1. STAT: Paving the Way to a Patient-Centered Approach in Health Care, click here to read the article.
2. OP-Ed: Now That’s a Patient-Centered Value Framework, click here to read the op-ed.
3. The PCORI Blog: Pathways to Partnership – Helping Patients and Researchers Communicate, click here to read the blog.
4. Learn About the ACR Arthritis Foundation Patient Representative Program, click here to read the blog
5. Aging.com: Helping You Navigate Your Veteran Benefit Options, click here to view the guide.
6. CMS Releases RFI on New Direction for CMMI - Comments Due November 20! Click here to view the RFI.
7. CMS Measure Development Education and Outreach Series, see details below
8. Epilepsy Foundation: 2017-2018 AAHD Frederick J. Krause Scholarship on Health and Disability, click here to apply.
9. Upcoming Events and Webinars, see details below
10. Medical Journal Articles, see details below.
11. AHRQ Effective Program Updates, see details below.
Marc Boutin explains that delivering “truly patient-centered results” involves providing individuals with the information they need to select the treatment most closely meets with their specific needs in STAT News. “...Instead of focusing solely on investigator-initiated research ideas, PCORI focuses on research that patients, family caregivers, and other stakeholders have identified as meaningful, relevant, and useful to them. The end result, patient-centered outcomes research, can help inform the practice of medicine, the delivery of care, the design of health insurance, and how we develop new treatments to truly meet the needs of patients and their families. PCORI's emphasis on patient engagement has created a sea change that is rippling through the entire health care continuum.” Click here to read the article.
2. OP-Ed: Now That’s a Patient-Centered Value Framework
In NJSpotlight, Debbie Hart and Robert Goldberg criticize value frameworks that steer patients to the least expensive products, rather than steering them to affordable care that is tailored to their specific needs. NJ Spotlightcomments that increasing the number of healthy people working, going to school, investing, and contributing to society will actually save healthcare costs and ensure a robust insurance system.” Click here to read the op-ed.
3. The PCORI Blog: Pathways to Partnership – Helping Patients and Researchers Communicate
Bill Shuttleworth, and Pari Noskin stress the need for effective patient-researcher communication in The PCORI Blog. “...We want to change this dynamic and improve patients' health and experience. Our goal is to improve brain and behavioral health for all New Mexicans through research better informed by, and more responsive to, their needs. Through a Eugene Washington PCORI Engagement Award, we implemented a program to improve communication and collaboration skills between two groups: University of New Mexico researchers and clinicians, and community stakeholder groups of patients, family members, advocates, and others. Click here to read the blog.
4. Learn About the ACR Arthritis Foundation Patient Representative Program
The Arthritis Foundation is partnering with the American College of Rheumatology (ACR) to pilot an Arthritis Foundation Patient Representative program. “...Encouraged and facilitated by entities like the Patient-Centered Outcomes Research Institute (PCORI), academic and clinical professional societies are beginning to adopt more patient-engaged strategies as well, like the inclusion of patient representatives at annual meetings and scientific conferences. In 2017, the Arthritis Foundation is partnering with the American College of Rheumatology (ACR) to pilot an Arthritis Foundation Patient Representative program (#AFPatientReps), bringing a cadre of ten highly involved, engaged patients to attend and participate in #ACR17, the ACR/ARHP annual meeting.” Click here to read the blog.
5. Aging.com: Helping You Navigate Your Veteran Benefit Options
The National Council for Aging Care has published a guide that helps Veterans navigate the complexities of their benefit options. “The U.S. is seeing a growing number of seniors who are also armed services veterans. The current median age for living Americans who served in the Korean War is 69. The Vietnam veteran population makes for a new crop of seniors with special needs – including medical issues that sometimes do not present until years later. The latest U.S. Census brief puts the number of veterans over 65 at over 12.4 million. If you have served in the military during wartime, chances are that you’ve taken advantage of education programs, career resources, and home loans available to you. But while those life issues may be behind you, there is a host of other resources to know about in your retirement years.” Click here to view the guide.
6. CMS Releases RFI on New Direction for CMMI - Comments Due November 20!
The Centers for Medicare and Medicaid Services (CMS) issued a Request for Information (RFI) seeking insights on a new direction to promote patient-centered care and test market-driven reforms that empower beneficiaries as consumers, provide price transparency, increase choices and competition to drive quality, reduce costs, and improve outcomes. In response, the Chairman Tony Coelho of the Partnership to Improve Patient Care (PIPC) applauded CMS and Administrator Verma for making strong statements in support of patients and patient-centered care, and releasing an RFI to set a new direction for the Center for Medicare and Medicaid Innovation that supports patients, caregivers and people with disabilities. PIPC has long advocated for CMMI to engage patients and people with disabilities early in the development of patient-centered demonstrations that have the potential to improve patient outcomes while lowering costs. As part of the effort to move CMMI in a new direction, Chairman Coelho urges CMMI to establish meaningful mechanisms for patients and people with disabilities to engage in the development of these models. He also urges CMS to develop meaningful patient-centeredness criteria that would enable CMMI and the public to determine whether APMs are truly putting patients first. PIPC is reviewing the RFI in more detail and looks forward to working with CMMI on a new direction that puts patients at the center. Additional information on PIPC’s recommendations for patient engagement and patient-centeredness at CMMI can be found here. Click here to view the RFI. Comments are due November 20, 2017.
7. CMS Measure Development Education and Outreach Series
The Centers for Medicare and Medicaid announced that they are seeking participants for the Measure Development Education and Outreach series, specifically for stakeholders invested in the Quality Payment Program (QPP) quality measurement development. “In partnership with our Measure Management System (MMS) contractor, Battelle, CMS will be hosting a monthly series of educational presentations on the measure development process and related topics that will include the opportunity for open discussion on measure development with CMS and your peer organizations. In addition to these education and outreach sessions, we are also offering groups currently developing QPP quality measures an opportunity to share your proposed measures and measure concepts with CMS through a spotlight series.” Contact MMSsupport@battelle.org if you are interested in participating.
8. Epilepsy Foundation: 2017-2018 AAHD Frederick J. Krause Scholarship on Health and Disability
The American Association on Health and Disability’s Frederick J. Krause Scholarship on Health and Disability is currently accepting applications. The scholarship honors Frederick J. Krause, a lifelong advocate for those with disabilities who passed away in 2014. Beginning with his role as a special education teacher, Mr. Krause’s distinguished career in advocacy included service in the federal government and the cofounding of the American Association on Health and Disability. The scholarship pays tribute to Mr. Krause by awarding scholarships to students with disabilities that are pursuing an education on disability-related topics. Click here to apply. Deadline: November 15, 2017.
9. Upcoming Events and Webinars
PCORnet Best Practice Sharing Session – PCORnet Commons Tools for Electronic Consent Workgroup Webinar Series: Part 2. Best Practices
November 13, 2017
Click here for details.
NPC @ 13th Annual Personalized Medicine Conference
November 14-16, 2017
Click here for details.
PCORI Online Application Submission Webinar for Cycle 2 2017 Targeted PFAs
November 15, 2017
Click here for details.
Webinar: ”Real-World Evidence: Proven Results in Pressure Injury Prevention”
November 16, 2017
Click here for details.
PCORI Board of Governors Meeting
November 21, 2017
Click here for details.
The Next Wave in Adaptive Biomedical Innovation: Advancing Platform Trials into End-to-End Rapid Learning Systems
December 12-13, 2017
Click here for details.
10. Medical Journal Articles
The Role of Condition-Specific Preference-Based Measures in Health Technology Assessment, click here to view.
Hospital Cost Impact of Orbital Atherectomy with Angioplasty for Critical Limb Ischemia Treatment: A Modeling Approach, click here to view.
Real-World Evidence: Useful in the Real World of US Payer Decision Making? How? When? And What Studies? Click here to view.
Targeted Identification of Adverse Events in Coronary Artery Disease Patients Based on Patient-Reported Outcomes, click here to view.
Use of Patient-Reported Outcomes and Satisfaction for Quality Assessments, click here to view.
Patient-Reported Outcomes in Cancer Care — Hearing the Patient Voice at Greater Volume, click here to view.
Comparing Levels of Evidence Between Choosing Wisely and Essential Evidence Plus, click here to view.
Low-Cost, High-Volume Health Services Contribute The Most To Unnecessary Health Spending, click here to view.
Scale Linking to Enable Patient-Reported Outcome Performance Measures Assessed with Different Patient-Reported Outcome Measures, click here to view.
Should Clinically Meaningful Outcomes in Cancer Be Based on Individual Survival Rather than Median Overall Survival? Click here to view.
Extending the Reach of Evidence-Based Medicine: A Proposed Categorization of Lower-Level Evidence, click here to view.
11. AHRQ Effective Program Updates
Management of Insomnia Disorder - Consumer and Clinician Summaries, click here to view
Harms of First-Line Depression Treatment in Older Adults, click here to view.
Management of Renal Masses and Localized Renal Cell Carcinoma: Current State of the Evidence - Clinician Summary, click here to view.
Stroke Prevention in Atrial Fibrillation Patients: A Systematic Review Update, click here to view.
Venous Thromboembolism Prophylaxis in Major Orthopedic Surgery: Systematic Review Update, click here to view.
Nonsurgical Treatments for Urinary Incontinence in Adult Women: A Systematic Review Update -- Research Protocol, click here to view.
Drug Therapy for Early Rheumatoid Arthritis in Adults – An Update -- Research Protocol, click here to view.
Psychological and Pharmacological Treatments for Adults with Posttraumatic Stress Disorder (PTSD): A Systematic Review Update -- Research Protocol, click here to view
Tympanostomy Tubes in Children with Otitis Media -- Final Report, click here to view
Treatment of Osteoarthritis of the Knee: An Update Review -- Final Report, click here to view.
Assessment Tools for Palliative Care -- Final Report, click here to view.
Noninvasive, Nonpharmacological Treatment for Chronic Pain, click here to view.
The Role of Immunotherapy in the Treatment of Asthma, click here to view