In This Week’s Issue:
 
1. PIPC Forum 2018: Building Patient Standards — What do Patients Value? RSVP to dgleason@pipcpatients.org.
2. IHP: Azar Brings Back Mandatory Demos, Including Those CMS Canceled, see details below.
3. HealthLeaders: Tapping Patient Engagement to Reduce Diagnostic Errors, click here to read the article.  
4. Tell Insurers: Don't Discriminate on Care, click here to view.
5. International News: What Happens in Countries Using QALYs and Cost-Based Thresholds to Determine Coverage? See below for details.
6. Register: PQA’s Social Determinants of Health Forum, click here to register.
7. DBSA Meeting: Patient Focused Drug Development Meeting, click here to register.
8. Mental Health America: 2019 Call for Proposals is Now Open, click here for details.
9. Upcoming ICER Studies: Angiodema, Asthma, Opioid Use Disorder, click here to provide patient input.
10. Job Opening: Policy and Advocacy Coordinator for the Christopher and Dana Reeve Foundation, click here for details.
11. Upcoming Events and Webinars, see details below.
12. Medical Journal Articles, see details below.
13. AHRQ Effective Program Updates, see details below. 

In This Week’s Issue:
 
1. PIPC Forum 2018: Building Patient Standards — What do Patients Value? RSVP to dgleason@pipcpatients.org.
2. PIPC Patient Blog: Formulary Restrictions Devalue And Endanger The Lives Of Disabled People, click here to read the blog. 
3. MedPage Today: Outcomes Research Group Likely to Be Reauthorized, click here to read the article
4. Briefing: Value Assessment and Patient Engagement — Why Patient Voices Matter,click here to RSVP.
5. Tell Insurers: Don't Discriminate on Care, click here to view.
6. Aimed Alliance Report: Putting Profits Before Patients — Provider Perspectives on Health Insurance Barriers That Harm Patients, click here to read the report.   
7. IFAA Hosts Inaugural ACTion Council Meeting, click here to learn more.
8. CMS Technical Expert Panel Opportunity: Impact Assessment of CMS Quality and Efficiency Measures, click here to apply. 
9. Register: PQA’s Social Determinants of Health Forum, click here to register.
10. The PCORI Blog: Partnering to Help People with Obesity Better Understand Their Surgical Options, click here to read the blog.   
11. DBSA Meeting: Patient Focused Drug Development Meeting, click here to register.
12. Mental Health America: 2019 Call for Proposals is Now Open, click here for details.
13. Upcoming ICER Studies: Angiodema, Asthma, Opioid Use Disorder, click here to provide patient input.
14. Upcoming Events and Webinars, see details below.
15. Medical Journal Articles, see details below.
16. AHRQ Effective Program Updates, see details below. 

In This Week’s Issue:
 
1. Health Affairs: Formulary Restrictions Devalue And Endanger The Lives Of Disabled People, click here to read the blog.
2. 2018 PCORI Annual Meeting, see details below.
3.PCORI Advocacy Webinar: The Politics and Policy of PCORI Reauthorization,click here to access a recording and slides. 
4. Tell Insurers: Don't Discriminate on Care, click here to view.
5. Register: PQA’s Social Determinants of Health Forum, click here to register
6. STAT: Turning the tables, people with mental illness share what they want scientists to study, click here read the article
7. Call for Webinar Participants: To Inform a Patient-Centered Outcomes Research Agenda for Personalized Medicine, see details below.
8. DBSA Meeting: Patient Focused Drug Development Meeting, click here to register.
9. Mental Health America: 2019 Call for Proposals is Now Open, click here for details
10. CMS Technical Expert Panel Opportunity: Impact Assessment of CMS Quality and Efficiency Measures, click here to apply. 
11. Upcoming ICER Studies: Angiodema, Asthma, Opioid Use Disorder, click here to provide patient input.
12. Upcoming Events and Webinars, see details below.
13. Medical Journal Articles, see details below.
14. AHRQ Effective Program Updates, see details below. 

In This Week’s Issue:
 
1. Tell Insurers: Don't Discriminate on Care, click here to view.
2. PIPC/Xcenda: Finding the Patient Voice in ICER’s Value Assessments, click here to read the report.
3. PCORI Advocacy Webinar: The Politics and Policy of PCORI Reauthorization
4. Call for Webinar Participants: To Inform a Patient-Centered Outcomes Research Agenda for Personalized Medicine, see details below.
5. Op-ed: Looking to the future of patient-centered cancer research and treatment, click here to read the op-ed
6. Watch: Research on Voluntary Patient-Centered Opioid Tapering, click here to watch the video. 
7. DBSA Meeting: Patient Focused Drug Development Meeting, click here to register.
8. Mental Health America: 2019 Call for Proposals is Now Open, click here for details
9. CMS Technical Expert Panel Opportunity: Impact Assessment of CMS Quality and Efficiency Measures, click here to apply. 
10. Upcoming ICER Studies: Angiodema, Asthma, Opioid Use Disorder, click here to provide patient input.
11. 2018 PCORI Annual Meeting, click here for details.
12. Upcoming Events and Webinars, see details below.
13. Medical Journal Articles, see details below.
14. AHRQ Effective Program Updates, see details below. 

In This Week’s Issue:
 
1. Tell Insurers: Don't Discriminate on Care, click here to view.
2. PIPC/Xcenda: Finding the Patient Voice in ICER’s Value Assessments, click here to read the report.
3. Op-Ed: One-Size-Fits-All Cost-Based Formulas: Rationing Care for Cancer Patients, Click here to read the op-ed.  
4. Patient EngagementHIT: Record Copying Fees, Admin Hurdles Harm Patient Data Access, click here to read the article.
5. The PCORI Blog: PCORI at Age Eight – Progress, Impact, and More to Do, click here to read the blog.
6. DBSA Meeting: Patient Focused Drug Development Meeting, click here to register.
7. Mental Health America: 2019 Call for Proposals is Now Open, click here for details
8. CMS Technical Expert Panel Opportunity: Impact Assessment of CMS Quality and Efficiency Measures, click here to apply. 
9. Upcoming ICER Studies: Angiodema, Asthma, Opioid Use Disorder, click here to provide patient input.
10. 2018 Health Care Payment Learning and Action Network (LAN) Fall Summit, click here to register.
11. 2018 PCORI Annual Meeting, click here for details.
12. Upcoming Events and Webinars, see details below.
13. Medical Journal Articles, see details below.
14. AHRQ Effective Program Updates, see details below. 

In This Week’s Issue:
 
1. PIPC/Xcenda: Finding the Patient Voice in ICER’s Value Assessments, click here to read the report.
2. Over 90 Stakeholder Groups to CVS: Don't Discriminate on Care, view letter here.
3. NAM Essay: Transformation — My Experience as a Patient and an Advocate in Three Chapters, click here to view Gwen’s personal story.
4. DBSA Meeting: Patient Focused Drug Development Meeting, click here to register.
5. Patient EngagementHIT: How Does Medication Prescribing Impact Patient Satisfaction Levels? Click here to read the article.
6. The PCORI Blog: An Exciting Step Forward — New Support for the Next Generation of Learning-Health-System Researchers, click here to read the blog.
7. Mental Health America: 2019 Call for Proposals is Now Open, click here for details
8. CMS Technical Expert Panel Opportunity: Impact Assessment of CMS Quality and Efficiency Measures, click here to apply.  
9. Upcoming ICER Studies: Angiodema, Asthma, Opioid Use Disorder, click here to provide patient input.
10. 2018 Health Care Payment Learning and Action Network (LAN) Fall Summit, click here to register. 
11. 2018 PCORI Annual Meeting, click here for details.
12. Upcoming Events and Webinars, see details below.
13. Medical Journal Articles, see details below.
14. AHRQ Effective Program Updates, see details below. 

In This Week's Issue:
​
1. New Report from PIPC and Xcenda: Quantifying Incorporation of Patient Input in Value Frameworks, click here to read the report.
2. Over 90 Stakeholder Groups to CVS: Don't Discriminate on Care, see details below.
3. GAO Makes Appointments to PCORI Governing Board, click here to view the announcement from the GAO.
4. This Tuesday — Beyond Opioids: Evidence-Based Delivery of Alternative Treatments for Chronic Pain, click here for details. 
5. Health IT Analytics: $40M AHRQ, PCORI Grants Will Support a Learning Health System, click here to read the article.
6. The PCORI Blog: Putting PCORI's Updated Engagement Plan Template to Work in Research, click here to read the blog.
7. Mental Health America: 2019 Call for Proposals is Now Open, click here for details
8. CMS Technical Expert Panel Opportunity: Impact Assessment of CMS Quality and Efficiency Measures, click here to apply.  
9. Other Upcoming ICER Studies: Angiodema, Asthma, Opioid Use Disorder, click here to provide patient input.
10. 2018 Health Care Payment Learning and Action Network (LAN) Fall Summit, click here to register. 
11. 2018 PCORI Annual Meeting, click here for details.
12. Upcoming Events and Webinars, see details below.
13. Medical Journal Articles, see details below.
14. AHRQ Effective Program Updates, see details below. 

In This Week’s Issue:
 
1. Over 90 Stakeholder Groups to CVS: Don't Discriminate on Care, see details below.
2. Forbes: Will CVS Caremark Make ICER The American NICE? Click here to read the column. 
3. Health Affairs: Blogs on CVS Caremark use of QALY Thresholds to Withhold Coverage, see details below.
4. Mental Health America: 2019 Call for Proposals is Now Open, click here for details
5. Don’t Miss a Beat: The Latest on Heart Valve Disease Research and Policy, see details below.
6. Beyond Opioids: Evidence-Based Delivery of Alternative Treatments for Chronic Pain, click here for details.  
7. Other Upcoming ICER Studies: Angiodema, Asthma, Opioid Use Disorder, click here to provide patient input.
8. GHLF: A Patient’s Guide to Insurance Enrollment, click here to view.   
9. Medical Xpress: Patient-Centered Visual Aid Helps Physicians Discuss Risks, Treatments With Parents, click here to read the article. 
10. 2018 Health Care Payment Learning and Action Network (LAN) Fall Summit, click here to register. 
11. 2018 PCORI Annual Meeting, click here for details.
12. Upcoming Events and Webinars, see details below.
13. Medical Journal Articles, see details below.
14. AHRQ Effective Program Updates, see details below. 

 In This Week’s Issue:
 
1. Over 90 Stakeholder Groups to CVS: Don't Discriminate on Care, see details below.
2. Chairman’s Corner:  Tony Coelho Discusses How “Cost-Effectiveness” Measures Used by CVS Caremark Discriminate Against People with Disabilities, Click here to read the blog.
3. Health Affairs: Blogs on CVS Caremark use of QALY Thresholds to Withhold Coverage, see details below.
4. Column: Calculating patient’s ‘worth’ by simple formula is wrong, click here to read the column.
5. The Hill: CMS Should Reconsider and Withdraw the Potentially Harmful Step Therapy Guidance, click here to read the op-ed.
6. Other Upcoming ICER Studies: Angiodema, Asthma, Opioid Use Disorder, click here to provide patient input.
7. GHLF: A Patient’s Guide to Insurance Enrollment, click here to view.   
8. The PCORI Blog: PCORI's New Policy on Data Management and Data Sharing — A Step Forward for Open Science,click here to read the blog.
9. 2018 Health Care Payment Learning and Action Network (LAN) Fall Summit, click here to register. 
10. 2018 PCORI Annual Meeting, click here for details.
11. Upcoming Events and Webinars, see details below.
12. Medical Journal Articles, see details below.
13. AHRQ Effective Program Updates, see details below. 

In This Week’s Issue:
 
1. Chairman’s Corner:  Tony Coelho Discusses How “Cost-Effectiveness” Measures Used by CVS Caremark Discriminate Against People with Disabilities, Click here to read the blog.
2. AHRQ Seeks Topic Suggestions for Future Evidence Reviews, click here for details.
3. Patient EngagementHIT: How Does Provider Burnout Impact Patient Care Quality, Care Access? Click here to read the article.
4. Other Upcoming ICER Studies: Prostate Cancer, Asthma, Opioid Use Disorder, click here to provide patient input.
5. Supporting Wellness: A Survey of Lived Experience and Research Priorities for Depression and Bipolar, click here to take the survey.
6. Watch: Everyone Included Episode 9 — PCOR/CER Designing Solutions, click here to watch the video. 
7. 2018 PCORI Annual Meeting, click here for details.
8. Upcoming Events and Webinars, see details below.
9. Medical Journal Articles, see details below.
10. AHRQ Effective Program Updates, see details below. 

In This Week’s Issue:
 
1. Real Clear: Tony Coelho Discusses How “Cost-Effectiveness” Measures Used by CVS Caremark Discriminate Against People with Disabilities, click here to read the blog.
2. PMC to Receive PCORI Award to Develop Personalized Medicine Research Agenda, see details below.
3. SWHR White Paper: Speeding Progress in Migraine Requires Unraveling Sex Differences, click here to read the white paper.
4. Patient EngagementHIT: Patients Interested in Telehealth Tech, But Improvements Are Key, click here to read the article.
5. The PCORI Blog: Engaging People Who Are Hard to Reach, click here to read the article.
6. Other Upcoming ICER Studies: Spinal Muscular Atrophy, Asthma, Opioid Use Disorder, click here to provide patient input.
7. Supporting Wellness: A Survey of Lived Experience and Research Priorities for Depression and Bipolar, click here to take the survey.
8. PCORI Board of Governors Meeting: September 7, 2018, click here for details.
9. 2018 PCORI Annual Meeting, click here for details.
10. Upcoming Events and Webinars, see details below.
11. Medical Journal Articles, see details below.
12. AHRQ Effective Program Updates, see details below. 

In This Week’s Issue:
 
1. AJMC: Is One Answer Good Enough for All? Defining Value in Healthcare, click here to read the article.
2. Patient EngagementHIT: Why Quality Measures Must Reflect Patient Values, Care Experience, click here to read the article.
3. Upcoming ICER Studies: Prostate Cancer, Spinal Muscular Atrophy, Cardiovascular Disease, Asthma, Opioid, Hereditary Angioedema, Amyloidosis, click here to provide input.
4. Supporting Wellness: A Survey of Lived Experience and Research Priorities for Depression and Bipolar, click here to take the survey.
5. AcademyHealth Blog: Patient-Centered Approaches: Accepted & Increasingly Expected, click here to read the blog.
6. NYT: This Drug Is Safe and Effective. Wait. Compared With What?
7. CARE About Fibroids Call for Patient Stories: Uterine Fibroids, click here to submit your story.
8. National Meeting on Active Duty and Veteran Women’s Health, see details below.
9. 2018 PCORI Annual Meeting, click here for details.
10. PCORI Peer Review Opportunity, click here to apply.
11. Upcoming Events and Webinars, see details below.
12. Medical Journal Articles, see details below.
13. AHRQ Effective Program Updates, see details below. 

In This Week’s Issue:
 
1. Joint Letter with 50 Signatures to CMMI Emphasizing Early Patient Engagement in New Payment Models, click here to read the letter. 
2. CVS Launches Program To Exclude New Drugs Deemed Not Cost Effective, click here to read the article.
3. CSC Submits Comment Letter to ICER Regarding Prostate Cancer Treatment, see details below.
4. Other Upcoming ICER Studies: Spinal Muscular Atrophy, Cardiovascular Disease, Asthma, Opioid, Hereditary Angioedema, Amyloidosis, click here to provide input.
5. Supporting Wellness: A Survey of Lived Experience and Research Priorities for Depression and Bipolar, click here to take the survey.
6. CMS Guidance: Medicare Advantage Prior Authorization and Step Therapy for Part B Drugs, see details below.
7. CARE About Fibroids Call for Patient Stories: Uterine Fibroids, click here to submit your story.
8. National Meeting on Active Duty and Veteran Women’s Health, see details below.
9. 2018 PCORI Annual Meeting, click here for details.
10. PCORI Peer Review Opportunity, click here to apply.
11. Upcoming Events and Webinars, see details below.
12. Medical Journal Articles, see details below.
13. AHRQ Effective Program Updates, see details below. 

In This Week’s Issue:
 
1. Joint Letter with 50 Signatures to CMMI Emphasizing Early Patient Engagement in New Payment Models, click here to read the letter.  
2. PIPC Patient Blog: Our Children Are Worth It, click here to read the blog.
3. National Meeting on Active Duty and Veteran Women’s Health, see details below.
4. Supporting Wellness: A Survey of Lived Experience and Research Priorities for Depression and Bipolar, click here to take the survey.
5. Patient EngagementHIT: Patient-Provider Communication, Education Key for Opioid Prescribing, click here to read the article.
6. The PCORI Blog: PCORI-Funded Projects Aim to Use Telehealth to Address Disparities, click here to read the blog.
7. 2018 PCORI Annual Meeting, click here for details.
8. PCORI Peer Review Opportunity, click here to apply.
9. Upcoming Events and Webinars, see details below.
10. Medical Journal Articles, see details below.
11. AHRQ Effective Program Updates, see details below.

In This Week’s Issue:
 
1. PIPC Submits Comments on HHS Blueprint to Lower Drug Prices and Reduce Out-of-Pocket Costs, click here to read the letter.
2. PIPC Patient Blog: Our Children Are Worth It, click here to read the blog.
3. Quality, Not Quantity, Should Guide Medicare Coverage for Heart Valve Disease Treatment, click here to read the op-ed.
4. Op-Ed: The Disability Trap, click here to read the op-ed.
5. Patient EngagementHIT: Best Practices for Patient-Centered Appointment Agenda-Setting, click here to read the article. 
6. 2018 PCORI Annual Meeting, click here for details.
7. PCORI Peer Review Opportunity, click here to apply.
8. Upcoming Events and Webinars, see details below.
9. Medical Journal Articles, see details below.
10. AHRQ Effective Program Updates, see details below.