1. PIPC Holds 4th Annual Forum on Disseminating Comparative Effectiveness Research, see details below.
2. PIPC Releases White Paper on “Road Map for Prioritizing Research,” click here to view the White Paper.
3. National Patient Safety Foundation Adds PCORI to Corporate Council, click here to view the press release.
4. PCORI Blog: Addressing a Major Health Challenge, click here to view the blog post.
5. PCORI Blog: Why Partnering with Patients and Families Can Improve Health Care, click here to view the blog post.
6. Video: NEHI: "Comparative Effectiveness Research: Where Are We and Where Are We Going?,” click here to view the first panel, and here to view the second panel.
7. NEHI Panel Discusses Big Data, Patient-Centered Outcomes Research, click here to view The Pink Sheet article, and here to view the Healthcare Informatics article.
Last week, the Partnership to Improve Patient Care (PIPC) held its 4th Annual Forum in Washington, DC to explore how comparative effectiveness research (CER) entities can change the culture of research to be more patient-centered. The Forum, held at the Reserved Officers Association Building on Capitol Hill, featured a panel of highly respected thought-leaders who shared insights on the progress of the Patient-Centered Outcomes Research Institute (PCORI) in engaging stakeholders to identify research priorities, discuss patient-centered dissemination strategies, and explore the application of usability criteria throughout the research process.
Panelists included Dr. Hal Sox, Senior Advisor to PCORI, Dr. Bryan Luce, Chief Science Officer, PCORI, Marc Boutin, Executive Vice President and COO, National Health Council, Dr. Darius Tandon, Co-Chair, PCORI Advisory Panel on Patient Engagement and Associate Director, Center for Community Health at Northwestern University Feinberg School of Medicine, and Dr. Tanisha Carino, Executive Vice President, Avalere. The panel was moderated by the Honorable Tony Coelho, who serves as the chairman of PIPC.
2. Releases White Paper on “Road Map for Prioritizing Research”
Last week, PIPC released a White Paper outlining a “Road Map for Prioritizing Research” which called upon PCORI to implement changes in the culture of research, through an open and transparent process, in order to meet its mandate to conduct patient-centered comparative clinical effectiveness research. To help PCORI achieve this goal, PIPC has developed a priority-setting “road map” that:
• Calls on PCORI to establish a targeted research agenda based on a broad and structured solicitation of topics from patients and providers;
• Directs PCORI staff to evaluate and distill the suggested research topics to ensure research topics meet PCORI’s mandate of patient-centeredness and the statutory criteria for research;
• Develops a rationale and topic brief for research topics to provide both the PCORI board and the public with a clear and transparent understanding of PCORI’s research agenda;
• Utilizes the relevant clinical expertise (both within and beyond PCORI’s advisory panels) to help rank the topic list;
• Ensures the opportunity for public comment on the draft priority list and research agenda;
• Provides for input and approval by Board of Governors; and
• Promotes transparency of the priority-setting process in its entirety.
Click here to view the Executive Summary, and here to view the White Paper.
3. National Patient Safety Foundation Adds PCORI to Corporate Council,
According to a press release, “The National Patient Safety Foundation (NPSF) is pleased to announce new members of the NPSF Corporate Council: Metrasens, BD (Becton, Dickinson and Company), Covidien, and the Patient-Centered Outcomes Research Institute (PCORI) have joined the Council in 2013. The NPSF Corporate Council comprises organizations from across health care that share a deep commitment to patient safety. The Council provides a forum by which these organizations collaborate with NPSF to accelerate the understanding and advancement of the patient safety mission and work.” Click here to view the press release.
4. PCORI Blog: Addressing a Major Health Challenge
Bryan Luce, PCORI’s Chief Science Officer, comments on The PCORI Blog, “We believe that seeking to improve outcomes in diabetes offers us an ideal opportunity to show the value of our commitment to engaging patients and those who care for them in the comparative effectiveness research we fund. Our research portfolio seeks to bridge the gap between historical approaches to research and our strong belief that funding studies that answer questions important to patients and those who care for them will improve outcomes over time.” Click here to view the blog post
5. PCORI Blog: Why Partnering with Patients and Families Can Improve Health Care
In a post on The PCORI Blog, Sue Sheridan, PCORI Director of Patient Engagement, and Christine Bechtel, former Vice President at the National Partnership for Women & Families, comment, “The Patient-Centered Outcomes Research Institute (PCORI) is committed to patient engagement in both the research it funds and the way it operates...However, without the active involvement of stakeholders across the healthcare community, the road to making patients and their caregivers true partners in research and care will be long and arduous. Fortunately, there is growing interest in such collaboration. One example is an IOM-sponsored workshop in which PCORI, the National Partnership, and other leading healthcare, consumer, and patient organizations explored ways to advance patient and family engagement meaningfully in the healthcare system.” Click here to view the blog post.
6. Video: NEHI: "Comparative Effectiveness Research: Where Are We and Where Are We Going?"
Recently, the New England Healthcare Institute (NEHI) held a roundtable to discuss the state of comparative effectiveness research. The first video “features opening remarks by NEHI Executive Director Valerie Fleishman and Dr. David Gollaher, CEO and President of California Healthcare Institute (CHI). Opening remarks are followed by the first panel - moderated by Dr. Cliff Goodman of The Lewin Group - ‘Taking Stock: The Current State of CER and Innovation’ featuring Dr. Anne Beal of PCORI, Marc Boutin of the National Health Council, John Castellani of PhRMA, Jack Lasersohn of The Vertical Group, Dr. Sharon Levine of The Permanente Medical Group, Dr. Theodore Lystig of Medtronic and Jean Slutsky of AHRQ.” Click here to view the video.
A second video features a panel “moderated by Dr. Cliff Goodman of The Lewin Group - ‘Looking Ahead: How Will Innovation Be Influenced by Changing Trends in CER and the Use of Analytics?’ featuring Dr. Erin Holve of AcademyHealth, Dr. Eric Perakslis of Harvard Medical School, Dr. Richard Platt of the Harvard Pilgrim Health Care Institute, Dr. Alan Rosenberg of WellPoint and Dr. Michael Rosenblatt of Merck- as well as closing remarks by NEHI Executive Director Valerie Fleishman.” Click here to view the video
7. NEHI Panel Discusses Big Data, Patient-Centered Outcomes Research
Reporting on last week’s New England Healthcare Institute (NEHI) roundtable, Cathy Kelly of The Pink Sheet reports, “Comparative effectiveness research can be conducted using large observational datasets, but there are a number of challenges involved, according to Harvard's Richard Platt...‘The hard truth is that doing [comparative effectiveness research] in big data is harder than doing medical product safety studies using big data,’ Platt commented...‘I think we've gotten to something like consensus that done right, these data can support meaningful observational analysis of safety,’ he continued. ‘Done right, that will also be true of CER, but it will be harder.’” Click here to view the article (subscription only).
Further, David Raths of Healthcare Informatics comments, “It's becoming clear that done right, big data can support meaningful observational analyses about patient safety, [Richard Platt, M.D., M.S.] said. ‘Done right, that will be true of comparative effectiveness research, but it will be harder,’ he added. There has been significant progress, he noted, with both the Agency for Healthcare Research and Quality (AHRQ) and the Patient-Centered Outcomes Research Institute (PCORI) putting money into it. ‘The future will be terrific,’ he said.” Click here to view the article.