1. Save the Date: PIPC’s Patient Empowerment Webinar, see details below.
2. PIPC Comments on PCORI Dissemination and Implementation Action Plan, click here to view.
3. PCORI Seeking Nominations to Advisory Panels, click here to view the post.
4. Midland Daily News: Call to Action: Patient Centered Care, click here to view the full article.
5. Bloomberg: PCORI's Board Backs Efforts To Fund Hepatitis C Treatment Research, click here to view the article (subscription required).
6. The Health Care Blog: Health Care Registries: Powerful Tool, Narcoleptic Name, click here to view the post.
7. Medical Journal Articles, see details below.
8. AHRQ Effective Program Updates, see details below.
Please join PIPC for an innovative webinar on Tuesday, January 20 at 2:00pm EST to discuss the importance of patient empowerment. As lawmakers in Washington seek to build a “patient-centered healthcare system,” hear from real patients and health policy experts who will examine what decisions are being made, and how it could impact people like you. Additional details will be available on the PIPC website soon!
Kindly RSVP to firstname.lastname@example.org.
2. PIPC Comments on PCORI Dissemination and Implementation Action Plan
On December 19, 2014, PIPC responded to the specific questions posed by Mathematica to the public regarding its draft Dissemination and Implementation Action Plan for PCORI. Click here to view. PIPC made the following recommendations to Mathematica:
It should be the explicit goal of dissemination to better support shared decision-making between patients and providers.
With regard to implementation, we would urge PCORI to be vigilant in following the guidance of its authorizing statute. PIPC would emphasize that implementation of research must also include strong protections against the “one-size fits all” coverage policies that are often the unintended consequences of clinical guidelines and performance measures.
PIPC urges the Institute to establish principles based on which it will assess the appropriateness of individual studies for targeted dissemination activities through a public notice-and-comment process.
Just as PCORI is required to provide notice and comment on its national priorities and research agenda, PIPC would strongly recommend that the public be given an opportunity to weigh in on the dissemination strategies within priority topic areas.
PCORI should provide additional details on how the Peer Review Process—through which all research reports will be made public—will interface and function seamlessly with the dissemination process.
We would propose that PCORI’s engagement activities would be simpler and more effective if the Institute were to identify partners for dissemination prospectively and simultaneous to the identification of priority topics for research.
We would urge PCORI to identify its priority topics (from both the investigator-initiated process, and from its advisory panel process) so that dissemination subcommittees can be established as soon as possible consistent with those areas of research.
We would also strongly recommend that the dissemination subcommittees not be limited to membership from within the broader Dissemination Advisory Panel.
Although the specific activities and tactics may differ by research project, we urge AHRQ to more effectively use its PCOR Trust Fund dollars to support the activities and strategies identified as most effective by patients and providers who will ultimately be relied upon to demonstrate the credibility and usability of the research being disseminated.
3. PCORI Seeking Nominations to Advisory Panels
Last week, the Patient-Centered Outcomes Research Institute (PCORI) announced that it is accepting nominations for its Advisory Panels for terms beginning in 2015. We urge you to help PCORI identify great candidates!
Specifically, it is seeking nominations to fill:
•Up to four positions on the Assessment of Prevention Diagnosis, and Treatment Options panel;
•Up to five positions on the Improving Healthcare Systems panel;
•Up to six positions on the Addressing Disparities panel;
•Up to six positions on the Patient Engagement panel, including caregivers and patient organizations; and
•One position on the Rare Diseases panel.
The Panels are seeking patients (including patient representatives and caregivers), clinicians, researchers, industry representatives, and payers to advise PCORI on the issues listed above. Terms are three years except for on the Rare Diseases panel where they are one to two years. Panelists are expected to follow the PCORI's Conflict of Interest Policy and to attend two to four in-person meetings in Washington, D.C. and additional meetings remotely. Applications are due February 6, 2015. Click here to view the announcement.
4. Midland Daily News: Call to Action: Patient Centered Care
Last week, Ms. Vic Southern contributed a piece to the Daily News. "The gradual move to patient centered care has shifted decision responsibility from the doctor to you and your loved ones. Rapid advances in medicine, care options and technology has mandated that the buyer be aware. You are now the focal point for coordinating your care, communicating with and setting appointments with all of your doctors, and learning and knowing your medications by whatever names they may be called. You need to practice preventive measures, take action to ensure you are getting vaccines, learn the details of health issues you or your loved ones experience, speak up and ask questions of the health care providers and keep asking until you understand the impact." Click here to view the full article.
5. Bloomberg: PCORI's Board Backs Efforts To Fund Hepatitis C Treatment Research
Bloomberg BNA reported last week, “[PCORI Executive Director Joe Selby] said in a blog post ahead of the PCORI board meeting that if the HCV research funding is approved, it will create ‘a cluster of critical studies that will help patients, clinicians, healthcare systems, and payers develop a sound approach to identification and optimal management of this challenging chronic condition.’” Click here to view the article (subscription required).
6. The Health Care Blog: Health Care Registries: Powerful Tool, Narcoleptic Name
In a post last week, Ben Wheatley of The Health Care Blog writes, “Registries collect observational data—the real-world outcomes and experiences of patients who have received medical care. This world is often contrasted with the ideal-world of clinical trials. In randomized controlled trials—the gold standard of research—complex patients, such as older adults and people with multiple medical conditions, are often excluded from studies. This can make the research findings more rigorous, but less relevant.” Click here to view the post.
7.Medical Journal Articles
Comparative Effectiveness of Intravenous vs Oral Antibiotics for Postdischarge Treatment of Acute Osteomyelitis in Children: Click here to view.
Areas of Addressable Friction for the Adoption of Greater Healthcare Affordability: Insights from US Physicians: Click here to view.
"Appropriate" Diagnostic Testing: Supporting Diagnostics with Evidence-Based Medicine and Shared Decision Making: Click here to view.
Entecavir vs Lamivudine for Prevention of Hepatitis B Virus Reactivation Among Patients With Untreated Diffuse Large B-Cell Lymphoma Receiving R-CHOP Chemotherapy: Click here to view.
The Patient-Centered Outcomes Research Institute: Research Done Differently: Click here to view.
8. AHRQ Effective Program Updates
Environmental Cleaning for the Prevention of Healthcare-Associated Infections (HAI): Click here to comment by January 12, 2015.
Genetic Testing for Developmental Disabilities, Intellectual Disability and Autism Spectrum Disorders: Click here to comment by January 12, 2015.
Therapies for Clinically Localized Prostate Cancer: Update of a 2008 Systematic Review: Click here to view the final report.