In an article published in Inside Health Policy, Partnership to Improve Patient Care (PIPC) Chair Tony Coelho reacts to PIPC's absence from PCORI's roundtable on data dissemination, as well as a new poll which highlights the need to communicate research with the patient community. According to the article, "[Chairman] Coelho says PCORI is not involving enough patient representatives in PCORI's work to disseminate comparative effectiveness research findings, but a spokesperson for the Patient-Centered Outcomes Research Institute says the July 29 roundtable on CER dissemination includes representatives from patient, caregiver and consumers organizations, including a PIPC member organization. PCORI is holding a roundtable on Monday (July 29) to plan for communicating CER findings to the public, and PIPC was not invited, despite several requests to participate, Coelho says. Coehlo says the roundtable should include more patient representatives, and PCORI indicated to him that including consumer representatives satisfies the requirement to get patient input.
"PIPC recently conducted a third biennial poll from May to June, asking 1,500 registered voters their views of the health care system and insurance. Three-quarters of respondents said providing information that helps with health care decisions should be one of the priorities of communicating CER results. Coehlo says the poll demonstrates that patients must be involved in determining how to communicate research. 'Within NIH and AHRQ, the patient is outside the room and not at the table. They will talk to us , but we're not at the table. With PCORI, we have a vote and that's extremely different,' Coehlo says."
To read the entire story, PIPC: PCORI Excluding Patients From CER-Communication Roundtable, visit the Inside Health Policy website (subscription only).
To read the entire story, PIPC: PCORI Excluding Patients From CER-Communication Roundtable, visit the Inside Health Policy website (subscription only).