcare's Savior?, click here to read the article.
5. Banning QALYs Helps People Get Care They Deserve, click here to read the article.
6. International Reference Pricing Would Lead to Fewer New Medicines For People with Disabilities, Report Finds, click here to see the report.
7. PCORI Reauthorization Discussions Advance, see details below.
8. PIPC Urges Policymakers to Protect Patients and People with Disabilities, see below for details.
9. EveryLife Foundation Briefing with the Rare Disease Caucus, click here to learn more and register.
10. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more. 
11. ICER's QALY-Based Study Topics: Acute Migraine, Type 2 Diabetes, Arthritis, Sickle Cell Disease, Ulcerative Colitis, Cystic Fibrosis, click here to provide patient input.
12. Upcoming Events and Webinars, see details below.
13. Medical Journal Articles, see details below.
14. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. Save December 16 at 12 p.m. for the 10th PIPC Annual Forum!, click here to view the invitation.
 0-2. National Council on Disability Report on QALYs, click here to read the report.
3. Advocates Speak Out Against ICER's Flawed and Discriminatory Methods, click here to read the letters.
4. Step Therapy Ignores What's Best for Patients, click here to read the article.
5. NIHCM: Algorithms Can Exacerbate Racial Disparities, click here to read the study.
6. PIPC Submits Comment Letter on ICER Draft Report for Rheumatoid Arthritis, click here to read the letter.
7. PCORI Reauthorization Discussions Advance, see details below.
8. PIPC Urges Policymakers to Protect Patients and People with Disabilities, see below for details.
9. EveryLife Foundation Briefing with the Rare Disease Caucus, click here to learn more and register.
10. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more. 
11. ICER Studies: Acute Migraine, Type 2 Diabetes, Arthritis, Sickle Cell Disease, Ulcerative Colitis, Cystic Fibrosis, click here to provide patient input.
12. Upcoming Events and Webinars, see details below.
13. Medical Journal Articles, see details below.
14. AHRQ Effective Program Updates, see details below

In This Week’s Issue:
 
1. National Council on Disability Report on QALYs, click here to read the report.
2. PIPC Submits Comment Letter on ICER Draft Report for Rheumatoid Arthritis, click here to read the letter.
3. AUCD: What is a QALY?, click here to read the article.
4. PCORI Reauthorization Discussions Advance, see details below.
5. Video: Risk of Modeling Other Countries’ Drug Pricing: How a Canadian Child is Forced to Get Sicker to Access Treatment, click here to watch the video.
6. PIPC Urges House to Protect Patients and People with Disabilities in Title 1 of New House Bill, see below for details.
7. EveryLife Foundation Briefing with the Rare Disease Caucus, click here to learn more and register.
8. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more. 
9. ICER Studies: Acute Migraine, Type 2 Diabetes, Arthritis, Sickle Cell Disease, Ulcerative Colitis, Cystic Fibrosis, click here to provide patient input.
10. Upcoming Events and Webinars, see details below.
11. Medical Journal Articles, see details below.
12. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. PCORI Reauthorization Discussions Advance, see details below.
2. Video: Risk of Modeling Other Countries’ Drug Pricing: How a Canadian Child is Forced to Get Sicker to Access Treatment, click here to watch the video.
3. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more. 
4. PIPC Urges House to Protect Patients and People with Disabilities in Title 1 of New House Bill, see below for details.
5. Video: Role of PCORI Patient Reviewers, click here to view.
6. EveryLife Foundation Briefing with the Rare Disease Caucus, click here to learn more and register.
7. Washington Post: New Cystic Fibrosis Drug Could Turn Deadly Disease into Manageable Condition, click here to read the article.
8. ICER Studies: Acute Migraine, Type 2 Diabetes, Arthritis, Sickle Cell Disease, Ulcerative Colitis, Cystic Fibrosis, click here to provide patient input.
9. Upcoming Events and Webinars, see details below.
10. Medical Journal Articles, see details below.
11. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. PCORI Reauthorization Discussions Advance
2. PCORI Videos on Patient-Centered Research Advancing Quality Care, see details below.
3. PIPC, Leading Patient Groups Submit Joint Letter to ICER on Draft 2020 Value Framework, click here to read the letter.
4. Advancing the Use of Patient-Generated Data, click here to read the article.
5. Liver Cancer Hill Briefing, see below for details.
6. EveryLife Foundation Briefing with the Rare Disease Caucus, click here to learn more and register.
7. Video: Risk of Modeling Other Countries’ Drug Pricing: How a Canadian Child is Forced to Get Sicker to Access Treatment, click here to watch the video.
8. PIPC Urges House to Protect Patients and People with Disabilities in Title 1 of New House Bill, see below for details.
9. Report on the Value Assessment Landscape in the U.S., click here to read the report.
10. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more. 
11. ICER Studies: Acute Migraine, Type 2 Diabetes, Arthritis, Sickle Cell Disease, Ulcerative Colitis, Cystic Fibrosis, click here to provide patient input.
12. Upcoming Events and Webinars, see details below.
13. Medical Journal Articles, see details below.
14. AHRQ Effective Program Updates, see details below. 

In This Week’s Issue:
 
1. PIPC, Leading Patient Groups Submit Joint Letter to ICER on Draft 2020 Value Framework, click here to read the letter.
2. NextAvenue: ICER's Methods May Discriminate Against Older Patients, click here to read the article.
3. Advancing the Use of Patient-Generated Data, click here to read the article.
4. EveryLife Foundation Briefing with the Rare Disease Caucus, click here to learn more and register.
5. Video: Risk of Modeling Other Countries’ Drug Pricing: How a Canadian Child is Forced to Get Sicker to Access Treatment, click here to watch the video.
6. ICER’s Concern for Patients: Where’s the Beef?, click here to read the op-ed.
7. PIPC Urges House to Protect Patients and People with Disabilities in Title 1 of New House Bill, see below for details.
8. PIPC Comments on ICER's Type 2 Diabetes Draft Evidence Report, click here to read the letter.
9. Liver Cancer Hill Briefing, see below for details.
10. A Troubling Method of Curbing Health Care Costs Is Gaining Ground, click here to read the op-ed.
11. Cancer Support Community is Hosting a Summit on Utilization Management, click here to learn more and register.
12. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more. 
13. ICER Studies: Acute Migraine, Type 2 Diabetes, Arthritis, Cardiovascular Disease, Sickle Cell Disease, Ulcerative Colitis, Cystic Fibrosis, click here to provide patient input.
14. Upcoming Events and Webinars, see details below.
15. Medical Journal Articles, see details below.
16. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. Video: Risk of Modeling Other Countries’ Drug Pricing: How a Canadian Child is Forced to Get Sicker to Access Treatment, click here to watch the video.
2. ICER’s Concern for Patients: Where’s the Beef?, click here to read the op-ed.
3. PIPC Urges House to Protect Patients and People with Disabilities in Title 1 of New House Bill, see below for details.
4. Proposed Changes to ICER Framework Available for Comment, click here to view the changes and to comment and see below for more.
5. PIPC Comments on ICER's Type 2 Diabetes Draft Evidence Report, click here to read the letter.
6. Liver Cancer Hill Briefing, see below for details.
7. New PQA Patient Engagement in Quality Measurement Rubric, click here to read more and to view the rubric.
8. How ICER Discriminates Against People with Rare Diseases, click here to read the article.
9. PCORI News and Updates, see details below.
10. Cancer Support Community is Hosting a Summit on Utilization Management, click here to learn more and register.
11. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more. 
12. ICER Studies: Acute Migraine, Type 2 Diabetes, Arthritis, Cardiovascular Disease, Sickle Cell Disease, Ulcerative Colitis, Cystic Fibrosis, click here to provide patient input.
13. Upcoming Events and Webinars, see details below.
14. Medical Journal Articles, see details below.
15. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. Reuters: CVS Drug Coverage Plan Based on Outside Pricing Review is Off to a Slow Start, see details below.
2. ICER Discriminates Against People with Rare Diseases, click here to read the article.
3. ICER Withdraws Draft Report on Rheumatoid Arthritis Therapies, click here to read more.
4. PCORI News and Updates, see details below.
5. Patient Advocacy Scholarships Available for Personalized Medicine Conference, click here to apply.
6. Cancer Support Community is Hosting a Summit on Utilization Management, click here to learn more and register.
7. Incorporating Patient Perspectives and Transparency for Patient-Centered Value Assessment, click here to read the article.
8. Not All QALYs are Created Equal, click here to read the article.
9. Proposed Changes to ICER Framework Available for Comment, click here to view the changes and to comment and see below for more.
10. AAR Seeks Recruits for Annual Senior Patient and Family Caregivers Network Training, click here to learn more and to apply for the training.
11. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more. 
12. ICER Studies: Acute Migraine, Type 2 Diabetes, Arthritis, Cardiovascular Disease, Sickle Cell Disease, Ulcerative Colitis, Cystic Fibrosis, click here to provide patient input.
13. Upcoming Events and Webinars, see details below.
14. Medical Journal Articles, see details below.
15. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. PIPC Urges House to Protect Patients and People with Disabilities in Title 1 of New House Bill, see details below.
2. Dr. Josie Briggs Appointed Interim PCORI Executive Director, see details below.
3. Patient Advocacy Scholarships Available for Personalized Medicine Conference, click here to apply.
4. Cancer Support Community is Hosting a Summit on Utilization Management, click here to learn more and register.
5. Proposed Changes to ICER Framework Available for Comment, click here to view the changes and to comment and see below for more.
6. ICER Announces Possible 2020 Assessments, click here to see the list of possible assessments.
7. AAR Seeks Recruits for Annual Senior Patient and Family Caregivers Network Training, click here to learn more and to apply for the training.
8. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more. 
9. ICER Studies: Acute Migraine, Type 2 Diabetes, Arthritis, Cardiovascular Disease, Sickle Cell Disease, Ulcerative Colitis, Cystic Fibrosis, click here to provide patient input.
10. Upcoming Events and Webinars, see details below.
11. Medical Journal Articles, see details below.
12. AHRQ Effective Program Updates, see details below

In This Week’s Issue:
 
1. PIPC Urges House to Protect Patients and People with Disabilities in Title 1 of New House Bill, see details below.
2. NHC Patient Community Training on Value Assessment, click here to read more and to watch the training.
3. PCORI Advocacy 101: The Politics and Policy of PCORI Reauthorization, click here for a complete recording of the event and the slides used in the presentation.
4. New NQF Resource on Patient-Centered Renal Care, click here to read more.
5. Proposed Changes to ICER Framework Available for Comment, click here to view the changes and to comment and see below for more.
6. ICER Announces Possible 2020 Assessments, click here to see the list of possible assessments.
7. AAR Seeks Recruits for Annual Senior Patient and Family Caregivers Network Training, click here to learn more and to apply for the training.
8. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more. 
9. ICER Studies: Acute Migraine, Type 2 Diabetes, Arthritis, Cardiovascular Disease, Sickle Cell Disease, Ulcerative Colitis, Cystic Fibrosis, click here to provide patient input.
10. Upcoming Events and Webinars, see details below.
11. Medical Journal Articles, see details below.
12. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. PCORI Advocacy 101: The Politics and Policy of PCORI Reauthorization, click here for a complete recording of the event and the slides used in the presentation.
2. Gottlieb: As FDA Advances RWE Use, Groups Other Than ICER Needed, click here to read more.
3. To Improve Health Care, Focus on Clinical Measures and Listen to Patients, click here to read more.
4. Now Is the Time to Develop Patient-Centered Quality Measures, click here to read the article.
5. Proposed Changes to ICER Framework Available for Comment, click here to view the changes and to comment and see below for more.
6. ICER Announces Possible 2020 Assessments, click here to see the list of possible assessments.
7. AAR Seeks Recruits for Annual Senior Patient and Family Caregivers Network Training, click here to learn more and to apply for the training.
8. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more. 
9. ICER Studies: Acute Migraine, Type 2 Diabetes, Arthritis, Cardiovascular Disease, Sickle Cell Disease, Ulcerative Colitis, Cystic Fibrosis, click here to provide patient input.
10. Upcoming Events and Webinars, see details below.
11. Medical Journal Articles, see details below.
12. AHRQ Effective Program Updates, see details below

In This Week’s Issue:
 
1. ICER's Methodology Fails to Properly Value Treatments, click here to read the article.
2. Making the Patient Voice Matter In Value Assessment, click here to read the article.
3. Disruptive Proposals May Undermine Medicare Part D’s Success, see below for more.
4. Proposed Changes to ICER Framework Available for Comment, click here to view the changes and to comment and see below for more.
5. ICER Announces Possible 2020 Assessments, click here to see the list of possible assessments.
6. AAR Seeks Recruits for Annual Senior Patient and Family Caregivers Network Training, click here to learn more and to apply for the training.
7. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more. 
8. ICER Studies: Acute Migraine, Type 2 Diabetes, Arthritis, Cardiovascular Disease, Sickle Cell Disease, Ulcerative Colitis, Cystic Fibrosis, click here to provide patient input.
9. Upcoming Events and Webinars, see details below.
10. Medical Journal Articles, see details below.
11. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:

1. Disruptive Proposals May Undermine Medicare Part D’s Success, see below for more.
2. PIPC Comments on ICER's Cardiovascular Disease Study, click here to read the letter.
3. Proposed Changes to ICER Framework Available for Comment, click here to view the changes and to comment and see below for more.
4. National Health Council Training on Value Assessment and Patient Voice Rubric, see below for more.
5. Patient-Reported Outcomes Help to Give Patients Better Care, Increased Quality of Life, click here to watch the interview.
6. ICER Announces Possible 2020 Assessments, click here to see the list of possible assessments.
7. AAR Seeks Recruits for Annual Senior Patient and Family Caregivers Network Training, click here to learn more and to apply for the training.
8. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more.
9. ICER Studies: Acute Migraine, Type 2 Diabetes, Arthritis, Cardiovascular Disease, Duchenne Muscular Dystrophy, Sickle Cell Disease, click here to provide patient input.
10. Upcoming Events and Webinars, see details below.
11. Medical Journal Articles, see details below.
12. AHRQ Effective Program Updates, see details below.

In This Week’s Issue:
 
1. PIPC Comments on ICER's Cardiovascular Disease Study, click here to read the letter.
2. Proposed Changes to ICER Framework Available for Comment, click here to view the changes and to comment and see below for more.
3. RetireSafe: IPI Would Hurt American Seniors, click here to view the article.
4. National Health Council Training on Value Assessment and Patient Voice Rubric, see below for more.
5. CARE About Fibroids White Paper and Upcoming Patient Tool, see below for more.
6. Maisie's Army Mobilizes to Help Toddlers Access Lifesaving SMA Therapy, click here to read the article.
7. ICER Announces Possible 2020 Assessments, click here to see the list of possible assessments.
8. AAR Seeks Recruits for Annual Senior Patient and Family Caregivers Network Training, click here to learn more and to apply for the training.
9. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more. 
10. ICER Studies: Acute Migraine, Type 2 Diabetes, Arthritis, Cardiovascular Disease, Duchenne Muscular Dystrophy, Sickle Cell Disease, click here to provide patient input.
11. Upcoming Events and Webinars, see details below.
12. Medical Journal Articles, see details below.
13. AHRQ Effective Program Updates, see details below.