1. PIPC Welcomes New Signatures on Letter to HHS Seeking Patient Engagement, click here.
2. Epilepsy Foundation Leader Appointed to Research Institute's Multi-Stakeholder Advisory Panel, click here to view the press release.
3. The Health Care Blog: Value-Based Care's Data Problem, click here to read the blog post.
4. PCORI Blog: Developing Methods to Engage Patients and Other Stakeholders in Research Prioritization, clickhere to view the blog post.
5. American Journal of Managed Care: Implementing a Learning Healthcare System, click here to view the article.
6. Video: The Importance of Patient-Centered Oncology Care, click here to view the video.
The Partnership to Improve Patient Care (PIPC), along with over 70 individual patients and patient organizations—themselves representing millions of patients nationwide—sent a letter to the Department of Health and Human Services (HHS) asking them to recognize patients as key stakeholders in the Better, Smarter, Healthier initiative and in the Health Care Payment Learning and Action Network. First, PIPC welcomes additional signatures on the letter and will publish an updated signature list for HHS in early June to demonstrate the enthusiasm of patients to be engaged in their work. Second, PIPC urges patients and patient organizations to join the Network and to seek leadership positions for patients among its committees as they are being established.
While most patient stakeholders agree that paying for “value” rather than “volume” will result in better outcomes for patients, the shift to value-based payment holds significant implications for the patient-centeredness movement and the related issues of patient access and the physician-patient relationship. That’s why it’s important that patients have a seat at the table in determining how these new payment models are implemented.
In response to our letter, the Department of Health and Human (HHS) services issued a letter affirming that "patient engagement will be critical to the success of meeting our goals."
Dr. Conway, the Acting Principal Deputy Administrator of CMS, states his appreciation for the recommendation that HHS review the patient engagement methodologies developed by the FDA and by PCORI, and states that "we will consider these patient engagement strategies and other bast practices across HHS." We look forward to continuing to engage with HHS on strategies that ensure the patient voice is front and center.
2. Epilepsy Foundation Leader Appointed to Research Institute's Multi-Stakeholder Advisory Panel
According to a recent press release, Dr. Janice Buelow, vice president of programs and research at the Epilepsy Foundation, a member of PIPC, “has been selected by the Patient-Centered Outcomes Research Institute (PCORI) as one of the first members of PCORI's new Advisory Panel on Communication and Dissemination Research. Dr. Buelow and the other 20 new panelists will apply their experience and expertise to advising PCORI, a nonprofit research funding institution, on its priorities for funding research to determine how best to communicate and disseminate clinical study results so that they are more quickly and effectively used to improve patient care. The 21 panelists were selected from 135 applicants on the basis of their experience, expertise, and ability to contribute to the panel's advisory tasks and responsibilities. In addition, they were selected to ensure representation of a broad range of healthcare stakeholder groups and perspectives, including people with health conditions, family caregivers, clinicians, drug and device makers, and researchers, among others.” Click here to view the press release.
3. The Health Care Blog: Value-Based Care's Data Problem
In a post on The Health Care Blog, Rachel Katz comments, “administrative costs will continue to rise, along with another generation of frustrated physicians and admins. Moreover, value-based care could be deemed a failure not because it's a bad idea but because of poor implementation. Instead of putting patients at the center of care, it could breed more bureaucracy and force doctors to spend more time reporting on metrics and less time with patients. We can address these issues and we must to give value-based care a chance at moving the US toward more patient-centered, less exorbitant healthcare.” Click here to read the blog post.
4. PCORI Blog: Developing Methods to Engage Patients and Other Stakeholders in Research Prioritization
On The PCORI Blog, PCORI’s Katherine McQueston, MPH and Andrea Heckert, PhD, MPH comment, “in recent years, we've seen greater efforts to generate evidence that can more directly inform day-to-day practice. We've also seen the research community, in response to expressions of interest by patients and others within the healthcare community, increasingly include these stakeholders in the process of identifying and prioritizing research questions. Indeed, such an approach is a core commitment at PCORI and in the studies we fund. What is still lacking, though, is an established body of research on the best mechanisms for involving stakeholders in this process, so the researchers, patients, and other stakeholders can look to solid guidance on how to make the research process more patient-centered from the start.” Click here to view the blog post.
5. American Journal of Managed Care: Implementing a Learning Healthcare System
According to an article in The American Journal of Managed Care, “the healthcare industry needs a more crystal clear understanding of the factors important to patients, clinicians, and health systems and where they align, so the learning healthcare system can be treated as a competitive advantage, said [Sarah Greene, MPH]... She also took the time speak about PCORnet... The goal of PCORnet is to create a different research infrastructure through things like using very pragmatic trial designs that close the gap between research and real-world context, and primarily using electronic health record data rather than claims data.” Click here to view the article.
6. Video: The Importance of Patient-Centered Oncology Care
In a short video from The American Journal of Managed Care, Peter P. Yu, MD, president of the American Society of Clinical Oncology discusses ‘crossing the chasm’ that appears between providers and the rest of the healthcare world, including payers and hospital administrators.” Click here to view the video.