Partnership to Improve Patient Care

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  • Home
  • About
    • Mission and Priorities
    • Meet the Chairman
    • Steering Committee
    • PIPC Member List
    • Contact
  • The Issues
    • Value Our Health
    • International
    • Where We Stand
    • Value Assessment Frameworks
    • Engaging Patients in Value-Based Payment
    • Patient-Centeredness in Research
  • Resources
    • Advocacy
    • Letters and Comments
    • PCORI Meeting Transcripts
    • Polling
    • Roundtables
    • White Papers
  • Blog
    • PIPC Patients' Blog
    • Chairman's Corner
    • PIPC Weekly Update
    • The Data Mine
  • Newsroom
    • PIPC in the News
    • Press Releases
    • Open Letter: We Deserve a Voice
  • Events
    • PIPC Forum 2022
    • Discrimination & Health Care
    • C & GT Webinar
    • ICER COVID Webinar
    • Value Our Health Briefing
    • QALY Briefing
    • QALY Panel
    • Past Webinars >
      • ICER SCD Webinar
      • VOH Sickle Cell Webinar
      • Rare Disease Webinar
      • QALY Webinar
      • PCORI Advocacy Webinar
      • APM Webinar
      • Patient Empowerment Webinar
      • Value Assessments Briefing
    • Past PIPC Forums >
      • 2021
      • 2020
      • 2019
      • 2018
      • 2017
      • 2016
      • 2015
      • 2014
      • 2013
      • 2012
      • 2011
      • 2010

The PIPC Blog

PIPC Weekly Update - June 29, 2015

6/29/2015

 
In This Week’s Issue:
1. Patrick Conway: CMS’ Core Quality Measures Collaborative: A Rationale And Framework For Public-Private Quality Measure Alignment, click here to view the blog post.
2. New York Times: Cancer Doctors Offer Way to Compare Medicines, Including by Cost, click here to view the article.
3. Healthcare Informatics: Centers of Excellence to Study Dissemination of Evidence-Based Care Practices, clickhere to view the article.
4. Blog: Here Are the 5 Reasons Republicans Are Trying to Cut Research on Evidence-Based Medicine, click hereto view the article.
5. Medical Journal Articles, see details below.
6. Upcoming Events and Webinar, see details below.
7. AHRQ Effective Program Updates, see details below.

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PIPC Weekly Update - June 22, 2015

6/22/2015

 
In This Week’s Issue:
1. PIPC Convenes Leaders to Define Roadmap for Engaging and Empowering Patients, click here to view the press release.
2. Morning Consult: CMS Just Accelerated the Path to Value-Based Care, click here to view the article.
3. KevinMD: The Challenge in Following Evidence-Based Guidelines, click here to view the article
4. PCORI Blog: Surveys Show Great Interest in Patient-Centered Clinical Research, click here to view the blog post.
5. Study: How Comparative Effectiveness Research Is Viewed and Used by Policymakers, click here to view the blog post.
6. Draft House Bill Would Eliminate AHRQ, Cut PCORI, CMMI Funding, click here to view the article.
7. Blog: The Patient Voice Comes to BIO, click here to view the blog post.

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PIPC Weekly Update - June 22, 2015

6/22/2015

 
​In This Week’s Issue:
1. PIPC Convenes Leaders to Define Roadmap for Engaging and Empowering Patients, click here to view the press release.
2. Morning Consult: CMS Just Accelerated the Path to Value-Based Care, click here to view the article.
3. KevinMD: The Challenge in Following Evidence-Based Guidelines, click here to view the article
4. PCORI Blog: Surveys Show Great Interest in Patient-Centered Clinical Research, click here to view the blog post.
5. Study: How Comparative Effectiveness Research Is Viewed and Used by Policymakers, click here to view the blog post.
6. Draft House Bill Would Eliminate AHRQ, Cut PCORI, CMMI Funding, click here to view the article.
7. Blog: The Patient Voice Comes to BIO, click here to view the blog post.

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PIPC Convenes Leaders to Define Roadmap for Engaging and Empowering Patients

6/15/2015

 
The Partnership to Improve Patient Care (PIPC) today released a detailed summary and recommendations from an expert roundtable it convened April 15 of this year to explore strategies for engaging and empowering patients in care delivery. Convened by PIPC Chairman Tony Coelho, the roundtable consisted of 17 thought-leaders in the area of patient engagement and activation, all of whom shared their concerns about the existing health care infrastructure for meaningful patient and beneficiary engagement, and provided ideas for improvement.

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PIPC Weekly Update - June 15, 2015

6/15/2015

 
In This Week’s Issue:
1. PIPC Releases Roundtable Recommendations for Engaging and Empowering Patients, click here to view the press release.
2. KevinMD: Why Guidelines Should Only Be a Framework. They Should Not Be Rules, click here to view the article.
3. PCORI Blog: An Application's Journey from Merit Review to Project Funding, click here to view the blog post.
4. Health Affairs Blog: Promoting Transparency And Clear Choices In Health Care, click here to view the blog post.
5. PCORI Blog: Research to Improve Children's Health, click here to view the blog post.
6. New York Times: The Evidence Points to a Better Way to Fight Insomnia, click here to view the article.
7. AJMC: Meaningfully Engaging Patients in ACO Decision Making, click here to view the blog

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PIPC Weekly Update - June 8, 2015

6/8/2015

 
In This Week’s Issue:
1. PIPC Patient Blog: Laura Roix, click here to view the blog post.
2. PIPC Welcomes New Signatures on Letter to HHS Seeking Patient Engagement, clickhere to sign the letter.
3. Academy Health Highlights PCORI’s Stakeholder Engagement Rubric, click here to view the blog post.
4. CMS Finalizes Rules for Medicare Shared Savings Program, click here to view the press release.
5. PCORI Director: Advancing The Use Of Health Data In Research With PCORnet, clickhere to view the article.  
6. Health Affairs Blog: Accountable Care Organizations Taking Hold And Improving Health Care In California, click here to view the article.
7. Rigorous Methodology Key to Comparative Effectiveness Research, click here to view the article.  

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PIPC Patient Blog: Laura Roix

6/5/2015

 
Picture
​My name is Laura Roix, and I’ve been living with idiopathic pulmonary fibrosis (IPF) since 2006. After going through multiple false diagnoses from a number of doctors, I finally found what worked for me: self-advocacy and perseverance. Until I got to that point though, I went through 6 years of difficult medical experiences that finally led me to become a self-advocate for my medical care.

Starting in 2006, I visited a pulmonary doctor after being diagnosed with pneumonia multiple times. The pulmonologist found that I had scar tissue in my lungs, and we monitored it for years. He always said that it wouldn’t spread so not to worry about it – but things quickly changed in 2012. In February of that year, my doctor let me know the scarring had spread; not only in my right lung, where it was originally occurring, but also to the left.

​


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PIPC Weekly Update - June 1, 2015

6/1/2015

 
In This Week’s Issue:
1. Evidence-Based Medicine and the Newly Trained Physician: A Relationship in the Works, click here to view the article.
2. APA: Predictive Analytics and Big Data Hold Promise in Mood Disorders, click here to view the article.
3. Bipartisan Policy Center Pushes for Cost-Effectiveness Analysis, click here to view the report.
4. PCORI Commits $120 Million to New Patient-Centered Research, click here to view the article.

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