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  • Home
  • About
    • Mission and Priorities
    • Meet the Chairman
    • Steering Committee
    • PIPC Member List
    • Contact
  • The Issues
    • Value Our Health
    • International
    • Where We Stand
    • Value Assessment Frameworks
    • Engaging Patients in Value-Based Payment
    • Patient-Centeredness in Research
  • Resources
    • Advocacy
    • Letters and Comments
    • PCORI Meeting Transcripts
    • Polling
    • Roundtables
    • White Papers
  • Blog
    • PIPC Patients' Blog
    • Chairman's Corner
    • PIPC Weekly Update
    • The Data Mine
  • Newsroom
    • PIPC in the News
    • Press Releases
    • Open Letter: We Deserve a Voice
  • Events
    • PIPC Forum 2022
    • Discrimination & Health Care
    • C & GT Webinar
    • ICER COVID Webinar
    • Value Our Health Briefing
    • QALY Briefing
    • QALY Panel
    • Past Webinars >
      • ICER SCD Webinar
      • VOH Sickle Cell Webinar
      • Rare Disease Webinar
      • QALY Webinar
      • PCORI Advocacy Webinar
      • APM Webinar
      • Patient Empowerment Webinar
      • Value Assessments Briefing
    • Past PIPC Forums >
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The PIPC Blog

Inside Health Policy: Senators Raise Concerns With Part B Drug Pay Demo's Size, Effect On Rural Providers

6/29/2016

 
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This morning, Inside Health Policy highlighted the ongoing concerns of senators from both parties over the Centers for Medicare and Medicaid Services (CMS) recent proposal on Part B drug payment. The two-part demonstration would adjust the physician reimbursement formula and use value-based pay arrangements in its second phase. 

Partnership to Improve Patient Care (PIPC) Chairman Tony Coelho commented as a part of the article, noting that patient groups “stand ready to work with CMS to develop alternative patient-centered approaches, but CMS’ failure to engage patients from day one has resulted in a deeply flawed proposal.” In a statement, Coelho was also quoted as saying, "CMS stirred up such controversy that they really have no choice but to start over and initiate a new more engaged process so patients are with them and not against them on this."


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PIPC Weekly Update - June 27, 2016

6/27/2016

 
​In This Week’s Issue:
  1. PIPC Roundtable Summary and Recommendations: Assessing Value to the Patient, click here to view a summary.
  2. Patient Advocates Upset By Value-Based Assessments In Part B Drug Pay Demo, clickhere to view the full article (subscription only).
  3. Coalition for Better Care Seeking Signatures on MACRA Comments Today, click hereto view the letter.
  4. ICER Under Scrutiny for Ties to Insurance Industry, click here to view the article.
  5. ‘Patients Are the Real Experts': DO Wraps Up $1.2 Million PCORI Project, click here to view the article.

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Inside Health Policy: Patient Advocates Upset By Value-Based Assessments In Part B Drug Pay Demo

6/23/2016

 
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An article posted today in Inside Health Policy outlines the concerns of patient advocacy groups with the proposed use of value-based assessments in the second phase of the Centers for Medicare and Medicaid Services (CMS) Part B drug pay demo. The second phase specifically involves value-based pay arrangements including the use of discounts or elimination of patient cost-sharing; prescribing patterns; and indications-based pricing. 

​Representatives from various patient groups offered their concerns. Donna Cryer of the Global Liver Institute criticized the use of the Institute for Clinical and Economic Review (ICER) to help determine a value-based payment framework as the Institute has little engagement with patient groups. Patient advocates have also raised concerns with the Institute's methodology. 


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PIPC Weekly Update - June 13, 2016

6/13/2016

 
In This Week’s Issue:
  1. PIPC Briefing June 20: Value Frameworks in Health Care: The Real Story from Real Patients, see details below.   
  2. PIPC Patient Blog: Tom Hardy Testifies for Access to Multiple Myeloma Treatments, click here to view blog.
  3. Daily Caller: Nonprofit’s Flawed Drug Pricing Calculations Could Mean Major Issues For Seniors, click here to view the article.
  4. Drug Rationing Plays Russian Roulette With Patients' Lives, click here to view the op-ed.
  5. Health Affairs Blog: Reimagining The Consumer Role In Improving Value, click here to view the article.
  6. PCORI Blog: Drawing on Mental Health ‘Experts-by-Experience’, click  here to view the article.
  7. ACRO: Sharing for Better Caring: Breaking Down Silos to Advance Medical Research 

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PIPC Weekly Update - June 6, 2016

6/6/2016

 
​In This Week’s Issue:
  1. PIPC Patient Blog: Tom Hardy Testifies for Access to Multiple Myeloma Treatments, click here to view blog.
  2. USA Today: Health Insurers Find Back Door to Limit Choice, click here to view the article.
  3. Morning Consult: Cost of Care or Value of Care? Ask the Patient, click here to view the article.
  4. New York Times: Proposal to Reduce Medicare Drug Payments Is Widely Criticized, click here to view the article.  
  5. Video: Evaluating the Quality of Evidence Used for Developing Value Frameworks, click here to view the video.
  6. PCORI Board Approves $20 Million for New Patient-Centered Research on Breast Screening, Cerebral Palsy, Hepatitis C, and Stress Management, click here to view the press release.
  7. ASCO Value Task Force Takes Two Steps Towards Patients, Slaps ICER, Abacus, clickhere to view.

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PIPC Patient Blog: Tom Hardy

6/6/2016

 
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I am telling my personal story because on May 26 the Institute for Clinical and Economic Review (ICER), a group that develops cost effectiveness reports for new treatments, held a public meeting in St. Louis about their draft report on the value of multiple myeloma treatments.  I feel it is my duty to testify for all patients of this dread disease so that no treatments that demonstrate efficacy should be denied that extend or improve life because of monetary concerns


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