Other takeaways from the poll, which is publicly available at PIPCpatients.org, include:
- Americans treasure their access to personalized, quality care and fear the potential misuse of information to make coverage decisions and limit their access to the best care.
- A significant part of PCORI’s success will be getting information to the end-user, the patient and doctor, in a manner that is perceived as valuable to their health care decision-making, as opposed to being implemented in a manner that limits their choices.
- Voters favor a comparative effectiveness institute focused on providing information, not making coverage decisions. The public remains very supportive of an Institute like PCORI to provide good information to support patient and physician decision-making - despite skepticism about government in general and ACA in particular. This would suggest that, to the extent PCORI remains true to the mission and structure created by Congress, it will enjoy continued support.
- In setting goals for communicating research findings, voters prioritize accuracy, transparency and improving access to personalized and high-quality care. By very wide margins, people want good information communicated in a manner that makes it relevant to their individual health needs.
According to PIPC Chairman Tony Coelho, "These poll results reinforce the mission of PIPC to help PCORI stay focused on its patient-centered mission, and to continue to emphasize the importance of transparency, good science, and a commitment to improving the communication of useful data to practitioners and individual patients alike.” Chairman Coelho continued, “A significant part of PCORI’s success will be getting information to the end user, the patient and doctor, in a manner that is perceived as valuable to their health care decision-making, as opposed to being implemented in a manner that limits their choices.”
The poll was conducted by a leading bipartisan polling firm.
PIPC's Steering Committee is comprised of the following organizations: The Alliance for Aging Research, the American Association of People with Disabilities, the American Association of Neurological Surgeons, the American Gastroenterological Association, BIO, Easter Seals, the Epilepsy Foundation, HealthHIV, the National Association for Hispanic Health, the National Alliance on Mental Illness, PhRMA, and the American Association for Cancer Research. PIPC can also be followed on Facebook and Twitter at @pipcpatients.