In This Week’s Issue:
 
1. You're Invited! The Perils of QALYs Event at the Coelho Center in Los Angeles TODAY, click here for more information and click here to RSVP.
2. PIPC Submits Comment Letter to ICER on Peanut Allergy Draft Evidence Report, click here to read the letter.
3. ICER Seeks Public Input for 2020 Value Assessment Framework, click here for more information and to comment.
4. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more. 
5. ICER Studies: Type 2 Diabetes, Arthritis, Cardiovascular Disease, Duchenne Muscular Dystrophy click here to provide patient input.
6. Advocacy for Payer Consideration of Patient Input at AMCP, click here to read the article.
7. WaPo: For Patients, a Caregiver’s Compassion is Essential, click here to read the article.
8. PCORI Engagement In Health Research Literature Explorer, click here to use the tool.
9. NVHR Hepatitis C Patient Summit, click here to apply to the patient summit.
10. AUCD: Submit a Proposal for 2019 Conference! Click here for more information.
11. Submit 2019 Fly-ins, Advocacy Days, and Conferences to Democratic Caucus, click here to submit your events.
12. Upcoming Events and Webinars, see details below.
13. Medical Journal Articles, see details below.
14. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. PIPC Submits Comment Letter to ICER on Peanut Allergy Draft Evidence Report, click here to read the letter.
2. ICER Seeks Public Input for 2020 Value Assessment Framework, click here for more information and to comment.
3. You're Invited! The Perils of QALYs Event at the Coelho Center in Los Angeles May 20, click here for more information and click here to RSVP.
4. Policy Briefing in Sacramento on May 15: Are Value Assessments In Healthcare a New Form of Discrimination?, click here for more information and click here to RSVP.
5. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more. 
6. ICER Studies: Type 2 Diabetes, Arthritis, Cardiovascular Disease, Depression, MS, Duchenne Muscular Dystrophy, Peanut Allergy, click here to provide patient input.
7. PCORI Board of Governors Meeting, click here to view the agenda and click here to register and attend the meeting by teleconference.
8. National Health Council on Measuring Patient Experience, click here to read the blog post and click here to watch the webinar.
9. Friends of PCORI Reauthorization Letter of Support, see below for details.
10. CMS Webinar: Reintroducing the eCQI Resource Center, click here to register.
11. NVHR Hepatitis C Patient Summit, click here to apply to the patient summit.
12. AUCD: Submit a Proposal for 2019 Conference! Click here for more information.
13. Submit 2019 Fly-ins, Advocacy Days, and Conferences to Democratic Caucus, click here to submit your events.
14. Upcoming Events and Webinars, see details below.
15. Medical Journal Articles, see details below.
16. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. ICER Seeks Public Input for 2020 Value Assessment Framework, click here for more information and to comment.
2. You're Invited! The Perils of QALYs Event at the Coehlo Center in Los Angeles May 20, click here for more information and click here to RSVP.
3. Policy Briefing in Sacramento on May 15: Are Value Assessments In Healthcare a New Form of Discrimination?, click here for more information and click here to RSVP.
4. Last Call for Signatures on Letters supporting PCORI Reauthorization!, email Julia.Friedland@dbr.com to sign on and click here to view updates and access advocacy tools related to PCORI reauthorization. 
5. PIPC Advises California LAO to Avoid Discriminatory Value Assessment Metrics, click here to read the letter.
6. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more. 
7. ICER Studies: Type 2 Diabetes, Arthritis, Cardiovascular Disease, Depression, MS, Duchenne Muscular Dystrophy, Peanut Allergy, click here to provide patient input.
8. NVHR Hepatitis C Patient Summit, click hereto apply to the patient summit.
9. NPC: Public Input Key for Improving Value Assessment, click here to read the article.
10. AAMC on PCORI's Contributions, click here to read the article.
11. AUCD: Submit a Proposal for 2019 Conference! Click here for more information.
12. Submit 2019 Fly-ins, Advocacy Days, and Conferences to Democratic Caucus, click here to submit your events.
13. Upcoming Events and Webinars, see details below.
14. Medical Journal Articles, see details below.
15. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. You're Invited! The Perils of QALYs Event at the Coehlo Center in Los Angeles May 20, click here for more information and click here to RSVP.
2. Policy Briefing in Sacramento on May 15: Are Value Assessments In Healthcare a New Form of Discrimination?, click here for more information and click here to RSVP.
3. PIPC Advises California LAO to Avoid Discriminatory Value Assessment Metrics, click here to read the letter.
4. National Partnership for Women & Families Publishes Consensus-Driven Framework for Addressing Social Determinants of Health, click here to view the framework on Medium and here to link to the printable version. 
5. MacIver Institute Issue Brief on the Problems with QALYs, click here to read the brief.
6. Op-Ed: Let’s Keep Patient-Centered Solutions at the Forefront of Health Care Policies, click here to read the op-ed.
7. PIPC Comments on ICER's Treatment-Resistant Depression Study, click here to read the letter.
8. PIPC Chairman Tony Coehlo Headlines Headache and Migraine Policy Forum Panel, click here to read more.
9. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more. 
10. ICER Studies: Type 2 Diabetes, Arthritis, Cardiovascular Disease, Depression, MS, Duchenne Muscular Dystrophy, Peanut Allergy, click here to provide patient input.
11. AUCD: Submit a Proposal for 2019 Conference! Click here for more information.
12. Submit 2019 Fly-ins, Advocacy Days, and Conferences to Democratic Caucus, click here to submit your events.
13. Upcoming Events and Webinars, see details below.
14. Medical Journal Articles, see details below.
15. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. PIPC Comments on ICER's Treatment-Resistant Depression Study, click here to read the letter.
2. PIPC Chairman Tony Coehlo Headlines Headache and Migraine Policy Forum Panel, click here to read more.
3. IHP Article: Patient Advocates are Concerned About Comparative Effectiveness Data Being Used to Deny Access, click here to read the story.
4. PIPC Comments on ICER's Multiple Sclerosis Study, click here to read the letter.
5. Washington Examiner: HHS Secretary Alex Azar Doesn't Want Drug Access to Become an Equation, click here to read the article.
6. IFPA: Who Controls ICER?, click here to read the fact sheet.
7. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more. 
8. ICER Studies: Type 2 Diabetes, Arthritis, Cardiovascular Disease, Depression, MS, Duchenne Muscular Dystrophy, Peanut Allergy, click here to provide patient input.
9. AUCD: Submit a Proposal for 2019 Conference! Click here for more information.
10. Request for Comment: Definition of Health Technology Assessment, see below for detail.
11. PCORI Releases New Evidence Maps, click here to view PCORI's new evidence maps and click here to read more.
12. Alliance for Health Policy Holds Capitol Hill Briefing, click here to read more.
13. Submit 2019 Fly-ins, Advocacy Days, and Conferences to Democratic Caucus, click here to submit your events.
14. Upcoming Events and Webinars, see details below.
15. Medical Journal Articles, see details below.
16. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. PIPC Comments on ICER's Multiple Sclerosis Study, click here to read the letter.
2. PIPC Chairman Tony Coehlo: New York Budget is a Call to Action, click here to read the article.
3. PIPC Comments on IVI's Open-Source Value Platform Model, click here to read the letter.
4. Alliance for Health Policy Briefing on Comparative Effectiveness Research, click here for more information and to register.
5. Congressional Staff Preview PCORI Reauthorization at Bipartisan Policy Center Event, click here to read the article and click here to watch a webcast of the event.
6. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more. 
7. ICER Studies: Type 2 Diabetes, Arthritis, Cardiovascular Disease, Depression, MS, Duchenne Muscular Dystrophy, Peanut Allergy, click here to provide patient input.
8. AUCD: Submit a Proposal for 2019 Conference! Click here for more information.
9. Request for Comment: Definition of Health Technology Assessment, see below for details.
10. PCORI: Getting Useful Evidence to Stakeholders Faster, click here to read the blog post.
11. AHRQ Awards Physician $1.1M Grant for Clinical Decision Support, click here to read the article.
12. Submit 2019 Fly-ins, Advocacy Days, and Conferences to Democratic Caucus, click here to submit your events.
13. Upcoming Events and Webinars, see details below.
14. Medical Journal Articles, see details below.
15. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. PIPC Chairman Tony Coehlo: New York Budget is a Call to Action, click here to read the article.
2. PIPC Comments on IVI's Open-Source Value Platform Model, click here to read the letter.
3. JAMA: Why Physicians Should Trust in Patients, click here to read the article.
4. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more. 
5. ICER Studies: Cardiovascular Disease, SMA, Depression, MS, Duchenne Muscular Dystrophy, Peanut Allergy, click here to provide patient input.
6. AUCD: Submit a Proposal for 2019 Conference! Click here for more information.
7. HR Professionals Magazine Highlights PCORI Portfolio, click here to read the article.
8. Request for Comment: Definition of Health Technology Assessment, see below for details.
9. Submit 2019 Fly-ins, Advocacy Days, and Conferences to Democratic Caucus, click here to submit your events.
10. Upcoming Events and Webinars, see details below.
11. Medical Journal Articles, see details below.
12. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. New York: Final Budget Being Analyzed for Discrimination Implications, see below for details.
2. FDA Releases New Framework for Incorporating Real-World Evidence, click here for the full announcement.
3. AAFP: Identifying Priorities Is First Step to Better Outcomes, click here to read the article.
4. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more. 
5. ICER Studies: Cardiovascular Disease, SMA, Depression, MS, Duchenne Muscular Dystrophy, Peanut Allergy, click here to provide patient input.
6. Request for Comment: Definition of Health Technology Assessment, see below for details.
7. BMJ Opinion: All Evidence is Real-World Evidence, click here to read the article.
8. Submit 2019 Fly-ins, Advocacy Days, and Conferences to Democratic Caucus, click here to submit your events.
9. Upcoming Events and Webinars, see details below.
10. Medical Journal Articles, see details below.
11. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. New York: Tell Legislators to Not Allow Use of Discriminatory Cost-Effectiveness Measures, click here for a tool to find your legislator and a template letter.
2. PIPC Chairman Tony Coehlo Writes: Rising Costs Must be Met with Patient-Centered Solutions, click here to read the article.
3. Morning Consult Poll Finds Americans Support Patient-Centered Solutions, click here to read the announcement and the survey results.
4. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more. 
5. ICER Studies: Cardiovascular Disease, SMA, Depression, MS, Duchenne Muscular Dystrophy, Peanut Allergy, click here to provide patient input.
6. AMA President: Prior Authorization Requirements Hurt Patients, click here to read the article.
7. PCORI Funds Studies on Shared Decision Making, click here to read the article.
8. Review and Comment! IVI Releases New Value Assessment Platform for Non-Small Cell Lung Cancer Therapy Sequences, see details below.
9. PCORI Advisory Panel Openings, see details below.
10. Submit 2019 Fly-ins, Advocacy Days, and Conferences to Democratic Caucus, click here to submit your events.
11. Upcoming Events and Webinars, see details below.
12. Medical Journal Articles, see details below.
13. AHRQ Effective Program Updates, see details below.  

​In This Week’s Issue:
 
1. PIPC Chairman Tony Coehlo Writes: Rising Costs Must be Met with Patient-Centered Solutions, click here to read the article.
2. Morning Consult Poll Finds Americans Support Patient-Centered Solutions, click here to read the announcement and the survey results.
3. PIPC Joins CancerCare in Encouraging New York State to Reject QALYs, click here to read the letter.
4. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for more. 
5. ICER Studies: Cardiovascular Disease, SMA, Depression, MS, Duchenne Muscular Dystrophy, Peanut Allergy, click here to provide patient input.
6. SWHR Study: Barriers to Care with Women with Endometrosis, click here to read the blog post and click here to read the study.
7. PCORI Blog: Mapping Evidence that Patients Can Use, click here to read the blog post.
8. New Pharmacy Quality Alliance Medication Access Framework for Quality Measurement, click here to read the blog post.
9. Review and Comment! IVI Releases New Value Assessment Platform for Non-Small Cell Lung Cancer Therapy Sequences, see details below.
10. PCORI Advisory Panel Openings, see details below.
11. Submit 2019 Fly-ins, Advocacy Days, and Conferences to Democratic Caucus, click here to submit your events.
12. Upcoming Events and Webinars, see details below.
13. Medical Journal Articles, see details below.
14. AHRQ Effective Program Updates, see details below. 

In This Week’s Issue:
 
1. PIPC Joins CancerCare in Encouraging New York State to Reject QALYs, click here to read the letter.
2. PIPC Webinar: Value Assessments and Their Impact on Patients, click here to view the webinar.
3. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? Click here to view. 
4. ICER Studies: Cardiovascular Disease, SMA, Depression, MS, Duchenne Muscular Dystrophy, Peanut Allergy, click here to provide patient input.
5. Experts at PCORI Discuss the Evolution of Patient Voices in Healthcare, click here to read the article.
6. PIPC Encourages Senate HELP Committee to Pursue Patient-Centered Approaches to Lower Health Care Costs, click here to read the letter.
7. PCORI Offering Scholarships to Attend its Annual Meeting, see details below.
8. Review and Comment! IVI Releases New Value Assessment Platform for Non-Small Cell Lung Cancer Therapy Sequences, see details below.
9. PCORI Advisory Panel Openings, see details below.
10. Roundtable Seeks to Create Patient-Centered Quality Measurement Rubric, click here to read a summary.
11. Submit 2019 Fly-ins, Advocacy Days, and Conferences to Democratic Caucus, click here to submit your events.
12. Upcoming Events and Webinars, see details below.
13. Medical Journal Articles, see details below.
14. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
1. PIPC Encourages Senate HELP Committee to Pursue Patient-Centered Approaches to Lower Health Care Costs, click here to read the letter.
2. PIPC Webinar: Value Assessments and Their Impact on Patients, click here to view the webinar.
3. The PCORI Blog: Spotlighting Rare Disease Research, click here to read the article.
4. Patient EngagementHIT: Patient Engagement Strategies for Improving Patient Activation, click here to read the article.
5. NYT: Doctors and Racial Bias: Still a Long Way to Go, click here to read the article.
6. PIPC Submits Comment Letter to ICER on International Collaborative to Develop New Methods to Guide Value-Based Pricing of Potential Cures, click here to read the letter.
7. Review and Comment! IVI Releases New Value Assessment Platform for Non-Small Cell Lung Cancer Therapy Sequences, see details below.
8. PCORI Advisory Panel Openings, see details below.
9. Submit 2019 Fly-ins, Advocacy Days, and Conferences to Democratic Caucus, click here to submit your events.
10. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? Click here to view. 
11. ICER Studies: Cardiovascular Disease, SMA, Depression, MS, Duchenne Muscular Dystrophy, Peanut Allergy, click here to provide patient input.
12. Upcoming Events and Webinars, see details below.
13. Medical Journal Articles, see details below.
14. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. PIPC Webinar: Value Assessments and Their Impact on Patients, click here to register.
2. Op-ed: The U.S. Shouldn't Use the 'QALY' in Drug Cost-Effectiveness Reviews, click here to read the op-ed.
3. Alliance for Aging Research: Governors Should Reject Unscientific and Discriminatory Approaches to Drug Pricing, click here to read the op-ed.
4. PIPC Submits Comment Letter to ICER on International Collaborative to Develop New Methods to Guide Value-Based Pricing of Potential Cures, click here to read the letter.
5. Upcoming IVI Webinars, see details below.
6. Review and Comment! IVI Releases New Value Assessment Platform for Non-Small Cell Lung Cancer Therapy Sequences, see details below.
7. PCORI Advisory Panel Openings, see details below.
8. PIPC Submits Comments to DoD on Proposed TRICARE Pharmacy Benefit Reforms, click here to read the letter.
9. Submit 2019 Fly-ins, Advocacy Days, and Conferences to Democratic Caucus, click here to submit your events.
10. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? Click here to view. 
11. ICER Studies: SMA, Depression, MS, Duchenne Muscular Dystrophy, Peanut Allergy click here to provide patient input
12. Upcoming Events and Webinars, see details below.
13. Medical Journal Articles, see details below.
14. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. PIPC Webinar: Value Assessments and Their Impact on Patients, click here to register.
2. PIPC Submits Comments to DoD on Proposed TRICARE Pharmacy Benefit Reforms, click here to read the letter.
3. Chairman's Corner: ICER Should Join Others in Moving Beyond QALYs, click here to read the blog.
4. PIPC Patient Blog: Patient Perspectives on the Quality Adjusted Life Year, click here to read the blog. 
5. Review and Comment! IVI Releases New Value Assessment Platform for Non-Small Cell Lung Cancer Therapy Sequences, see details below.
6. AcademyHealth: Engagement Science — Where Do We Go From Here? Click here to read the blog.
7. Patient EngagementHIT: Individualized Care Key for Employer-Sponsored Wellness Programs, click here to read the article.
8. Submit 2019 Fly-ins, Advocacy Days, and Conferences to Democratic Caucus, click here to submit your events.
9. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? Click here to view. 
10. ICER Studies: SMA, Depression, MS, Duchenne Muscular Dystrophy, Peanut Allergy click here to provide patient input
11. Upcoming Events and Webinars, see details below.
12. Medical Journal Articles, see details below.
13. AHRQ Effective Program Updates, see details below.  

In This Week’s Issue:
 
1. PIPC Patient Blog: Patient Perspectives on the Quality Adjusted Life Year, click here to read the blog. 
2. Will ICER's Response to Attacks on the QALY Quiet the Critics? A Reply from the Partnership to Improve Patient Care, click here to read the full response.
3. Review and Comment! IVI Releases New Value Assessment Platform for Non-Small Cell Lung Cancer Therapy Sequences, see details below.
4. PIPC Webinar: Value Assessments and Their Impact on Patients, click here to register.
5. Column: Americans Have Healthier Hears. We Have A Healthier Budget, Too, click here to read the column. 
6. ONS Blog: Experience the Power of Patient-Centered Research Through PCORI, click here to read the blog.
7. Watch: Keeping Community Engagement Central to Rare Disease Research, click here to watch the video.
8. UNLV Blog: The Patient-Centered Approach to Quality-of-Care Life, click here to read the blog.
9. Submit 2019 Fly-ins, Advocacy Days, and Conferences to Democratic Caucus, click here to submit your events.
10. PIPC: Don't Discriminate on Care, click here to view.
11. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? Click here to view. 
12. Upcoming ICER Studies: Angiodema, Asthma, Opioid Use Disorder, MS, Peanut Allergy, SMA, Depression, click here to provide patient input
13. Upcoming Events and Webinars, see details below.
14. Medical Journal Articles, see details below.
15. AHRQ Effective Program Updates, see details below.