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  • Home
  • About
    • Mission and Priorities
    • Meet the Chairman
    • Steering Committee
    • PIPC Member List
    • Contact
  • The Issues
    • Action Center
    • Value Our Health
    • International
    • Where We Stand
    • Value Assessment Frameworks
    • Engaging Patients in Value-Based Payment
    • Patient-Centeredness in Research
  • Resources
    • Advocacy
    • Letters and Comments
    • PCORI Meeting Transcripts
    • Polling
    • Roundtables
    • White Papers
  • Blog
    • PIPC Patients' Blog
    • Chairman's Corner
    • PIPC Weekly Update
    • The Data Mine
  • Newsroom
    • PIPC in the News
    • Press Releases
    • Open Letter: We Deserve a Voice
  • Events
    • PIPC Forum 2022
    • Discrimination & Health Care
    • C & GT Webinar
    • ICER COVID Webinar
    • Value Our Health Briefing
    • QALY Briefing
    • QALY Panel
    • Past Webinars >
      • ICER SCD Webinar
      • VOH Sickle Cell Webinar
      • Rare Disease Webinar
      • QALY Webinar
      • PCORI Advocacy Webinar
      • APM Webinar
      • Patient Empowerment Webinar
      • Value Assessments Briefing
    • Past PIPC Forums >
      • 2021
      • 2020
      • 2019
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The PIPC Blog

Americans Support Patient-Centered Solutions Without Government Interference

3/15/2019

 
Poll of 2,001 registered voters finds most Americans want to decide the best course of treatment with their doctors and oppose government use of cost-effectiveness assessments
Today, the Partnership to Improve Patient Care (PIPC) released a public opinion poll by Morning Consult regarding the use of cost-effectiveness assessments to determine value of coverage and treatment costs. The survey demonstrates that voters resoundingly reject the main tenets of cost-effectiveness analyses with 82 percent of American voters objecting to their use in determining health care coverage and reimbursement decisions. These types of measures, which are often used outside of the U.S. to limit patient access to medicines, have been frequently criticized as discriminatory by patients and persons with disabilities. Increasingly, policymakers and payers have proposed to use these same tools to limit coverage for Medicare and Medicaid beneficiaries.  

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Primer: PCORI Background, Funding Streams, and Reauthorization

10/25/2018

 
​The Patient-Centered Outcomes Research Institute (PCORI) was established in 2010 to establish priorities and set an agenda for the conduct of comparative clinical effectiveness research (CER). Its Board of Governors is selected by the Government Accountability Office (GAO), and includes three designated seats for representatives of patients and consumers.  GAO concluded in a March 2018 report that PCORI is fulfilling its Congressional mandate to generate evidence that patients and those who care for them can use to make better-informed healthcare decisions. Following the National Academy of Medicine's definition of CER, PCORI invested nearly $2.4 billion in more than 600 patient-centered CER studies and related projects that support CER to date. PCORI’s Methodology Committee, also appointed by the GAO, provides guidance to the PCORI Board of Governors and its contract researchers about the appropriate use of CER methods, methodological standards, as well as establishing priorities to address gaps in research methods or their application.

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Chairman's Corner: Changing the Culture of How We Pay for Care

2/7/2018

 
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​As Chairman of the Partnership to Improve Patient Care (PIPC), I have seen tremendous progress in the patient-centeredness movement, particularly in changing the culture of medical research.  Yet, our leaders should know that we still have a long way to go to give patients, people with disabilities, veterans and caregivers a voice in how we deliver care that patients value.  They deserve a seat at the table in any discussion of health care policy, as well as meaningful opportunities to voice their unique and real experiences


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PIPC Patient Blog: Megan O’Boyle

7/19/2017

 
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I’m the mother of a wonderful girl named Shannon, who has a rare genetic condition called Phelan-McDermid syndrome. For years I steered clear of research information about her condition and focused on the daily challenges of meeting her needs. It never occurred to me that beyond being Shannon’s mom and caregiver I would play another vital role – as part of the research community helping her and others like her live a better life. 


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The Washington Post: PIPC's Tony Coelho Discusses Need for Change in Medicare's Innovation Center

12/13/2016

 
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In response to Washington Post opinion article, "Keep this part of Obamacare," PIPC Chairman Tony Coelho emphasizes the fact that while the Center for Medicare and Medicaid Innovation (CMMI) appears to be doing "some good work," it is also in serious need of changes to protect patients. "The Innovation Center created significant (if unintended) risks with some models that patients identified as going too far and driving “one-size-fits-all” care in stark contradiction of the nation’s drive to develop targeted therapies under the Precision Medicine Initiative and Cancer Moonshot," Coelho writes. "We all want health care to pay for value and not volume, but the real question is value for whom?" 


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Thought Leaders Discuss Comparative and Cost-Effectiveness in Policy Decision-Making

8/18/2016

 
Hon. Tony Coelho
PIPC Chairman, Patient Advocate
Proposals for Medicare and private payers to use CER are understandable, but concerning. Understandable because the challenge of rising costs is real, and policy-makers naturally reach for familiar policy tools. Concerning because it would pull CER away from individualized patient decisions and back towards centralized payer decisions. The end result would be limited choice of treatments based on one-size-fits-all determinations of 'value' for the average patient.

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Huffington Post: Holding Health Systems Accountable for Patient Value

2/4/2016

 
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What's the most important question facing any patient with a life-threatening illness?
​
"Which treatment option is best for me?"

By most accounts, this is a good problem to have; giving patients a range of treatment options, and the ability to make an informed choice about the regimen that most directly aligns with their personal health priorities is fundamental to high-quality, individualized health care. But along with these new methods for treatment come difficult questions. Do I want the more aggressive or conservative therapy? Is my quality of life during treatment more important than returning to work quickly? Which course of action has more tolerable side effects? Can I afford the care I need?


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Chairman's Corner: Holding Health Systems Accountable for Patient Value

2/4/2016

 
What's the most important question facing any patient with a life-threatening illness?
​
"Which treatment option is best for me?"

By most accounts, this is a good problem to have; giving patients a range of treatment options, and the ability to make an informed choice about the regimen that most directly aligns with their personal health priorities is fundamental to high-quality, individualized health care. But along with these new methods for treatment come difficult questions. Do I want the more aggressive or conservative therapy? Is my quality of life during treatment more important than returning to work quickly? Which course of action has more tolerable side effects? Can I afford the care I need?

Read More

PIPC Holds 6th Annual Forum in Washington D.C.

12/3/2015

 
Today, at the Reserve Officers Association in Washington, D.C., the Partnership to Improve Patient Care (PIPC) hosted a forum for experts to discuss patient-centered research and the role of the Patient-Centered Outcomes Research Institute (PCORI) in the health care system. The discussion was divided into two panels, with the first focusing on PCORI’s legislative history in relation to patient-centeredness and the second concentrating on the role of dissemination in engaging patients. The panels consisted of representatives from patient advocacy groups, former Senate staffers, and an official from PCORI, with PIPC Chairman Tony Coelho acting as moderator. Topics discussed include efforts to include patients in the research process, addressing disparities in research, and ensuring that research is disseminated in a way that allows patients and clinicians to use it in their decisionmaking process.

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Chairman's Corner: Value-Based System Must Recognize Importance of Patient Engagement

11/19/2015

 
Many people want to quantify “value” in health care. But for the ultimate beneficiary, the patient, value is more personal. That doesn’t mean we can’t get better value, it just requires us to find ways that respect patients and their diverse care needs and preferences. This was the big message I took away from a roundtable recently convened by the Partnership to Improve Patient Care (PIPC) and the Cancer Support Community (CSC) with many leading organizations representing cancer patients.

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Roll Call Op-Ed: Patient-Centeredness, Comparative Effectiveness, and Value

10/16/2015

 
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In a new op-ed published in Roll Call, PIPC Chairman Tony Coelho weighs in on the debate of using comparative effectiveness research (CER) to control medical spending.  Chairman Coehlo emphasizes that "proposals for Medicare and private payers to use CER are understandable, but concerning. Understandable because the challenge of rising costs is real, and policy-makers naturally reach for familiar policy tools. Concerning because it would pull CER away from individualized patient decisions and back towards centralized payer decisions. The end result would be limited choice of treatments based on one-size-fits-all determinations of 'value' for the average patient."


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Chairman's Corner: Patient-Centeredness, Comparative Effectiveness, and Value

10/16/2015

 
After five years of progress towards patient-centered comparative effectiveness research (CER), the Center for American Progress (CAP) threatens to unwind it by reviving the old debate over using CER to control medical spending. Proposals for Medicare and private payers to use CER are understandable, but concerning. Understandable because the challenge of rising costs is real, and policy-makers naturally reach for familiar policy tools. Concerning because it would pull CER away from individualized patient decisions and back towards centralized payer decisions. The end result would be limited choice of treatments based on one-size-fits-all determinations of “value” for the average patient.

Read More

New Survey Results: Patients Value Choice in Treatments, Access to Different Options

7/14/2015

 
Results from a poll of 1,500 registered voters strongly suggest that Americans want to be active participants in determining their healthcare treatments, and prefer limited government intervention when it comes to the treatments they can access.

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Chairman's Corner: Strategies to Engage and Empower the Patient in Care Delivery: Just Ask the Patient

7/9/2015

 
There’s a lot of talk right now about moving health care towards value-based payment models. But will these new models reward care that patients actually value? Maybe. It depends, first and foremost, on bringing patients into the conversation and giving them a meaningful voice. 

​The Affordable Care Act embraced important patient-centered principles, through the creation of the Patient-Centered Outcomes Research Institute (PCORI), and its embrace of concepts like shared decision-making in health care. The shift from a payment system based on quantity to quality could be promising – depending on how we define quality. But if the healthcare system of the future is to achieve outcomes that matter to patients, it must systematically engage patients in their own healthcare decision-making and in governance. Without this sustained commitment, the enterprise will too easily slip to one that merely rewards providers for achieving cost containment through fewer treatment or service choices for patients.

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PIPC Convenes Leaders to Define Roadmap for Engaging and Empowering Patients

6/15/2015

 
The Partnership to Improve Patient Care (PIPC) today released a detailed summary and recommendations from an expert roundtable it convened April 15 of this year to explore strategies for engaging and empowering patients in care delivery. Convened by PIPC Chairman Tony Coelho, the roundtable consisted of 17 thought-leaders in the area of patient engagement and activation, all of whom shared their concerns about the existing health care infrastructure for meaningful patient and beneficiary engagement, and provided ideas for improvement.

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