As I look back at 2013, and ahead to 2014, I’m convinced that the principles guiding the Partnership to Improve Patient Care (PIPC) are more important than ever. PIPC was created to raise awareness about the value of well-designed comparative clinical effectiveness research, the important role of continued medical innovation as part of the solution to cost and quality challenges in health care, and the need to ensure that comparative clinical effectiveness research is centered on patient and provider needs to improve healthcare decision-making. In the year ahead, we’ll face new opportunities and challenges in advancing policies that support these goals
Chairman's Corner: Patients Will Compare Treatment Options, as Long as They Are Pertinent to Them9/11/2013
A new national poll sponsored by the Partnership to Improve Patient Care (PIPC) shows that public support for comparative effectiveness research remains strong, as long as it stays focused on giving patients and doctors information to support their individual health care decisions.
The findings, based on a survey of 1,500 registered voters, should be encouraging to policymakers, particularly in view of the broader public ambivalence on health care. When presented with a comparative effectiveness research institute that provides useful clinical information to doctors and patients (similar to the institute created by Congress in the Affordable Care Act), 54 percent of respondents expressed support, compared with 32 percent opposed. This support contrasts with the public’s drop in confidence in the U.S. medical system, which fell to 35 percent in a recent Gallup poll. Ever since I was young, people turned their back on me because of my disability. Down but not out, I overcame this hurdle and have gone on to devote the past 40 years of professional life to fighting for the disabled in our country. But the fight to improve the lives of people with disabilities did not end there. Today, the fight continues
On Tuesday night, PIPC Chairman Tony Coelho joined former HHS Secretary Tommy Thompson at the University of Charleston in West Virginia for a speaker series titled "Who Decides Patient Treatments" to discuss the future of health care in the United States. The discussion focused on the roles that the patient, government and insurers play in the health care system, as well as, the extent to which patients should be able to choose treatments in consultation with their physician.
This post, penned by PIPC Chairman Tony Coelho, originally appeared in the October 2010 edition of Health Affairs.
The Patient Protection and Affordable Care Act created a new phrase and concept:patient-centered outcomes research. The author of this commentary, who served as a member of the US House of Representatives from California, is also a patient with epilepsy and a patient advocate. He consulted with lawmakers in the passage of the health reform law. Here he draws on his varied experiences to provide perspective on how the law will provide the necessary policy framework for patient-centered comparative effectiveness research. Elements of that framework include the meaningful engagement of multiple stakeholders, most especially patients; acknowledgment of individual differences among patients and the importance of advancing personalized medicine; transparency and opportunities to participate; a broad, clinically focused research agenda; and the need to communicate results appropriately. |
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