1. PCORI Board Funds Expansion Phase of PCORnet, click here to view the blog post.
2. Patients' Voices Carry: Drug Development Increasingly Driven by Patients' Needs and Concerns, click here to view the post.
3. PCORI Blog: How PCORI Chooses Research Questions to Fund, click here to view the blog post.
4. KevinMD: Do These 3 Things to Save the AHRQ from Extinction, click here to view the article.
Healthcare Informatics reported last week, “the Patient-Centered Outcomes Research Institute (PCORI) board of governors has approved spending nearly $142.5 million to support the ongoing development and expansion of PCORnet, the national patient-centered clinical research network. The funds include support to add seven new health data networks to the collaborative initiative, which is designed to link researchers, patient communities, clinicians, and health systems in research partnerships that leverage the power of large volumes of health data maintained by the partner networks. The funding awards approved July 21 will support a three-year second phase of development during which several research studies will begin.” Click here to view the article.
Following the announcement, PCORI Executive Director Dr. Joe Selby and Program Director Dr. Rachael Fleurence commented on The PCORI Blog, “Our vision for PCORnet during the next three years is to sharply ramp up capacity to serve as a platform for large-scale, patient-centered research and to conduct many high-quality studies, quickly and efficiently. Under the newly approved awards, PCORnet will expand its basic structure of CDRNs and PPRNs, again supported by the coordinating center. It will also include two PPRNs centered on communities rather than diseases.” Click here to view the blog post.
2. Patients' Voices Carry: Drug Development Increasingly Driven by Patients' Needs and Concerns
A recent post from Dentons examines patient-focused drug development as one of the “hot topics: to come out of the 2015 BIO International Convention. “At the recent BIO annual meeting, one track focused specifically upon patient-centered efforts to shape regulatory and science policy. One panelist noted that efforts that began under the Bush Administration, such as insurance reforms valuing patient-centered outcomes, and continued in the Obama Administration, including the creation of the Patient-Centered Outcomes Research Institute (PCORI) by the 2010 Patient Protection and Affordable Care Act, have resulted in a far greater role for the voice of patients than has been seen to date.” Click here to view the post.
3. PCORI Blog: How PCORI Chooses Research Questions to Fund
PCORI’s Kelly Dunham, MPP and Hal Sox, MD commented on The PCORI Blog last week, “PCORI has a broad charge: to fund research that improves the quality and relevance of evidence available to all healthcare stakeholders to help them make informed decisions. But such a goal translates into the difficult task of choosing our funding opportunities from a wide spectrum of potential research questions—What's the best treatment for hepatitis C infection? How can we reduce cardiovascular disease risk in underserved populations? Which care management strategy improves quality of life for patients with dementia and decreases caregiver burden?” Click here to view the blog post.
4. KevinMD: Do These 3 Things to Save the AHRQ from Extinction
Michael L. Millenson of Health Quality Advisors recently commented on KevinMD.com, “A House subcommittee recently voted to eliminate the Agency for Healthcare Research and Quality (AHRQ) as of Oct. 1, 2015, the start of fiscal 2016… AHRQ helps keep the sick and vulnerable safe in hospitals, and grim statistics show that wealth, education, and political clout provide no extra protection from medical error. AHRQ helps make sure the discoveries at NIH go from the bench to the bedside, whether your problem is diabetes cancer or one of those infections the CDC is trying to prevent. Even more important, an AHRQ program a day keeps the doctor away, whether it's because of preventive care that improves health or preventing inappropriate and unneeded operations.” Click here to view the article.