The actions taken by the Patient Centered Outcomes and Research Institute (PCORI) Board of Governors at their Washington, D.C., meeting made many in the patient and health care communities more confident that the Board is working to be truly-patient centered. The Board members, with the help of the public, came up with a consensus on an improved definition for patient-centered outcomes research that focuses on how CER should be conducted in order to properly focus on patients. But despite PCORI’s efforts, some health researchers and policymakers still wish to use CER to impose coverage restrictions.
Several prominent figures have discussed patient-centered outcomes research over the past couple of weeks, including Richard Gliklich, M.D., President and CEO of Outcome, who recently posted an article on KevinMD.
Last week, the Patient-Centered Outcomes Research Institute’s (PCORI) Board of Governors held a meeting in Washington, D.C., to discuss the importance of patient centered comparative effectiveness research (CER) – also called outcomes research. Several PIPC members were in attendance, including PIPC Chairman Tony Coelho.
The Patient Centered Outcomes Research Institute met in Washington D.C., last week where several PIPC members spoke during the board’s public commenting period, including Dr. Vera R. Jackson of the Washington Chapter of the Epilepsy Foundation and Kathleen Teixeira of the American Gastroenterological Association (AGA).
WASHINGTON D.C. – In opening remarks at the Partnership to Improve Patient Care’s (PIPC) 2nd annual forum in Washington, D.C., Chairman Tony Coelho praised the steps made over the past year in achieving patient-centered comparative effectiveness research, and called for continued progress. Commenting on the creation and initial work of the Patient-Centered Outcomes Research Institute (PCORI) over the past year, Coelho said: “We appreciate the progress that’s been made, and we are looking for the progress to continue.”
The term "patient-centered outcomes research" keeps popping up these days - for example, it's used by FDA in the agency's new 5-year strategic plan. And it's been a popular term among researchers and policymakers ever since the Patient Protection and Affordable Care Act created the Patient-Centered Outcomes Research Institute (PCORI). But what exactly does it mean?
WASHINGTON D.C. – The Partnership to Improve Patient Care (PIPC) today announced the release of a white-paper on priority-setting in comparative effectiveness research (CER). The paper, "Priority-Setting for Comparative Effectiveness Research: A Review of Key Elements," is intended to help the Patient Centered Outcomes and Research Institute's (PCORI) Board of Governors as they work to establish a program for patient-centered CER
At the recent meeting of the Patient Centered Outcomes and Research Institute's (PCORI) Board of Governors in St. Louis, Andrew Sperling spoke on behalf of PIPC about the importance of establishing open, transparent procedures. Sperling, a PIPC Steering Committee member and Director of Legislative Advocacy for the National Alliance on Mental Illness, urged the Board to "err on the side of more transparency" in its operation, and noted that research priority setting will be "one of the important early duties of the Board."
WASHINGTON D.C. – The Partnership to Improve Patient Care (PIPC) today released a white paper that defines a “Procedural Framework for the Conduct of Comparative Effectiveness Research.” The paper and its executive summary provide guidance for policy-makers, patient and providers for establishing CER procedures that foster openness, transparency and patient-centeredness.
WASHINGTON D.C. – The Partnership to Improve Patient Care (PIPC) today launched the CER Inventory, an online research tool that gives researchers, providers and patients comprehensive information on federally funded comparative effectiveness research.
This post, penned by PIPC Chairman Tony Coelho, originally appeared in the October 2010 edition of Health Affairs.
The Patient Protection and Affordable Care Act created a new phrase and concept:patient-centered outcomes research. The author of this commentary, who served as a member of the US House of Representatives from California, is also a patient with epilepsy and a patient advocate. He consulted with lawmakers in the passage of the health reform law. Here he draws on his varied experiences to provide perspective on how the law will provide the necessary policy framework for patient-centered comparative effectiveness research. Elements of that framework include the meaningful engagement of multiple stakeholders, most especially patients; acknowledgment of individual differences among patients and the importance of advancing personalized medicine; transparency and opportunities to participate; a broad, clinically focused research agenda; and the need to communicate results appropriately. WASHINGTON D.C. – Tony Coelho, chairman of the Partnership to Improve Patient Care (PIPC), today participated in “Comparative Effectiveness Research Enters New Era,” a Health Affairs briefing on comparative effectiveness research (CER) that launched the publication’s CER-focused October issue.
WASHINGTON, DC – The Partnership to Improve Patient Care (PIPC) today welcomed the naming of the Board of Governors of the Patient Centered Outcomes Research Institute (PCORI) by the Government Accountability Office (GAO).
Tony Coelho argues in support of health bill’s patient-centered provisions in New York Times9/22/2010
A letter-to-the-editor from Partnership to Improve Patient Care (PIPC) Chairman Tony Coelho was recently published in the New York Times.
The letter came in response to an editorial entitled, Are Newer Medical Treatments Better? Not Always, which lamented the fact that the recently passed health care bill did not curtail “the use of unnecessary, overly costly and even dangerous new technologies and surgical procedures” by including CER findings in Medicare coverage and reimbursement decisions. WASHINGTON – This week, Tony Coelho, chairman of the Partnership to Improve Patient Care (PIPC) sent a letter to the Assistant Secretary for Planning and Evaluation at Department of Health and Human Services (HHS), Sherry Glied, urging the agency to work in close coordination with the new Patient-Center Outcomes Research Institute (PCORI) as it considers developing an inventory of comparative effectiveness research (CER). PIPC sent the letter in response to HHS soliciting recommendations on how to build a CER database.
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