July 24, 2020
Contact: Shea McCarthy
Phone: (202) 285-3866
Maria Town, President and CEO of the American Association of People with Disabilities and a member of PIPC’s Steering Committee, stated, “As we celebrate the 30th anniversary of the Americans with Disabilities Act, it is important to remember that the United States has consistently taken a stand against the use of metrics such as quality-adjusted life years (QALY) in our public health programs due to their implications for discrimination and restricted access to care for people with disabilities. We should be relying on the thoughtful recommendations from the National Council on Disability, an independent federal agency, calling on the administration to rescind its proposed international price index and to refrain from pursuing means of reducing Medicare and Medicaid prescription drug costs by modeling US pricing after the pricing in other countries, which may heavily rely on QALYs and often deny people with disabilities access to needed care. As people with disabilities fight for their lives in this pandemic, it is a time to expand access to care. Not restrict it.”
Patricia Goldsmith, Chief Executive Officer of CancerCare and a PIPC member, stated, “Health outcomes for cancer patients are substantially worse in other countries because their health systems use standards that discriminate to value treatments. The result is restricted and delayed access to cancer treatment. Yet, the White House is proposing to import those standards to the United States in the middle of a pandemic.”
For additional information about the NCD report, please visit www.ncd.gov. PIPC resources are available at www.pipcpatients.org. Additionally, organizations supporting Value Our Health have resources available at www.valueourhealth.org.